Re: My daughter just started NFB

[Guest guest]

C H , THANKS FOR POSTING YOUR THOUGHTS,INSIGHTS, KNOWLEDGE, ABIOUT YOU AND YOUR DAUGHTER,,,ANY AND ALL INFO. IS HIGHLY APPREICIATED..I TOO HAVE A 10 YEAR OLD, THAT IS IN THE BEGINING STAGES OF THIS HORRIBLE COND...I TOO HAVE MISO.. IVE READ CLYES POST AND CONTINUE TO DO SO.. WITH GREAT RESPECT... I BELEIVE THIS IS (WHY) THIS SITE WAS CREATED.. IF NOT OTHER ALTERIOR MOTIVES..( WICH I HOPE IS NOT THE CASE)SO PLEASE CONTINUE TO POST HERE... THANKS GOD BLESS AND GOOD LUCK WITH YOUR DAUGHTER.. JASON

Subject: RE: Re: My daughter just started NFBTo: "Soundsensitivity" <soundsensitivity >Date: Sunday, August 5, 2012, 10:24 AM

Hello Dr. J. I believe your ire/aggravation with Clyle should actually be directed at me for this one. I posted about my daughter's first neurofeedback session on the google Misophonia Support group. I debated about posting anything on this group in light of recent events here. I made the conscious decision to go ahead with my posting here because I wanted the chance to "pay it forward". I have lurked here for sometime gathering a wealth of information from other people's postings. I never really posted anything because I felt I had nothing worthwhile to contribute...except a ton of Thank You's. Previous to yesterday, I had only ever posted once to this group. It was to let you know that the article in Reader's Digest that mentioned misophonia was in the March not February issue. I felt that was a small way I could contribute. I have a debt of gratitude to this site. I thought if my posting could

touch even one parent lurking out there and struggling to help their child, then it would be worth any backlash that resulted. I know in my heart that Clyle posted the contact info for Dr. Lyle with the simple intention of helping me and my daughter. Clyle provided the information so my daughter's practitioner could contact his practitioner to share information. I had stated that my daughter's practitioner had never treated a misophonia patient. If my daughter's practitioner could be better educated on what protocols worked and did not work, then there was potential for my daughter to receive a better quality of care. What parent would not want this for their child? I am very appreciative that Clyle came forward to help me. So as I see it this whole issue is my fault....this one is all on me. Dr. J. if your wish is for me not to post on this site concerning my daughter's neurofeedback treatment, I will refrain in the future from

making any reference to it. Please know that my only intention in any post I have made or will make here is to possibly make a difference to some parent lurking here (as I did) trying to educate him/herself in order to do the best they can by their miso child. I would like to end this note on an up beat, so I have a couple more things to add. These do pertain to my daughter's NFB assessment. I am now so elated to have been able to hear my daughter express some insight into what she has been going through the past 14 years during the question part of her assessment. I am almost giddy at the fact that I was able to speak up in that meeting to help clarify some of my daughter's statements so the doctor could fully understand what she was trying to say. I was only able to do so because of my education through this site. I believe my support of my daughter during that meeting

has had a positive impact on our relationship. She sees that I finally understand....a little. I love my daughter more than words can say, and I will do everything in my power to help her. CC

To: Soundsensitivity From: Oregon7@...Date: Sun, 5 Aug 2012 07:59:21 +0000Subject: Re: My daughter just started NFB

Dear C Lyle....it is so important to be a part of the group and really be aware of what we post and how we say it here. First, please stop promoting the fellow that you have been helped by...I feel like you are putting advertising on this board, and I am going to ask you very respectfully to stop this practice. When I read over your total posts and anyone can do this putting in someone's name under messages, they begin to sound like advertising for this person's services. They really do.Second, it is ocnfounding why you keep on promoting this person to the whole group and then say, do not contact him, but have your own xyz contact him, etc etc.Imagine how odd that might appear! If indeed you believe you have found the Holy Grail, then why prohibit people from going, too? If this person, who coincidentally has the same name as you appear to have, C Lyle and Lyle the NF person, is indeed an

