Re: Hello, This is my Story

[Guest guest]

Hi ,

Thanks so much for sharing your story. I am horrified at the treatment and

harassment you received at the hands of the health department and ignorant

pediatricians. No, you are not a paranoid mom.....vaccines are at best

completely useless, have never prevented any disease and they cause enumerable

acute and chronic health problems. My daughter was severely brain damaged by a

vaccine I received while I was pregnant and then by a Hep B I specifically told

them NOT to give her in the hospital after she was born. I woke up pretty

quickly and will never allow another vaccine under any circumstances. All of

the symptoms you describe in your children are vaccine-related....neurological,

behavioral, gastrointestinal. I wouldn't give your kids any more vaccines, but

that's a decision only you can make.

Please know that Miralax is NOT safe and can be quite dangerous if used for

longer than a few days, if atall. personally I would never use it. Two weeks is

the limit given

even by the manufacturer. Polyethylene glycol, the active ingredient in Miralax,

is not*supposed* to be absorbed by the body, since it is toxic, but those who

have gut problems, such as leaky gut (common in our kids and people with chronic

constipation, IBS, colitis, etc.) can experience Miralax toxicity. If PEG enters

the bloodstream, it can cause cerebral salt-wasting and renal (kidney) toxicity.

This can cause a whole host of very serious neurological effects, including

seizures, severe tics, slurred speech, inability to control the bowels due to

loss of neurological control, urinary problems, psychological and behavioral

issues, and many more. There is even a whole Yahoo group dedicated to Miralax

poisoning. It's really Russian Roulette. If it's not absorbed it, then you might

escape Miralax toxicity. But is it really worth that risk to your child's

health? There are many safer alternatives to Miralax. Vitamin C and magnesium

are two that work very well, and there are many others.

My daughter also experienced signs of early puberty, but didn't start

menstruating until age 12. She handled it much better than I had ever imagined,

so you may be surprised when the time comes. I was told by numerous people she

would act " crazy " from the hormones and I would beg for medication, etc. I saw

none of that. All the kids react differently. I mostly attribute it to many

years of homeopathy and targeted supplementation that has kept her off

prescription drugs and making excellent, steady progress. I don't plan to alter

her cycle with hormones or other means, as she is doing fine naturally. She is

not considered " high functioning " and really has no understanding of what her

cycle means, but she has accepted it because I was very calm about it and we

practiced a lot. She takes cues from me and since I didn't freak, neither did

she.

There is a lot of great help here, so I hope you will take solace in that and

know we are all in this together.

:-)

> My Name is , I have been a lurker on this group for a while now, I

> guess I should put my story out there

>

> I have 4 children... My 8 year old daughter Kendra, has been diagnosed with

> Autism. She is considered lower functioning with the mentality of

> approximately a 24 month old. ( No mental retardation detected) She is also

> thought to have Bi-polar and since we moved to South Dakota has been treated

> as such...

>

> When Kendra was 20 months old, we went to the pediatrician (in Florida,

> which is where we are originally from) and she got 3 shots all at one

> time... That night she was running a high fever and her legs swelled (A LOT)

> when I called the pediatrician I was told to give her Benadryl and she will

> be fine.. being a young mother of 19 I did as I was told... when she

> " recovered " she was not the same... Before this incident Kendra was " Normal "

> (I hate using the word!) If there was anything that was different from

> Kendra as a child before that, is she hardly ever cried, and was easy to

> please. Immediately after this incident I started saying something was wrong

> with Kendra, and EVERYONE said, " Oh don't worry she is just a late bloomer "

> as which I countered, " No, she was doing {insert milestone here} 3 months

> ago, and now she isn't " But, I was a young mother, and I " didn't know

> anything about children "

>

> By this point I was pregnant with my 2nd child, Kamden, Whom was born when

> Kendra was 2 years and 3 months old... ( 7 months after Kendra " changed " )

> By this point was starting to do research, and speaking to OTHER

> pediatricians that would listen to me, and not tell me I didn't know what I

> was talking about. (by this point I was staying in TN for a short time)

> Kendra was diagnosed with Autism, (which I initially bucked the diagnosis, I

> didn't want to believe that something was really wrong with her... young mom

> denial I guess) and we started the journey of " learning " what all this

> was...

