Guest guest Posted February 6, 1999 Report Share Posted February 6, 1999 Michele and all, I wanted to recommend a book called " Full Catastrophe Living -- Using the Wisdom of Your Body and Mind to Face Stress, Pain and Illness " by Jon Kabat-Zinn, PHD. He runs the Program of Stress Reduction Clinic at t he University of Massachusetts Med. Center. It is a well known program because he has shown that simple meditative practices have helped reduce pain and suffering in patients with all kinds of things. It is not a substitute for other care, of course. Doctors are even taking his courses! It is a good book, especially if you are looking for that type of book -- it isn't very foo-fooey and it is well written. Do I meditate? NO!! Darn me!!! I should be.....he has some tapes out that are really good, too. But his whole philosopy is very kind and deep and simple -- but the patient must commit to it. Listening to the tapes and reading the book don't count! Meditating and relaxing is TONS harder than I ever would have thought. I take Valerian (an herb in pill form, usually with Passionflower, too) for anxiety. It does help me. It is safe and non-addictive as far as I know, except you shouldn't take a lot of it if you are going to drive, until you know how it affects you. it is very mild, though. Lots of people use it for help with sleeping. I have seen a psychotherapist off and on for years. I have a history of depression that precedes VV (and often overrides it) so my case may be a little different, but I strongly believe that a good therapist can really help sort out lots of issues and help you cope. When I am on Paxil for depression, as I am now, I seem to feel much less need for therapy....and these lists help, too!! It may take time to find the right therapist. There are trained therapists that can help you with pain management (breathing techniiques etc.) - mine just went through some training in this since half of her clients had a chronic illness! Also, there is a woman in Portland named Jill Romm who is a therapist who has an interest in treating women with vulvar pain! She uses Jon Kabat-Zinn's program and adapts it to VV --using dialators etc. She even works with Dr. Jensen and Dr. Goetsch, who refered me to her - she said " she works magic " . This coming from a pure rationalist. I saw Jill Romm a few times last summer, but stopped because it was doubling up on my regular therapy and I was too depressed to get anything out of it. I needed medication. What a summer I had! If you can't find " a specialist " , though, if you can find someone who you feel " has a clue " about what you are going through that would be great. Maybe doing a phone interview would help,. This is very accepted. Ask if they have treated women with chronic pain or illness. If the psychiatrist reccommends a drug for you, make sure you are clear as to why he/she is doing that...ie. what is your diagnosis....and how long does he/she think you may need to be on it? Basic questions, but ones that may weed out a doc. who just wants to medicate you and that's it. Anyway, don't feel any shame about talking with a therapist (talking alone really can help) or taking meds if you need it to cope. I would be a basket case without my Paxil right now. Love, Carolyn psychotherapy > > >From: m20d@... (michele duke) > >Hi! > >First off I too am having a major flareup. I felt perfectly fine this >past Tuesday almost to the point where I thought..Hooray it is >over...Not. I know this is not in my head and have seen a vv specailist >who still has not diagnosed my problem. I have also decide to see a >psychologist and wondered if any of you are seeing anyone. I thought I >should see someone who deals with pain management but in the office >which my insurance covers there is no one that does pain management. The >lady who I am going to see for the first time does imagery and >spirituality. Has anyone done this and did it help? Thanks for your >help. > >Michele Duke >m20d@... > > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
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