my doctors appointment

[Guest guest]

Deb,

I am on Paxil for depression (20 mg) but it nothing for my VV, and it wasn't

perscribed for that. I always thought that the class of antidepressents

that Paxil was in really wasn't used for pain relief, but obviously I am

wrong since I am reading about it more and more. Hope it works for you.

Maybe a higher dose makes the difference.

Carolyn

my doctors appointment

>From: DLitzfletc@...

>

>I went for my follow up appointment with Dr. M, the vulvovaginal disorder

>specialist, today. He and I agree that the Elavil has begun to descease my

>pain reaction on exam and is helping on a day to day basis along the the

tub

>soaks, blow drying, and vaseline. When I described my side effects,

dry/sour

>mouth, dry eyes (can't wear contacts and haven't for a week), irritability,

>exhaustion, dizziness, and weight gain, he agreed that the benefit did not

>justify the side effects. So, over the next eight weeks I will taper down

>from 125 mg to 0. Then I see him again and we start over again with the

>Paxil. 20mg worked after 5 weeks last spring but he thinks we should go

>higher and will get better results if we do.

>Is anyone else using Paxil for v v s and vulvodynia associated with

pudendal

>neuralgia? If so. what is your dose?

>I also asked more questions this time.

>Of the low oxylate diet and Citracal --- he is not a believer, things it is

>b--- sh---! The diet has not seemed to help me although I do think my

>IC/bladder stuff does respond to a " bladder bland " diet.

>On physical therapy and biofeedback --- he says it would not do any harm,

but

>in and of itself is not going to be the thing for me because I am not

tight,

>do not have any problem relaxing for sex or for a pelvic exam.

>He and my gyn both feel that my problem is neurologic and that there is no

>quick and easy solution, but my response to both Elavil and Paxil as far as

>decrease in symptoms are a positive and that Paxil is the way to go. It

did

>make me drowsy, but it was a mellow drowsy not an irritable exhaustion. It

>also diminished the longer I was on the drug.

>So, from here we can expect things to get worse again, as we taper the

Elavil,

>and can hope for improvement when the Paxil is on board.

>All the blood work, wet smears, and cultures he did were normal.

>It is just frustrating to have " nerve damage " or " nerve sensitivity " and no

>good explanation of what caused it.

>Oh well, I guess it goes ago with my endo and IC.

>Guess you all will be hearing from me as a ride out this taper and start

the

>Paxil. Deb

>

>------------------------------------------------------------------------

>

[Guest guest]

I went for my follow up appointment with Dr. M, the vulvovaginal disorder

specialist, today. He and I agree that the Elavil has begun to descease my

pain reaction on exam and is helping on a day to day basis along the the tub

soaks, blow drying, and vaseline. When I described my side effects, dry/sour

mouth, dry eyes (can't wear contacts and haven't for a week), irritability,

exhaustion, dizziness, and weight gain, he agreed that the benefit did not

justify the side effects. So, over the next eight weeks I will taper down

from 125 mg to 0. Then I see him again and we start over again with the

Paxil. 20mg worked after 5 weeks last spring but he thinks we should go

higher and will get better results if we do.

Is anyone else using Paxil for v v s and vulvodynia associated with pudendal

neuralgia? If so. what is your dose?

I also asked more questions this time.

Of the low oxylate diet and Citracal --- he is not a believer, things it is

b--- sh---! The diet has not seemed to help me although I do think my

IC/bladder stuff does respond to a " bladder bland " diet.

On physical therapy and biofeedback --- he says it would not do any harm, but

in and of itself is not going to be the thing for me because I am not tight,

do not have any problem relaxing for sex or for a pelvic exam.

He and my gyn both feel that my problem is neurologic and that there is no

quick and easy solution, but my response to both Elavil and Paxil as far as

decrease in symptoms are a positive and that Paxil is the way to go. It did

make me drowsy, but it was a mellow drowsy not an irritable exhaustion. It

also diminished the longer I was on the drug.

So, from here we can expect things to get worse again, as we taper the Elavil,

and can hope for improvement when the Paxil is on board.

All the blood work, wet smears, and cultures he did were normal.

It is just frustrating to have " nerve damage " or " nerve sensitivity " and no

good explanation of what caused it.

Oh well, I guess it goes ago with my endo and IC.

Guess you all will be hearing from me as a ride out this taper and start the

Paxil. Deb