Guest guest Posted August 5, 2012 Report Share Posted August 5, 2012 Hello All- I'm new to this group and the term misophonia. For years I have dealt with this problem and try to explain to people how I can't tolerate certain sounds/movements/smells and have been told in the past that it sounds like I have " sensory defensiveness " . I read up on that years back and felt like: yup - that's me! I felt the same way when I read about misophonia, as it went more in depth on the different trigger noises and such. I wonder - do I go somewhere to get a diagnosis? Do anti-anxiety meds help? Is this possibly genetic? In my case it very well could be, I come from a VERY large family and 3 generations of women in my family may have this! It's really strange - I thought it was learned when I was young because I remember getting yelled at every time I made " annoying " noises. My mother can't stand certain noises - she yelled at my older siblings, they yelled at me & then their kids, so on & so forth. Oddly enough this doesn't seem to affect any men in my family! Now half the women in my family (ages 75- 19) freak out about certain sounds - especially eating noises. I don't know how bad the others in my family are, but I literally feel like I'm gonna have a heart attack when triggers hit - my heart starts pounding, my blood boils, sometimes I feel like I could beat the hell out of somebody or bawl my eyes out. It's exhausting!!! My triggers are too numerous to list, but there are sounds/repetitive movements and sometimes even certain smells that send me just about over the edge! I feel like I'm constantly trying to talk myself out of a nervous breakdown! I feel like I'm crazy! I know these reactions are not rational, but how the hell do I stop freaking out?! I feel out of control and it sucks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2012 Report Share Posted August 5, 2012 Welcome to the group,I also have some sensory defensive type issues. I do get some relief from an anti-depressant and an anti-anxiety drug as I need it. The Misophonia is 10 times worse when I have in serious depression or am having relentless anxiety. I am treated by a psychiatrist but do not have an specific diagnosis for my sound sensitivity. My doctor thinks it is an anxiety problem maybe involving obsessive tendencies ( I am not saying I have a diagnosis of ocd, but for me it is an possibility, but I am only speaking for myself not for the group.) Unfortunately the typical drugs for anxiety do not have a huge effect on misophonia, perhaps because anxiety can involve other systems in the brain that the typical drugs do not affect. I do not get a pounding heart, this sounds like panic, maybe you could look into helpful treatments for panic attacks. To: Soundsensitivity Sent: Monday, August 6, 2012 12:16 AM Subject: new to this group Hello All- I'm new to this group and the term misophonia. For years I have dealt with this problem and try to explain to people how I can't tolerate certain sounds/movements/smells and have been told in the past that it sounds like I have "sensory defensiveness". I read up on that years back and felt like: yup - that's me! I felt the same way when I read about misophonia, as it went more in depth on the different trigger noises and such. I wonder - do I go somewhere to get a diagnosis? Do anti-anxiety meds help? Is this possibly genetic? In my case it very well could be, I come from a VERY large family and 3 generations of women in my family may have this! It's really strange - I thought it was learned when I was young because I remember getting yelled at every time I made "annoying" noises. My mother can't stand certain noises - she yelled at my older siblings, they yelled at me & then their kids, so on & so forth. Oddly enough this doesn't seem to affect any men in my family! Now half the women in my family (ages 75- 19) freak out about certain sounds - especially eating noises. I don't know how bad the others in my family are, but I literally feel like I'm gonna have a heart attack when triggers hit - my heart starts pounding, my blood boils, sometimes I feel like I could beat the hell out of somebody or bawl my eyes out. It's exhausting!!! My triggers are too numerous to list, but there are sounds/repetitive movements and sometimes even certain smells that send me just about over the edge! I feel like I'm constantly trying to talk myself out of a nervous breakdown! I feel like I'm crazy! I know these reactions are not rational, but how the hell do I stop freaking out?! I feel out of control and it sucks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2012 Report Share Posted August 6, 2012 This sounds like the fight or flight response that is typical in misophonia. Some people have more intense reactions than others do. General self care and sometimes anti-anxiety drugs or antidepressants may make it easier to cope, but won't help with the triggers themselves. Some people use ear plugs or head phones with music or white noise to drown out the sounds. If you search the old messages you'll find all kinds of tips for coping and various treatments that are being tried, but there is no known treatment that is effective for everyone. It does seem like there could be a genetic component based on what people in the group have said, but I seem to be the only one in my family that has it. I hope you find help here! Welcome! Missy I don't know how bad the others in my family are, but I literally feel like I'm gonna have a heart attack when triggers hit - my heart starts pounding, my blood boils, sometimes I feel like I could beat the hell out of somebody or bawl my eyes out. It's exhausting!