>

> In the meantime, I allowed Kamden to get vaccines, until we hit the point

> where they wanted to give him the same combination of shots that Kendra got

> ( MMR, Hep b, and chickenpox) at which point I signed a religious exemption

> form stating that I didn't want him to be vaccinated. (and OHH the hell I

> received at the Health Department for this decision! The HEAD HONCHO of the

> health department came to speak with me and convince me otherwise (this was

> back in Florida) But by this point I had done a good deal of research and at

> least scratched the surface of the idea that vaccines may or may not have

> something to do with the increasing number of Autism. I remember crying as

> the lady at the health department all but called me a bad mother for not

> wanting to vaccinate my child any further until I knew more about this and

> that... I just kept saying I wouldn't be able to live with myself if Kamden

> got hurt because of a decision I made...

>

> Kamden and Kendra were both vaccinated (one shot at a time) after they were

> 4 1/2 years old to get ready for school...

>

> Fast Forward to Today:

>

> Kamden (6) has ADD so bad that at best he has a 40 second attention span at

> best, and has been given the label of " developmentally delayed " to " Learning

> Disability " in school, He has been put on medication in an attempt to curb

> this ADD and to better help him focus with mediocre results.

>

> Kendra (8) has responded beautifully from the medication that the

> Pediatrician here in Sioux Falls has recommended, and now speaks in full

> sentences (still echoalia, but for the most part the echoes that she uses

> for the situation is appropriate - before we came to South Dakota she was

> non-verbal, so this is a MAJOR improvement) she uses a pictures board, and

> we are learning more about each other with each passing day...

>

> Both Kendra and Kamden suffer from chronic constipation, which requires us

> to give a daily dose of Mira lax in order to control it and feed them a diet

> high in fiber (which isn't always easy with Miss Picky Kendra)

>

> Kayden my 2 year old, whom stopped getting shots at approximately a year old

> (even then they were only given 1 at a time, with at least a week apart)

> does not seem to have any developmental delay, he is smart, social, and very

> active and actually surpassing his milestones at a rapid rate of speed!

>

> (who was just born March 1st 2012) has only received the Vitamin K

> and Hep B shots that they give when the children are first born (which I

> didn't exactly consent too, I was just told he had received them)

>

> Now, this kind of leaves me confused, if you look at the differences of each

> of my children... It makes me wonder... are Vaccines truly innocent in this

> equation?

> Am I just a paranoid mother? How should I proceed with my two youngest who

> still need shots before school?

>

>

> Further, I am still just now learning about all of the available programs,

> and resources in this area for Kendra to help her continue to blossom...

> Does anyone have any links that would be helpful?

>

> Where do I go from here? I feel like I am lost in a sea of information, NO

> ONE in my family (or my husband's family) has ever had to deal with a child

> with disabilities, and when I ask them for advice they turn a blind eye to

> it all ( Another contributing factor to why we now live in South Dakota and

> our family isn't still in Florida) The worst that I have in my family is

> Depression and Bi-polar

>

> Kendra is also a girl, and she is starting to show the early signs of

> puberty... THIS PETRIFIES ME!!! Kendra is still in pull-ups, we still work

> with her with potty training in hopes that she gets it one day, but so far

> no luck... we can actually get her to potty in the toilet 1 out of 10

> times...

>

> What and how does one deal with puberty and all that goes with it? I can

> only imagine how those hormones will affect her, and her period... How does

> one deal with that? Her bowel movements are pretty traumatic for her

> already.. as she is hyper sensitive ( is that the right term?) and it takes

> a lot of patience (on both of our parts) to clean her completely down

> there. I've heard of people using birth control to " time " such events like

> Periods in children with disabilities... have any of you tried this? Did it

> work?

>

> Well, anyway this is our story... I hope it wasn't too long winded... Any

> information that anyone can provide would be awesome... I'm still

> learning... and would love to learn more from those who have more experience

> and found things that help...

>

>

> Thanks

>

>

>

>

> ------------------------------------

>

> The Power Pumper makes physical therapy fun! Plus, funding sources are

available to provide a free Power Pumper to anyone who needs it.

