Re: [CRPS]/ DEB

[Guest guest]

Deb:

Thanks for your thoughts.......please don't feel like the lone ranger when

it comes to having the reality of being referred to as " disabled " . I have

avoided that term for so long, continued working etc. until I realized I

have done myself an injustice by trying to act " normal " . I recently found

out ( when I started telling family I applied for SS disability) that my

family and friends had no idea I was that bad off. Someone actually

corrected me and said " Disability is for someone with such a bad problem

that they can't do any kind of work any more, and you will feel better about

yourself when you find the right job again " . Thetas when I realized my brave

act, keeping my aches and pains to myself was a mistake......no one knows

how I have suffered ( alone). I felt insulted. I felt like saying " you have

no idea how bad it hurts me just to sit in a chair and have pantyhose

touching my legs, and how it feels to start a sentence explaining something

to a customer and the mind goes into sleep mode.......can't remember what I

was gonna say " " you don't know how it feels to go from an office manager

advising 14 employees on what to do, to not being able to calculate a time

card properly " . So now I have started showing my problems outwardly more. I

don't want anyone to think I just want to get out of working! Yes it is a

black hole, but we deserve to be asked by our loved ones " how are you

feeling today? Can I get something for you? " I'm ready for a little

attention now.

The spinal cord stimulator REALLY does take away the burning but for me it

doesn't help the pain. The morphine pump is the best of all because it goes

straight to where the pain originates from. You don't get the fog of

narcotics taken orally. Give it some serious thought before you dismiss the

idea. Dr. Hooshmand has some negative thoughts on RSD sufferers going to

these devices: I will get his website address off yahoo then I'll tell

you where to find it.

+

in Alaska

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Re: rsd Hi Everyone

> Hi Guys,

> Well, now that we are back to being one big happy family again, whew.

> That was rough, but I am so glad it is over.

> OK, this letter is in response to Cookie, , , Carolyn,

,

> Jo, and Barbara.

> Hi.

> Lol

> The nna subject will be discussed at chat. I think that is a more

> appropriate forum. I do know it is legal in lounge type settings in

certain

> provinces of Canada. I actually have seen it advertised for sale, I will

look

> for the link, if you remind me. Lol

> I personally think RSD patients are right up there, if not above, the

> patients that are allowed to use it for medicinal purposes.

> I also think there is a pill, someone asked that, ?

>

> As far as MRI's and metal?

> I have had many MRI's done, but I only have staples in my abdomen.

> I think it is okay now, technology has come so far.

> I just today was discussing scs, and pumps with . He said it seems

> like we are reaching the point of seriously considering it. I got so

upset. I

> said no, I have a lot of leeway with the medication still. There are so

many

> things out here, one of my doctors had mentioned that my options will not

be

> over between the medication and other procedures, all of which are

> noninvasive, but not proven. Hey what the heck. I certainly would like to

be

> all the research I can before I have a scs or pump. That is just me. It

> doesn't mean I am right. It just means I am so scared of all of this. It

is

> like the other day I was responding to someone, I forget, Lol, ands I type

> the words, " Since I became disabled. " It just blew me away. I just sat at

the

> computer and sank. It was like falling down a black hole.

> I felt like I just stood up at an AA meeting and said I was an alcoholic.

> Thanks for letting me vent guys. It just all came out tonight I guess,

huh?

> Hugs,

> Deb

>

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