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2012 Report Share Posted August 6, 2012 Thanks...I have found that I can more easily tolerate the awful noises when I'm in a really good mood (which is few and far between) I too have OCD tendencies and was diagnosed as a teenager with major depression and anxiety, which I do not take medication for because the drugs they have prescribed have made me act/feel worse. (effexor xr & pristiq) I'm hoping to see a new doctor to discuss miso and my other issues and possibly get an RX for something simpler than the mix of meds in the 2 drugs before AND yes an anxiety attack is exactly what it feels like, hopefully I can get some helpful tips from a dr. to better cope! Thanks for replying and sharing! > > Â Welcome to the group, > I also have some sensory defensive type issues. I do get some relief from an anti-depressant and an anti-anxiety drug as I need it. The Misophonia is 10 times worse when I have in serious depression or am having relentless anxiety. I am treated by a psychiatrist but do not have an specific diagnosis for my sound sensitivity. My doctor thinks it is an anxiety problem maybe involving obsessive tendencies ( I am not saying I have a diagnosis of ocd, but for me it is an possibility, but I am only speaking for myself not for the group.) Unfortunately the typical drugs for anxiety do not have a huge effect on misophonia, perhaps because anxiety can involve other systems in the brain that the typical drugs do not affect. > > I do not get a pounding heart, this sounds like panic, maybe you could look into helpful treatments for panic attacks. > > > ________________________________ > > To: Soundsensitivity > Sent: Monday, August 6, 2012 12:16 AM > Subject: new to this group > > > Â > Hello All- > I'm new to this group and the term misophonia. For years I have dealt with this problem and try to explain to people how I can't tolerate certain sounds/movements/smells and have been told in the past that it sounds like I have " sensory defensiveness " . I read up on that years back and felt like: yup - that's me! I felt the same way when I read about misophonia, as it went more in depth on the different trigger noises and such. I wonder - do I go somewhere to get a diagnosis? Do anti-anxiety meds help? > Is this possibly genetic? In my case it very well could be, I come from a VERY large family and 3 generations of women in my family may have this! It's really strange - I thought it was learned when I was young because I remember getting yelled at every time I made " annoying " noises. My mother can't stand certain noises - she yelled at my older siblings, they yelled at me & then their kids, so on & so forth. Oddly enough this doesn't seem to affect any men in my family! Now half the women in my family (ages 75- 19) freak out about certain sounds - especially eating noises. > I don't know how bad the others in my family are, but I literally feel like I'm gonna have a heart attack when triggers hit - my heart starts pounding, my blood boils, sometimes I feel like I could beat the hell out of somebody or bawl my eyes out. It's exhausting!!! My triggers are too numerous to list, but there are sounds/repetitive movements and sometimes even certain smells that send me just about over the edge! I feel like I'm constantly trying to talk myself out of a nervous breakdown! I feel like I'm crazy! I know these reactions are not rational, but how the hell do I stop freaking out?! I feel out of control and it sucks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2012 Report Share Posted August 6, 2012 I had a horrible reaction to effexor, although I have heard people hear saying it worked well for them. Pristiq and Effexor are both selective serotonin and norepinephrine reuptake inhibitors (SNRIs). I take an SSRI which targets serotonin. It took me a long time to find a drug that didn't cause side effects that I could not live with. I have found Celexa to be helpful for both depression and anxiety, unfortunately has little effect on the sound sensitivity. But the misophonia is easier to manage when I am not depressed or anxious. I have clonazepam (a benzo) on hand for anxiety, I try not to use it too often so that I don't develop a tolerance. But it helps if I know I am going to be in an exceptionally misophonia challenging situation to take it before hand to take the edge off. Also if I am going into an anxiety spiral, I will take a clonazepam to cut the spiral, before I get too worked up. I chose a doctor associated with a medical school because I thought he might be more open-minded and interested in unusual problems, which he is. There are techniques to help put the brakes on the physical anxiety response of flight-or-flight, like deep breathing, relaxation and distraction techniques. To: Soundsensitivity Sent: Monday, August 6, 2012 11:46 AM Subject: Re: new to this group Thanks...I have found that I can more easily tolerate the awful noises when I'm in a really good mood (which is few and far between) I too have OCD tendencies and was diagnosed as a teenager with major depression and anxiety, which I do not take medication for because the drugs they have prescribed have made me act/feel worse. (effexor xr & pristiq) I'm hoping to see a new doctor to discuss miso and my other issues and possibly get an RX for something simpler than the mix of meds in the 2 drugs before AND yes an anxiety attack is exactly what it feels like, hopefully I can get some helpful tips from a dr. to better cope! Thanks for replying and sharing! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2012 Report Share Posted August 17, 2012 Love your son, yes, this is a good place. Welcome! > > Marsha, > I'm glad you have set up a smaller group. Sometimes I feel lost in the larger Hyperacusis > Network. We really do have a unique group of patients and their parents. You know me, the > mom of one of your 6 year old patients. It's a struggle each day to find ways to help him > cope at school. It is getting better every day. > > Quote Link to comment Share on other sites More sharing options...
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