Re: Will you help Dr. Marsha ?

[Guest guest]

Done!!- Chris/Mom of 4S From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of tinnitusdoctorSent: Thursday, June 07, 2012 11:19 AMTo: Soundsensitivity Subject: Will you help Dr. Marsha ? Hi this is Marsha , can you all go tohttps://walk.ata.org/team-finderAnd support my team, Dr. 's Joyful s?I would sure love a donation for the ATA. All auditory research might be helpful for those with other auditory disorders, do you see that?Marsha

[Guest guest]

Wouldn't it be awesome if the Audiologists could create an event specifically

for 4S/Misophonia?

BTW - I think we should consider using terminology as follows:

Soft Sound Sensitivity Syndrome/Misophonia or 4S/Misophonia.

(Not " selective " .) And as a subset of Misophonia which is still " diagnosed " as

a subset of Hyperacusis 388.42

There's been some confusion and I think we could and should distinguish

ourselves from Misopohonia in general. I think we could do this before we get

any further.

>

> Hi this is Marsha , can you all go to

>

> https://walk.ata.org/team-finder

>

> And support my team, Dr. 's Joyful s?

>

> I would sure love a donation for the ATA. All auditory research might be

helpful for those with other auditory disorders, do you see that?

>

>

>

> Marsha

>

[Guest guest]

FWIW, I have preferred the " Selective SSS " version of 4S. " Soft " is an unclear

term in that I don't know whether it means " opposite of loud sounds " or

" opposite of hard sounds " . Many common triggers are hard sounds (typing, heels,

barking dogs, stomping on ceilings, eating crunchy food), and seem excluded from

" Soft SSS " . Triggers can also be loud - volume is irrelevant. Whereas " Selective

SSS " has always made sense to me because only some sounds are a problem and not

others. That was always the bizarre thing about it and a difficult thing for

others to understand - it's only about a specific (but expanding) collection of

sounds while all other sounds are fine.

Liesa

> BTW - I think we should consider using terminology as follows:

>

> Soft Sound Sensitivity Syndrome/Misophonia or 4S/Misophonia.

>

> (Not " selective " .) And as a subset of Misophonia which is still " diagnosed "

as a subset of Hyperacusis 388.42

>

> There's been some confusion and I think we could and should distinguish

ourselves from Misopohonia in general. I think we could do this before we get

any further.

[Guest guest]

Hi Margaret,

Dr J wrote an article on 4S in which she included the results of surveying a

self-selected group of 100 people (from this site?) - 72% were female and 28%

male.

http://audiology.advanceweb.com/Article/Selective-Sound-Sensitivity-Syndrome.asp\

x

Speaking for myself, I have never noticed any influence of female-related

hormones on 4S symptoms. However, I also don't get PMS. Do women noting a

hormonal effect on 4S also experience an effect on mood in general?

Liesa

>

> Hi Mike,

>

> I brought up a point this week but I still don't have an answer; many women

have brought up hormones and the link between miso and hormones.  Granted,

there may also be a link.  But what about men; what is the proportion of males

vs female with the condition?  Anyone have any stats?

>

> Margaret

[Guest guest]

I agree that " soft " doesn't define it for me like " selective " does. The volume

of the sound is irrelevant. I recently observed, while I was being triggered by

my neighbor's bass, that playing the TV louder helped in that it made me focus

on the show rather than the trigger, but in commercials, even among the noise, I

could isolate the trigger sound and it would continue to upset me. Other times,

the trigger has been loud, like when I visited a restaurant/club where they

tried to compensate for the lack of clientele by blasting the music to the point

that I could physically feel my heart jumping around. I had to get out of there

pronto.

And as I've noticed from a few other threads here, other sensitivities do seem

to correlate with 4S, but I don't think that necessarily makes all the

sensitivies together a single condition, bc not everyone with 4S also has

sensitivity with texture or visuals or whatnot. I think 4S is a subset of

" excess sensitivity " , if that could be termed a " condition " for the sake of

argument. And as has been alluded elsewhere, there seem to be some link between

4S, other sensitivities, and the autism spectrum. Since autism itself is still

so little understood, I think we have a whole ball of wax out there that will

take a long time to unravel and understand.

> > BTW - I think we should consider using terminology as follows:

> >

> > Soft Sound Sensitivity Syndrome/Misophonia or 4S/Misophonia.

> >

> > (Not " selective " .) And as a subset of Misophonia which is still " diagnosed "

as a subset of Hyperacusis 388.42

> >

> > There's been some confusion and I think we could and should distinguish

ourselves from Misopohonia in general. I think we could do this before we get

any further.

>

[Guest guest]

I am one that does not have any other sensitivity other than 4S/Miso.

>

> Just curious…is there anyone here who does not have at least one other

sensitivity besides 4S/Miso, such as visual (movement or light), smell, touch?

>

>