Guest guest Posted July 14, 2004 Report Share Posted July 14, 2004 Thanks Sue. i think that is generally the area we are looking at. Ideally, we would love to stay up in NY until Jan and then go to NC through April. don't know how it will all work out. Some days we think we want to just retire there and then we think we would miss kids and grandchildren too much. We will see! Thanks. Sue <marysue@...> wrote: The piedmont is in the middle of the state. I'm not sure how far it extends both ways, but I live in son County. Towns nearby are ville, Lexington, and Winston-Salem. High Point and Greensboro are not far away. I grew up in ston County, which is not all that far from Greenville. Sue On Tuesday, July 13, 2004, at 03:25 PM, M. wrote: > Sue, > You have definitely made me feel more at ease about NC!!!! Which part > of the state is the piedmont section. We have been looking near > Greenville-Ayden, etc. Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2004 Report Share Posted July 22, 2004 Hi Judy, I believe that cuts off the attachments. I'm not sure a and can fill you in on that. How are you doing today? I'm taking the Celexa for depression. I'm really hoping it works. > I don't understand why everything I am sending to the list today is > incomplete and I haven't gotten one email posted from the list today. Is it just me? > Judy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2004 Report Share Posted July 22, 2004 Judy, You might try posting the web site address. > > I don't understand why everything I am sending to the list today is > > incomplete and I haven't gotten one email posted from the list > today. Is it just me? > > Judy > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2004 Report Share Posted July 29, 2004 There is a link at the bottom of every email with unsubbing instructions. Just click on the link: -unsubscribe a > i would like to unsubscribe to this group, how do I do so? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2004 Report Share Posted October 27, 2004 Yes, My 6 year old (almost 7) with autism has been repeating phrases from Disney movies for quite a while now. He is definitely a big fan of Disney, Dreamworks, etc. I think it's probably pretty common. The music and colors and characters are always bright and exciting in those movies, and that may be alot of it. His favorite thing to do, however is watch the previews of the releases before the movie. A few times we have gotten a movie for him, and all he does is watch the previews, and he is not even interested in the movie. He is a total remote control hog and rewinds, and pauses, and then repeats the phrase to us, then rewinds and plays it again. He does that alot with movies he wants us to get for him, that he doesn't have. The rewinding and repeating thing is really fun for him in ways we don't understand. It drives me and my wife bonkers, but he gets alot of fun out of it. And the A- B button where you can choose a section to repeat over and over, is one of his favorite features. He also does some crazy stuff with the languages, and subtitles too. Like at the beginning of Toy Story, it will show the title in English, then he pauses, rewinds, and plays it in French. Then in Spanish. And well... he doesn't do this just once or twice, he may sit there and repeat that procedure 20-50 times before he is " done. " Sometimes he " shows off " for us, and stops the scene, and says out- loud to us what comes next, complete with hand gestures and voice tone. If there is a place in the scene where he needs a person for a prop, he uses you. Then he will play the scene he just acted, and squeal with glee, and shake his head violently. It gets pretty crazy around here. Many times we will hear him crying horribly in the next room, only to run over and discover him just acting a scene where someone is crying. And yes he will bring me an Ad fro the paper, and point to something and say " this one? " as a question, because thats what we say when we are trying to figure out what he wants. I really am starting to think that he understands that he is not normal. He is very smart inside, but cannot control the way in which he acts outwardly. And he has obsessions that don't make sense to most people. Of course, I don't understand some obsessions " normal " people have, like sports, or collecting stamps, or watching soap-operas. So maybe he is not that weird if you realize he has this Mercury short-circuiting his little head. We have never treated him any different, and he has grown very social as a result. So social now, that when he wants to " talk " to you, he will get right in your face, even touching noses and look you straight in the eyes, and then say what he wants, or just say " oweeowweeowwee! " which is his way of showing affection, or happiness. I know that " he knows " he is not normal. Which breaks my heart when he starts crying and can't tell me what he wants, or I realize I haven't given him enough credit, and thats why he is crying. One time that sticks in my mind, he had to make me fix his DVD player. It wouldn't play at all. He kept pointing at the back of the player, and I kept pulling the DVD out claiming he had scratched the DVD, and tried to clean it offf, and it still wouldn't play. I started getting jerky and raised my voice telling him " he broke it " and " look at these scratches " and his face got sad, and he started to cry. Well I left the room because I had dealt with his " DVD " issues too many times. I came back later and he was still crying and pointed at the back of the player. I looked in the back of the player and the video plug was unplugged. I had unplugged it earlier. The DVD worked fine after that, and I felt lower than dirt, yelling at my little son and blaming him for ruining the DVD. The rest of the night, I sat with him and watched with him. He just looked at me and kept smiling with dried tears on his cheeks, and repeated " its ok daddy " , " its ok daddy " . > My son just turned 7...he is completely non-verbal and just got into a great > program at the local school. Recently he has started to trace the letters > of his name. Also, I have noticed him trying to say titles of his favorite > Disney movies. I was just wondering if any of you also see your children have > a certain interest in certain things. My son will sit and go through the > store ads to find the movies that are comming out, and if any happen to be > disney he then brings the paper to me to show me he wants that movie. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2004 Report Share Posted December 22, 2004 Oh Debs, I am so sorry that you have been so ill. Is everything back in control now, what a time, girl? I will keep you, and the family in my prayers,Tawny > My Dear. Dear Friends: > > A Blessed Christmas and Holiday season to one and all! Hopefully, you can > spend this time with family and friends with as little pain as possible. > > Unfortunately, the reason for my silence has been due to a number of hospital > stays due to sepsis and apparently the lupus has attacked my brain. Some of > these attacks came during the hurricanes that we seemed to attract thi summer > and all ambulances,roads and helicopters were grounded until the winds died > down. Ron had some scarey days with me with a high temperature, no power for > the AC and I had no knowledge of who Ron or the girls were. The same thing > happened on my birthday. Right now the only meds I am on for the RA is > prednisone, placquenil and I am on 3 different antibiotics to keep the sepsis at bay and > then pain medication mainly for my knee. Thru this whole process I have lost > about 50 lbs, but not the way to do it. At this time, my orthopedic surgeon > is thinking of putting a rod in my leg to give me permanent stability as the > fusion is still not complete after 2 years and my pain specialist wants to put > pain blocks in my back to minimize the amount of pain medication I need to > take, but it would not completely relieve all my pain. All these procedures > cannot be attempted until I finish my antibiotic course. > > So this is where I have been hiding. I miss you all and think of you > constantly. Welcome to all the new members!! This is a great place for information, > to vent, and just have a place where you " belong " .! Remember " Whine & > Cheese " is served here daily. > > My love to all of you and yours for a New Year that brings us new medications > without side effects!!!!!! > > Gentle, tender, angel hugs............... > > > Debs in FL > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2004 Report Share Posted December 23, 2004 Debs, I am so sorry to read you are having such a bad time. I wish things were better for you. You have had a horrible time of it. I do hope you and your family can enjoy the holidays. I do wish you a very healthy New Year. Lynn MeMom BadKneesDebs@... wrote: > My Dear. Dear Friends: > > A Blessed Christmas and Holiday season to one and all! Hopefully, you can > spend this time with family and friends with as little pain as possible. > > Unfortunately, the reason for my silence has been due to a number of hospital > stays due to sepsis and apparently the lupus has attacked my brain. Some of > these attacks came during the hurricanes that we seemed to attract thi summer > and all ambulances,roads and helicopters were grounded until the winds died > down. Ron had some scarey days with me with a high temperature, no power for > the AC and I had no knowledge of who Ron or the girls were. The same thing > happened on my birthday. Right now the only meds I am on for the RA is > prednisone, placquenil and I am on 3 different antibiotics to keep the sepsis at bay and > then pain medication mainly for my knee. Thru this whole process I have lost > about 50 lbs, but not the way to do it. At this time, my orthopedic surgeon > is thinking of putting a rod in my leg to give me permanent stability as the > fusion is still not complete after 2 years and my pain specialist wants to put > pain blocks in my back to minimize the amount of pain medication I need to > take, but it would not completely relieve all my pain. All these procedures > cannot be attempted until I finish my antibiotic course. > > So this is where I have been hiding. I miss you all and think of you > constantly. Welcome to all the new members!! This is a great place for information, > to vent, and just have a place where you " belong " .! Remember " Whine & > Cheese " is served here daily. > > My love to all of you and yours for a New Year that brings us new medications > without side effects!!!!!! > > Gentle, tender, angel hugs............... > > Debs in FL > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2004 Report Share Posted December 23, 2004 hello i am so sorry to hear about all the things going on with you..my prayers are with you and your family..i just joined this support group..i was diagnosed with RA not quite a year ago..but before i was diagnosed i have suffered for years without knowing what was wrong...so i wish you and yours a Merry Christmas... --- Ruf-Caimi <ruf-caimi@...