Re: Hope for Misophonia through NFB

[Guest guest]

Mike,I'm excited to hear about your results!!!

Does anyone know of any NFB providers in the Philadelphia region?

[Guest guest]

Mike, I see from the website that they do the QEEG. That may be why Dr. Gurnee says it’s faster. It maps out your brain, therefore therapy is customized to your needs as opposed to picking a protocol for a specific disorder. I doubt there is a tired and true protocol for Miso. That’s why I’m so impressed with brain mapping. It eliminates the guess work. I’m excited for you! Colleen From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of LawrenceSent: Tuesday, July 24, 2012 1:14 PMTo: soundsensitivity Subject: Hope for Misophonia through NFB I just got off the phone with a Dr. Gurnee. He runs the sdale Neurofeedback center here in sdale, AZ. His website: http://www.scottsdaleneurofeedback.com/ He is the one I am planning to do my Neurofeedback with. He said that he has treated many people with sound sensitivities and considers it a form of OCD. I told him about other sensitivities like visual and tactile and he said that he sees that all the time and that they come from the samearea of the brain. Funny, but he mentioned many of his patients hated eating and chewing sounds. They are no longer bothered by the sounds and can choose whether to obsess about them or not, but now chose not to and have the power to do that. He also said that he knows exactly what part of the brain causes this problem and focuses on that area but still requires that I get the QEEG mapping done. I told him about Clyle and how he needed over 100 sessions and said that it would take much less than that ( I guess since he already knows the area of the brain to focus on) but the number would depend on the severity of the condition. I feel very hopeful right now, and that is a nice feeling. I start in 2 weeks, since I am visiting family first in N.Y. Can't wait to report on this to the group. I sure hope it works! Funny how this is happening right now with all that has been going on here on this site. Mike

[Guest guest]

Mike, I see from the website that they do the QEEG. That may be why Dr. Gurnee says it’s faster. It maps out your brain, therefore therapy is customized to your needs as opposed to picking a protocol for a specific disorder. I doubt there is a tired and true protocol for Miso. That’s why I’m so impressed with brain mapping. It eliminates the guess work. I’m excited for you! Colleen From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of LawrenceSent: Tuesday, July 24, 2012 1:14 PMTo: soundsensitivity Subject: Hope for Misophonia through NFB I just got off the phone with a Dr. Gurnee. He runs the sdale Neurofeedback center here in sdale, AZ. His website: http://www.scottsdaleneurofeedback.com/ He is the one I am planning to do my Neurofeedback with. He said that he has treated many people with sound sensitivities and considers it a form of OCD. I told him about other sensitivities like visual and tactile and he said that he sees that all the time and that they come from the samearea of the brain. Funny, but he mentioned many of his patients hated eating and chewing sounds. They are no longer bothered by the sounds and can choose whether to obsess about them or not, but now chose not to and have the power to do that. He also said that he knows exactly what part of the brain causes this problem and focuses on that area but still requires that I get the QEEG mapping done. I told him about Clyle and how he needed over 100 sessions and said that it would take much less than that ( I guess since he already knows the area of the brain to focus on) but the number would depend on the severity of the condition. I feel very hopeful right now, and that is a nice feeling. I start in 2 weeks, since I am visiting family first in N.Y. Can't wait to report on this to the group. I sure hope it works! Funny how this is happening right now with all that has been going on here on this site. Mike

[Guest guest]

Well, oops.I meant “tried and true” not tired…I think I am tired…Colleen Mike,I see from the website that they do the QEEG. That may be why Dr. Gurnee says it’s faster. It maps out your brain, therefore therapy is customized to your needs as opposed to picking a protocol for a specific disorder. I doubt there is a tired and true protocol for Miso. That’s why I’m so impressed with brain mapping. It eliminates the guess work.I’m excited for you!Colleen From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of LawrenceSent: Tuesday, July 24, 2012 1:14 PMTo: soundsensitivity Subject: Hope for Misophonia through NFB I just got off the phone with a Dr. Gurnee. He runs the sdale Neurofeedback center here in sdale, AZ. His website: http://www.scottsdaleneurofeedback.com/ He is the one I am planning to do my Neurofeedback with. He said that he has treated many people with sound sensitivities and considers it a form of OCD. I told him about other sensitivities like visual and tactile and he said that he sees that all the time and that they come from the samearea of the brain. Funny, but he mentioned many of his patients hated eating and chewing sounds. They are no longer bothered by the sounds and can choose whether to obsess about them or not, but now chose not to and have the power to do that. He also said that he knows exactly what part of the brain causes this problem and focuses on that area but still requires that I get the QEEG mapping done. I told him about Clyle and how he needed over 100 sessions and said that it would take much less than that ( I guess since he already knows the area of the brain to focus on) but the number would depend on the severity of the condition. I feel very hopeful right now, and that is a nice feeling. I start in 2 weeks, since I am visiting family first in N.Y. Can't wait to report on this to the group. I sure hope it works! Funny how this is happening right now with all that has been going on here on this site. Mike