established licensed professional medical provider, there are certainly plenty of options to handle inquiries from interested callers.So, I am going to be just be very plain spoken, and politely ask you to stop putting out and out advertisting for this individual on this support group.Your personal experiences are welcome. Your own comments and ideas and complaints and concerns are invited.Just stop running the non stop ads for this fellow at this point in time, thank you so very much.I do believe you believe. We all get that, not please drop the matter and let's carry on the good work. As moderator, I do reserve the right to filter content and insist on best practices. Good night. Dr. J, a bet testy from 102 degree heat today in Oregon.

[Guest guest]

C H , THANKS FOR POSTING YOUR THOUGHTS,INSIGHTS, KNOWLEDGE, ABIOUT YOU AND YOUR DAUGHTER,,,ANY AND ALL INFO. IS HIGHLY APPREICIATED..I TOO HAVE A 10 YEAR OLD, THAT IS IN THE BEGINING STAGES OF THIS HORRIBLE COND...I TOO HAVE MISO.. IVE READ CLYES POST AND CONTINUE TO DO SO.. WITH GREAT RESPECT... I BELEIVE THIS IS (WHY) THIS SITE WAS CREATED.. IF NOT OTHER ALTERIOR MOTIVES..( WICH I HOPE IS NOT THE CASE)SO PLEASE CONTINUE TO POST HERE... THANKS GOD BLESS AND GOOD LUCK WITH YOUR DAUGHTER.. JASON

Subject: RE: Re: My daughter just started NFBTo: "Soundsensitivity" <soundsensitivity >Date: Sunday, August 5, 2012, 10:24 AM

Hello Dr. J. I believe your ire/aggravation with Clyle should actually be directed at me for this one. I posted about my daughter's first neurofeedback session on the google Misophonia Support group. I debated about posting anything on this group in light of recent events here. I made the conscious decision to go ahead with my posting here because I wanted the chance to "pay it forward". I have lurked here for sometime gathering a wealth of information from other people's postings. I never really posted anything because I felt I had nothing worthwhile to contribute...except a ton of Thank You's. Previous to yesterday, I had only ever posted once to this group. It was to let you know that the article in Reader's Digest that mentioned misophonia was in the March not February issue. I felt that was a small way I could contribute. I have a debt of gratitude to this site. I thought if my posting could

touch even one parent lurking out there and struggling to help their child, then it would be worth any backlash that resulted. I know in my heart that Clyle posted the contact info for Dr. Lyle with the simple intention of helping me and my daughter. Clyle provided the information so my daughter's practitioner could contact his practitioner to share information. I had stated that my daughter's practitioner had never treated a misophonia patient. If my daughter's practitioner could be better educated on what protocols worked and did not work, then there was potential for my daughter to receive a better quality of care. What parent would not want this for their child? I am very appreciative that Clyle came forward to help me. So as I see it this whole issue is my fault....this one is all on me. Dr. J. if your wish is for me not to post on this site concerning my daughter's neurofeedback treatment, I will refrain in the future from

making any reference to it. Please know that my only intention in any post I have made or will make here is to possibly make a difference to some parent lurking here (as I did) trying to educate him/herself in order to do the best they can by their miso child. I would like to end this note on an up beat, so I have a couple more things to add. These do pertain to my daughter's NFB assessment. I am now so elated to have been able to hear my daughter express some insight into what she has been going through the past 14 years during the question part of her assessment. I am almost giddy at the fact that I was able to speak up in that meeting to help clarify some of my daughter's statements so the doctor could fully understand what she was trying to say. I was only able to do so because of my education through this site. I believe my support of my daughter during that meeting

has had a positive impact on our relationship. She sees that I finally understand....a little. I love my daughter more than words can say, and I will do everything in my power to help her. CC

To: Soundsensitivity From: Oregon7@...Date: Sun, 5 Aug 2012 07:59:21 +0000Subject: Re: My daughter just started NFB