> wrote: > Debs, > I am so sorry to read you are having such a bad > time. I wish things were better for > you. You have had a horrible time of it. I do hope > you and your family can enjoy the > holidays. I do wish you a very healthy New Year. > Lynn MeMom > > BadKneesDebs@... wrote: > > > My Dear. Dear Friends: > > > > A Blessed Christmas and Holiday season to one and > all! Hopefully, you can > > spend this time with family and friends with as > little pain as possible. > > > > Unfortunately, the reason for my silence has been > due to a number of hospital > > stays due to sepsis and apparently the lupus has > attacked my brain. Some of > > these attacks came during the hurricanes that we > seemed to attract thi summer > > and all ambulances,roads and helicopters were > grounded until the winds died > > down. Ron had some scarey days with me with a > high temperature, no power for > > the AC and I had no knowledge of who Ron or the > girls were. The same thing > > happened on my birthday. Right now the only meds > I am on for the RA is > > prednisone, placquenil and I am on 3 different > antibiotics to keep the sepsis at bay and > > then pain medication mainly for my knee. Thru > this whole process I have lost > > about 50 lbs, but not the way to do it. At this > time, my orthopedic surgeon > > is thinking of putting a rod in my leg to give me > permanent stability as the > > fusion is still not complete after 2 years and my > pain specialist wants to put > > pain blocks in my back to minimize the amount of > pain medication I need to > > take, but it would not completely relieve all my > pain. All these procedures > > cannot be attempted until I finish my antibiotic > course. > > > > So this is where I have been hiding. I miss you > all and think of you > > constantly. Welcome to all the new members!! > This is a great place for information, > > to vent, and just have a place where you > " belong " .! Remember " Whine & > > Cheese " is served here daily. > > > > My love to all of you and yours for a New Year > that brings us new medications > > without side effects!!!!!! > > > > Gentle, tender, angel hugs............... > > > > Debs in FL > > > > [Non-text portions of this message have been > removed] > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2005 Report Share Posted January 19, 2005 me too, but my arms are sore. i am going to work tomorrow but gonna take friday off. i need to rest my arms kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2005 Report Share Posted January 19, 2005 Kathy,....glad you made you doc's visit today. I will keep you in my prayers, Tawny > well i just had my visit to my rheumi, i am tight and have tennis elbow > again. i opted to try physical therapy before an injection in my elbow. i wrote my > dad and told him to quit being a copycat. first he gets glaucoma, 4 yrs after > me, now plantar fascitis and he had the cortisone injection in his heel > > > kathy in il > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2005 Report Share Posted January 19, 2005 Tawny, when is your appointment with your rheumy? You've waited such a long time. Hope it doesn't get postponed by snow this time. Sue On Wednesday, January 19, 2005, at 04:27 PM, tdianaok wrote: > > Kathy,....glad you made you doc's visit today. I will keep you in my > prayers, Tawny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2005 Report Share Posted February 17, 2005 Michele, I did not say no to vaccination, but no to " excessive " vaccination at very young age. It is not only for the little one, it for big, strong, very healthy adults in military too. I bet you read and heard a lot of problems people has there with their excessive vaccination. A friend of mine married to a solder, whose close friends come done with Lou Gehrig's disease. He young and very fit. Within two years, He is all about dead now. My son has anti body against myelin, so are people who have Lou Gehrig's disease. I do not think simply cause milk, whole wheat. I think it is also common sense, that virus are foreign agents to human body, they are not friends to the body, they are actually enemies to our our body. Our body fights the weakened virus in vaccine with immune system. Because the virus is weakened, our body wins. We are taking advantage of this because the immune system memorize the virus, and therefore, know what to do next time when more strong, active virus enters our body ( I am not a bio major, or MD, so correct me if I am wrong). I think you can see also something is need to be done here about subject a young child (new born), whose system has not fully development in every aspect, to endure such consistent attach by various virus. Jin > > I unstand what you mean, but I personally disagree with you and > > believe that injecting Virus at such a young age (from the day of > > birth), and frequescy (every month or other moth), and themany > > different varity (could be 4 at same time) is the main reason for > > explosion of autism, it is the maine reason makes the immune system > > working in properly. > > > > > Jin, > > I don't agree with that because if that was the case more kids would > be having a problem. If the immune system is working efficiently, > then a vaccination would cause no affect. Think about the years > prior .....we have been vaccinated with no rise of autism. From the 30's, > 40's, 50's even early 60's we didn't even hear about this A word. > > Our kids are born with a compromised immune, for whatever > reason, and the vaccination is doing additional harm it is NOT > causing them to be autistic. > > Just my 2 cents. Thanks for listening. > > Michele > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2005 Report Share Posted February 17, 2005 Let me have one more try, see if I get your point right this time. I agree that 30th, and on to 80th, there are not many Autism, because it was not a common practice then to immunize children so young, and so many time, with so many different virus. I think I read it somewhere, that some time in Clinton adminstraion (may be even some time before that) with good intention, and it started have children to immunized with a very agressive immunization schedule, and scheduled well baby care, and etc. That is why we see more and more