Guest guest Posted March 30, 2012 Report Share Posted March 30, 2012 Great news, Angie! I hope it's your magic potion! We are all so different... > > I've been living with CFS for nearly 4 years and have been seriously sleep deprived for that long. I was officially diagnosed 4 months ago and have been on a variety of prescription drugs and supplements to fight my way back. Prescription drugs don't work for me, the 'antidepressants' only made me sicker or I had all kinds of bad reactions to them. The sleeping pills only gave me 4 hours of sleep on a good night. Melatonin basically allowed me a nap. Desperate to get some sleep I did my own research and found Valerian Root. It takes a few weeks to build up in your system. I have been taking it for 4 nights and am already noticing a huge difference. Last night I slept for 6 hours and didn't wake up once. Normally sleep for me is like watching tv in my head all night, there was just no getting away from all the dreaming and I could recall every moment of them. From last night I am only aware of the dream I had before waking up. I don't wake up feeling drugged. I am hopeful that this new supplement will allow me to get most of the sleep that I should be and perhaps catch up some on all that sleep deprivation and if I am really lucky, have some kind of a 'normal' life. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2012 Report Share Posted March 31, 2012 In a message dated 3/30/2012 3:05:19 P.M. Eastern Daylight Time, angie.rowan01@... writes: I've been living with CFS for nearly 4 years and have been seriously sleep deprived for that long. I was officially diagnosed 4 months ago and have been on a variety of prescription drugs and supplements to fight my way back. Prescription drugs don't work for me, the 'antidepressants' only made me sicker or I had all kinds of bad reactions to them. The sleeping pills only gave me 4 hours of sleep on a good night. Melatonin basically allowed me a nap. Desperate to get some sleep I did my own research and found Valerian Root. It takes a few weeks to build up in your system. I have been taking it for 4 nights and am already noticing a huge difference. Last night I slept for 6 hours and didn't wake up once. Normally sleep for me is like watching tv in my head all night, there was just no getting away from all the dreaming and I could recall every moment of them. From last night I am only aware of the dream I had before waking up. I don't wake up feeling drugged. I am hop eful that this new supplement will allow me to get most of the sleep that I should be and perhaps catch up some on all that sleep deprivation and if I am really lucky, have some kind of a 'normal' life. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2012 Report Share Posted April 1, 2012 thank i am sure my doctor will make me go for the sleep study which i have no problem with i need to know what is going on befor eits to late i keep falling and faitng form exhaustion and i fell asleep wsalking the dog standing up my eyes clsed and i started falling over very dangerous. netty In a message dated 4/1/2012 9:57:20 A.M. Eastern Daylight Time, jakincanon@... writes: Netty, Getting a sleep study is the first thing you should do. Many people with cfs/me/ebv have related sleep disorders. Youd be surprised. It sounds like it could be Narcolepsy, or, extreme daytime sleepiness. They would test for that in the sleep study. Or, it could be the orthostatic intolerance with low blood pressure†doing that to you. And, when laying down, the symptoms tend to go away. Could definitely, cause the falling down, too. Hope youll look into this. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2012 Report Share Posted April 1, 2012 thank i am sure my doctor will make me go for the sleep study which i have no problem with i need to know what is going on befor eits to late i keep falling and faitng form exhaustion and i fell asleep wsalking the dog standing up my eyes clsed and i started falling over very dangerous. netty In a message dated 4/1/2012 9:57:20 A.M. Eastern Daylight Time, jakincanon@... writes: Netty, Getting a sleep study is the first thing you should do. Many people with cfs/me/ebv have related sleep disorders. Youd be surprised. It sounds like it could be Narcolepsy, or, extreme daytime sleepiness. They would test for that in the sleep study. Or, it could be the orthostatic intolerance with low blood pressure†doing that to you. And, when laying down, the symptoms tend to go away. Could definitely, cause the falling down, too. Hope youll look into this. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2012 Report Share Posted April 1, 2012 thank i am sure my doctor will make me go for the sleep study which i have no problem with i need to know what is going on befor eits to late i keep falling and faitng form exhaustion and i fell asleep wsalking the dog standing up my eyes clsed and i started falling over very dangerous. netty In a message dated 4/1/2012 9:57:20 A.M. Eastern Daylight Time, jakincanon@... writes: Netty, Getting a sleep study is the first thing you should do. Many people with cfs/me/ebv have related sleep disorders. Youd be surprised. It sounds like it could be Narcolepsy, or, extreme daytime sleepiness. They would test for that in the sleep study. Or, it could be the orthostatic intolerance with low blood pressure†doing that to you. And, when laying down, the symptoms tend to go away. Could definitely, cause the falling down, too. Hope youll look into this. