Thank You Dr. J for all your time and effort.

[Guest guest]

Thank you Dr. J also for the sharing what is being undertaken with the

Misophonia Protocol you have been working on with other audiologists.

I have been a member here for a long time and I know that you have always been

open to the discussion of alternative treatments.

I think it's great that people are trying NFB, but I also don't want this place

to turn into an NFB forum.

To new members, about how we got here:

As a long time member having researched and participated in other groups in the

hyperacusis world, I have become aware of the long history of what it has taken

to get to where we are now, being finally recognized and taken seriously by

" some " in the scientific community as a condition all of its own.

Dr. J has spent untold time and effort at this goal, while also having put up

with attempts to discredit her by some with the opposing points of view, I

could point you to a website where you could read for yourselves some examples

of this in the archives, but due to all the editing and deleting of posts

there, it is not easy to make sense of these debates (this was the place we

first gathered by the way).

So having witnessed and also participated in the frustration of trying to make

our case there, with the constant DELETION of posts and threads, I find it hard

to fathom that Dr. J would engage in the similar censorship, when she has spoken

out against censorship so often.

Dr. J provided us to have a safe place to gather here in a private setting away

from all that discounting of what we have to live with with misophonia. I want

this to remain a safe place of support and mutual respect.

If it weren't for Dr. J we would likely at this point still be out there alone,

thinking we are the only one who is crazy and 4s/misophonia would likely still

not be taken seriously or known.

I think it's great that people are having positive results with NFB, I hope it

continues and happens for others. But like it or not, among the scientific

community those few reports, hopeful as they sound, would be considered

anecdotal evidence. (this is not a criticism or meant to discount these good

results, I am just stating a fact) I don't have time to engage in debates about

NFB right now, which I have not done the research on, so am not trying to start

one here.

When I first joined 4 or 5 years ago, the NIH was seriously considering a study

of our condition and Dr. J was very excited about that and involved. That is

obviously not going to happen at this point, which was very disappointing. That

is why I don't immediately jump with joy when I hear unofficially that a

neurological study is being considered.

By the way, due to what I have seen in the past, I think it is quite possible

that the NIH study was derailed by the same long time negative influences on a

witch hunt, whom I also suspect torpedoed our wikipedia page in the past and

shared private posts outside the group, and left demeaning remarks about Dr. J

and us all over the internet. I could even believe that hacking websites

wouldn't be beyond the scope.

After all that has occurred in the past outside this group, I am really bothered

by what has been going on within the group with the NBF debate.

It also bothers me that new members may be getting the impression that Dr. J is

out to suppress forward progress, and that we need sticking up for here. I am

very sad to see that, she deserves to be thought of with respect, especially

here. A separate group for those trying NFB is a not a bad idea, I imagine

there are a lot of technical details to be discussed and figured out with the

practitioners.