New member

[Guest guest]

Hi Spring,

Here are two possible reasons for the dizzyness your husband is

experiencing. Patients with liver disease tend to have low blood

pressure. Not all, but most. Standing up too quickly can cause the

symptoms you describe.

The other possibility is much more serious. When you have PSC you are at

high risk to bleed from varices (enlarged veins caused by liver damage).

Although this usually occurs quite a while after the disease begins,

sometimes the disease is not noticed early on or we compensate for what

we're experiencing and the damage is significant by the time we're

diagnosed correctly.

If your husband has had black bowel movements and even if he hasn't, he

should have his heart rate (it goes up after a bleed) and blood pressure

(it goes down after a bleed) checked and have a blood test for

hemaglobin level to make sure it's normal.

By the way, , low BP is not a reason from them not to transplant

you. When you are asleep for the tx, they put in a central line to

monitor your Bp and fluid status and that allows the anesthetist to

adjust the IV so that your BP remains optimum during the surgery.

Aubrey Goldstein, MD

Liver tx, May/98

[Guest guest]

Rob,

Welcome to the group. I only joined a couple of months ago (my wonderful

husband, Dan, has been a member for a while). This group offers wonderful

support and information. My heart was broken to read of your sons

condition and diagnosis at such a young age.

My husband has had UC for 15 years and was just diagnosed with PCS the

summer of 98. I know that you will find this group a great support for you

and your family. Welcome once again.

Rosie

Date: Sun, 02 Jan 2000 12:23:49 -0800

X-Mailing-List: egroups

Subject: New Member

Hello Everyone,

My name is Rob. My son is 8-1/2 years old. He was Dx in 1993.

By the age of three, in 1993, the bleeding started, but now there were

other symptoms: cramping, pain, and fever. They scoped him and

determined UC was the cause. While he was hospitalized, labs had been

drawn. Now they were seeing elevated liver functions. So, after liver

biopsies and an ERCP, they had a diagnosis of PSC and UC. They started

him on Actigall and sulfasalazine.

We were in shock. .......................

Thank you very much,

's dad,

Rob

__________________________________________

NetZero - Defenders of the Free World

Get your FREE Internet Access and Email at

http://www.netzero.net/download/index.html

[Guest guest]

I feel for you and you are definitely not alone here.

I too am 35 and was my nada's champion growing up (role she forced

on me as I had to make a choice at 6 years-old to either support her

or my then alcoholic dad as I " couldn't have it both ways " ). She

split me bad at 25 when I refused to keep being verbally and

emotionally abused for past wrongs. I recently went NC when she

told me I was bad family and I saw how she treated my almost 3 yr-

old son with comments like " you can't trust men " and " no body is

going to love you as much as I do. "

I'm sorry your children are giving you flack for the decision you

made. I would definitely discuss with your therapist on how best to

address this with them. My therapist had told me to use the

phrase " I'm going to ask you to trust me that what I'm doing is in

your best interest and I WILL explain it to you when you get older. "

My fada has also tried to reingage me, like many KO's on this board,

to deal with the Nada fall out. Spouses of Nada's and Fada's are

often called dishrags because it's they're job (given by their BP

spouse) to clean up the mess.

I encourage you to post a lot and read as much as you can on BP's

and Toxic Parents.

No one deserves to be abused.

a

>

> Hi, I'm new to this. I'm a 35 yr old divorced mother of two (7 yr

old

> daughter and 9 yr old son). With the help of my therapist I have

> finally stumbled on to this disorder and it nails my situation...

> however my Nada is undiagnosed and my father is completely in

denial.

> I have just " cut " her out of my life and told her that until she

gets

> help and acknowledges her illness i want nothing to do with either

one

> of them. My father is harassing me with emails and phone calls to

> please help my Nada as she is currently in (crisis mode)

depression

> and is lost without my friendship.

>

> I hate to say it, but i never wanted to be her friend! That was

> imposed upon me. Besides, she treats her " friends " as poorly as

she

> does her children so why bother either way. I've always felt more

> like a servant or slave.

>

> I'm sorry to say i don't want her in my kids life either... this

has

> them both condeming me...

