Re: An introduction and my bottled-up thoughts

[Guest guest]

Lori,I tried many months of Neuromodulation and five weeks of acupuncture, neither of which made any change in Misophonia. This is not to say it wouldn’t work for someone else. Here’s a website that explains Neuromodulation. http://www.neuromodulation.org/I’m currently engaged in Neurofeedback and hoping for the best.Hope you find something that works.Colleen From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of agentannie67Sent: Thursday, August 02, 2012 12:43 PMTo: Soundsensitivity Subject: An introduction and my bottled-up thoughts Hi there. My name is Lori. We live on Vancouver Island in Canada. My son is 13 and has suffered from misophonia for about 3 years now. It started out quite mildly, but it has gradually gotten worse, but not yet unbearable. He has been unwilling until this point to really look into any treatment options (I think he's finally ready to face it now). We discovered this group while vacationing in France, where the problem was very much " a big deal " . I think Joe had developed coping mechanisms at home that made his symptoms seem milder, but when taken out of his comfort zone, yikes!!! But i think it was a blessing, as it really put the problem right in our faces where we HAD to look at it. It is my hope that with early interventions, we can find ways to help Joe cope and perhaps prevent this condition from taking control of his life. This is my hope. We have been overwhelmed by the commonality of symptoms that people seem to share - the typical onset age, the triggers, etc. One thing I have not heard much mention of, however, is how people's emotional states affect symptoms. We have noticed that Joe is much more intolerant of triggers when he is tired, hungry, sick, or in a " bad mood " . I have even heard him say, " No, it's okay, Mom, you can chew. I'm in a good mood right now " and we happily share a meal (oh, the things we take for granted! I LOVE it when he is able to eat with me! I miss him so much!). ANYWAY, has anyone else noticed a correlation between mood and tolerance levels? First on our list of treatment trials is counselling and CBT (I am extremely fortunate to have this as a benefit through my work). I see this condition as two-fold. There is the misophonia (physiological) and then, like an umbrella covering this, there is the psychological component. Feeling pretty damned powerless over the misophonia component, I am hopeful that we can at least have some control over the psychological effects of this condition. For Joe, I hope that he will begin to see himself as separate from the misophonia. I hope that he will be able, with the counsellor's guidance, to find coping mechanisms so that he can continue to have a " normal " life. I hope that he can work through the guilt he experiences when he lashes out at those he loves. For us, his family, I hope that we can learn to better understand the loss of control Joe experiences with misophonia. I hope that my eldest son (joe's first trigger person) can work through some of the negative emotions that have developed over the years of beintouring yelled at by Joe because of his chewing. He has taken this very personally and feels that Joe hates him. Anyway, that's my plan of attact on the psychological, which seems much less daunting than than the treatment of the misophonia itself. I am a little reluctant to even ask, since I know there is a lot of controversy around homeopathy, but has anyone tried it as a treatment for misophonia? What about energy work? Body talk? Any other alternativey-type treatments? Acupuncture? Naturopath? Any feedback about this would be greatly appreciated. Sorry this has been so long. It's been bottled up for a while now. :)Thank you for your support. There's strength in numbers! Warmly, Lori

[Guest guest]

The symptoms have become my emotional state, as I get much older the symptoms seem worse, probably because I am less tolerant in general. Most of my life has been the fight or flight scenario, creating its own emotional state and complexities . I have tried Acupuncture and it does give me relief. This just a lot of work but it sound as if you are very aware of what your Son needs. He is very fortunate to have you!Sent from my iPad

Hi there. My name is Lori. We live on Vancouver Island in Canada. My son is 13 and has suffered from misophonia for about 3 years now. It started out quite mildly, but it has gradually gotten worse, but not yet unbearable. He has been unwilling until this point to really look into any treatment options (I think he's finally ready to face it now). We discovered this group while vacationing in France, where the problem was very much "a big deal". I think Joe had developed coping mechanisms at home that made his symptoms seem milder, but when taken out of his comfort zone, yikes!!! But i think it was a blessing, as it really put the problem right in our faces where we HAD to look at it. It is my hope that with early interventions, we can find ways to help Joe cope and perhaps prevent this condition from taking control of his life. This is my hope.We have been overwhelmed by the commonality of symptoms that people seem to share - the typical onset age, the triggers, etc. One thing I have not heard much mention of, however, is how people's emotional states affect symptoms. We have noticed that Joe is much more intolerant of triggers when he is tired, hungry, sick, or in a "bad mood". I have even heard him say, "No, it's okay, Mom, you can chew. I'm in a good mood right now" and we happily share a meal (oh, the things we take for granted! I LOVE it when he is able to eat with me! I miss him so much!). ANYWAY, has anyone else noticed a correlation between mood and tolerance levels?First on our list of treatment trials is counselling and CBT (I am extremely fortunate to have this as a benefit through my work). I see this condition as two-fold. There is the misophonia (physiological) and then, like an umbrella covering this, there is the psychological component. Feeling pretty damned powerless over the misophonia component, I am hopeful that we can at least have some control over the psychological effects of this condition. For Joe, I hope that he will begin to see himself as separate from the misophonia. I hope that he will be able, with the counsellor's guidance, to find coping mechanisms so that he can continue to have a "normal" life. I hope that he can work through the guilt he experiences when he lashes out at those he loves. For us, his family, I hope that we can learn to better understand the loss of control Joe experiences with misophonia. I hope that my eldest son (joe's first trigger person) can work through some of the negative emotions that have developed over the years of beintouring yelled at by Joe because of his chewing. He has taken this very personally and feels that Joe hates him. Anyway, that's my plan of attact on the psychological, which seems much less daunting than than the treatment of the misophonia itself. I am a little reluctant to even ask, since I know there is a lot of controversy around homeopathy, but has anyone tried it as a treatment for misophonia? What about energy work? Body talk? Any other alternativey-type treatments? Acupuncture? Naturopath? Any feedback about this would be greatly appreciated.Sorry this has been so long. It's been bottled up for a while now. :)Thank you for your support. There's strength in numbers!Warmly, Lori

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