Re: CFS: Buried alive. Hoarding

March 12, 2012

i agree my house is a mess no where near hoarding but yes when i have a

good day i shop to it helps a lot but i would say 20 out of 30 days i am

bedritten

netty

In a message dated 3/12/2012 3:29:46 P.M. Eastern Daylight Time,

ShyCat2@... writes:

I was wondering if anyone watches " Buried alive. Hoarding ? A Pediatric

nurse left her job after getting sick and diagnosed with CFS. Her

daughters

comment , " when she feels better she can feel well enough to shop, of

course I understood when I have a better day I don't hoard but try to cram

missed life in those times.

What made me sit up was the disdain in her daughter voice . After all

these years the lack of understanding is just as bad as 30 years ago. I

have

always thought, if we all chipped in, a TV educational ad would do more

then

anything to educate people.

The point? Just venting.

March 12, 2012

i agree my house is a mess no where near hoarding but yes when i have a

good day i shop to it helps a lot but i would say 20 out of 30 days i am

bedritten

netty

In a message dated 3/12/2012 3:29:46 P.M. Eastern Daylight Time,

ShyCat2@... writes:

I was wondering if anyone watches " Buried alive. Hoarding ? A Pediatric

nurse left her job after getting sick and diagnosed with CFS. Her

daughters

comment , " when she feels better she can feel well enough to shop, of

course I understood when I have a better day I don't hoard but try to cram

missed life in those times.

What made me sit up was the disdain in her daughter voice . After all

these years the lack of understanding is just as bad as 30 years ago. I

have

always thought, if we all chipped in, a TV educational ad would do more

then

anything to educate people.

The point? Just venting.

March 12, 2012

i agree my house is a mess no where near hoarding but yes when i have a

good day i shop to it helps a lot but i would say 20 out of 30 days i am

bedritten

netty

In a message dated 3/12/2012 3:29:46 P.M. Eastern Daylight Time,

ShyCat2@... writes:

I was wondering if anyone watches " Buried alive. Hoarding ? A Pediatric

nurse left her job after getting sick and diagnosed with CFS. Her

daughters

comment , " when she feels better she can feel well enough to shop, of

course I understood when I have a better day I don't hoard but try to cram

missed life in those times.

What made me sit up was the disdain in her daughter voice . After all

these years the lack of understanding is just as bad as 30 years ago. I

have

always thought, if we all chipped in, a TV educational ad would do more

then

anything to educate people.

The point? Just venting.

March 12, 2012

I've been sick a very long time and know only to well what this illness

can do to your life and how hard it is. I hope and pray I see it accepted and

treatment is found, not so much for me but for the young, of course anyone

under sixty, to me, is a youngster.

It is hard, there aren't any cowards in our world.

In a message dated 3/12/2012 6:02:15 P.M. Pacific Daylight Time,

annettini935@... writes:

i agree my house is a mess no where near hoarding but yes when i have a

good day i shop to it helps a lot but i would say 20 out of 30 days i am

bedritten

netty

In a message dated 3/12/2012 3:29:46 P.M. Eastern Daylight Time,

_ShyCat2@..._ (mailto:ShyCat2@...) writes:

I was wondering if anyone watches " Buried alive. Hoarding ? A Pediatric

nurse left her job after getting sick and diagnosed with CFS. Her

daughters

comment , " when she feels better she can feel well enough to shop, of

course I understood when I have a better day I don't hoard but try to cram

missed life in those times.

What made me sit up was the disdain in her daughter voice . After all

these years the lack of understanding is just as bad as 30 years ago. I

have

always thought, if we all chipped in, a TV educational ad would do more

then

anything to educate people.

The point? Just venting.

March 13, 2012

Even the Lyrica commercial plays down Fibro and CF, like its not a big deal.

I find it is hard for people to understand if they arent there. But most my

friends understand when I cant go out, even to go to the post office to get

my mail.

hugs....Pandy

CFS: Buried alive. Hoarding

I was wondering if anyone watches " Buried alive. Hoarding ? A Pediatric

nurse left her job after getting sick and diagnosed with CFS. Her

daughters

comment , " when she feels better she can feel well enough to shop, of

course I understood when I have a better day I don't hoard but try to cram

missed life in those times.

What made me sit up was the disdain in her daughter voice . After all

these years the lack of understanding is just as bad as 30 years ago. I

have

always thought, if we all chipped in, a TV educational ad would do more

then

anything to educate people.

The point? Just venting.