>

> It's not a happy place to be but it feels like the only thing i

can do

> to save myself and my kids from this unhealthy way of life.

>

> Now i want to begin healing and unraveling my mind... i worry that

i

> may end up like her too... is that possible? i certainly hope not!

>

[Guest guest]

Welcome Jackie,

Glad you have joined the group and that you are on what sounds like the

right path - to your long road. BP fear what they view as abandonment,

and if they are a Queen (like my nada) they also fear betrayal. To move

away is considered a betrayal, as well as abandonment. I moved away 12

years ago and am still shocked at the level of anger, etc. Recently, I

lessened contact even more and it has gotten worse.

The positive side is that I am 800+ miles away. But, my nada has gotten

creative - calling friends and telling family relatives how awful I am

and other lies. Some things we just have to live with - for our sanity.

-K

sleddog wrote:

> hi everyone,

>

> I am an adult child of a BPD mother...it's been a long rough road. for

> some

> reason she has decided I'm the bad child. I was always the loyal

> one..there

> at her beck and call. I was always a good child and good adult, but you

> couldn't prove it by her ! Like others with this condition, she never

> listens to me when I try to talk , blows me off as unimportant.etc,

> you know

> the story, you've all lived it ! Had to chuckle at the foo words

> thread...my mother does the same thing...tells me ( never asks) to get

> something for her, it's blah blah blah, and when I go to get it,

> naturally

> it's not where she said it was..so I'm stupid, lazy and worthless and she

> doesn't know why she ever bothers with me....sigh...can't ever win with

> them...I am one of the lucky ones, though..I live 400+ miles from my

> parents

> now, and that has greatly helped me. I have very little contact with them

> as of the past year, as I got tied of the abuse ( it's gotten worse

> toward

> me in the past few years)

>

> Jackie

>

>

[Guest guest]

Welcome,

Most of us (I think) stumbled upon the diagnosis. Many BP are diagnosed

in this manner, becasue they are so reluctant to get help; lack of

insight? I am glad you are here with us. I wish I had seen as clearly as

you, when my children were young. Trying for years to save her, my nada

completely sabotaged my parenting decisions. She frightened, confused,

manipulated and used her grandchildren (as she does with everyone else).

Again, you are doing the right thing. Love her from a distance and save

yourself and your children.

K

tikiciadakin wrote:

> Hi, I'm new to this. I'm a 35 yr old divorced mother of two (7 yr old

> daughter and 9 yr old son). With the help of my therapist I have

> finally stumbled on to this disorder and it nails my situation...

> however my Nada is undiagnosed and my father is completely in denial.

> I have just " cut " her out of my life and told her that until she gets

> help and acknowledges her illness i want nothing to do with either one

> of them. My father is harassing me with emails and phone calls to

> please help my Nada as she is currently in (crisis mode) depression

> and is lost without my friendship.

>

> I hate to say it, but i never wanted to be her friend! That was

> imposed upon me. Besides, she treats her " friends " as poorly as she

> does her children so why bother either way. I've always felt more

> like a servant or slave.

>

> I'm sorry to say i don't want her in my kids life either... this has

> them both condeming me...

>

> It's not a happy place to be but it feels like the only thing i can do

> to save myself and my kids from this unhealthy way of life.

>

> Now i want to begin healing and unraveling my mind... i worry that i

> may end up like her too... is that possible? i certainly hope not!

>

>

[Guest guest]

Welcome,

Most of us (I think) stumbled upon the diagnosis. Many BP are diagnosed

in this manner, becasue they are so reluctant to get help; lack of

insight? I am glad you are here with us. I wish I had seen as clearly as

you, when my children were young. Trying for years to save her, my nada

completely sabotaged my parenting decisions. She frightened, confused,

manipulated and used her grandchildren (as she does with everyone else).

Again, you are doing the right thing. Love her from a distance and save

yourself and your children.

K

tikiciadakin wrote:

> Hi, I'm new to this. I'm a 35 yr old divorced mother of two (7 yr old

> daughter and 9 yr old son). With the help of my therapist I have

> finally stumbled on to this disorder and it nails my situation...

