NEW MEMBERS

[Guest guest]

Funny, you who gets upset about amount of e-mails you have to download now

wants more. How many " drooling babies " do you want to see ? Besides, I

think you should of asked our moderator before asking anyone -- even Chris

Ledoux to join. We are all here because of her. You have done this before

with some Doctor. Of course you can encourage people to start their own

web site or start one of your own over there. But I think you should of

asked first. For me - I don't think I can spend anymore time than I already

do reading so much mail. Barb

Barb,

ANY PSC patient, or family member is very welcome to join the support

group. I realize that there is already a tremendous amount of e-mail going

through this group, but if each member tries to keep all of the other members

in mind when posting (being considerate with posting.) then there shouldn't

be too much of a problem. However, before asking DR's to join the group, I

would like to run it past the entire group to get everyone's opinions first.

Although I may be the moderator, this is not MY group, it is everyone's

group. Any group member, that knows of another PSC patient has my standing

permission to ask that person to join the group. Again, I remember how alone

I felt when I was first diagnosed, and I talked to a wonderful man with PSC,

who calmed my fears. I don't want anyone to have to go through the feeling

of being alone. (I know that we can't reach ALL PSC patients, but we can

reach some of them.)

Love,