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2012 Report Share Posted April 2, 2012 From: Jil K. Sent: Saturday, March 31, 2012 4:44 PM To: CFAlliance Subject: Re: Re: Getting some sleep Netty, Getting a “sleep study†is the first thing you should do. Many people with cfs/me/ebv have “related†sleep disorders. You’d be surprised. It sounds like it could be “Narcolepsy,†or, “extreme daytime sleepiness.†They would test for that in the sleep study. Or, it could be the “orthostatic intolerance†with “low blood pressure†doing that to you. And, when laying down, the symptoms tend to go away. Could definitely, cause the falling down, too. Hope you’ll look into this. Good luck. From: annettini935@... Sent: Saturday, March 31, 2012 10:12 AM To: CFAlliance Subject: Re: Getting some sleep i have a terrible time sleeping and i suffer from ebv ebstein barr virus, i fell again down my own step outside and twisted my ankle my back and scrped both kneed bending down i fell faint to take the dogs collar off i fell my friend wsas in the house and she picked me up off the cememnt. when i do sleep its for short periods fo time 2 hours and i have horrible frighning nightmares so scary. i am at the point where it is dangerous for me i have been falling aslepp sitting up for hours lately and now even walkingf the dog if he stops for 4 minsd to sniff soemthing i found myself falling over cause my eyes were closing i was falling sleep standing up, in the waiting room at doctors office i fall asleep but yet i am getting about 6 hours sleep at night and i am so exhausted during the day my whole day is spent on the couch i am always in a laying down postion it is so hard for me to even get in the shower afraid i will fall so on the 12th i go to pain managemnt and i want him to give me provigil a stimulant but i have to get apporval the doctor has rto write that is is medically neccesary for me to have it for ebv i hope they dont make me do a sleep study,i tried this drug my brother gets it and it works for me pray i am approved for it cause i am so exhausted all day long netty In a message dated 3/30/2012 3:05:19 P.M. Eastern Daylight Time, mailto:angie.rowan01%40yahoo.ca writes: I've been living with CFS for nearly 4 years and have been seriously sleep deprived for that long. I was officially diagnosed 4 months ago and have been on a variety of prescription drugs and supplements to fight my way back. Prescription drugs don't work for me, the 'antidepressants' only made me sicker or I had all kinds of bad reactions to them. The sleeping pills only gave me 4 hours of sleep on a good night. Melatonin basically allowed me a nap. Desperate to get some sleep I did my own research and found Valerian Root. It takes a few weeks to build up in your system. I have been taking it for 4 nights and am already noticing a huge difference. Last night I slept for 6 hours and didn't wake up once. Normally sleep for me is like watching tv in my head all night, there was just no getting away from all the dreaming and I could recall every moment of them. From last night I am only aware of the dream I had before waking up. I don't wake up feeling drugged. I am hop eful that this new supplement will allow me to get most of the sleep that I should be and perhaps catch up some on all that sleep deprivation and if I am really lucky, have some kind of a 'normal' life. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2012 Report Share Posted April 2, 2012 will get back to you after i see the doctor about the ebv sleepinbg problem on the 12th netty In a message dated 4/2/2012 4:42:15 P.M. Eastern Daylight Time, jakincanon@... writes: Subject: Re: Re: Getting some sleep Netty, Getting a “sleep study†is the first thing you should do. Many people with cfs/me/ebv have “related†sleep disorders. You’d be surprised. It sounds like it could be “Narcolepsy,†or, “extreme daytime sleepiness.†They would test for that in the sleep study. Or, it could be the “ orthostatic intolerance†with “low blood pressure†doing that to you. And, when laying down, the symptoms tend to go away. Could definitely, cause the falling down, too. Hope you’ll look into this. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2012 Report Share Posted April 2, 2012 will get back to you after i see the doctor about the ebv sleepinbg problem on the 12th netty In a message dated 4/2/2012 4:42:15 P.M. Eastern Daylight Time, jakincanon@... writes: Subject: Re: Re: Getting some sleep Netty, Getting a “sleep study†is the first thing you should do. Many people with cfs/me/ebv have “related†sleep disorders. You’d be surprised. It sounds like it could be “Narcolepsy,†or, “extreme daytime sleepiness.†They would test for that in the sleep study. Or, it could be the “ orthostatic intolerance†with “low blood pressure†doing that to you. And, when laying down, the symptoms tend to go away. Could definitely, cause the falling down, too. Hope you’ll look into this. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2012 Report Share Posted April 2, 2012 will get back to you after i see the doctor about the ebv sleepinbg problem on the 12th netty In a message dated 4/2/2012 4:42:15 P.M. Eastern Daylight Time, jakincanon@... writes: Subject: Re: Re: Getting some sleep Netty, Getting a “sleep study†is the first thing you should do. Many people with cfs/me/ebv have “related†sleep disorders. You’d be surprised. It sounds like it could be “Narcolepsy,†or, “extreme daytime sleepiness.†They would test for that in the sleep study. Or, it could be the “ orthostatic intolerance†with “low blood pressure†doing that to you. And, when laying down, the symptoms tend to go away. Could definitely, cause the falling down, too. Hope you’ll look into this. Good luck. Quote Link to comment Share on other sites More sharing options...
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