> however my Nada is undiagnosed and my father is completely in denial.

> I have just " cut " her out of my life and told her that until she gets

> help and acknowledges her illness i want nothing to do with either one

> of them. My father is harassing me with emails and phone calls to

> please help my Nada as she is currently in (crisis mode) depression

> and is lost without my friendship.

>

> I hate to say it, but i never wanted to be her friend! That was

> imposed upon me. Besides, she treats her " friends " as poorly as she

> does her children so why bother either way. I've always felt more

> like a servant or slave.

>

> I'm sorry to say i don't want her in my kids life either... this has

> them both condeming me...

>

> It's not a happy place to be but it feels like the only thing i can do

> to save myself and my kids from this unhealthy way of life.

>

> Now i want to begin healing and unraveling my mind... i worry that i

> may end up like her too... is that possible? i certainly hope not!

>

>

[Guest guest]

>

> Welcome Jackie,

>

> Glad you have joined the group and that you are on what sounds

like the

> right path - to your long road.

thanks K :-) I went to a therapest that specializes in BPD..so she

was a huge help . Boundries...thats where I had failed !! I had no

boundriaries...and I was angry...so we worked through a lot of

stuff, and I learned SO much !!

BP fear what they view as abandonment,

> and if they are a Queen (like my nada) they also fear betrayal. To

move

> away is considered a betrayal, as well as abandonment.

yes, this is true..and out of 5 kids, I'm the only one who moved

away...THEY moved and left adult kids behind when my fathers job

transfered him 2X...but I was the only one who left home LOL so

thats why I'm the bad child...

> I

> lessened contact even more and it has gotten worse.

yup..I'm there now...mother pulled a nasty valentines day of 2006,

and I just decided I'd had enough of her crap, and I was't going to

be part of her life any more, then...and now I'm being punished...my

brother just had open heart surgery ( 4 way bypass) and she called

the others to let them know, but not me...my sister called me to

find out if I knew ( which I hadn't)

> Some things we just have to live with - for our sanity.

right ! my one sister knows mother is doing this ( she sent

everyone money this year, but not me..) so she will keep me informed

of whats going on with the rest of the family

Jackie

[Guest guest]

I just read your entry and nearly couldn't take a breath for a few

moments. I've been going to counseling now for a little over a year

and my counselor thinks with all probability that my mother has BPD

but can't diagnose her for sure without ever meeting her. I have read

books and gathered info but I still fight accepting she has it.

I had a falling out with my mother Feb 2006 as well and have

been " punished " (as my counselor puts it), including being the only

one of eight siblings excluded from knowing about her scheduled

hysterectomy this past January. Like you, I learned about it much

later from my sister. My other siblings were amazed she hadn't told

me about it. I'm shaking as I write this. It makes me really wonder

if she is really is BPD. My counselor and friends and others tell me

that what she did is odd behavior and yet I still don't want to label

her. Is your mother officially diagnosed with BPD? I can't believe

how congruent our experiences are. Thanks for sharing.

[Guest guest]

there's nothing wrong with my mother ( in her mind) she doesn't like

therapists and says anyone who goes to them are weak...she says it's

everyone around her that has the problem, not her...so no, she is not

officially diagnosed, but my therapist and my sisters ( in anoter state)

suggested that this is what mothers problem is...she fits perfectly into

the queen/witch category like it was created just for her...the stories of

others is like they were part of my family and lived in our house...plus

my therapist says my mother is also just plain mean !

Jackie

> I just read your entry and nearly couldn't take a breath for a few

> moments. I've been going to counseling now for a little over a year

> and my counselor thinks with all probability that my mother has BPD

> but can't diagnose her for sure without ever meeting her. I have read

> books and gathered info but I still fight accepting she has it.

>

> I had a falling out with my mother Feb 2006 as well and have

> been " punished " (as my counselor puts it), including being the only

> one of eight siblings excluded from knowing about her scheduled

> hysterectomy this past January. Like you, I learned about it much

> later from my sister. My other siblings were amazed she hadn't told

> me about it. I'm shaking as I write this. It makes me really wonder

> if she is really is BPD. My counselor and friends and others tell me

> that what she did is odd behavior and yet I still don't want to label

> her. Is your mother officially diagnosed with BPD? I can't believe

> how congruent our experiences are. Thanks for sharing.