> ------------------------

> http://www.powerpumper.com/friends/jrox.php?uid=bridalsh

> ------------------------

> Autism_in_Girls_and_Women-subscribe

> ------------------------

> Autism_in_Girls_and_Women-unsubscribe@...! Groups Links

>

>

>

[Guest guest]

I did not know that about the miralax. I will have to look into that, we

just restarted a regime of miralax (actually we are supposed to start today

J ) but, I'm hopeing once we get them straightened back out we can do it

with high fiber instead. but we will see

I forgot to mention in the below, that Kayden (the 2 year old that I stopped

shots at a year old) has a milk allergy do you think that could be related?

I'm glad you daughter didn't have any problems with the menstruation, I am

still very nervous about how Kendra will react, we still have a few years

yet I hope, but then again I started my period at 9 years old, so I guess we

will just have to see.

Have you attempted potty training? Was it successful? If so what did you do?

I would love to make some ground in the potty training department with

Kendra.

Thanks for the reassurance J

From: Autism_in_Girls_and_Women

[mailto:Autism_in_Girls_and_Women ] On Behalf Of cathylynn2

Sent: Friday, April 13, 2012 9:07 AM

To: Autism_in_Girls_and_Women

Subject: Re: Hello, This is my Story

Hi ,

Thanks so much for sharing your story. I am horrified at the treatment and

harassment you received at the hands of the health department and ignorant

pediatricians. No, you are not a paranoid mom.....vaccines are at best

completely useless, have never prevented any disease and they cause

enumerable acute and chronic health problems. My daughter was severely brain

damaged by a vaccine I received while I was pregnant and then by a Hep B I

specifically told them NOT to give her in the hospital after she was born. I

woke up pretty quickly and will never allow another vaccine under any

circumstances. All of the symptoms you describe in your children are

vaccine-related....neurological, behavioral, gastrointestinal. I wouldn't

give your kids any more vaccines, but that's a decision only you can make.

Please know that Miralax is NOT safe and can be quite dangerous if used for

longer than a few days, if atall. personally I would never use it. Two weeks

is the limit given

even by the manufacturer. Polyethylene glycol, the active ingredient in

Miralax, is not*supposed* to be absorbed by the body, since it is toxic, but

those who have gut problems, such as leaky gut (common in our kids and

people with chronic constipation, IBS, colitis, etc.) can experience Miralax

toxicity. If PEG enters the bloodstream, it can cause cerebral salt-wasting

and renal (kidney) toxicity. This can cause a whole host of very serious

neurological effects, including seizures, severe tics, slurred speech,

inability to control the bowels due to loss of neurological control, urinary

problems, psychological and behavioral issues, and many more. There is even

a whole Yahoo group dedicated to Miralax poisoning. It's really Russian

Roulette. If it's not absorbed it, then you might escape Miralax toxicity.

But is it really worth that risk to your child's health? There are many

safer alternatives to Miralax. Vitamin C and magnesium are two that work

very well, and there are many others.

My daughter also experienced signs of early puberty, but didn't start

menstruating until age 12. She handled it much better than I had ever

imagined, so you may be surprised when the time comes. I was told by

numerous people she would act " crazy " from the hormones and I would beg for

medication, etc. I saw none of that. All the kids react differently. I

mostly attribute it to many years of homeopathy and targeted supplementation

that has kept her off prescription drugs and making excellent, steady

progress. I don't plan to alter her cycle with hormones or other means, as

she is doing fine naturally. She is not considered " high functioning " and

really has no understanding of what her cycle means, but she has accepted it

because I was very calm about it and we practiced a lot. She takes cues from

me and since I didn't freak, neither did she.

There is a lot of great help here, so I hope you will take solace in that

and know we are all in this together.

:-)

> My Name is , I have been a lurker on this group for a while now, I

> guess I should put my story out there

>

> I have 4 children... My 8 year old daughter Kendra, has been diagnosed

with

> Autism. She is considered lower functioning with the mentality of

> approximately a 24 month old. ( No mental retardation detected) She is

also

> thought to have Bi-polar and since we moved to South Dakota has been

treated

> as such...