A kids now. My son is born in 1994. I remember refuse doctor to give him HB shot at the day he was born. He got it at his two week vist, I remember I was nervious about it, and did not like the idea of shot at 16 day's age, the the doc said there will be no problem. It just happens, a few year after the agressive vaccination reguirement, a lot of A childre shows up all over. Jin > > I unstand what you mean, but I personally disagree with you and > > believe that injecting Virus at such a young age (from the day of > > birth), and frequescy (every month or other moth), and themany > > different varity (could be 4 at same time) is the main reason for > > explosion of autism, it is the maine reason makes the immune system > > working in properly. > > > > > Jin, > > I don't agree with that because if that was the case more kids would > be having a problem. If the immune system is working efficiently, > then a vaccination would cause no affect. Think about the years > prior .....we have been vaccinated with no rise of autism. From the 30's, > 40's, 50's even early 60's we didn't even hear about this A word. > > Our kids are born with a compromised immune, for whatever > reason, and the vaccination is doing additional harm it is NOT > causing them to be autistic. > > Just my 2 cents. Thanks for listening. > > Michele > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2005 Report Share Posted February 18, 2005 My daughter born in 1993, I in 1966, and the vaccations were about the same. I still say that we are seeing an increase with the diagnosis of Autism because we are generally NOT as healthy today and more immune system dysfunctions are becoming a worldwide devastation. As Americans we have been vaccinated for over the past century, but it hasn't been a problem in the past because our ozone was working more productively, environmental issues were not as much as a problem as it appears to be today and excess use of antibiotics, without the use of acidophilus supplements, have killed our good bacterias our bodies needs to function adequately. Why do some children develop problems at 15 or 18 months of age? Why not at 2 or 3 months of age after several vaccinations have already been administered. We are fighting a losing battle blaming vaccinations. The problems are much more complex than that. We are basically fighting a losing battle blaming vaccinations and putting a cure for our children on a prolonged, unnecessary hold. It has been my understanding that most people have been concerned for the children to gain recovery and live a normal life as much as possible. We can't fight insurance companies, pharmaceutical companies or the government.....so why bother. Let's NOT concentrate on anything but getting the children the medicines they need to expedite their full recovery. Thanks for listening and hopefully this will end the issue of vaccinations at least for now. While we spend time and energy on the vaccinations, we are LOSING time for our children and they have been robbed of TOO MUCH wasted time for the past two or more decades. Think of the children, we are NOT doctors. We all share the prayer of helping our children one day become parents, have careers and bring us grandchildren. We have to look at the BIG picture, or else we get sidetracked with other factors that at this time really does NOT matter. Examples may be some of the following: environmental, mercury, water, etc. etc. Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2005 Report Share Posted February 18, 2005 If you read the ?'s and answers Dr. Goldberg does WAIT to vaccinate until child is older if any history runs in family. There is a clear indication not to vaccinate too early for our children. But to not vaccinate at all is ignorant because we can be looking at an epidemic of say Measles in the future if kids are living their lives without ever being vaccinated. I think you should raise some of your concerns with the office at _office@neuroimmunedr_ (mailto:office@neuroimmunedr) , because I don't believe you are grasping the point being made that sometimes it doesn't matter how a child became " autistic " , but how to prevent them from being more " autistic " ...time is not on our side here. We are losing millions of children, God did not intend them to be non-productive individuals. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2005 Report Share Posted February 18, 2005 There are additional vaccines given now on the recommended schedule by Amer Pediatric Assoc not available earlier in history. In early 90's they added Hep B & Chicken pox. In late 90's they added Prevnar for viral (I think) meningitis. And switched from oral polio to IV polio. We are having a resurgence of pertussis (whooping cough) in schools here in Indiana, mostly among high school age, but also young kids whose parents decided not to immunize. Ho hum....alll for some vaccines. And what is going to happen if chicken pox vaccine wears off at young adult or middle age?? Thinking out loud....there maybe some people in Amer Pediatric Assoc or AMA or CDC that do not want us to be thinking about vaccines possibly being a trigger for immune system dysfunction (aka autism) as the fallout would be herendous. > > > > I unstand what you mean, but I personally disagree with you and > > > believe that injecting Virus at such a young age (from the day > of > > > birth), and frequescy (every month or other moth), and themany > > > different varity (could be 4 at same time) is the main reason > for > > > explosion of autism, it is the maine reason makes the immune > system > > > working in properly. > > > > > > > > > Jin, > > > > I don't agree with that because if that was the case more kids would > > be having a problem. If the immune system is working efficiently, > > then