[Guest guest]

there is nothing wrong with my mother ( in HER mind) it's everyone

else that has the problem !! She thinks any one going to a

therapist is weak and doesn't trust them ( she thinks they all put

fake ideas into our heads)she has not been offically diagnosed, but

both my therapist and my sisters ( in another state) believe our

mother is BPD...mother fits into the queen/witch like it was created

just for her. Everyones experiences here is like they were all here

in our house while we were growing up...my therapist think mother

is not only BPD, but that she's just plain mean on top of that !

Jackie

>

> I just read your entry and nearly couldn't take a breath for a few

> moments. I've been going to counseling now for a little over a

year

> and my counselor thinks with all probability that my mother has

BPD

> but can't diagnose her for sure without ever meeting her. I have

read

> books and gathered info but I still fight accepting she has it.

>

> I had a falling out with my mother Feb 2006 as well and have

> been " punished " (as my counselor puts it), including being the

only

> one of eight siblings excluded from knowing about her scheduled

> hysterectomy this past January. Like you, I learned about it much

> later from my sister. My other siblings were amazed she hadn't

told

> me about it. I'm shaking as I write this. It makes me really

wonder

> if she is really is BPD. My counselor and friends and others tell

me

> that what she did is odd behavior and yet I still don't want to

label

> her. Is your mother officially diagnosed with BPD? I can't

believe

> how congruent our experiences are. Thanks for sharing.

>

[Guest guest]

I've been getting the silent treatment for a year now...and really,

it's better than being yelled at, manipulated, insulted and her

trying to guilt me into something!! It is hard being ignored by a

parent, especially when she then lavishes more on my siblings( so it

will get back to me and hurt me)but I've grown and healed a lot with

the help of my therapist

Jackie

> > I have made steps to help myself, writing my mother a clear, and

I

> > think, a fair email message

> ...

> > But I haven't heard from her since I sent the note (3 days)

> > and I'm starting to feel depressed and sad and guilty.

>

> I totally feel you on this. Sadly, I don't know that the letter

will

> help. I, too, am getting the silent treatment at the moment

for

> my supposed misdeeds. (She thinks I didn't pay enough attention to

> her when my family came for my wedding last year, despite plenty

of

> examples to the contrary.) But " consensus logic " is not the long

> suit of BPs, and carefully considered words written with fairness

> are irrelevant if they don't reflect the BP's pre-existing reality.

>

> My mom also wields guilt as a weapon, especially when I've set

> boundaries with her. At some point, I just couldn't do guilt any

> more. It's toxic to me. Now when she tries to make me feel guilty,

I

> just don't play.

[Guest guest]

Sometimes it can be hard to accept. My mother was never diagnosed with

BPD by a therapist or psychiatrist. However, after sharing her behaviors

with them and then reading everything I could get my hands on I am

convinced. Unfortunately, it is not at all unusual for them never to get

diagnosed or treated. When I moved away, one of my mother's favorite

ways to 'punish' me, was to not tell me about family events (sickness,

death, marriages, other celebrations). I too, would find out from

siblings - and be extremely hurt.

The good news is that you can eventually learn how /not/ to be 'hurt' by

her actions; and even how to 'manage' them to an extent. All the best.

K

Paige wrote:

> I just read your entry and nearly couldn't take a breath for a few

> moments. I've been going to counseling now for a little over a year

> and my counselor thinks with all probability that my mother has BPD

> but can't diagnose her for sure without ever meeting her. I have read

> books and gathered info but I still fight accepting she has it.

>

> I had a falling out with my mother Feb 2006 as well and have

> been " punished " (as my counselor puts it), including being the only

> one of eight siblings excluded from knowing about her scheduled

> hysterectomy this past January. Like you, I learned about it much

> later from my sister. My other siblings were amazed she hadn't told

> me about it. I'm shaking as I write this. It makes me really wonder

> if she is really is BPD. My counselor and friends and others tell me

> that what she did is odd behavior and yet I still don't want to label

> her. Is your mother officially diagnosed with BPD? I can't believe

> how congruent our experiences are. Thanks for sharing.