Dear C Lyle....it is so important to be a part of the group and really be aware of what we post and how we say it here. First, please stop promoting the fellow that you have been helped by...I feel like you are putting advertising on this board, and I am going to ask you very respectfully to stop this practice. When I read over your total posts and anyone can do this putting in someone's name under messages, they begin to sound like advertising for this person's services. They really do.Second, it is ocnfounding why you keep on promoting this person to the whole group and then say, do not contact him, but have your own xyz contact him, etc etc.Imagine how odd that might appear! If indeed you believe you have found the Holy Grail, then why prohibit people from going, too? If this person, who coincidentally has the same name as you appear to have, C Lyle and Lyle the NF person, is indeed an

established licensed professional medical provider, there are certainly plenty of options to handle inquiries from interested callers.So, I am going to be just be very plain spoken, and politely ask you to stop putting out and out advertisting for this individual on this support group.Your personal experiences are welcome. Your own comments and ideas and complaints and concerns are invited.Just stop running the non stop ads for this fellow at this point in time, thank you so very much.I do believe you believe. We all get that, not please drop the matter and let's carry on the good work. As moderator, I do reserve the right to filter content and insist on best practices. Good night. Dr. J, a bet testy from 102 degree heat today in Oregon.

[Guest guest]

Dr. J … I will very carefully address your insinuations and inaccuracies as I would not want my reply to be "filtered" as you warn.

I am in absolutely no way promoting or advertising the services of my NFB practitioner, Dr. R. L., as I will now refer to him so as to avoid violating site rules or censorship.

If you read thru my post #24453, which kicked off the NFB discussions, you will observe that I did not even post the name of Dr. R.L. My closing paragraph stated:

"We live in Eastern Iowa so those of you that are close in proximity may send an email to my Yahoo Mail account and I will respond with the name of my Neurofeedback practitioner. For everyone else, please respect the fact that my Doctor cannot accept the several calls that could inundate him from those looking for referrals. He will not make referrals but would be glad to accept a phone call or an email from NFB practitioners in regards to protocol. My Doctor strongly suggests that one go to the website www.bcia.org to find a practitioner in your area and to make sure that they are specifically accredited for "BCN." Another valuable website is the International Society for Neurofeedback & Research at www.isnr.org .

I believe most on this site understood, and still understand that contacting Dr. R.L. directly would do nothing for them unless they were within driving distance of his location. Due to the numbers of emails I received privately, and in answer to direct questions asked on this site, I have mentioned his name in subsequent posts so that Misophonia sufferers could have their NFB practitioners contact him for his protocol used. Please answer to what I believe a lot of people here are wondering … how would this be a bad thing? Would this be any different than the sharing of information and protocol that you share with the other Audiologists that are a part of your Misophonia Management Program (MMP)?

In addressing your observation regarding the similarity of the name I post with, Clyle, or "C Lyle" as you put it, and that of Dr. R.L. … is it your suspicions that we are the same person, or that possibly we are related? If so, those are absurd insinuations. I am like the majority of people on this site that have chosen to remain anonymous for a number of obvious reasons; my main reason like so many others is in protecting my son. If it is your intent to compromise anyone's right to anonymity, then your site will be finished as very few will remain that feel comfortable in commenting.

Let me state for the record … Dr. R.L. and I are not in any way related. We have had absolutely no contact with each other except for those times that I have been at his office for NFB sessions for me, my son, and my daughter. I post using my middle name "Clyle." If you have an issue with that then you will have to blame both my father and grandfather, as their middle names were also "Clyle." Hope this alleviates those concerns.