[Guest guest]

Well, oops.I meant “tried and true” not tired…I think I am tired…Colleen Mike,I see from the website that they do the QEEG. That may be why Dr. Gurnee says it’s faster. It maps out your brain, therefore therapy is customized to your needs as opposed to picking a protocol for a specific disorder. I doubt there is a tired and true protocol for Miso. That’s why I’m so impressed with brain mapping. It eliminates the guess work.I’m excited for you!Colleen From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of LawrenceSent: Tuesday, July 24, 2012 1:14 PMTo: soundsensitivity Subject: Hope for Misophonia through NFB I just got off the phone with a Dr. Gurnee. He runs the sdale Neurofeedback center here in sdale, AZ. His website: http://www.scottsdaleneurofeedback.com/ He is the one I am planning to do my Neurofeedback with. He said that he has treated many people with sound sensitivities and considers it a form of OCD. I told him about other sensitivities like visual and tactile and he said that he sees that all the time and that they come from the samearea of the brain. Funny, but he mentioned many of his patients hated eating and chewing sounds. They are no longer bothered by the sounds and can choose whether to obsess about them or not, but now chose not to and have the power to do that. He also said that he knows exactly what part of the brain causes this problem and focuses on that area but still requires that I get the QEEG mapping done. I told him about Clyle and how he needed over 100 sessions and said that it would take much less than that ( I guess since he already knows the area of the brain to focus on) but the number would depend on the severity of the condition. I feel very hopeful right now, and that is a nice feeling. I start in 2 weeks, since I am visiting family first in N.Y. Can't wait to report on this to the group. I sure hope it works! Funny how this is happening right now with all that has been going on here on this site. Mike

[Guest guest]

Thanks Colleen , I am hoping for the best. I want this to work so hopefully we can see that there truly is a cure that Works,for at least most people. If I can be cured,anyone can. I have it bad !How about you?MikeSent from my iPad

Well, oops.I meant “tried and true†not tired…I think I am tired…Colleen Mike,I see from the website that they do the QEEG. That may be why Dr. Gurnee says it’s faster. It maps out your brain, therefore therapy is customized to your needs as opposed to picking a protocol for a specific disorder. I doubt there is a tired and true protocol for Miso. That’s why I’m so impressed with brain mapping. It eliminates the guess work.I’m excited for you!Colleen From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of LawrenceSent: Tuesday, July 24, 2012 1:14 PMTo: soundsensitivity Subject: Hope for Misophonia through NFB I just got off the phone with a Dr. Gurnee. He runs the sdale Neurofeedback center here in sdale, AZ. His website: http://www.scottsdaleneurofeedback.com/ He is the one I am planning to do my Neurofeedback with. He said that he has treated many people with sound sensitivities and considers it a form of OCD. I told him about other sensitivities like visual and tactile and he said that he sees that all the time and that they come from the samearea of the brain. Funny, but he mentioned many of his patients hated eating and chewing sounds. They are no longer bothered by the sounds and can choose whether to obsess about them or not, but now chose not to and have the power to do that. He also said that he knows exactly what part of the brain causes this problem and focuses on that area but still requires that I get the QEEG mapping done. I told him about Clyle and how he needed over 100 sessions and said that it would take much less than that ( I guess since he already knows the area of the brain to focus on) but the number would depend on the severity of the condition. I feel very hopeful right now, and that is a nice feeling. I start in 2 weeks, since I am visiting family first in N.Y. Can't wait to report on this to the group. I sure hope it works! Funny how this is happening right now with all that has been going on here on this site. Mike

[Guest guest]

Luck and prayers are with you bud.

--- Original Message ---

Sent: July 26, 2012 7/26/12

To: Soundsensitivity

Subject: Re: Hope for Misophonia through NFB

 

Thanks Colleen , 

I am hoping for the best.  I want this to work so hopefully we can see that

there truly is a cure that 

Works,for at least most people. If I can be cured,anyone can. I have it bad !