>

>

[Guest guest]

Someone wrote a few days ago about winding up married to your " mother " who is

abusive. that is so sad and i can identify with this. one thing that was

really important to me was to stop loving him. there is a book called, In Love

and Loving It - Or Not, that deals with this issue. while there is still love,

manipulations will be overwhelming. once i stopped loving, i could see his

manipulations and better defend myself from them. V.

Re: Re: new member

there's nothing wrong with my mother ( in her mind) she doesn't like

therapists and says anyone who goes to them are weak...she says it's

everyone around her that has the problem, not her...so no, she is not

officially diagnosed, but my therapist and my sisters ( in anoter state)

suggested that this is what mothers problem is...she fits perfectly into

the queen/witch category like it was created just for her...the stories of

others is like they were part of my family and lived in our house...plus

my therapist says my mother is also just plain mean !

Jackie

> I just read your entry and nearly couldn't take a breath for a few

> moments. I've been going to counseling now for a little over a year

> and my counselor thinks with all probability that my mother has BPD

> but can't diagnose her for sure without ever meeting her. I have read

> books and gathered info but I still fight accepting she has it.

>

> I had a falling out with my mother Feb 2006 as well and have

> been " punished " (as my counselor puts it), including being the only

> one of eight siblings excluded from knowing about her scheduled

> hysterectomy this past January. Like you, I learned about it much

> later from my sister. My other siblings were amazed she hadn't told

> me about it. I'm shaking as I write this. It makes me really wonder

> if she is really is BPD. My counselor and friends and others tell me

> that what she did is odd behavior and yet I still don't want to label

> her. Is your mother officially diagnosed with BPD? I can't believe

> how congruent our experiences are. Thanks for sharing.

[Guest guest]

You have a very good grasp of the situation. You do not have the

responsibility of being your nada's friend, and your dad will just

have to deal with her the way she is - or he can 'try' to be the one

responsible for her happiness, instead of expecting you to take that

role.

Sylvia

>

> Hi, I'm new to this. I'm a 35 yr old divorced mother of two (7 yr

old

> daughter and 9 yr old son). With the help of my therapist I have

> finally stumbled on to this disorder and it nails my situation...

> however my Nada is undiagnosed and my father is completely in

denial.

> I have just " cut " her out of my life and told her that until she

gets

> help and acknowledges her illness i want nothing to do with either

one

> of them. My father is harassing me with emails and phone calls to

> please help my Nada as she is currently in (crisis mode)

depression

> and is lost without my friendship.

>

> I hate to say it, but i never wanted to be her friend! That was

> imposed upon me. Besides, she treats her " friends " as poorly as

she

> does her children so why bother either way. I've always felt more

> like a servant or slave.

>

> I'm sorry to say i don't want her in my kids life either... this

has

> them both condeming me...

>

> It's not a happy place to be but it feels like the only thing i

can do

> to save myself and my kids from this unhealthy way of life.

>

> Now i want to begin healing and unraveling my mind... i worry that

i

> may end up like her too... is that possible? i certainly hope not!

>

[Guest guest]

welcome :-)

Jackie

Hello,

I am new to the group, and hope to learn more about BPD, and meet new

people going through the same family issues. It was scary at first to come

to grips with my mother's illness. I hope with education, and continued

therapy it will become easier to take care of me.

Thank you

lucinda_kat

[Guest guest]

welcome :-)

Jackie

Hello,

I am new to the group, and hope to learn more about BPD, and meet new

people going through the same family issues. It was scary at first to come

to grips with my mother's illness. I hope with education, and continued

therapy it will become easier to take care of me.

Thank you

lucinda_kat

[Guest guest]

welcome :-)

Jackie

Hello,

I am new to the group, and hope to learn more about BPD, and meet new

people going through the same family issues. It was scary at first to come

to grips with my mother's illness. I hope with education, and continued

therapy it will become easier to take care of me.