Clyle

>> Dear C Lyle....it is so important to be a part of the group and really be aware of what we post and how we say it here. > > First, please stop promoting the fellow that you have been helped by...I feel like you are putting advertising on this board, and I am going to ask you very respectfully to stop this practice. When I read over your total posts and anyone can do this putting in someone's name under messages, they begin to sound like advertising for this person's services. They really do.> > Second, it is ocnfounding why you keep on promoting this person to the whole group and then say, do not contact him, but have your own xyz contact him, etc etc.> > Imagine how odd that might appear! If indeed you believe you have found the Holy Grail, then why prohibit people from going, too? If this person, who coincidentally has the same name as you appear to have, C Lyle and Lyle the NF person, is indeed an established licensed professional medical provider, there are certainly plenty of options to handle inquiries from interested callers.> > So, I am going to be just be very plain spoken, and politely ask you to stop putting out and out advertisting for this individual on this support group.> > Your personal experiences are welcome. Your own comments and ideas and complaints and concerns are invited.> > Just stop running the non stop ads for this fellow at this point in time, thank you so very much.> > I do believe you believe. We all get that, not please drop the matter and let's carry on the good work. > > As moderator, I do reserve the right to filter content and insist on best practices. > > Good night. Dr. J, a bet testy from 102 degree heat today in Oregon.>

[Guest guest]

Dr. J … I will very carefully address your insinuations and inaccuracies as I would not want my reply to be "filtered" as you warn.

I am in absolutely no way promoting or advertising the services of my NFB practitioner, Dr. R. L., as I will now refer to him so as to avoid violating site rules or censorship.

If you read thru my post #24453, which kicked off the NFB discussions, you will observe that I did not even post the name of Dr. R.L. My closing paragraph stated:

"We live in Eastern Iowa so those of you that are close in proximity may send an email to my Yahoo Mail account and I will respond with the name of my Neurofeedback practitioner. For everyone else, please respect the fact that my Doctor cannot accept the several calls that could inundate him from those looking for referrals. He will not make referrals but would be glad to accept a phone call or an email from NFB practitioners in regards to protocol. My Doctor strongly suggests that one go to the website www.bcia.org to find a practitioner in your area and to make sure that they are specifically accredited for "BCN." Another valuable website is the International Society for Neurofeedback & Research at www.isnr.org .

I believe most on this site understood, and still understand that contacting Dr. R.L. directly would do nothing for them unless they were within driving distance of his location. Due to the numbers of emails I received privately, and in answer to direct questions asked on this site, I have mentioned his name in subsequent posts so that Misophonia sufferers could have their NFB practitioners contact him for his protocol used. Please answer to what I believe a lot of people here are wondering … how would this be a bad thing? Would this be any different than the sharing of information and protocol that you share with the other Audiologists that are a part of your Misophonia Management Program (MMP)?

In addressing your observation regarding the similarity of the name I post with, Clyle, or "C Lyle" as you put it, and that of Dr. R.L. … is it your suspicions that we are the same person, or that possibly we are related? If so, those are absurd insinuations. I am like the majority of people on this site that have chosen to remain anonymous for a number of obvious reasons; my main reason like so many others is in protecting my son. If it is your intent to compromise anyone's right to anonymity, then your site will be finished as very few will remain that feel comfortable in commenting.

Let me state for the record … Dr. R.L. and I are not in any way related. We have had absolutely no contact with each other except for those times that I have been at his office for NFB sessions for me, my son, and my daughter. I post using my middle name "Clyle." If you have an issue with that then you will have to blame both my father and grandfather, as their middle names were also "Clyle." Hope this alleviates those concerns.

Clyle

>> Dear C Lyle....it is so important to be a part of the group and really be aware of what we post and how we say it here. > > First, please stop promoting the fellow that you have been helped by...I feel like you are putting advertising on this board, and I am going to ask you very respectfully to stop this practice. When I read over your total posts and anyone can do this putting in someone's name under messages, they begin to sound like advertising for this person's services. They really do.> > Second, it is ocnfounding why you keep on promoting this person to the whole group and then say, do not contact him, but have your own xyz contact him, etc etc.> > Imagine how odd that might appear! If indeed you believe you have found the Holy Grail, then why prohibit people from going, too? If this person, who coincidentally has the same name as you appear to have, C Lyle and Lyle the NF person, is indeed an established licensed professional medical provider, there are certainly plenty of options to handle inquiries from interested callers.> > So, I am going to be just be very plain spoken, and politely ask you to stop putting out and out advertisting for this individual on this support group.> > Your personal experiences are welcome. Your own comments and ideas and complaints and concerns are invited.> > Just stop running the non stop ads for this fellow at this point in time, thank you so very much.> > I do believe you believe. We all get that, not please drop the matter and let's carry on the good work. > > As moderator, I do reserve the right to filter content and insist on best practices. > > Good night. Dr. J, a bet testy from 102 degree heat today in Oregon.>

[Guest guest]

Not really much ire, just trying to keep things in balance. That is the goal

for this site and I am pleased to read your contributions to the site.

