Guest guest Posted April 3, 2007 Report Share Posted April 3, 2007 I too am new to the group- Welcome, . When you are ready not to accept your mother's problems and stress you won't. I FINALLY had enough of my mother. When this moment happens for you, and maybe it has. Start putting up boundaries that protect you from your mother. This for me is a process. I use to call my nada or she called me 2-3( somedays more) times a day about absolutely nothing. I usually called her, because I knew she would tell me about it if I didn't. ( that- FOG= Fear, Obligation and Guilt held me in place and she knew it. I don't do that anymore, and when she tries the guilt trip on me, it just won't stick anymore. I feel like a piece of teflon...and I throw it back to her. I limit my visit to her, and I always have a back-up plan for the phone calls or visits, so I can exit out of either. So if she rages or becomes unreasonable I leave. We are done. I as calmly as I can, because at one time at of sheer frustration I would yell back, (too much like nada's behavior for me) and tell her we need a break right now. That is that, no explanations why, that just pulls me in more. Then I wait to reconnect and when we reconnect she brings it up again...it is another break. Truly I see how much dealing with my mother is dealing like with a child. She will have temper tantrums and she will need reassurance like a child. She is though an adult, and so am I. On managing my own stresses- Therapy, reading self help books, validating my feelings in reading and writing in these wonderful and sometimes painful postings. Reminding myself each day, I am forming a new set of tapes, and am throwing out the ones my mother gave me. Yipee!! New start for me! I guess just remember this is a process and a day at time. This too is a great place and lots of people to support you on your journey. Take care of yourself, Malinda --- > > > > > > hello, my name is and well, I don't really know where to > > begin. i suppose i could start by asking...how does someone with BPD > > themselves, cope with a parent haveing BPD also?....I can barely > > manage my own stresses...any advice on how to manage the stresses > > thrown my way by my mothers BPD? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2012 Report Share Posted July 7, 2012 Hi, My name is . I have had noice sensitivity for as long as I can remember. Do any of you have tips on dealing with it? I hate getting so agitated. For the longest time I felt like I was the only one with this. Sent from my iPhone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2012 Report Share Posted July 7, 2012 Welcome ,Most of us just have to learn to avoid. Avoiding situations that will bother us..and how to cope...it's tough to really tell any individual what to do. Many try ear plugs, or noise ear phones such as white noise ear aids.Also, there seems to be a treatment that REALLY helps that is just coming to light, called Neurofeedback.Subject: New to groupTo: "Soundsensitivity " <Soundsensitivity >Date: Saturday, July 7, 2012, 11:20 AM Hi, My name is . I have had noice sensitivity for as long as I can remember. Do any of you have tips on dealing with it? I hate getting so agitated. For the longest time I felt like I was the only one with this. Sent from my iPhone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2012 Report Share Posted July 14, 2012 Welcome to the group J.J., I am the mom of a 30 year old daughter with Still's. I come here to gain understanding and help if I can. She is not up to doing any support group activities. I have several auto-immune disorders myself, that are very similar. You will find much support and love here, and I welcome you!  >To: Stillsdisease >Sent: Thursday, July 12, 2012 11:28 AM >Subject: New to group > > > >Hi, my name is J.J. I'm new to the group but not to being sick. I first >got sick when I was 13 and was diagnosed with Undifferentiated Connective >Tissue Disease at Minneapolis Children's Hospital. The thought was that as >I aged, it would turn into Lupus (it didn't). It was active and I was >treated with prednisone till I was 18. Then I went into remission for 10 >years. > >At 29, I came out of remission. I was living in southern Minnesota. I got >seriously ill because I had lost my rheumi and could not make the doctors >believe I had UCTD in the past. Medical records did not believe that >records over 10 years old were worth anything and would not send them to my >current doctors. Anyway, I found a great rheumi who re diagnosed me with >UCTD (after a short trip to the Mayo Clinic) and got me stabilized on >prednisone, methotrexate, and a few years later remicade. There was a >divorce and moving back in with my parents in Minneapolis mixed in to add >spice to that time. > >That held me for a couple of years but I kept needing more and more >remicade to stay active in my life. I had a job, started dating. So, then >I switched to Humira and moved to Madison, WI to be with the >boyfriend/current husband. I was falling more back into the sickness hole >with flares and I was not able to full recover from them. Switched again >to Enbrel with the hopes that it would stabilize me and I was able to work >for another year but then I had big flare. I just could not get out of >bed, so I lost my job, had to get married NOW for insurance, and started >paper work to get on disability. It took 2 years to get on disability. > >So, now I'm 41. My rheumi re-diagnosed me with Still's a year or so ago. >I'm on Kineret, methotrexate, prednisone, plus lots of others to treat the >pain, depression, and not sleeping. My symptoms are fatigue major fatigue, >arthritis joint pain/stiffness/swelling in my wrist (and hand), shoulders, >and ankles, osteoarthritis in hip, pleurisy, pain and stiffness in ribs >along sternum, and all over achiness like a big flu. I'm anemic, obese >from years of prednisone, and my blood test come back normal. I don't >think I run fevers but I sometimes have that feeling without the fever. > >I'm stable in my sickness. Still fighting it but able to do little >things. I'm walking with nordic walking poles about every other day for 30 >minutes. I do light cleaning in the house. Meet with friends. Meditate >to lower pain and stress of being chronically ill. I'm in a good place >emotionally because I'm working on it. I try to be grateful for the good >things in my life. > >So, this is my long intro to you all. > >J.J. > > Quote Link to comment Share on other sites More sharing options...
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