Thank you

lucinda_kat

[Guest guest]

Welcome to the group!!

May you find peace and hope in this new part of your journey.

You will find wonderful and caring people here. Keep posting.

Malinda ;-)

>

> Hello,

> I am new to the group, and hope to learn more about BPD, and

meet new people going through the same family issues. It was scary

at first to come to grips with my mother's illness. I hope with

education, and continued therapy it will become easier to take care

of me.

>

Thank you

>

lucinda_kat

>

>

> ---------------------------------

> Ahhh...imagining that irresistible " new car " smell?

> Check outnew cars at Yahoo! Autos.

>

>

[Guest guest]

Welcome to the group!!

May you find peace and hope in this new part of your journey.

You will find wonderful and caring people here. Keep posting.

Malinda ;-)

>

> Hello,

> I am new to the group, and hope to learn more about BPD, and

meet new people going through the same family issues. It was scary

at first to come to grips with my mother's illness. I hope with

education, and continued therapy it will become easier to take care

of me.

>

Thank you

>

lucinda_kat

>

>

> ---------------------------------

> Ahhh...imagining that irresistible " new car " smell?

> Check outnew cars at Yahoo! Autos.

>

>

[Guest guest]

Welcome to the group!!

May you find peace and hope in this new part of your journey.

You will find wonderful and caring people here. Keep posting.

Malinda ;-)

>

> Hello,

> I am new to the group, and hope to learn more about BPD, and

meet new people going through the same family issues. It was scary

at first to come to grips with my mother's illness. I hope with

education, and continued therapy it will become easier to take care

of me.

>

Thank you

>

lucinda_kat

>

>

> ---------------------------------

> Ahhh...imagining that irresistible " new car " smell?

> Check outnew cars at Yahoo! Autos.

>

>

[Guest guest]

Welcome Deidra.

Michele Branham,

Transplant

Financial Coordinator

Spiritual

Ambassador

Florida Hospital

Transplant Center

,

ext. 1101875 - Phone

-

Fax

Luke 1:46-47 " My soul Glorifies the Lord and my Spirit

rejoices in God my Savior. "

From:

TxFinancialCoordinators

[mailto:TxFinancialCoordinators ] On Behalf Of Deidra M.

Simano

Sent: Thursday, December 01, 2011 8:36 AM

To: txfinancialcoordinatorsegroups

Subject: New Member

Hello,

I am a new member and I am sending this email to gain access to post and

receive messages.

Thanks!

Deidra

_____________________________

Deidra Simano

Transplant Operations Specialist

Solid Organ Transplant

Dartmouth-Hitchcock Medical Center

Phone: / Fax:

Dartmouth-Hitchcock.org

IMPORTANT

NOTICE REGARDING THIS ELECTRONIC MESSAGE:

This message is intended for the use of the person to whom it is addressed and

may contain information that is privileged, confidential, and protected from

disclosure under applicable law. If you are not the intended recipient, your

use of this message for any purpose is strictly prohibited. If you have

received this communication in error, please delete the message and notify the

sender so that we may correct our records.

[Guest guest]

Welcome Deidra! You’ll find the listserve as a key to a wealth of transplant knowledge and awesome networking! We hope to see you in Memphis, TN at the 2012 TFCA conference Sept 26 – 28! Thanks! DodsonFinancial Coordinator, Blood and Marrow ProgramWest Penn Allegheny Health System4800 Friendship Ave Ste 2303 NTPittsburgh, PA 15236Phone: Fax: mdodson@...TFCA TrusteeBe the one to save a life. Be The Match. Join now From: TxFinancialCoordinators [mailto:TxFinancialCoordinators ] On Behalf Of Branham, MicheleSent: Thursday, December 01, 2011 8:42 AMTo: TxFinancialCoordinators Subject: RE: New Member Welcome Deidra. Michele Branham,Transplant Financial CoordinatorSpiritual AmbassadorFlorida Hospital Transplant Center, ext. 1101875 - Phone - FaxLuke 1:46-47 " My soul Glorifies the Lord and my Spirit rejoices in God my Savior. " From: TxFinancialCoordinators [mailto:TxFinancialCoordinators ] On Behalf Of Deidra M. SimanoSent: Thursday, December 01, 2011 8:36 AMTo: txfinancialcoordinatorsegroupsSubject: New Member Hello, I am a new member and I am sending this email to gain access to post and receive messages. Thanks!Deidra _____________________________Deidra SimanoTransplant Operations SpecialistSolid Organ TransplantDartmouth-Hitchcock Medical CenterPhone: / Fax: Dartmouth-Hitchcock.org IMPORTANT NOTICE REGARDING THIS ELECTRONIC MESSAGE:This message is intended for the use of the person to whom it is addressed and may contain information that is privileged, confidential, and protected from disclosure under applicable law. If you are not the intended recipient, your use of this message for any purpose is strictly prohibited. If you have received this communication in error, please delete the message and notify the sender so that we may correct our records.**********************************************************************