Thank you so much for writing.

Dr J

[Guest guest]

Not really much ire, just trying to keep things in balance. That is the goal

for this site and I am pleased to read your contributions to the site.

Thank you so much for writing.

Dr J

[Guest guest]

Ok I am very relieved to hear that news and that sounds like a good compromise

to me, people can certainly research the posts in the archives and find Dr. RL

or whatever and this is all good stuff.

This is a tough job if anyone wants to know, balancing all these factor and

private messages and phone calls and emails.

We are in such need of help...

I cling to my own field and rely on the science of the peer reviewed journals

for the most part and I just worry about those people who see one case of this

and then post on their own provider site, now I TREAT misophonia.

I would not do that, myself. I would wait and see a few dozen cases and do my

research and do follow up over months and really see what happens before I begin

broadcasting my services....

But nonetheless, I really am very happy that some people are reporting good news

with this and other approaches, and this is again, the purpose of this list.

Be very careful with management or improvement and 'cure'.

One thing I do wonder about and I am going to post this on a different thread,

is this...

is the actual NF or could it be the sitting in a state of quiet for an hour

several times a week? I would really like to know the effect of meditation or

mindfulness on the human brain with misophonia...maybe someone will do a study

on that.

All is well. Let's work together.

Thank you for being reasonable.

Dr. J

[Guest guest]

Ok I am very relieved to hear that news and that sounds like a good compromise

to me, people can certainly research the posts in the archives and find Dr. RL

or whatever and this is all good stuff.

This is a tough job if anyone wants to know, balancing all these factor and

private messages and phone calls and emails.

We are in such need of help...

I cling to my own field and rely on the science of the peer reviewed journals

for the most part and I just worry about those people who see one case of this

and then post on their own provider site, now I TREAT misophonia.

I would not do that, myself. I would wait and see a few dozen cases and do my

research and do follow up over months and really see what happens before I begin

broadcasting my services....

But nonetheless, I really am very happy that some people are reporting good news

with this and other approaches, and this is again, the purpose of this list.

Be very careful with management or improvement and 'cure'.

One thing I do wonder about and I am going to post this on a different thread,

is this...

is the actual NF or could it be the sitting in a state of quiet for an hour

several times a week? I would really like to know the effect of meditation or

mindfulness on the human brain with misophonia...maybe someone will do a study

on that.

All is well. Let's work together.

Thank you for being reasonable.

Dr. J

[Guest guest]

I don't really want to get into the middle of a disagreement... but I do have to say this:

I spend 90% of my time in bed as I have multiple chronic health conditions. I am in severe pain every day and just getting out of bed to take a shower is a huge ordeal for me.

I have spent the majority of the last 2 years laying in bed. Now, of course, sometimes I have the TV on and sometimes I am busy on the internet. But I have many hours each week of silence... and it has done nothing to help my sensitivity to sound. I sure wish it would, though. What an easy and cheap treatment that would be!

---------------------------------------------------------

♥

" Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥

 

Ok I am very relieved to hear that news and that sounds like a good compromise to me, people can certainly research the posts in the archives and find Dr. RL or whatever and this is all good stuff.

This is a tough job if anyone wants to know, balancing all these factor and private messages and phone calls and emails.

We are in such need of help...

I cling to my own field and rely on the science of the peer reviewed journals for the most part and I just worry about those people who see one case of this and then post on their own provider site, now I TREAT misophonia.

I would not do that, myself. I would wait and see a few dozen cases and do my research and do follow up over months and really see what happens before I begin broadcasting my services....

