Re: Re: Brain Map results

[Guest guest]

I didn't have a QEEG done, my provider said it wasn't necessary, but she did other types of brain tests/mapping that revealed that I have a minor case of ADHD which she said could be fixed when we start the NFB treatments. I'll have to find out what tests she did.

I don't have OCD, but my sister does who also has Misophonia.

 

Thank you so much for sharing. You are absolutely right that a brain map seems to be very important.

My son has misophonia for sure. He can't stand certain sounds and visual cues. His brian map revealed some overactivity in the sensory processing area of his brain. However, he had no signs of ADHD, OCD, brain injury, or anything else. So, he has a really healthy brain, but only one area we are targeting.

This brings into quesiton whether OCD must be present for misophonia to exist. From this, it would seem not and that they are two separate issues. However, I can see how OCD and misophonia interact as you describe. I wonder if OCD and ADHD make it worse for some people and this is why some people describe a more intolerable experience than others. I do notice severity of symptoms varies a lot amongst the group.

For those who don't want to do the brain mapping, I'd say that if our doctor had called Mike's practitioner and asked what to do, he would have used a protocol for ADHD and OCD, and we'd be barking downt he wrong path for sure. In fact, based on the individual, there are at least three separate ways to approach ADHD and OCD and one needs to know which one to take by doing the mapping. Not all practitioners have the extensive training to do the mapping, so they may not encourage it. They rely on trial an error. There are a lot of 'hacks' out there, so you are wise to find a good providor with all of the training.

Good luck with the neurofeedback.

Anne

[Guest guest]

My provider did not do a QEEG map either. But she uses LENS and did a map with that, it's not as extensive but the way she described it is that you only need QEEG if your treating brain damage and otherwise LENS is perfectly fine and significantly less expensive, it's just the cost of the first treatment whereas QEEG can cost up to $1000. My LENS map did not reveal nor does she (or any else ) think I have OCD or ADD. Misophonia seems to be my only brain issue, which means my treatment is tailored for me and not geared at OCD and ADD. If your provider uses Zengar no mapping whatsoever is necessary as the software determines the protocol not the provider. This is what uses. So QEEG is not always necessary. I'm glad another provider also affirmed to avoid brain tech. HeidiSent from my iPhoneLearn to swing dance from me :-)www.jitterbal.comOn Aug 21, 2012, at 7:51 AM, Lindsey Glasgow wrote:

I didn't have a QEEG done, my provider said it wasn't necessary, but she did other types of brain tests/mapping that revealed that I have a minor case of ADHD which she said could be fixed when we start the NFB treatments. I'll have to find out what tests she did.

I don't have OCD, but my sister does who also has Misophonia.

Thank you so much for sharing. You are absolutely right that a brain map seems to be very important.

My son has misophonia for sure. He can't stand certain sounds and visual cues. His brian map revealed some overactivity in the sensory processing area of his brain. However, he had no signs of ADHD, OCD, brain injury, or anything else. So, he has a really healthy brain, but only one area we are targeting.

This brings into quesiton whether OCD must be present for misophonia to exist. From this, it would seem not and that they are two separate issues. However, I can see how OCD and misophonia interact as you describe. I wonder if OCD and ADHD make it worse for some people and this is why some people describe a more intolerable experience than others. I do notice severity of symptoms varies a lot amongst the group.

For those who don't want to do the brain mapping, I'd say that if our doctor had called Mike's practitioner and asked what to do, he would have used a protocol for ADHD and OCD, and we'd be barking downt he wrong path for sure. In fact, based on the individual, there are at least three separate ways to approach ADHD and OCD and one needs to know which one to take by doing the mapping. Not all practitioners have the extensive training to do the mapping, so they may not encourage it. They rely on trial an error. There are a lot of 'hacks' out there, so you are wise to find a good providor with all of the training.

Good luck with the neurofeedback.

Anne

[Guest guest]

Mike, I have zero ADD tendencies. I don't even register into borderline let alone mild or miderate and my mapping supports that assessment. Same with OCD. Sent from my iPhoneLearn to swing dance from me :-)www.jitterbal.comOn Aug 21, 2012, at 2:09 PM, Lawrence wrote:

Heidi,Was hoping for your comments since you know quite a bit on the subject. My doctor uses LORETTA as well as regular single channel NFB. He also offers18(or 19) channel which I just found out about. It takes two people and they use the brain mappingcap. It is for difficult areas,cost twice as much, but is very effective for people that are having trouble. It takes a lot of effort by the patient so they say. I just want to get well so cost and effort are secondary at this point in my

life. I had my brain mapping done for $500.00 since he runs a center for mapping. He uses it to set up the program of protocols, though they change as time goes on. It would be nice to avoid the extra cost if it is not

necessary, but I am just going with the program they have for me. I do have ADD and OCD for sure. I am surprised that you don't. Did they test you for it? I never realized that I had it. And some head injuries, but I had the Miso before the head injuries. This whole NFB thing is an ongoing education and it is good that we all share our knowledge and experiences( and hopefully successes) here. There seems to be many ways of going about this. We need to find out what works best for Misophonia. Dr. Gurnee is of the very strong opinion that it has to do with ADD and OCD to a lesser extent. I would be very interested to hear what your Dr. has to say about it. Keep writing and I

hope you are continuing to see improvement in your symptoms..Mike To: "Soundsensitivity "

