Re: First outbreak finally done?

[Guest guest]

Just to give you potential hope , my FIRST outbreak(at age 45) was my only outbreak. I hope that is the case for you and anyone else reading this that is "new" to this as well. Of course I can't say that that is the case for the whole rest of my life, but I do truly BELIEVE that is true for the rest of my life. Part of the reason I believe that is that I let the experience educate me even further about my body (and how to treat it). I learned many many things. But in my particular case, I've always known I have a tendency to push my physical limits too far (as in not rest when I should, etc.) For me, the EN was a definite wake up call and , now, to some degree at least I have changed my behaviors. Not always as completely as I should but there are times I have made far better choices now than in the past in terms of resting when I need to, etc. And also during the time since that outbreak I had one time when I felt it start to "come back". It never did and I think that was further lesson to me that had I not stopped my behaviors it could have. I also went gluten free as soon as I realized what I had going on (which was a few weeks into the nodules stage of things, if I recall correctly about 2 weeks). I had only eaten gluten infrequently for years prior to that so I really doubted that this could change anything for me and I had no reason whatsoever to believe I was gluten intolerant or gluten sensitive. However, I do now attribute my going gluten free to being a big reason I have not had any further EN as well as total clearing of other joint issues that I had been living with for a few years. I also had an injury that I thought had just healed to the extent it was going to but since going gluten free, I do not have residual pain in that previously injured area either.Your description of your EN mirrors mine in many many ways. When at your stage I was like you with 40 or so bruise spots mostly on my legs but I did have a few of those at my wrists and elbows as well.So I just want to give you hope and also courage and optimism about the future.And to mention that you are in control, at least to the degree of the choices you make and learning to care for your body and what that means and requires for you. I don't know what triggered my EN either although I suspect the schedule I was keeping at the time had something to do with it. I was working a new job (which I really liked ) and did not think was "stressing me" but I believe that these were all contributing factors. I do think though that had I not gone gluten free, it seems highly likely that I could have had recurrences, given what I know about my joints prior to the EN before going gluten free and what they are like now. In the end, i've ended up feeling so much younger!Chantelle

Hello all: I think my first EN experience my be finally coming to a gradual end. The first nodule area, which was large and very bruiselike, seems to have faded nearly away. It has always been extremely tender at every phase throughout the two +months I have had EN. Today it is not sore at all and one can barely notice anything was there. The other nodules, probably about 40 collectively on both legs, look like red or bruise brown spots, the original nodule has left no spot. The only pain I have is in hip(pre existing anyway) and wrist, and occasional ankle pain, with ankles being in a general state of discomfort. The swelling hit a peak about 5 days ago with left leg being pretty tight from mid thigh down, knee still feels weird, and ankles I think will ebb & flow continually regardless of nodules.

I am not clear whatsoever about what triggered my EN. I hope I am correct that it is finally dissipating. Im concerned about what the potential frequency of this will be. Sounds like this disease is the ultimate in unpredictability with sampling from the major autoimmune conditions. Random servings from a sensory buffet. Yay.

Thank you to all who post here. I have appreciated the EN tour guides on my first trip through.

[Guest guest]

Thanks so much for the pep talk! Funny you replied when you did. I awoke this

morning with such amazing pain in my palms and bottoms of my feet. I felt as I

had been drug behind a snowmobile on a bumpy frozen lake ( MN reference). I

stayed up very late baking for a benefit and really overdid it.

Anyway, I heard my phone notify me of an email(it was charging) and yours was

the first one of my morning. I also have two new nodules; so, " it ain't over

yet. " I do appreciate hearing of the possibility of a single outbreak.

>

> > Hello all: I think my first EN experience my be finally coming to a gradual

end. The first nodule area, which was large and very bruiselike, seems to have

faded nearly away. It has always been extremely tender at every phase throughout

the two +months I have had EN. Today it is not sore at all and one can barely

notice anything was there. The other nodules, probably about 40 collectively on

both legs, look like red or bruise brown spots, the original nodule has left no

spot. The only pain I have is in hip(pre existing anyway) and wrist, and

occasional ankle pain, with ankles being in a general state of discomfort. The

swelling hit a peak about 5 days ago with left leg being pretty tight from mid

thigh down, knee still feels weird, and ankles I think will ebb & flow

continually regardless of nodules.

> >

> > I am not clear whatsoever about what triggered my EN. I hope I am correct

that it is finally dissipating. Im concerned about what the potential frequency

of this will be. Sounds like this disease is the ultimate in unpredictability

with sampling from the major autoimmune conditions. Random servings from a

sensory buffet. Yay.

> >

> > Thank you to all who post here. I have appreciated the EN tour guides on my

first trip through.

