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Re: Flagyl

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Hi everyone this is a. I just wanted to tell all of you that I think I

am finally getting better. I was so excited yesterday because my pain is now

so much less. I am now going to a physical therapist that understands my

problem. She thinks that if I stretch out my very tight muscles in my hips,

buttocks, abdomen, lower back, and inner thighs it just might decrease my

vulvar pain to no pain at all. She said sometimes when muscles around that

area are too tight, never being allowed to relax, can radiate pain to other

places such as the vagina and vulva. At first I was very skeptical of this

theory but it seems to be working! I have also been doing kegel exercises

everyday because the last time I saw my gyno, he said that my pelvic floor

muscles were way too weak. At first when I did them it was very difficult to

even contract them at all, it hurt very very much and made my burning pain

much worse but now after doing them for a while they are much easier to do and

my burning pain has diminished. I still have alittle pain, but no burning. I

think that all this burning pain that I have been having constantly for 8

months now is caused by my weak pelvic floor muscles and extremely tight

muscles surrounding the area around the pelvic floor muscles because I don't

think you should have very weak muscles right next to extremely tight muscles,

then they wouldn't work right. Well, that is my theory anyway. For the

ladies who have vulvodynia and vestibulitis but aren't going through menopause

and who show nothing wrong at all with a gyno exam I just want to tell you

that you probably want to consider my theory and go to a physical therapist

and do biofeedback or kegel exercises. Before all this happened I had never

had any pain with intercourse, I had no pain at all down there! This is why

it's makes sense that it's my muscles causing all of this, not my

nerves!!!!!!!!! I think once I get my pelvic floor muscles back into shape

and get those other muscles around the area that I've mentioned earlier, I

will be pain free. Ladies I don't think you should be skeptical about

biofeedback because I think it will help many of us out there, it wouldn't

hurt to try it. I am so happy now because even though I'm not 100% cured yet

I feel like I'm getting closer everyday. Now that I can't really feel the

pain it will be much easier to work at getting better and being cured. I

never really thought it was nerve damage because I never had gone through any

trauma, so I think I'm on the right track. Oh, my burning pain used to

increase when I would get aroused but now that doesn't happen any more, and I

think my burning with urination is finally going away too. If I'm right about

all this I will be the happiest women in the world! But it will take a couple

of months or more before I will know for sure. I have to give my muscles some

time to strengthen, relax, and heal. Working out at the gym also decreases my

pain but I have to be careful with what I do. Oh, and I'm going to start

going to yoga classes to help my body to relax more. I'm also going to go see

a psychologist for my mother's recent death. I think this tragedy has shocked

my body so much that it made my muscles go out of whack. And to think that I

was going to consider surgery! NO WAY! That would have probably made me

worse!!!!!!! I will never get surgery for this or even consider it! That's

not my answer. I am so glad I went to another gyno for a second opinion. The

gyno I have now said NO WAY! He said that it wouldn't do me any good. He

said he didn't really know what was wrong with me exactly but he's the one who

said that my pelvic floor muscles were very weak, too weak and told me to do

some kegel exercises. I feel like he has saved my life! I feel like he has

guided me in the right direction! I decided to go see a physical therapist on

my own because I felt that if I have a muscle problem maybe they could help

me. Anyways I know that this is very long but I just have one more thing to

say. I'm going to see a vulvodynia specialist on Feb.25 in Rochester. His

name is Dr. and Saunders who is in charge of the Hopkins

Vulvodynia study referred me to him. When I see him, I am going to ask him to

do three cultures of ureaplasma, mycoplasma, and yeast just so I can rule them

out totally, then I going to have him do a colposcopy to make sure I don't

have endometreosis, and have him do a vulvoscopy to rule out any skin

conditions. I have had a biopsy done before showing only chronic inflammation

but I want to make sure. Now if all these tests come back negative, I want to

ask him where I can purchase a biofeedback unit that I can use at home. This

will help me with my kegel exercises and the machine will make sure that I'm

doing the exercises right. Well, I'll let you guys know how I'm doing from

time to time and definitely get back to you after I go to this specialist.

Hopefully all of this is caused by my muscles, that would be so wonderful.

Sincerely,

a (diagnosed with vulvodynia and vestibulitis but no one is really sure,

that's

just what these gynos think)

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I had a terrible reaction to Flagyl. I already had VVS and the dr said I needed

to keep using the Flagyl for a bacterial infection (altho he did not do a test)

& the burning would go away. Well, it only got worse and never went away.

I kept inserting it when I felt I should not because I so desperately wanted to

get better. Then this dr would not see me in emergency, just sent a note to my

family dr to say there was nothing further he could do! Whew.

I have a more sensitive, compassionate dr now - but still no help. Have tried

every cortisone cream in the book; all made it worse.

I just realize over & over with the posts that I am not alone. Sometimes it is

hard to just carry on another day. Still, I keep trying - and hoping.

Alice in Kamloops

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Hi a and all,

I saw Dr. when he was at s Hopkins and he's wonderful. I envy you.

I'll always be thankful to him because he diagnosed my Vulvodynia and started

me on the way to being relatively painfree. I hope he does the same for you

(I'm sure he will).

Health and happiness,

Sheri

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Dear Alice,

I know how you feel. I asked my gyno for a referral and he said " what

to a psychiatirst " I said No to vulvar specailist. Doctors..Grrrrr. Try

taking Aveeno sitz baths for about 20 minutes day and nite and using

vitamin A & D ointment. This is what helps me get thru the bad flareups.

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Sheri,

Hi I was just curious what exactly did Dr. do to help you become

relatively pain free? Have you had VV for very long? I know having it

anytime feels like a long time! Please share with us whatever treatments he

had to offer and what helped you and what didn't help. I am not sure but I

think he may have been the doctor that spoke at the I.C. convention in 1987

about vulvodynia.

I am glad that you are doing well.

Thanks

Darlene

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Sheri,

This is a. I live in Lockport, NY and it's about 2 hours from Rochester.

I was just wondering what Dr. did for you? What medication does he have

you taking, if any? and what kinds of tests did he perform on you? You say

that you're on your way to being pain free, how are you doing that? I'm very

curious.

a

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