But nonetheless, I really am very happy that some people are reporting good news with this and other approaches, and this is again, the purpose of this list.

Be very careful with management or improvement and 'cure'.

One thing I do wonder about and I am going to post this on a different thread, is this...

is the actual NF or could it be the sitting in a state of quiet for an hour several times a week? I would really like to know the effect of meditation or mindfulness on the human brain with misophonia...maybe someone will do a study on that.

All is well. Let's work together.

Thank you for being reasonable.

Dr. J

[Guest guest]

I don't really want to get into the middle of a disagreement... but I do have to say this:

I spend 90% of my time in bed as I have multiple chronic health conditions. I am in severe pain every day and just getting out of bed to take a shower is a huge ordeal for me.

I have spent the majority of the last 2 years laying in bed. Now, of course, sometimes I have the TV on and sometimes I am busy on the internet. But I have many hours each week of silence... and it has done nothing to help my sensitivity to sound. I sure wish it would, though. What an easy and cheap treatment that would be!

---------------------------------------------------------

♥

" Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥

 

Ok I am very relieved to hear that news and that sounds like a good compromise to me, people can certainly research the posts in the archives and find Dr. RL or whatever and this is all good stuff.

This is a tough job if anyone wants to know, balancing all these factor and private messages and phone calls and emails.

We are in such need of help...

I cling to my own field and rely on the science of the peer reviewed journals for the most part and I just worry about those people who see one case of this and then post on their own provider site, now I TREAT misophonia.

I would not do that, myself. I would wait and see a few dozen cases and do my research and do follow up over months and really see what happens before I begin broadcasting my services....

But nonetheless, I really am very happy that some people are reporting good news with this and other approaches, and this is again, the purpose of this list.

Be very careful with management or improvement and 'cure'.

One thing I do wonder about and I am going to post this on a different thread, is this...

is the actual NF or could it be the sitting in a state of quiet for an hour several times a week? I would really like to know the effect of meditation or mindfulness on the human brain with misophonia...maybe someone will do a study on that.

All is well. Let's work together.

Thank you for being reasonable.

Dr. J

[Guest guest]

is the actual NF or could it be the sitting in a state of quiet for an hour several times a week? I would really like to know the effect of meditation or mindfulness on the human brain with misophonia...maybe someone will do a study on that.First, NFB is not sitting quiet and meditating for an hour. Not at all. Second, if we could eliminate triggers by mediation then this would not be a nuerological disorder. Third, my best friend is a yoga therapist who has reached some of the highest meditative states and she still has Misophonia. It certainly can help deal, cope, manage trigger responses but it does not eliminate the triggers. Heidi

[Guest guest]

is the actual NF or could it be the sitting in a state of quiet for an hour several times a week? I would really like to know the effect of meditation or mindfulness on the human brain with misophonia...maybe someone will do a study on that.First, NFB is not sitting quiet and meditating for an hour. Not at all. Second, if we could eliminate triggers by mediation then this would not be a nuerological disorder. Third, my best friend is a yoga therapist who has reached some of the highest meditative states and she still has Misophonia. It certainly can help deal, cope, manage trigger responses but it does not eliminate the triggers. Heidi

[Guest guest]

I imagine this has to be very difficult. Thank you for continuing on!!

> This is a tough job if anyone wants to know, balancing all these factor and

private messages and phone calls and emails.

>

> We are in such need of help...

<snip>

>

> All is well. Let's work together.

>

> Thank you for being reasonable.

>

> Dr. J

>

[Guest guest]

I imagine this has to be very difficult. Thank you for continuing on!!

> This is a tough job if anyone wants to know, balancing all these factor and

private messages and phone calls and emails.

>

> We are in such need of help...

<snip>

>

> All is well. Let's work together.

>

> Thank you for being reasonable.