a vaccination would cause no affect. Think about the years > > prior .....we have been vaccinated with no rise of autism. From > the 30's, > > 40's, 50's even early 60's we didn't even hear about this A word. > > > > Our kids are born with a compromised immune, for whatever > > reason, and the vaccination is doing additional harm it is NOT > > causing them to be autistic. > > > > Just my 2 cents. Thanks for listening. > > > > Michele > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2005 Report Share Posted February 18, 2005 Michele, Were you immunized at birth, then 1 month old then two month old, then 4 month old and so on with some time 5 different virus at same time like the young kids subject to now? I was immunized in China in old times with nurses going through every school, every classroom give us shots, and sweet candy like stuff. Certain shot we got earlier, but not like what they are doing now over there (they have same immunization schedule now), and I started to read about Autism in china, and seeing parents asking question in RDA forum too now. It does not matter if you or I agree or not, I think medical community need really take a hard look at it, and come up a better way of doing this immunization stuff. It is true most kids do not show problem right away, but just as Dr. G told my son not to eat anything has milk in it this past summer: you can be OK eating it once, tem times, maybe even 100 time, but that 101 time you eating it, you may get type 1 diabetes, and from then on, you will have to have shot every day. My son has not knowingly eating anything with milk since. Jin > > My daughter born in 1993, I in 1966, and the vaccations > were about the same. I still say that we are seeing an increase > with the diagnosis of Autism because we are generally NOT as > healthy today and more immune system dysfunctions are becoming > a worldwide devastation. > > As Americans we have been vaccinated for over the past century, > but it hasn't been a problem in the past because our ozone was > working more productively, environmental issues were not as much > as a problem as it appears to be today and excess use of antibiotics, > without the use of acidophilus supplements, have killed our good bacterias > our bodies needs to function adequately. > > Why do some children develop problems at 15 or 18 months of age? > Why not at 2 or 3 months of age after several vaccinations have > already been administered. We are fighting a losing battle blaming > vaccinations. > > The problems are much more complex than that. We are basically > fighting a losing battle blaming vaccinations and putting a cure for > our children on a prolonged, unnecessary hold. It has been my > understanding that most people have been concerned for > the children to gain recovery and live a normal life as much as > possible. We can't fight insurance companies, pharmaceutical > companies or the government.....so why bother. Let's NOT > concentrate on anything but getting the children the medicines > they need to expedite their full recovery. > > Thanks for listening and hopefully this will end the issue of > vaccinations at least for now. While we spend time and energy > on the vaccinations, we are LOSING time for our children and > they have been robbed of TOO MUCH wasted time for the past > two or more decades. > > Think of the children, we are NOT doctors. We all share the > prayer of helping our children one day become parents, have > careers and bring us grandchildren. > > We have to look at the BIG picture, or else we get sidetracked > with other factors that at this time really does NOT matter. > Examples may be some of the following: environmental, mercury, > water, etc. etc. > > Michele > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2005 Report Share Posted February 18, 2005 Cyn, I was born in 62, I am not too much younger than you. I had to say, when I was young, I did not know any of my peers was having problem. I can count one deaf, one kid with very serious problem, can not talk, or walk, only cry who live near by. I do not remember anybody else. I remember one of my teachers had measles ( I hope that is right English name, she had a lot of bumps on her face) when she was a little girl, one of my father's friends must had polio who had hump on the back, very small, all his brothers are tall, and strong. I do see handicapped people, but many are older. Of cause, my father got schizophrenia when he turned 32. I only personally know one child died when I grew up because drowning in the river. I heard a few others because accidents. But after I met DH here, he would talk about for various reasons, he knows quite a few peers died when he was young, and this really amazes me. With all the wealth of this country, all so called advancement, it can not simple stop its youth from been harmed by variously agents. The money must spend in wrong places. Cyn, hugs to you too. Jin > >> Were you immunized at birth, then 1 month old then two month old, > then 4 month old and so on with some time 5 different virus at same > time like the young kids subject to now? << > > Hi, Jin. > > I'm older than most here, but I got all vaccines available and at a > very early age (probably due to being from a medical family). As > I've mentioned on the list before, the chicken pox at age four > really affected me. I had a fairly severe case, which I remember > well -- because we had just moved to a new house and gotten there > before our furniture. Shortly after I " recovered " from chicken pox, > I began lining things up -- mostly shoes and they had to be arranged > in even numbers (even though I was unaware of that mathmatical > concept). Also, fears/anxiety/night terrors, etc. emerged the > extreme. I had been somewhat obsessed with numbers