<Soundsensitivity > Sent: Tuesday, August 21, 2012 10:00 AM Subject: Re: Re: Brain Map results

My provider did not do a QEEG map either. But she uses LENS and did a map with that, it's not as extensive but the way she described it is that you only need QEEG if your treating brain damage and otherwise LENS is perfectly fine and significantly less expensive, it's just the cost of the first treatment whereas QEEG can cost up to $1000. My LENS map did not reveal nor does she (or any else ) think I have OCD or ADD. Misophonia seems to be my only brain issue, which means my treatment is tailored for me and not geared at OCD and ADD. If your provider uses Zengar no mapping whatsoever is necessary as the software determines the protocol not the provider. This is what uses. So QEEG is not always necessary. I'm glad another provider also affirmed to avoid brain tech. HeidiSent from my

iPhoneLearn to swing dance from me :-)www.jitterbal.comOn Aug 21, 2012, at 7:51 AM, Lindsey Glasgow wrote:

I didn't have a QEEG done, my provider said it wasn't necessary, but she did other types of brain tests/mapping that revealed that I have a minor case of ADHD which she said could be fixed when we start the NFB treatments. I'll have to find out what tests she did.

I don't have OCD, but my sister does who also has Misophonia.

Thank you so much for sharing. You are absolutely right that a brain map seems to be very important.

My son has misophonia for sure. He can't stand certain sounds and visual cues. His brian map revealed some overactivity in the sensory processing area of his brain. However, he had no signs of ADHD, OCD, brain injury, or anything else. So, he has a really healthy brain, but only one area we are targeting.

This brings into quesiton whether OCD must be present for misophonia to exist. From this, it would seem not and that they are two separate issues. However, I can see how OCD and misophonia interact as you describe. I wonder if OCD and ADHD make it worse for some people and this is why some people describe a more intolerable experience than others. I do notice severity of symptoms varies a lot amongst the group.

For those who don't want to do the brain mapping, I'd say that if our doctor had called Mike's practitioner and asked what to do, he would have used a protocol for ADHD and OCD, and we'd be barking downt he wrong path for sure. In fact, based on the individual, there are at least three separate ways to approach ADHD and OCD and one needs to know which one to take by doing the mapping. Not all practitioners have the extensive training to do the mapping, so they may not encourage it. They rely on trial an error. There are a lot of 'hacks' out there, so you are wise to find a good providor with all of the training.

Good luck with the neurofeedback.

Anne

[Guest guest]

Interesting Heidi! I will tell my Dr. about that. See what he has to say.Did you test for anything other than Miso?They will have to add this disorder to all of the others I guess. To: "Soundsensitivity " <Soundsensitivity > Sent: Tuesday, August 21, 2012 2:33 PM Subject: Re: Re: Brain Map results

Mike, I have zero ADD tendencies. I don't even register into borderline let alone mild or miderate and my mapping supports that assessment. Same with OCD. Sent from my iPhoneLearn to swing dance from me :-)www.jitterbal.comOn Aug 21, 2012, at 2:09 PM, Lawrence wrote:

Heidi,Was hoping for your comments since you know quite a bit on the subject. My doctor uses LORETTA as well as regular single channel NFB. He also offers18(or 19) channel which I just

found out about. It takes two people and they use the brain mappingcap. It is for difficult areas,cost twice as much, but is very effective for people that are having trouble. It takes a lot of effort by the patient so they say. I just want to get well so cost and effort are secondary at this point in my

life. I had my brain mapping done for $500.00 since he runs a center for mapping. He uses it to set up the program of protocols, though they change as time goes on. It would be nice to avoid the extra cost if it is not

necessary, but I am just going with the program they have for me. I do have ADD and OCD for sure. I am surprised that you don't. Did they test you for it? I never realized that I had it. And some head injuries, but I had the Miso before the head injuries. This whole NFB thing is an ongoing education and it is good that we all share our knowledge and experiences( and hopefully successes) here. There seems to be many ways of going about this. We need to find out what works best for Misophonia. Dr. Gurnee is of the very strong opinion that it has to

do with ADD and OCD to a lesser extent. I would be very interested to hear what your Dr. has to say about it. Keep writing and I

hope you are continuing to see improvement in your symptoms..Mike To: "Soundsensitivity "

<Soundsensitivity > Sent: Tuesday, August 21, 2012 10:00 AM Subject: Re: Re: Brain Map results

My provider did not do a QEEG map either. But she uses LENS and did a map with that, it's not as extensive but the way she described it is that you only need QEEG if your treating brain damage and otherwise LENS is perfectly fine and significantly less expensive, it's just the cost of the first treatment whereas QEEG can cost up to $1000. My LENS map did not reveal nor does she (or any else ) think I have OCD or ADD. Misophonia seems to be my only brain issue, which means my treatment is tailored for me and not geared at OCD and ADD. If your provider uses Zengar no mapping whatsoever is necessary as the software determines the protocol not the provider. This is what uses. So QEEG is not always necessary. I'm glad another provider also affirmed to avoid brain tech. HeidiSent from my

iPhoneLearn to swing dance from me :-)www.jitterbal.comOn Aug 21, 2012, at 7:51 AM, Lindsey Glasgow wrote:

I didn't have a QEEG done, my provider said it wasn't necessary, but she did other types of brain tests/mapping that revealed that I have a minor case of ADHD which she said could be fixed when we start the NFB treatments. I'll have to find out what tests she did.