>

> When Kendra was 20 months old, we went to the pediatrician (in Florida,

> which is where we are originally from) and she got 3 shots all at one

> time... That night she was running a high fever and her legs swelled (A

LOT)

> when I called the pediatrician I was told to give her Benadryl and she

will

> be fine.. being a young mother of 19 I did as I was told... when she

> " recovered " she was not the same... Before this incident Kendra was

" Normal "

> (I hate using the word!) If there was anything that was different from

> Kendra as a child before that, is she hardly ever cried, and was easy to

> please. Immediately after this incident I started saying something was

wrong

> with Kendra, and EVERYONE said, " Oh don't worry she is just a late

bloomer "

> as which I countered, " No, she was doing {insert milestone here} 3 months

> ago, and now she isn't " But, I was a young mother, and I " didn't know

> anything about children "

>

> By this point I was pregnant with my 2nd child, Kamden, Whom was born when

> Kendra was 2 years and 3 months old... ( 7 months after Kendra " changed " )

> By this point was starting to do research, and speaking to OTHER

> pediatricians that would listen to me, and not tell me I didn't know what

I

> was talking about. (by this point I was staying in TN for a short time)

> Kendra was diagnosed with Autism, (which I initially bucked the diagnosis,

I

> didn't want to believe that something was really wrong with her... young

mom

> denial I guess) and we started the journey of " learning " what all this

> was...

>

> In the meantime, I allowed Kamden to get vaccines, until we hit the point

> where they wanted to give him the same combination of shots that Kendra

got

> ( MMR, Hep b, and chickenpox) at which point I signed a religious

exemption

> form stating that I didn't want him to be vaccinated. (and OHH the hell I

> received at the Health Department for this decision! The HEAD HONCHO of

the

> health department came to speak with me and convince me otherwise (this

was

> back in Florida) But by this point I had done a good deal of research and

at

> least scratched the surface of the idea that vaccines may or may not have

> something to do with the increasing number of Autism. I remember crying as

> the lady at the health department all but called me a bad mother for not

> wanting to vaccinate my child any further until I knew more about this and

> that... I just kept saying I wouldn't be able to live with myself if

Kamden

> got hurt because of a decision I made...

>

> Kamden and Kendra were both vaccinated (one shot at a time) after they

were

> 4 1/2 years old to get ready for school...

>

> Fast Forward to Today:

>

> Kamden (6) has ADD so bad that at best he has a 40 second attention span

at

> best, and has been given the label of " developmentally delayed " to

" Learning

> Disability " in school, He has been put on medication in an attempt to curb

> this ADD and to better help him focus with mediocre results.

>

> Kendra (8) has responded beautifully from the medication that the

> Pediatrician here in Sioux Falls has recommended, and now speaks in full

> sentences (still echoalia, but for the most part the echoes that she uses

> for the situation is appropriate - before we came to South Dakota she was

> non-verbal, so this is a MAJOR improvement) she uses a pictures board, and

> we are learning more about each other with each passing day...

>

> Both Kendra and Kamden suffer from chronic constipation, which requires us

> to give a daily dose of Mira lax in order to control it and feed them a

diet

> high in fiber (which isn't always easy with Miss Picky Kendra)

>

> Kayden my 2 year old, whom stopped getting shots at approximately a year

old

> (even then they were only given 1 at a time, with at least a week apart)

> does not seem to have any developmental delay, he is smart, social, and

very

> active and actually surpassing his milestones at a rapid rate of speed!

>

> (who was just born March 1st 2012) has only received the Vitamin K

> and Hep B shots that they give when the children are first born (which I

> didn't exactly consent too, I was just told he had received them)

>

> Now, this kind of leaves me confused, if you look at the differences of

each

> of my children... It makes me wonder... are Vaccines truly innocent in

this

> equation?

> Am I just a paranoid mother? How should I proceed with my two youngest who

> still need shots before school?

>

>

> Further, I am still just now learning about all of the available programs,

> and resources in this area for Kendra to help her continue to blossom...

> Does anyone have any links that would be helpful?

