Guest guest Posted August 20, 2012 Report Share Posted August 20, 2012 > Thanks for that! Vicki Hello Group, > > Boy am I messed up! > > I spent 2 hours going over my QEEG Brain Map with my Dr. (Gurnee). In > addition to doing NFB, > he runs a center for Brain Mapping that is used internationally, and > includes LORETTA > as well as six different types os Data Base analysis. The stack of papers > was over an inch thick! > > The mapping revealed severe ADD, OCD now add to the mix Bipolar disorder > and chronic depression. Plus some brain damage from 2 or 3 concussions. > The brain damage just exacerbates the other problems. > > Luckily I can still type this e-mail. > > I am an exercise addict, which replaced the drugs and alcohol earlier in > my life, since the endorphins help with the depression. If I don't work > out, I get > depressed. So that helps a lot and reduces tension and anxiety and gives a > sense of well being I could not get naturally except maybe with Yoga and > meditation. > > I have seen many posts here regarding OCD and ADD and I am becoming > convinced that those are probably common to all people with Misophonia. > Dr. Gurnee says that he has seen it many times over the years, just never > used the word Misophonia. To him it is possibly when both ADD and OCD > are together. We compulsively obsess about the triggers ( lock on to them, > common with OCD) and can't filter them out (ADD). He said that it can > happen > with only ADD as well. > There is a lack of blood flow to the frontal lobes, very evident on my > brain map. He sees this with everyone that has this type of sensitivity. > He also mentioned > the Cingulate Gyrus, which plays a role in obsessiveness and the linking > of sensory input with emotions. > If I remember correctly, there is a lack of the neurotransmitter dopamine > which fires up the frontal lobes making it difficult to focus and > difficult to FILTER OUT > the sounds and other triggers. We can't filer out all of the sensory > input, sounds etc. and focus on normal things, like what we are reading of > a simple conversation. > I think that is a key to this problem. > > SSRI drugs like Prozac aid in this, but who wants to take Prozac! > I tried it and had no sex life and felt like a zombie, so gave it up > straightway. > . > I have left out a lot, and will try to get him to write something up to > share with the group. Like Clyle has mentioned, every brain is different, > hence a need to > do a brain map for each individual, but there is a lot to learn from the > similarities in the maps of people with Miso and the need among > Neurofeedback practitioners > to share that information so treatment can be less hit and miss and there > can be more consistent results. > > If you are doing NFB I strongly suggest that you get a brain map done. > Otherwise the treatment is going to be long and expensive since the > protocols will be > all trial and error. > > I have done one treatment and in one day went from sleeping 4- 5 hours to > 7-8 hours. Not a bad start! > > Oh yes, I told him about Brain Wave Tech and he did not have much good to > say about it. They have shut down some of the clinics and have some law > suits against > them. It helped at first with the insomnia but it did not stick. I would > not recommend it for Miso. I wasted a few grand last spring doing it. > Live and learn! > > I am hoping we have finally found a real and lasting cure for this > miserable disorder... > > To be continued......... > > > Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2012 Report Share Posted August 20, 2012 Thats good information. I would love to get a brain map done however I dont have alot of money. How expensive is it? I wonder if medi/medi could cover some or all of the cost. To: Soundsensitivity Sent: Monday, August 20, 2012 7:11 AM Subject: Re: Brain Map results > Thanks for that! Vicki Hello Group, > > Boy am I messed up! > > I spent 2 hours going over my QEEG Brain Map with my Dr. (Gurnee). In > addition to doing NFB, > he runs a center for Brain Mapping that is used internationally, and > includes LORETTA > as well as six different types os Data Base analysis. The stack of papers > was over an inch thick! > > The mapping revealed severe ADD, OCD now add to the mix Bipolar disorder > and chronic depression. Plus some brain damage from 2 or 3 concussions. > The brain damage just exacerbates the other problems. > > Luckily I can still type this e-mail. > > I am an exercise addict, which replaced the drugs and alcohol earlier in > my life, since the endorphins help with the depression. If I don't work > out, I get > depressed. So that helps a lot and reduces tension and anxiety and gives a > sense of well being I could not get naturally except maybe with Yoga and > meditation. > > I have seen many posts here regarding OCD and ADD and I am becoming > convinced that those are probably common to all people with Misophonia. > Dr. Gurnee says that he has seen it many times over the years, just never > used the word Misophonia. To him it is possibly when both ADD and OCD > are together. We compulsively obsess about the triggers ( lock on to them, > common with OCD) and can't filter them out (ADD). He said that it can > happen > with only ADD as well. > There is a lack of blood flow to the frontal lobes, very evident on my > brain map. He sees this with everyone that has this type of sensitivity. > He also mentioned > the Cingulate Gyrus, which plays a role in obsessiveness and the linking > of sensory input with emotions. > If I remember correctly, there is a lack of the neurotransmitter dopamine > which fires up the frontal lobes making it difficult to focus and > difficult to FILTER OUT > the sounds and other triggers. We can't filer out all of the sensory > input, sounds etc. and focus on normal things, like what we are reading of > a simple conversation. > I think that is a key to this problem. > > SSRI drugs like Prozac aid in this, but who wants to take Prozac! > I tried it and had no sex life and felt like a zombie, so gave it up > straightway. > . > I have left out a lot, and will try to get him to write something up to > share with the group. Like Clyle has mentioned, every brain is different, > hence a need to > do a brain map for each individual, but there is a lot to learn from the > similarities in the maps of people with Miso and the need among > Neurofeedback practitioners > to share that information so treatment can be less hit and miss and there > can be more consistent results. > > If you