Hi, I'm new,

[Guest guest]

Hi I'm new to the group.

I'm 26 and been getting EN on and off since being a baby. For 16 years they

didn't have a clue what it was. My lumps and bumps managed to miraclously

disapear while waiting to see a doctor. I then got an emergency appointment one

time, and while sat in the waiting room for 10 minutes, they turned from red and

sore into bruises. From the bruises I got a sort of diagnosis of EN, but they

couldn't confirm anything without seeing the spots. It was another 3 years

before any doctor would see the spots, and then they still didn't really know

for sure, so it was then years of trying to get to the dermatologist in time,

which I finally managed last year.

Over the years it has effected me differently. Sometimes, I get them quite

light, and they only effect my joints a little, and feel better afetr Nefopam.

Other times, I can go for a week or 2, where I can't move, can't even get out of

bed as the pain weakens me and every little bit of me hurts. Then I have

Tramadol, Nefopam, Piriton and Paracetamol and it never helps. I can only have

those 3 painkillers, due to asthma, allergies and interactions with other meds.

Last year I was completely confirmed as having Erythema Nodosum after it being

complete guess work up until then. They took a biopsy of one of the spots. They

said on bad flare ups I can have Steroids, but have yet to try that. Does anyone

know if this might help?

So far, mine are related to stress on the body. I have Cystic Fibrosis, and in

the run up to needing IV antibiotics, I always have a month of EN on and off.

They also come up if I get a cat scratch or a mosquito bite, usually on the limb

with the scratch etc is. Also whenever I have a flu jab, that's a guaranteed

flare up too. I mostly get them on my arms and they almost always start on my

arms, which is why the confusion for so many years. They only appear on my legs

when really bad. Does anyone else find this?

Sorry for the essay/life story. It's just having these for so many years I know

what my triggers are so thought I'd share them. I also have never found any sort

of definate treatment. I saw someone in another post had mentioned Vitamin D. I

am vitamin A+D deficient and even on 6 multivit tablets a day I struggle to get

my levels to reach the 'normal' range most of the time. I wonder if this may

have something to do with why I get EN quite often??

Thanks for reading