How about you?

Mike

Sent from my iPad

 

Well, oops.

I meant “tried and true†not tired…I think I am tired…

Colleen

 

Mike,

I see from the website that they do the QEEG. That may be why Dr. Gurnee says

it’s faster. It maps out your brain, therefore therapy is customized to your

needs as opposed to picking a protocol for a specific disorder. I doubt there is

a tired and true protocol for Miso. That’s why I’m so impressed with brain

mapping. It eliminates the guess work.

I’m excited for you!

Colleen

 

 

From: Soundsensitivity [mailto:Soundsensitivity ]

On Behalf Of Lawrence

Sent: Tuesday, July 24, 2012 1:14 PM

To: soundsensitivity

Subject: Hope for Misophonia through NFB

 

 

 

 

 I just got off the phone with a Dr. Gurnee. He runs the sdale

Neurofeedback center here in sdale, AZ. 

 

His website:      http://www.scottsdaleneurofeedback.com/

 

He is the one I am planning to do my Neurofeedback with.  

He said that he has treated many people with sound sensitivities and considers

it a form of OCD. I told him about 

other sensitivities like visual and tactile and he said that he sees that all

the time and that they come from the same

area of the brain. 

Funny, but he mentioned many of his patients hated eating and chewing sounds.

They are no longer bothered by 

the sounds and can choose whether to obsess about them or not, but now chose not

to and have the power to do that. 

He also said that he knows exactly what part of the brain causes this problem

and focuses on that area but still requires 

that I get the QEEG mapping done. 

 

I told him about Clyle and how he needed over 100 sessions and said that it

would take much less than that ( I guess 

since he already knows the area of the brain to focus on) but the number would

depend on the severity of the condition. 

 

I feel very hopeful right now, and that is a nice feeling. I start in 2 weeks,

since I am  visiting family first in N.Y. 

 

Can't wait to report on this to the group. I sure hope it works!

 

Funny how this is happening right now with all that has been going on here on

this site. 

 

Mike

 

 

 

[Guest guest]

Thank you. Best to you.Sent from my iPad

Luck and prayers are with you bud.

--- Original Message ---

Sent: July 26, 2012 7/26/12

To: Soundsensitivity

Subject: Re: Hope for Misophonia through NFB

Thanks Colleen ,

I am hoping for the best. I want this to work so hopefully we can see that there truly is a cure that

Works,for at least most people. If I can be cured,anyone can. I have it bad !

How about you?

Mike

Sent from my iPad

Well, oops.

I meant “tried and true†not tired…I think I am tired…

Colleen

Mike,

I see from the website that they do the QEEG. That may be why Dr. Gurnee says it’s faster. It maps out your brain, therefore therapy is customized to your needs as opposed to picking a protocol for a specific disorder. I doubt there is a tired and true protocol for Miso. That’s why I’m so impressed with brain mapping. It eliminates the guess work.

I’m excited for you!

Colleen

From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Lawrence

Sent: Tuesday, July 24, 2012 1:14 PM

To: soundsensitivity

Subject: Hope for Misophonia through NFB

I just got off the phone with a Dr. Gurnee. He runs the sdale Neurofeedback center here in sdale, AZ.

His website: http://www.scottsdaleneurofeedback.com/

He is the one I am planning to do my Neurofeedback with.

He said that he has treated many people with sound sensitivities and considers it a form of OCD. I told him about

other sensitivities like visual and tactile and he said that he sees that all the time and that they come from the same

area of the brain.

Funny, but he mentioned many of his patients hated eating and chewing sounds. They are no longer bothered by

the sounds and can choose whether to obsess about them or not, but now chose not to and have the power to do that.

He also said that he knows exactly what part of the brain causes this problem and focuses on that area but still requires

that I get the QEEG mapping done.

I told him about Clyle and how he needed over 100 sessions and said that it would take much less than that ( I guess

since he already knows the area of the brain to focus on) but the number would depend on the severity of the condition.

I feel very hopeful right now, and that is a nice feeling. I start in 2 weeks, since I am visiting family first in N.Y.

Can't wait to report on this to the group. I sure hope it works!

Funny how this is happening right now with all that has been going on here on this site.