earlier, but the > chicken pox really exaccerbated it to an extreme. > > I often wonder if I the chicken pox vacccine had been available and > I had gotten it, would I then not be so affected now with HHVs. I > had a high viral load while I was carrying my child, as for me > personally, this was the biggest contributor to his health issues. > > Also, I had scarlett fever shortly after the chicken pox ... then a > little later pluerisy. So that by age 11, I was diagnosed with an > autonomic nervous system disorder and began taking meds. Then, > after some other issues, in the 80s I was one of the first diagnosed > with CFS -- or the " yuppie flu " as it was begin called, then --- or > in research circles sometimes, with gallows humor, referred to > as " AIDS Lite " . When I was diagnosed with CFS, it was so " new " that > I had not even heard of it. > > So, in my family's case, I think it had to do more with existing > viral/pathogenic loads as the foundation for the exisitng immune- > mediated illnesses our family deals with. > > Sometimes I wonder what would happen if my child had not > received the vaccines and gotten, say, the rubella or the measle or > pertussis. How would he have fared? > > I watched one of my siblings, in the hospital, nearly not make it due to > pertussis. > > Additionally, when I was growing up we lived in many different > cities and states. Everywhere I lived I knew other kids who were > blind, deaf, had " mental " issues (including " childhood > schizophrenia " ). Many of the kids who had these issues had them due > their contracting [or their mother contracting while they were in > utero] diseases/illnesses that there are now vaccines for. > > For me, it's all vastly complex and multifactorial. I just know > that in our family's particular case, I often feel " left-out " because I can't > point the vaccines. [Note: Not left out by you, my dear on-line > pal, but by some of the ASD communities-at-large.] > > It was not very long ago that I was " teased " by a prominent ASD > community member about my health issues/viruses -- they thought it > was funny and a subject to joke about. > > It's all so complex and multi-layered .... > > I just wish for kindess and solidarity within the community at > large. > > Hugs to you, Jin. > > Best always, > Cyn. > > ````````````` Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2005 Report Share Posted February 18, 2005 {{. Let's NOT concentrate on anything but getting the children the medicines they need to expedite their full recovery. I agree with you that to focus only on vaccines is a problem-- yes, my son reacted to his vaccines but also had obvious problems from birth (looking back). Prenatal factors may very well be an issue-- I had 3 rhogam shots, all with mercury. It makes sense that prenatal exposure to toxins could be even more devastating than post natal. However, to say that we should only focus on getting our kids well is to ignore the fact that we are in the middle of an epidemic that is not improving, even with the elimination of most vaccine mercury. Should we focus only on TREATING patients with AIDS and completely ignore preventing new cases? Of course not. Problem with autism is nobody can agree on the cause (which is probably multi-causal) My whole point is, yes, we need to focus on new agents to recover our kids. But until we figure out what is causing this in the first place, how many more thousands, millions of lives will be ruined in the future?? The cost of drug companies or CDC or EPA or whoever admitting fault to some degree (in order to get to the bottom of what is really causing ) may cost them tons of money--but how much money will it cost our country in the long run to treat and support the potential millions of patients that will exist in the future?? You can't truly treat a disease unless you know it's cause. Becky Re: Re: (no subject) > > > My daughter born in 1993, I in 1966, and the vaccations > were about the same. I still say that we are seeing an increase > with the diagnosis of Autism because we are generally NOT as > healthy today and more immune system dysfunctions are becoming > a worldwide devastation. > > As Americans we have been vaccinated for over the past century, > but it hasn't been a problem in the past because our ozone was > working more productively, environmental issues were not as much > as a problem as it appears to be today and excess use of antibiotics, > without the use of acidophilus supplements, have killed our good bacterias > our bodies needs to function adequately. > > Why do some children develop problems at 15 or 18 months of age? > Why not at 2 or 3 months of age after several vaccinations have > already been administered. We are fighting a losing battle blaming > vaccinations. > > The problems are much more complex than that. We are basically > fighting a losing battle blaming vaccinations and putting a cure for > our children on a prolonged, unnecessary hold. It has been my > understanding that most people have been concerned for > the children to gain recovery and live a normal life as much as > possible. We can't fight insurance companies, pharmaceutical > companies or the government.....so why bother. Let's NOT > concentrate on anything but getting the children the medicines > they need to expedite their full recovery. > > Thanks for listening and hopefully this will end the issue of > vaccinations at least for now. While we spend time and energy > on the vaccinations, we are LOSING time for our children and > they have been robbed of TOO MUCH wasted time for the past > two or more decades. > > Think of the children, we are NOT doctors. We all share the > prayer of helping our children one day become parents, have > careers and bring us grandchildren. > > We have to