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Re: I miss reading books.

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Some of the drugs I've been given are Provigil, Nuvigil, Adderall, Ritalin.

So far, if I have an event I want to be active for, I've found the

Ritalin to work the best.

Peace and Love,

Byron

At 03:13 AM 2/7/2012 +0000, you wrote:

>I know I'm not alone.. my brainfog makes it extremely difficult to

>read a book like in my pre-CFS & pre-FM days. It now takes me 3x as

>long and out of frustration I gave up.

>Is there anything that helps with this?

>PJ

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________________________________

Subject: I miss reading books.

I know I'm not alone.. my brainfog makes it extremely difficult to read a book

like in my pre-CFS & pre-FM days. It now takes me 3x as long and out of

frustration I gave up.

Is there anything that helps with this?

PJ

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Time, eventually you find your own pace, and thu any never regain full

functioning, there is improvement withour brains as we learn to make new

adjustments.

>

> I know I'm not alone.. my brainfog makes it extremely difficult to read a book

like in my pre-CFS & pre-FM days. It now takes me 3x as long and out of

frustration I gave up.

> Is there anything that helps with this?

> PJ

>

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I don't know if this will help you, but I know gingko biloba helped me with

mental clarity and, when I was taking Paxil, Gingko helped with the sexual

dysfunctioning the Paxil caused me. My cousin tried it for the mental alertness

too and it helped.

I miss reading books.

I know I'm not alone.. my brainfog makes it extremely difficult to read a book

like in my pre-CFS & pre-FM days. It now takes me 3x as long and out of

frustration I gave up.

Is there anything that helps with this?

PJ

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I don't know if this will help you, but I know gingko biloba helped me with

mental clarity and, when I was taking Paxil, Gingko helped with the sexual

dysfunctioning the Paxil caused me. My cousin tried it for the mental alertness

too and it helped.

I miss reading books.

I know I'm not alone.. my brainfog makes it extremely difficult to read a book

like in my pre-CFS & pre-FM days. It now takes me 3x as long and out of

frustration I gave up.

Is there anything that helps with this?

PJ

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I have always been an avid book reader. But I have days when I can't concentrate

or focus on the print.

I go to the library every two or three weeks. I get a variety of books; some are

non-fiction. It might even be a cookbook, decorating, birding, or gardening

book. It will usually include photographs that I can enjoy.  My library does not

check out magazines, but some do. If you are able to, you might look at a

magazine at the library.  Some days I just pick up books that I have reserved,

if that is all I can do.  I will always some fiction,too.  I recommend getting

books on tape (which are now cds).  You can just listen to someone else read the

book; stopping the cd when you tire.  This works well when I am in the car going

on short trips. I am in the backseat with my pillow and my husband is driving. 

Fortunately, we both like mysteries!

 

It is challenging to find ways of adapting to the things we enjoy when are lives

are complicated by chronic pain and fatigue.  Don't give up! Over the 15 years

of dealing with chronic illnesss, I am finally learning that change in our lives

is inevitable.  I just keep trying to adapt and modify my lifestyle without the

quality of my life having to diminish.

 

Keep on asking for ideas and coping skills. 

 

Carolina Lady

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I have always been an avid book reader. But I have days when I can't concentrate

or focus on the print.

I go to the library every two or three weeks. I get a variety of books; some are

non-fiction. It might even be a cookbook, decorating, birding, or gardening

book. It will usually include photographs that I can enjoy.  My library does not

check out magazines, but some do. If you are able to, you might look at a

magazine at the library.  Some days I just pick up books that I have reserved,

if that is all I can do.  I will always some fiction,too.  I recommend getting

books on tape (which are now cds).  You can just listen to someone else read the

book; stopping the cd when you tire.  This works well when I am in the car going

on short trips. I am in the backseat with my pillow and my husband is driving. 

Fortunately, we both like mysteries!

 

It is challenging to find ways of adapting to the things we enjoy when are lives

are complicated by chronic pain and fatigue.  Don't give up! Over the 15 years

of dealing with chronic illnesss, I am finally learning that change in our lives

is inevitable.  I just keep trying to adapt and modify my lifestyle without the

quality of my life having to diminish.

 

Keep on asking for ideas and coping skills. 