>

> Dr. J

>

[Guest guest]

CLYLE,VERY WELL PUT BRO... FROM ONE FATHER TO ANOTHER WITH A DAUGHTER THAT HAS MISO.,.,,. THANK YOU MAN .,,THANK YOU ... YOU ARE HEPLING IN A BIG WAY AND I FIND N OTHING WRONG AT ALL WITH THE WAY YOU POST.. VERY RESPECTFUL/// AND YES IF WE NEED TO GO ELSEWHERE SO BE IT..

Subject: Re: My daughter just started NFBTo: Soundsensitivity Date: Sunday, August 5, 2012, 2:40 PM

Dr. J … I will very carefully address your insinuations and inaccuracies as I would not want my reply to be "filtered" as you warn.

I am in absolutely no way promoting or advertising the services of my NFB practitioner, Dr. R. L., as I will now refer to him so as to avoid violating site rules or censorship.

If you read thru my post #24453, which kicked off the NFB discussions, you will observe that I did not even post the name of Dr. R.L. My closing paragraph stated:

"We live in Eastern Iowa so those of you that are close in proximity may send an email to my Yahoo Mail account and I will respond with the name of my Neurofeedback practitioner. For everyone else, please respect the fact that my Doctor cannot accept the several calls that could inundate him from those looking for referrals. He will not make referrals but would be glad to accept a phone call or an email from NFB practitioners in regards to protocol. My Doctor strongly suggests that one go to the website www.bcia.org to find a practitioner in your area and to make sure that they are specifically accredited for "BCN." Another valuable website is the International Society for Neurofeedback & Research

at www.isnr.org .

I believe most on this site understood, and still understand that contacting Dr. R.L. directly would do nothing for them unless they were within driving distance of his location. Due to the numbers of emails I received privately, and in answer to direct questions asked on this site, I have mentioned his name in subsequent posts so that Misophonia sufferers could have their NFB practitioners contact him for his protocol used. Please answer to what I believe a lot of people here are wondering … how would this be a bad thing? Would this be any different than the sharing of information and protocol that you share with the other Audiologists that are a part of your Misophonia Management Program (MMP)?

In addressing your observation regarding the similarity of the name I post with, Clyle, or "C Lyle" as you put it, and that of Dr. R.L. … is it your suspicions that we are the same person, or that possibly we are related? If so, those are absurd insinuations. I am like the majority of people on this site that have chosen to remain anonymous for a number of obvious reasons; my main reason like so many others is in protecting my son. If it is your intent to compromise anyone's right to anonymity, then your site will be finished as very few will remain that feel comfortable in commenting.

Let me state for the record … Dr. R.L. and I are not in any way related. We have had absolutely no contact with each other except for those times that I have been at his office for NFB sessions for me, my son, and my daughter. I post using my middle name "Clyle." If you have an issue with that then you will have to blame both my father and grandfather, as their middle names were also "Clyle." Hope this alleviates those concerns.

Clyle

>> Dear C Lyle....it is so important to be a part of the group and really be aware of what we post and how we say it here. > > First, please stop promoting the fellow that you have been helped by...I feel like you are putting advertising on this board, and I am going to ask you very respectfully to stop this practice. When I read over your total posts and anyone can do this putting in someone's name under messages, they begin to sound like advertising for this person's services. They really do.> > Second, it is ocnfounding why you keep on promoting this person to the whole group and then say, do not contact him, but have your own xyz contact him, etc etc.> > Imagine how odd that might appear! If indeed you believe you have found the Holy Grail, then why prohibit people from going, too? If this person, who

coincidentally has the same name as you appear to have, C Lyle and Lyle the NF person, is indeed an established licensed professional medical provider, there are certainly plenty of options to handle inquiries from interested callers.> > So, I am going to be just be very plain spoken, and politely ask you to stop putting out and out advertisting for this individual on this support group.> > Your personal experiences are welcome. Your own comments and ideas and complaints and concerns are invited.> > Just stop running the non stop ads for this fellow at this point in time, thank you so very much.> > I do believe you believe. We all get that, not please drop the matter and let's carry on the good work. > > As moderator, I do reserve the right to filter content and insist on best practices. > > Good night. Dr. J, a bet testy from 102 degree heat today in

Oregon.>