look at the BIG picture, or else we get sidetracked > with other factors that at this time really does NOT matter. > Examples may be some of the following: environmental, mercury, > water, etc. etc. > > Michele > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2005 Report Share Posted February 19, 2005 It costs about $1.2 - $2 mill per child over a 20 year period for treatments (ie 60 - 100k per annum) - excludes the next 60 years of their life depending on how much treatment/care they might need You can figure the rest...... Re: Re: (no subject) {{. Let's NOT concentrate on anything but getting the children the medicines they need to expedite their full recovery. I agree with you that to focus only on vaccines is a problem-- yes, my son reacted to his vaccines but also had obvious problems from birth (looking back). Prenatal factors may very well be an issue-- I had 3 rhogam shots, all with mercury. It makes sense that prenatal exposure to toxins could be even more devastating than post natal. However, to say that we should only focus on getting our kids well is to ignore the fact that we are in the middle of an epidemic that is not improving, even with the elimination of most vaccine mercury. Should we focus only on TREATING patients with AIDS and completely ignore preventing new cases? Of course not. Problem with autism is nobody can agree on the cause (which is probably multi-causal) My whole point is, yes, we need to focus on new agents to recover our kids. But until we figure out what is causing this in the first place, how many more thousands, millions of lives will be ruined in the future?? The cost of drug companies or CDC or EPA or whoever admitting fault to some degree (in order to get to the bottom of what is really causing ) may cost them tons of money--but how much money will it cost our country in the long run to treat and support the potential millions of patients that will exist in the future?? You can't truly treat a disease unless you know it's cause. Becky Re: Re: (no subject) > > > My daughter born in 1993, I in 1966, and the vaccations > were about the same. I still say that we are seeing an increase > with the diagnosis of Autism because we are generally NOT as > healthy today and more immune system dysfunctions are becoming > a worldwide devastation. > > As Americans we have been vaccinated for over the past century, > but it hasn't been a problem in the past because our ozone was > working more productively, environmental issues were not as much > as a problem as it appears to be today and excess use of antibiotics, > without the use of acidophilus supplements, have killed our good bacterias > our bodies needs to function adequately. > > Why do some children develop problems at 15 or 18 months of age? > Why not at 2 or 3 months of age after several vaccinations have > already been administered. We are fighting a losing battle blaming > vaccinations. > > The problems are much more complex than that. We are basically > fighting a losing battle blaming vaccinations and putting a cure for > our children on a prolonged, unnecessary hold. It has been my > understanding that most people have been concerned for > the children to gain recovery and live a normal life as much as > possible. We can't fight insurance companies, pharmaceutical > companies or the government.....so why bother. Let's NOT > concentrate on anything but getting the children the medicines > they need to expedite their full recovery. > > Thanks for listening and hopefully this will end the issue of > vaccinations at least for now. While we spend time and energy > on the vaccinations, we are LOSING time for our children and > they have been robbed of TOO MUCH wasted time for the past > two or more decades. > > Think of the children, we are NOT doctors. We all share the > prayer of helping our children one day become parents, have > careers and bring us grandchildren. > > We have to look at the BIG picture, or else we get sidetracked > with other factors that at this time really does NOT matter. > Examples may be some of the following: environmental, mercury, > water, etc. etc. > > Michele > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2005 Report Share Posted August 13, 2005 Shirley: I am so sorry that you have been having such severe problems with your RA. I am sending prayers and hugs your way. Kathe in CA --- Edmis3@... wrote: > Dear Friends in the RA group: > > Just a note to all of you as I need your prayers, > the ole RA is affecting my > heart and lungs and has been for over a year now. I > just had the pleural > space of my left lung drained while in a CT scanner > and a CT of my heart > yesterday at the hospital. I have pericarditis and > rheumatoid lung. The fluid gives > me pain in my upper back and I cough and am short > of air and the pericarditis > gives me chest pains and I have had it for several > months now. I know this > to will pass as it hasn't been continuous. I had > sepsis infection in January > and was in the Poudre Valley hospital in Ft. > Colorado for nine days in > ICU, I almost didn't make it my blood pressure was > 53/32 and they told my > family if I had waited until morning I would not > have made it. Please pray for me > and my problems. Also my RA is out of control and I > have really been hurting > as I have been on high doses of prednisone because > of the fluid and heart > problem and they are now bumping me down and when I > dropped to 30 on Monday I got > really bad. I would appreciate hearing from anyone > in the group about these > current problems I am having. I love this group and > I don't get to post to > often but I read most all of the posts daily. > > Hoping to hear from anyone in the group. > > Love and Prayers > Shirley > Edmis3@... > > > [Non-text portions of