Re: CFS more common in lower classes of people'?

February 2, 2012

Simon Wesseley, quoted here saying ME, CFS afflicts " lower classes, " wow. How

very British of him, discussing classes of people.

And not true in my support group.

Wesseley's disreputable published commentary precede his latest entry.

toni

cf-alliance.tripod.com/

from iPad

On Feb 2, 2012, at 2:47 PM,

CFAlliance-owner wrote:

> Chronic fatigue 'more common in poorer people'

>

http://www.candis.co.uk/parental-and-family-health-news/4253/chronic-fatigue-mor\

e-common-in

February 2, 2012

You said that very well, bravo!

Simon Wesseley is a dangerous, twisted influence on the ME and CFS community.

We work so hard to make strides with the public and medical community about

these misunderstood illnesses and he comes along then pushes our efforts back a

few steps.

PJ

>

> > Chronic fatigue 'more common in poorer people'

> >

http://www.candis.co.uk/parental-and-family-health-news/4253/chronic-fatigue-mor\

e-common-in

February 3, 2012

Hi all who-object-to-Weasel-y,

OOps, kind of mis-spelled his name. Oh well; MY bad, but then you know us lower

class folks, eh right, Simon?

There is this bad part of me which sort of thinks at times about how much fun it

would be to kidnap this clown. And then .. (high tech people needed here!) fit

him with a helmet so he cannot see where he is. So that he thinks he is

'elsewhere' and so that he himself begins to feel the same symptoms WE have.

Thing is, this is just a fiction, and I could not possibly be well enough to

ever carry out such a thing no do I know anyone who would be. I also don't think

virtual technology is sophisticated enough yet to get across to a (wearer's

brain?) participant's mind all of the things which we feel on a daily basis.

A damn shame. Wish I were still skilled with pen and ink enough to get some

photos of the clown and do some cartoons of him. I was quite good at that in art

school; could make someone most uncomfortable if they were starring in a strip.

And to do something starring a character named Dr Weasel would be so fitting...

I am not near so clever as I once was, but if I were to have someone who was,

cohorts, co-writers, it could be promising. Perhaps good enough to print?

Jane, the one with the hound,

NYC

> >

> > > Chronic fatigue 'more common in poorer people'

> > >

http://www.candis.co.uk/parental-and-family-health-news/4253/chronic-fatigue-mor\

e-common-in

>

February 11, 2012

To be fair, many people with life-long debilitating illnesses end up

" lower class " . [There really isn't much of a safety net (in the US or

UK)]. So, it would not be very surprising to find a significant number

of people with CFS financially struggling. Treatments are expensive,

insurance doesn't cover everything, and when you can't work, long-term

disability is hard to get and very limited (SSI pays a maximum of $698

for an individual and $1024 for a couple).

Steve M in PA

Simon Wesseley, quoted here saying ME, CFS afflicts " lower classes, "

wow. How very British of him, discussing classes of people.

And not true in my support group.

Wesseley's disreputable published commentary precede his latest entry.

toni

February 11, 2012

To be fair, many people with life-long debilitating illnesses end up

" lower class " . [There really isn't much of a safety net (in the US or

UK)]. So, it would not be very surprising to find a significant number

of people with CFS financially struggling. Treatments are expensive,

insurance doesn't cover everything, and when you can't work, long-term

disability is hard to get and very limited (SSI pays a maximum of $698

for an individual and $1024 for a couple).

Steve M in PA

Simon Wesseley, quoted here saying ME, CFS afflicts " lower classes, "

wow. How very British of him, discussing classes of people.

And not true in my support group.

Wesseley's disreputable published commentary precede his latest entry.

toni

February 11, 2012

To be fair, many people with life-long debilitating illnesses end up

" lower class " . [There really isn't much of a safety net (in the US or

UK)]. So, it would not be very surprising to find a significant number

of people with CFS financially struggling. Treatments are expensive,

insurance doesn't cover everything, and when you can't work, long-term

disability is hard to get and very limited (SSI pays a maximum of $698

for an individual and $1024 for a couple).

Steve M in PA

Simon Wesseley, quoted here saying ME, CFS afflicts " lower classes, "

wow. How very British of him, discussing classes of people.

And not true in my support group.

Wesseley's disreputable published commentary precede his latest entry.

toni

February 12, 2012

Thats exaactly right .

I'm on disability myself, and I happen have more than $698 only because I

worked for 20 yrs so I have SSD.

Unfortunately, it is not more than $1000 a month, and winds up to be several

dollars less, after they take out for Medicare, and yet is too high an amount

for me to receive Food Stamps or Medicaid.

If a person hasn't been able to work enough time and/or or has been

hospitalized for their condtion they can qualify for SSI and that includes

Medicaid too.

The sad truth is, neither is easy to obtain. I was fortunate that at one point I

had 2 doctors willing to support my claim. With my back injury and fibromyalgia,

I was only considered disabled because of the back injury. I was out of work for

several months before I was hit by a car and in more pain with more injuries.

But am only considered disabled since that particular accident-the fibromyalgia

was not considered. My being on several medications that also make me sleepy and

dizzy at times *was* thankfully taken into consideration.

Your main point,that whatever socioeconomic level we were included in *before*