are doing NFB I strongly suggest that you get a brain map done. > Otherwise the treatment is going to be long and expensive since the > protocols will be > all trial and error. > > I have done one treatment and in one day went from sleeping 4- 5 hours to > 7-8 hours. Not a bad start! > > Oh yes, I told him about Brain Wave Tech and he did not have much good to > say about it. They have shut down some of the clinics and have some law > suits against > them. It helped at first with the insomnia but it did not stick. I would > not recommend it for Miso. I wasted a few grand last spring doing it. > Live and learn! > > I am hoping we have finally found a real and lasting cure for this > miserable disorder... > > To be continued......... > > > Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2012 Report Share Posted August 20, 2012 I don't know about insurance coverage. Depends on your plan. I think many of these QEEG Brain Maps are around $1,000. But my doctor runs a mapping center, so is able to do it for $500.00 . And it gets run through multiple Data Bases as well. I am curious what other people are paying for theirs. MikeSent from my iPad Thats good information. I would love to get a brain map done however I dont have alot of money. How expensive is it? I wonder if medi/medi could cover some or all of the cost. To: Soundsensitivity Sent: Monday, August 20, 2012 7:11 AM Subject: Re: Brain Map results > Thanks for that! Vicki Hello Group, > > Boy am I messed up! > > I spent 2 hours going over my QEEG Brain Map with my Dr. (Gurnee). In > addition to doing NFB, > he runs a center for Brain Mapping that is used internationally, and > includes LORETTA > as well as six different types os Data Base analysis. The stack of papers > was over an inch thick! > > The mapping revealed severe ADD, OCD now add to the mix Bipolar disorder > and chronic depression. Plus some brain damage from 2 or 3 concussions. > The brain damage just exacerbates the other problems. > > Luckily I can still type this e-mail. > > I am an exercise addict, which replaced the drugs and alcohol earlier in > my life, since the endorphins help with the depression. If I don't work > out, I get > depressed. So that helps a lot and reduces tension and anxiety and gives a > sense of well being I could not get naturally except maybe with Yoga and > meditation. > > I have seen many posts here regarding OCD and ADD and I am becoming > convinced that those are probably common to all people with Misophonia. > Dr. Gurnee says that he has seen it many times over the years, just never > used the word Misophonia. To him it is possibly when both ADD and OCD > are together. We compulsively obsess about the triggers ( lock on to them, > common with OCD) and can't filter them out (ADD). He said that it can > happen > with only ADD as well. > There is a lack of blood flow to the frontal lobes, very evident on my > brain map. He sees this with everyone that has this type of sensitivity. > He also mentioned > the Cingulate Gyrus, which plays a role in obsessiveness and the linking > of sensory input with emotions. > If I remember correctly, there is a lack of the neurotransmitter dopamine > which fires up the frontal lobes making it difficult to focus and > difficult to FILTER OUT > the sounds and other triggers. We can't filer out all of the sensory > input, sounds etc. and focus on normal things, like what we are reading of > a simple conversation. > I think that is a key to this problem. > > SSRI drugs like Prozac aid in this, but who wants to take Prozac! > I tried it and had no sex life and felt like a zombie, so gave it up > straightway. > . > I have left out a lot, and will try to get him to write something up to > share with the group. Like Clyle has mentioned, every brain is different, > hence a need to > do a brain map for each individual, but there is a lot to learn from the > similarities in the maps of people with Miso and the need among > Neurofeedback practitioners > to share that information so treatment can be less hit and miss and there > can be more consistent results. > > If you are doing NFB I strongly suggest that you get a brain map done. > Otherwise the treatment is going to be long and expensive since the > protocols will be > all trial and error. > > I have done one treatment and in one day went from sleeping 4- 5 hours to > 7-8 hours. Not a bad start! > > Oh yes, I told him about Brain Wave Tech and he did not have much good to > say about it. They have shut down some of the clinics and have some law > suits against > them. It helped at first with the insomnia but it did not stick. I would > not recommend it for Miso. I wasted a few grand last spring doing it. > Live and learn! > > I am hoping we have finally found a real and lasting cure for this > miserable disorder... > > To be continued......... > > > Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2012 Report Share Posted August 21, 2012 Thank you so much for sharing. You are absolutely right that a brain map seems to be very important. My son has misophonia for sure. He can't stand certain sounds and visual cues. His brian map revealed some overactivity in the sensory processing area of his brain. However, he had no signs of ADHD, OCD, brain injury, or anything else. So, he has a really healthy brain, but only one area we are targeting. This brings into quesiton whether OCD must be present for misophonia to exist. From this, it would seem not and that they are two separate issues. However, I can see how OCD and misophonia interact as you describe. I wonder if OCD and ADHD make it worse for some people and this is why some people describe a more intolerable experience than others. I do notice severity of symptoms varies a lot amongst the group. For those who don't want to do the brain mapping, I'd say that if our doctor had called Mike's practitioner and asked what to do, he would have used a protocol for ADHD and OCD, and we'd be barking downt he wrong path for sure. In fact, based on the individual, there are at least three separate ways to approach ADHD and OCD and one needs to know which one to take by doing the mapping. Not all practitioners have the extensive training to do the mapping, so they may not encourage it. They rely on trial an error. There are a lot of 'hacks' out there, so you are wise to find a good providor with all of the training. Good luck with the neurofeedback. Anne Quote Link to comment Share on other sites More sharing options...
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