------------------------------------

March 13, 2012

Hi all,

this is sort of -understatement!- hard for me to write. My home became .. just

overrun and dreadfully disorganized from the time when I began getting really

ill. At some points I was able to clean, sure, and even get RID of stuff but

then ... My mom had died. Then dad went into a nursing home when he broke his

hip. I (later) did get some of the things which I had been left when his home

was sold and the contents also sold. I did not get everything I was supposed to,

and I did get far more than I expected in six large boxes filled with old papers

and photos all mixed up. There was furniture as well. In an apartment? A mess.

And took me TIME to sort thru, to TRY to organize and at same time write to dad,

send him old photos (not all the old photos he wanted were taken from the house

by his lawyer; do not know HOW THAT mistake was made!!). Then .. giant flood

from apartment above me; combination of water and URINE. bathroom and portion of

livingroom! This was overnight and damage was immense as the did not turn off

proper place until 8:30 Am. (It began 11PM). Almost directly after this?

BEDBUGS! It took an entire YEAR to get rid of the things.

It may well have been longer. No one wanted to help (of course!) and I did not

have $$ to pay someone (SSD). Took 2 exterminators. SO many things were tossed.

Went thru HELL with this and still am positive there is mold in the walls. All

I've been able to 'do' about this is to keep the place ventilated. There still

exists a clutter problem but not as bad. I no longer have furniture to put stuff

away in. I was only able to afford someone to help pack stuff up before

exterminator # 1 came in (the ineffective ones)because my dad had died and I was

rather taken aback that I got some insurance money. It still feels awful. Still

have so much kept in plastic it is absurd (space bags, haha). I'd rather have my

dad than that damn money any day, but he was so bad off at the end. I only hope

that he has found peace. Sorry this is so depressing.

Jane, one with too strong hound, NYC

>

> i agree my house is a mess no where near hoarding but yes when i have a

> good day i shop to it helps a lot but i would say 20 out of 30 days i am

> bedritten

> netty

>

> In a message dated 3/12/2012 3:29:46 P.M. Eastern Daylight Time,

> ShyCat2@... writes:

>

> I was wondering if anyone watches " Buried alive. Hoarding ? A Pediatric

> nurse left her job after getting sick and diagnosed with CFS. Her

> daughters

> comment , " when she feels better she can feel well enough to shop, of

> course I understood when I have a better day I don't hoard but try to cram

> missed life in those times.

> What made me sit up was the disdain in her daughter voice . After all

> these years the lack of understanding is just as bad as 30 years ago. I

> have

> always thought, if we all chipped in, a TV educational ad would do more

> then

> anything to educate people.

> The point? Just venting.

>

March 13, 2012

When I have those rare days I get my house nice and organized then bang

and I'm down again and it falls apart. When I drop something and it stays

there because I can't lay down fast enough and simply don't care.

In a message dated 3/13/2012 5:05:45 P.M. Pacific Daylight Time,

janeandhound@... writes:

Hi all,

this is sort of -understatement!- hard for me to write. My home became ..

just overrun and dreadfully disorganized from the time when I began getting

really ill. At some points I was able to clean, sure, and even get RID of

stuff but then ... My mom had died. Then dad went into a nursing home when

he broke his hip. I (later) did get some of the things which I had been left

when his home was sold and the contents also sold. I did not get

everything I was supposed to, and I did get far more than I expected in six

large

boxes filled with old papers and photos all mixed up. There was furniture as

well. In an apartment? A mess. And took me TIME to sort thru, to TRY to

organize and at same time write to dad, send him old photos (not all the old

photos he wanted were taken from the house by his lawyer; do not know HOW

THAT mistake was made!!). Then .. giant flood from apartment above me;

combination of water and URINE. bathroom and portion of livingroom! This was

overnight and damag e was immense as the did not turn off proper place until

8:30 Am. (It began 11PM). Almost directly after this? BEDBUGS! It took an

entire YEAR to get rid of the things.

March 13, 2012

It sounds awful and traumatic. Bed bugs, nasty!

____________________________________

From: janeandhound@...

Subj: Re: CFS: Buried alive. Hoarding

Hi all,

this is sort of -understatement!- hard for me to write. My home became ..

just overrun and dreadfully disorganized from the time when I began getting

really ill. At some points I was able to clean, sure, and even get RID of

stuff but then ... My mom had died. Then dad went into a nursing home when

he broke his hip. I (later) did get some of the things which I had been

left when his home was sold and the contents also sold. I did not get