 

Carolina Lady

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Someone may have mentioned this but throwing it out here just encase.

" Talking books " are great, just cuddle up with a warm tea and listen.

In a message dated 2/8/2012 3:06:14 P.M. Pacific Standard Time,

v_van_bonner@... writes:

I have always been an avid book reader. But I have days when I can't

concentrate or focus on the print.

I go to the library every two or three weeks. I get a variety of books;

some are non-fiction. It might even be a cookbook, decorating, birding, or

gardening book. It will usually include photographs that I can enjoy. My

library does not check out magazines, but some do. If you are able to, you

might look at a magazine at the library. Some days I just pick up books that

I have reserved, if that is all I can do. I will always some fiction,too.

I recommend getting books on tape (which are now cds). You can just

listen to someone else read the book; stopping the cd when you tire. This

works

well when I am in the car going on short trips. I am in the backseat with

my pillow and my husband is driving. Fortunately, we both like mysteries!

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Hi--

Wow, this is the first time I've seen someone else who was prescribed the same

kind of drug for the same/ a similar reason. (I actually had/ STILL have!- a

shrink who thinks this is appropriate for me; she 'diagnosed' ADDH or whatever

it is and would NOT listen to me re. my other symptoms! For me, the particular

drug I was given made reading WORSE and made ME feel just awful. For the few

days going on it and the few coming off (had to build up in my system;

Straterra), I was in a sort of hell. I absolutely do not read at the rate I

formerly did, however I've not been forced to abandon it entirely. They -the

shrinks- still get after me for 'being all over the place' at times, but ..

somehow someday I HOPE to educate them. Have certainly tried.

At least I do have a great ME/CFS doc. A shame they refuse to speak with him.

Jane, the one with the hound, NYC

Note: I could be an anomally and those drugs may well work FINE for others! This

reflects my own weird chemistry only.

> >I know I'm not alone.. my brainfog makes it extremely difficult to

> >read a book like in my pre-CFS & pre-FM days. It now takes me 3x as

> >long and out of frustration I gave up.

> >Is there anything that helps with this?

> >PJ

>

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Hi--

Since I'm so .. sensitive to drugs (I even need to be wary of benedral for

allergies)I WOULD be far more comfortable trying ginko. Or about any such

similar. CAREFULLY!

Jane, the one with the hound NYC

>

> I don't know if this will help you, but I know gingko biloba helped me with

mental clarity and, when I was taking Paxil, Gingko helped with the sexual

dysfunctioning the Paxil caused me. My cousin tried it for the mental alertness

too and it helped.

>

> I miss reading books.

>

> I know I'm not alone.. my brainfog makes it extremely difficult to read a book

like in my pre-CFS & pre-FM days. It now takes me 3x as long and out of

frustration I gave up.

> Is there anything that helps with this?

> PJ

>

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Dont have time to read all the posts but have you guys ever read books that are

on CD or ones you can download to a normal MP3 player off the internet??? it is

WAY less fatigueing just as long as you can hear it theres no issue.

I am deaf and i use these books anyways i have a system i can use so i can still

use these books and i would read these over a normal book ANY day. Dont know

about other countries but in Australia i can borrow them from my local library

for free, i dont have to be blind to do that. I do have sight issues and prefer

large print over standard even WITH my glasses due to the fatigue but the audio

books are the BEST.

if you want me to find the link on where to purchase them i can do that for you.

But usually googling (name of book) and then MP3 or audio book afterwards will

make it come up

hope this helps someone

Re: I miss reading books.

Hi--

Wow, this is the first time I've seen someone else who was prescribed the same

kind of drug for the same/ a similar reason. (I actually had/ STILL have!- a

shrink who thinks this is appropriate for me; she 'diagnosed' ADDH or whatever

it is and would NOT listen to me re. my other symptoms! For me, the particular

drug I was given made reading WORSE and made ME feel just awful. For the few

days going on it and the few coming off (had to build up in my system;

Straterra), I was in a sort of hell. I absolutely do not read at the rate I

formerly did, however I've not been forced to abandon it entirely. They -the

shrinks- still get after me for 'being all over the place' at times, but ..

somehow someday I HOPE to educate them. Have certainly tried.

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