this message have been > removed] > > Kathe in CA ____________________________________________________ Start your day with - make it your home page http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2005 Report Share Posted August 13, 2005 Hi Shirley, I am sorry to hear what a rough time your having. I was also hospitalized last year with the RA affecting my heart. I just want you to know that I will keep you in my prayers, and I am always here if you would like to email me. Hugs, Tawny > Dear Friends in the RA group: > > Just a note to all of you as I need your prayers, the ole RA is affecting my > heart and lungs and has been for over a year now. I just had the pleural > space of my left lung drained while in a CT scanner and a CT of my heart > yesterday at the hospital. I have pericarditis and rheumatoid lung. The fluid gives > me pain in my upper back and I cough and am short of air and the pericarditis > gives me chest pains and I have had it for several months now. I know this > to will pass as it hasn't been continuous. I had sepsis infection in January > and was in the Poudre Valley hospital in Ft. Colorado for nine days in > ICU, I almost didn't make it my blood pressure was 53/32 and they told my > family if I had waited until morning I would not have made it. Please pray for me > and my problems. Also my RA is out of control and I have really been hurting > as I have been on high doses of prednisone because of the fluid and heart > problem and they are now bumping me down and when I dropped to 30 on Monday I got > really bad. I would appreciate hearing from anyone in the group about these > current problems I am having. I love this group and I don't get to post to > often but I read most all of the posts daily. > > Hoping to hear from anyone in the group. > > Love and Prayers > Shirley > Edmis3@a... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2005 Report Share Posted August 13, 2005 Hi Shirley, I will pray that your health problems begin to ease off. Did you go back to a higher dose of Prednisone? Hugs June ----- Original Message ----- From: Edmis3@... Dear Friends in the RA group: Just a note to all of you as I need your prayers, the ole RA is affecting my heart and lungs and has been for over a year now. I just had the pleural space of my left lung drained while in a CT scanner and a CT of my heart yesterday at the hospital. I have pericarditis and rheumatoid lung. The fluid gives me pain in my upper back and I cough and am short of air and the pericarditis gives me chest pains and I have had it for several months now. I know this to will pass as it hasn't been continuous. I had sepsis infection in January and was in the Poudre Valley hospital in Ft. Colorado for nine days in ICU, I almost didn't make it my blood pressure was 53/32 and they told my family if I had waited until morning I would not have made it. Please pray for me and my problems. Also my RA is out of control and I have really been hurting as I have been on high doses of prednisone because of the fluid and heart problem and they are now bumping me down and when I dropped to 30 on Monday I got really bad. I would appreciate hearing from anyone in the group about these current problems I am having. I love this group and I don't get to post to often but I read most all of the posts daily. Hoping to hear from anyone in the group. Love and Prayers Shirley Edmis3@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2005 Report Share Posted August 14, 2005 Shirley, I am sorry you have to go through all of this. I don't pray but I will be thinking of you often. I wish there was some pill that we could take and make all this go away. I hope you get better real soon. hugs, Corinne Edmis3@... wrote: > Dear Friends in the RA group: > > Just a note to all of you as I need your prayers, the ole RA is > affecting my > heart and lungs and has been for over a year now. I just had the > pleural > space of my left lung drained while in a CT scanner and a CT of my heart > yesterday at the hospital. I have pericarditis and rheumatoid lung. > The fluid gives > me pain in my upper back and I cough and am short of air and the > pericarditis > gives me chest pains and I have had it for several months now. I know > this > to will pass as it hasn't been continuous. I had sepsis infection in > January > and was in the Poudre Valley hospital in Ft. Colorado for nine > days in > ICU, I almost didn't make it my blood pressure was 53/32 and they told my > family if I had waited until morning I would not have made it. Please > pray for me > and my problems. Also my RA is out of control and I have really been > hurting > as I have been on high doses of prednisone because of the fluid and heart > problem and they are now bumping me down and when I dropped to 30 on > Monday I got > really bad. I would appreciate hearing from anyone in the group > about these > current problems I am having. I love this group and I don't get to > post to > often but I read most all of the posts daily. > > Hoping to hear from anyone in the group. > > Love and Prayers > Shirley > Edmis3@... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2005 Report Share Posted August 14, 2005 Dear Shirley, my heart goes out to you. I just read your post. Sounds like you are having a very hard time right now, I pray God will bless you today with peace and relief of your troubles. I read daily of everyone's pain and wish there was more I could do than just pray. I'm so glad whoever started this group did so. WE all need somewhere to turn to sometimes. I will keep you in my prayers , Shirley, and hope today is better for you.. Hugs, ____________________________________________________ Start your day with - make it your home page http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.