> >

> >

> >

> >

>

[Guest guest]

Hi ,it's true, most people who get EN only get it once. Most of us in the group have it chronic and have learned to deal with it after failing to figure out our trigger. But don't give up hope, even if you have chronic EN. I had it for 41 yrs---on and off and then mostly on. Then with the encouragement of my husband I stuck my leg in a bucket of ice water for up to an hour before I put on my support stocking. I started to do this twice a day and it was not pleasant. I continued this for 2 months. Then I started back walking very slowly--only a block or two at first as before any walking triggered the EN to flare. then I stopped the ice water treatment and just wore the stocking until I

broke my hand on 3/15/12. I could not get the stocking on with the cast on my right hand. Much to my surprise, the EN still has not returned and it has been in remission for over 3 yrs. so never give up hope, and that said, I hope you and all our members find a way to get into and stay in remission forever.Happy Memorial Day Weekend, Everyone!Love,http://poems2order.wordpress.com/Please enter Erythema Nodosum.........Thanks!Subject: Re: First outbreak finally done?To: erythema_nodosum_Group Date: Saturday, May 26, 2012, 6:20 PMThanks so much for the pep talk! Funny you replied when you did. I awoke this morning with such amazing pain in my palms and bottoms of my feet. I felt as I had been drug behind a snowmobile on a bumpy frozen lake ( MN reference). I stayed up very late baking for a benefit and really overdid it.Anyway, I heard my phone notify me of an email(it was charging) and yours was the first one of my morning. I also have two new nodules; so," it ain't over yet." I do appreciate hearing of the possibility of a single

outbreak.> > > Hello all: I think my first EN experience my be finally coming to a gradual end. The first nodule area, which was large and very bruiselike, seems to have faded nearly away. It has always been extremely tender at every phase throughout the two +months I have had EN. Today it is not sore at all and one can barely notice anything was there. The other nodules, probably about 40 collectively on both legs, look like red or bruise brown spots, the original nodule has left no spot. The only pain I have is in hip(pre existing anyway) and wrist, and occasional ankle pain, with ankles being in a general state of discomfort. The swelling hit a peak about 5 days

ago with left leg being pretty tight from mid thigh down, knee still feels weird, and ankles I think will ebb & flow continually regardless of nodules.> > > > I am not clear whatsoever about what triggered my EN. I hope I am correct that it is finally dissipating. Im concerned about what the potential frequency of this will be. Sounds like this disease is the ultimate in unpredictability with sampling from the major autoimmune conditions. Random servings from a sensory buffet. Yay.> > > > Thank you to all who post here. I have appreciated the EN tour guides on my first trip through.> > > > > > > >>------------------------------------You can help Erythema Nodosum Research. Just go to http://www.goodsearch.com/ and under the I'm Supporting section enter Erythema

Nodosum Research Fund. Every time you use Goodsearch to search, a penny will be donated to EN Research. NOW you can also GoodShop for Erythema Nodosum. All your favorites including Amazon.com will donate when you specify Erythema Nodosum as who you GoodShop for. So sign up today, and be sure to tell your friends, family and co-workers. Let's find a cure for Erythema Nodosum!

[Guest guest]

If I overdo now I have pains and issues that are big warning signs to me. Before I would overdo and not really even realize . I can't emphasize enough that if you want to recover well and become EN free then I strongly suggest NOT allowing yourself to overdo. I know it's hard to break old habits but isn't your health worth it?ChantelleSent from my iPhone

Thanks so much for the pep talk! Funny you replied when you did. I awoke this morning with such amazing pain in my palms and bottoms of my feet. I felt as I had been drug behind a snowmobile on a bumpy frozen lake ( MN reference). I stayed up very late baking for a benefit and really overdid it.

Anyway, I heard my phone notify me of an email(it was charging) and yours was the first one of my morning. I also have two new nodules; so," it ain't over yet." I do appreciate hearing of the possibility of a single outbreak.

>

> > Hello all: I think my first EN experience my be finally coming to a gradual end. The first nodule area, which was large and very bruiselike, seems to have faded nearly away. It has always been extremely tender at every phase throughout the two +months I have had EN. Today it is not sore at all and one can barely notice anything was there. The other nodules, probably about 40 collectively on both legs, look like red or bruise brown spots, the original nodule has left no spot. The only pain I have is in hip(pre existing anyway) and wrist, and occasional ankle pain, with ankles being in a general state of discomfort. The swelling hit a peak about 5 days ago with left leg being pretty tight from mid thigh down, knee still feels weird, and ankles I think will ebb & flow continually regardless of nodules.

> >

> > I am not clear whatsoever about what triggered my EN. I hope I am correct that it is finally dissipating. Im concerned about what the potential frequency of this will be. Sounds like this disease is the ultimate in unpredictability with sampling from the major autoimmune conditions. Random servings from a sensory buffet. Yay.

> >

> > Thank you to all who post here. I have appreciated the EN tour guides on my first trip through.

> >

> >

> >

> >

>

[Guest guest]

, My advice for the here and now, when you feel the need like you have to rest, DO IT!I did that with a game of bowling with my family, 1st time, so I had to go as I was feeling GREAT! Got a margarita, cause how strong can a bowling alley drink be??? Well, I was in bed for a 5 hour nap the next day, worn out! So, now, when I get a chill, feel tired, I am relaxing. I have learned the hard way, and, BTW did not even have a hangover...Debbie en 5-7Files

1

Visit Your Group

You can help Erythema Nodosum Research. Just go to

http://www.goodsearch.com/

and under the I'm Supporting section enter Erythema Nodosum Research Fund. Every time you use Goodsearch to search, a penny will be donated to EN Research.

NOW you can also GoodShop for Erythema Nodosum. All your favorites including Amazon.com will donate when you specify Erythema Nodosum as who you GoodShop for. So sign up today, and be sure to tell your friends, family and co-workers. Let's find a cure for Erythema Nodosum!

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