Guest guest Posted June 6, 2012 Report Share Posted June 6, 2012 My daughter is 15 years old. She has a chromosomal abnormality called s Syndrome. Due to this her ovaries do not function. She has been taking a hormone replacement (birth control pill) for approx. 18 months. In March her psoriais flared, she had a bout of vomitting and then presented with red "blotches" on her lower legs. On 4/6/2012 her lower legs swelled. Since then it's been a roller coaster! Several rounds of bloodwork...her SED rate was very high. She's had a persistent dry cough, a fever off and on, legs, feet and ankles swollen. Both the rheumatiologist and dermatologist diagnosed EN caused by the birth control pill. I spoke with her endocrynologist and we stopped the pill. That was approx. 17 days ago. The swelling in her legs is gone. Her ankles and feet do still swell though not as badly. Unfortunately she is having hot and cold flashes due to the lack of hormones. Her coughing and the fever are still ongoing. Her fever may be down in the morning and 101 degrees by evening. She has been taking 600 mg. of motrin/6hrs. per the dermatologist. Her fever does respond to this. She was also found to be anemic and takes an iron supplement daily. She has also taken two rounds of oral steroids. The EN did respond to the steroids but returned within days of her finishing the steroids. Her psoroiasis is currently under control. Today she is having more bloodwork done and also is getting a chest CT scan. The rheumatologist is trying to find the cause of the cough. She has mentioned Sarcoidosis. If anyone can shed some light on this it would be greatly appreciated. Are a cough and fever often associated with EN? Thank You,A very concerned mother Quote Link to comment Share on other sites More sharing options...
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