This email and any files transmitted with it are confidential and

intended solely for the use of the individual or entity to whom they

are addressed. If you have received this email in error please notify

the West Penn Allegheny Health System Help Desk at 412 330-4357.

**********************************************************************

[Guest guest]

Welcome! This list serve is awesome! You will love it! M. Christiansen, BAS, RNTransplant Financial Case Manager DeVos Heart and Lung Transplant Program100 Michigan NEMC 231Grand Rapids, MI 49503Phone: Pager: Fax: lisa.christiansen@... From: TxFinancialCoordinators [mailto:TxFinancialCoordinators ] On Behalf Of Deidra M. SimanoSent: Thursday, December 01, 2011 8:36 AMTo: txfinancialcoordinatorsegroupsSubject: New Member Hello, I am a new member and I am sending this email to gain access to post and receive messages. Thanks!Deidra _____________________________Deidra SimanoTransplant Operations SpecialistSolid Organ TransplantDartmouth-Hitchcock Medical CenterPhone: / Fax: Dartmouth-Hitchcock.org IMPORTANT NOTICE REGARDING THIS ELECTRONIC MESSAGE:This message is intended for the use of the person to whom it is addressed and may contain information that is privileged, confidential, and protected from disclosure under applicable law. If you are not the intended recipient, your use of this message for any purpose is strictly prohibited. If you have received this communication in error, please delete the message and notify the sender so that we may correct our records.

[Guest guest]

I'm new here and I do not believe I suffer from these sound sensitivities. It is

hard to say as I only know what goes on inside my head and that is challenging

enough for me. However,I'm a relatively recovered claustrophobic so am somewhat

familiar with the anxiety and stress these types of conditions can cause. To

this day I can be confined in relatively small spaces for short periods of time.

If you turn up the temperature though all bets are off.

My girl friend (she knows who she is) believes she does have this condition so

I'm here to read, learn and somehow accept her condition and find ways in which

I can help her and help myself deal with this. Yes, it has already affected our

relationship way beyond my knowledge until very recently. I'm saddened by this

and apologize to her publicly if I've come across as uncaring or insensitive.

I'm just uneducated about this but willing to move forward to ease her anxiety

and give her trust in that I can understand and be there for her.

[Guest guest]

I really think we can try and deal with this together when the time is right. In

any case I just want to see you be the healthy and vibrant woman that I once

knew. I'm always here.

> >

> > I'm new here and I do not believe I suffer from these sound sensitivities.

It is hard to say as I only know what goes on inside my head and that is

challenging enough for me. However,I'm a relatively recovered claustrophobic so

am somewhat familiar with the anxiety and stress these types of conditions can

cause. To this day I can be confined in relatively small spaces for short

periods of time. If you turn up the temperature though all bets are off.

> >

> > My girl friend (she knows who she is) believes she does have this condition

so I'm here to read, learn and somehow accept her condition and find ways in

which I can help her and help myself deal with this. Yes, it has already

affected our relationship way beyond my knowledge until very recently. I'm

saddened by this and apologize to her publicly if I've come across as uncaring

or insensitive. I'm just uneducated about this but willing to move forward to

ease her anxiety and give her trust in that I can understand and be there for

her.

> >

>