Mike

=

[Guest guest]

Yeah, I have it bad, too. It’s gotten worse over the last few years with a heavy onslaught of tactile sensitivity to accompany my auditory and visual triggers. Life has become a nightmare.I feel the same as you…if I can be cured, anyone can. I’ve tried so many therapies. Neurofeedback may be my last hope. Number 18 today…it’s going to be a long summer.I’ll pray for all of us.Colleen From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of LawrenceSent: Thursday, July 26, 2012 5:34 PMTo: Soundsensitivity Subject: Re: Hope for Misophonia through NFB Thanks Colleen , I am hoping for the best. I want this to work so hopefully we can see that there truly is a cure that Works,for at least most people. If I can be cured,anyone can. I have it bad !How about you?MikeSent from my iPad Well, oops.I meant “tried and true†not tired…I think I am tired…Colleen Mike,I see from the website that they do the QEEG. That may be why Dr. Gurnee says it’s faster. It maps out your brain, therefore therapy is customized to your needs as opposed to picking a protocol for a specific disorder. I doubt there is a tired and true protocol for Miso. That’s why I’m so impressed with brain mapping. It eliminates the guess work.I’m excited for you!Colleen From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of LawrenceSent: Tuesday, July 24, 2012 1:14 PMTo: soundsensitivity Subject: Hope for Misophonia through NFB I just got off the phone with a Dr. Gurnee. He runs the sdale Neurofeedback center here in sdale, AZ. His website: http://www.scottsdaleneurofeedback.com/ He is the one I am planning to do my Neurofeedback with. He said that he has treated many people with sound sensitivities and considers it a form of OCD. I told him about other sensitivities like visual and tactile and he said that he sees that all the time and that they come from the samearea of the brain. Funny, but he mentioned many of his patients hated eating and chewing sounds. They are no longer bothered by the sounds and can choose whether to obsess about them or not, but now chose not to and have the power to do that. He also said that he knows exactly what part of the brain causes this problem and focuses on that area but still requires that I get the QEEG mapping done. I told him about Clyle and how he needed over 100 sessions and said that it would take much less than that ( I guess since he already knows the area of the brain to focus on) but the number would depend on the severity of the condition. I feel very hopeful right now, and that is a nice feeling. I start in 2 weeks, since I am visiting family first in N.Y. Can't wait to report on this to the group. I sure hope it works! Funny how this is happening right now with all that has been going on here on this site. Mike

[Guest guest]

Hi Mike. I never post here, Im more of a lurker. However, your particular

message interests me, because your doctor claims to know what area of the brain

is being affected by your condition.

It is my understanding that even the people studying misophonia do not know what

area of the brain is not working correctly in this condition as they have failed

to do PET color scans of the brains of misophonia sufferers.

If indeed this condition is connected to OCD then when being triggered the same

area of the brain that lights up in OCD patients PET scans should light up in a

misophonics brain scan. Would be great to see.

In any case, I hope you keep the group posted on your progress with this

particular doctor because if his theory is correct and he is able to help you,

that could be of great use to the rest of us. Hell, it could even help spur new

research into misophonia to pin down the exact problem area in the brain. Once

we fully understand what is up in the brain with this condition, it will be much

easier to treat it, especially if it turns out to be some variant form of OCD

spectrum disorder like your NFB doctor seems to think it is.

[Guest guest]

I hope that he does know something that most of us don't. He seemed so nonchalant and confidant about being able to treat this. I will have to see. Let's just hope he does know how to treat Misophonia like he says and even though he didn't know the name,he has seen others with these sensitivities many times before and Like I have thought many times, it is very akin to OCD,and not all that unusual. I am by no means an expert on these things. There are experts here that know much more than I do . I rely on their knowledge, though I do think they sometimes close their minds to new ideas.I can't wait to see if it is true and I can share something very useful to this group. Could be a game changer .MikeSent from my iPadI can't wait

Hi Mike. I never post here, Im more of a lurker. However, your particular message interests me, because your doctor claims to know what area of the brain is being affected by your condition.

It is my understanding that even the people studying misophonia do not know what area of the brain is not working correctly in this condition as they have failed to do PET color scans of the brains of misophonia sufferers.

If indeed this condition is connected to OCD then when being triggered the same area of the brain that lights up in OCD patients PET scans should light up in a misophonics brain scan. Would be great to see.

In any case, I hope you keep the group posted on your progress with this particular doctor because if his theory is correct and he is able to help you, that could be of great use to the rest of us. Hell, it could even help spur new research into misophonia to pin down the exact problem area in the brain. Once we fully understand what is up in the brain with this condition, it will be much easier to treat it, especially if it turns out to be some variant form of OCD spectrum disorder like your NFB doctor seems to think it is.

=