>

> Where do I go from here? I feel like I am lost in a sea of information, NO

> ONE in my family (or my husband's family) has ever had to deal with a

child

> with disabilities, and when I ask them for advice they turn a blind eye to

> it all ( Another contributing factor to why we now live in South Dakota

and

> our family isn't still in Florida) The worst that I have in my family is

> Depression and Bi-polar

>

> Kendra is also a girl, and she is starting to show the early signs of

> puberty... THIS PETRIFIES ME!!! Kendra is still in pull-ups, we still work

> with her with potty training in hopes that she gets it one day, but so far

> no luck... we can actually get her to potty in the toilet 1 out of 10

> times...

>

> What and how does one deal with puberty and all that goes with it? I can

> only imagine how those hormones will affect her, and her period... How

does

> one deal with that? Her bowel movements are pretty traumatic for her

> already.. as she is hyper sensitive ( is that the right term?) and it

takes

> a lot of patience (on both of our parts) to clean her completely down

> there. I've heard of people using birth control to " time " such events like

> Periods in children with disabilities... have any of you tried this? Did

it

> work?

>

> Well, anyway this is our story... I hope it wasn't too long winded... Any

> information that anyone can provide would be awesome... I'm still

> learning... and would love to learn more from those who have more

experience

> and found things that help...

>

>

> Thanks

>

>

>

>

> ------------------------------------

>

> The Power Pumper makes physical therapy fun! Plus, funding sources are

available to provide a free Power Pumper to anyone who needs it.

> ------------------------

> http://www.powerpumper.com/friends/jrox.php?uid=bridalsh

> ------------------------

> Autism_in_Girls_and_Women-subscribe

<mailto:Autism_in_Girls_and_Women-subscribe%40yahoogroups.com>

> ------------------------

> Autism_in_Girls_and_Women-unsubscribe@...

<mailto:Autism_in_Girls_and_Women-unsubscribe%40yahoogroups.comYahoo> !

Groups Links

>

>

>

[Guest guest]

Yes, milk, peanut allergies, asthma, etc are all vaccine related. It took 7

years to potty train but she finally got it and has never regressed in that

area. Just keep at it. I was very relaxed about he whole thing, modeled the

behavior for her and gave her lots of encouragement always. None of the

" programs " worked because she felt forced and I even had someone come to the

house who promised me she would be potty trained in one weekend. Didn't work.

Ultimately, it had to be her choice on her terms, and she just decided one day

and that was it. What a celebration that was! Other may have specific strategies

that worked, but what works for my daughter is modeling, picture schedules

calendars and consistency in a relaxed way.

> I did not know that about the miralax. I will have to look into that, we

> just restarted a regime of miralax (actually we are supposed to start today

> J ) but, I'm hopeing once we get them straightened back out we can do it

> with high fiber instead. but we will see

>

>

>

> I forgot to mention in the below, that Kayden (the 2 year old that I stopped

> shots at a year old) has a milk allergy do you think that could be related?

>

>

>

> I'm glad you daughter didn't have any problems with the menstruation, I am

> still very nervous about how Kendra will react, we still have a few years

> yet I hope, but then again I started my period at 9 years old, so I guess we

> will just have to see.

>

> Have you attempted potty training? Was it successful? If so what did you do?

>

>

> I would love to make some ground in the potty training department with

> Kendra.

>

>

>

> Thanks for the reassurance J

>

>

[Guest guest]

I agree with about miralax. If a child is chronically constipated there

is a reason for it you just have to figure what Is causing the constipation.

First of all look at the diet, is the child eating lots of dairy? Casein the

main protein and gluten can cause constipation, allergy symptoms such as

congestion, constant sneezing among other things. If the child is on a GFCF

diet and still is constipated, some things to consider is increasing the fiber

in diet. Fiber from crest fruits and vegetables ( organic if possible). There is

a product that is called gentle fiber by Jarrow that promotes good bacteria

growth which is what our kids need. One important point to make is that when you

increase fiber the fluid intake also needs to increase and I don't mean juices

but water if possible because this will help the fiber to pass the digestive

system easily and remove toxic waste there. Also this needs to be given 1-2 hrs

before and after vitamins, supplements, and any medication.