I don't have OCD, but my sister does who also has Misophonia.

Thank you so much for sharing. You are absolutely right that a brain map seems to be very important.

My son has misophonia for sure. He can't stand certain sounds and visual cues. His brian map revealed some overactivity in the sensory processing area of his brain. However, he had no signs of ADHD, OCD, brain injury, or anything else. So, he has a really healthy brain, but only one area we are targeting.

This brings into quesiton whether OCD must be present for misophonia to exist. From this, it would seem not and that they are two separate issues. However, I can see how OCD and misophonia interact as you describe. I wonder if OCD and ADHD make it worse for some people and this is why some people describe a more intolerable experience than others. I do notice severity of symptoms varies a lot amongst the group.

For those who don't want to do the brain mapping, I'd say that if our doctor had called Mike's practitioner and asked what to do, he would have used a protocol for ADHD and OCD, and we'd be barking downt he wrong path for sure. In fact, based on the individual, there are at least three separate ways to approach ADHD and OCD and one needs to know which one to take by doing the mapping. Not all practitioners have the extensive training to do the mapping, so they may not encourage it. They rely on trial an error. There are a lot of 'hacks' out there, so you are wise to find a good providor with all of the training.

Good luck with the neurofeedback.

Anne

[Guest guest]

HEIDI,I reread you email. Since Misophonia people have such common symptoms, I will be curious to see if there are some common areas of the brain that are effected is similar ways. If they are mapped it might be easy to see. I just wonder if Misophonia is it's own peculiar disorder, with common brain wave patterns, and not related to OCD,ADD ,Aspergers or whatever. Many people here have posted that they have these disorders, some of which have similar symptoms. But as you have said, you only have Misophonia, so I guess it is possible to only have that. It would be interesting if it were possible to compare and contrast a large sample of Misophonia patients brain maps and look for commonalities. Could go a long way towards standardizing treatment. I have been on this site for almost 2 years and it seems like there has been great progress. From mostly complaining about annoying people, to treatments, and coping mechanisms to maybe finally finding a cure for this. Wouldn't it be great!Mike Sent from my iPad

My provider did not do a QEEG map either. But she uses LENS and did a map with that, it's not as extensive but the way she described it is that you only need QEEG if your treating brain damage and otherwise LENS is perfectly fine and significantly less expensive, it's just the cost of the first treatment whereas QEEG can cost up to $1000. My LENS map did not reveal nor does she (or any else ) think I have OCD or ADD. Misophonia seems to be my only brain issue, which means my treatment is tailored for me and not geared at OCD and ADD. If your provider uses Zengar no mapping whatsoever is necessary as the software determines the protocol not the provider. This is what uses. So QEEG is not always necessary. I'm glad another provider also affirmed to avoid brain tech. HeidiSent from my iPhoneLearn to swing dance from me :-)www.jitterbal.comOn Aug 21, 2012, at 7:51 AM, Lindsey Glasgow wrote:cu

I didn't have a QEEG done, my provider said it wasn't necessary, but she did other types of brain tests/mapping that revealed that I have a minor case of ADHD which she said could be fixed when we start the NFB treatments. I'll have to find out what tests she did.

I don't have OCD, but my sister does who also has Misophonia.

Thank you so much for sharing. You are absolutely right that a brain map seems to be very important.

My son has misophonia for sure. He can't stand certain sounds and visual cues. His brian map revealed some overactivity in the sensory processing area of his brain. However, he had no signs of ADHD, OCD, brain injury, or anything else. So, he has a really healthy brain, but only one area we are targeting.

This brings into quesiton whether OCD must be present for misophonia to exist. From this, it would seem not and that they are two separate issues. However, I can see how OCD and misophonia interact as you describe. I wonder if OCD and ADHD make it worse for some people and this is why some people describe a more intolerable experience than others. I do notice severity of symptoms varies a lot amongst the group.

For those who don't want to do the brain mapping, I'd say that if our doctor had called Mike's practitioner and asked what to do, he would have used a protocol for ADHD and OCD, and we'd be barking downt he wrong path for sure. In fact, based on the individual, there are at least three separate ways to approach ADHD and OCD and one needs to know which one to take by doing the mapping. Not all practitioners have the extensive training to do the mapping, so they may not encourage it. They rely on trial an error. There are a lot of 'hacks' out there, so you are wise to find a good providor with all of the training.

Good luck with the neurofeedback.

Anne

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