Re: Chris Ledoux/transplant

[Guest guest]

he was on the list for 2 monthes according to the paper her in Oklahoma. Now

tell me that there isn't some kind of favoritism if you have the money.

Sorry to sound bitter but why is it he gets one in two monthes and others

have to wait 2 years. Seems strange to me, especially since he had a new

video out about 1-2 monthes ago.

Spring

[Guest guest]

he was on the list for 2 monthes according to the paper her in Oklahoma. Now

tell me that there isn't some kind of favoritism if you have the money.

Sorry to sound bitter but why is it he gets one in two monthes and others

have to wait 2 years. Seems strange to me, especially since he had a new

video out about 1-2 monthes ago.

Spring

[Guest guest]

he was on the list for 2 monthes according to the paper her in Oklahoma. Now

tell me that there isn't some kind of favoritism if you have the money.

Sorry to sound bitter but why is it he gets one in two monthes and others

have to wait 2 years. Seems strange to me, especially since he had a new

video out about 1-2 monthes ago.

Spring

[Guest guest]

You have no idea when that video was made.......it's only just been

released. I also understand the position your coming from............but in

defense of this individual we have know idea just how long he's had this

disease and the degree of damage that has been done to his liver or ducts.

We only see one side of the story.

You need a very supportive doctor who works to get you on that list......and

the location in which he lives also plays an important factor.........as for

supply/demand and the states view on UNOS that is also a determining factor.

I know what its like to think your winning and then lose .......all those

" if only " feelings

It's difficult at best

Talk with you later

Lynn

Re: Ledoux/transplant

> he was on the list for 2 monthes according to the paper her in Oklahoma.

Now

> tell me that there isn't some kind of favoritism if you have the money.

> Sorry to sound bitter but why is it he gets one in two monthes and others

> have to wait 2 years. Seems strange to me, especially since he had a new

> video out about 1-2 monthes ago.

>

> Spring

>

>

>

>

[Guest guest]

You have no idea when that video was made.......it's only just been

released. I also understand the position your coming from............but in

defense of this individual we have know idea just how long he's had this

disease and the degree of damage that has been done to his liver or ducts.

We only see one side of the story.

You need a very supportive doctor who works to get you on that list......and

the location in which he lives also plays an important factor.........as for

supply/demand and the states view on UNOS that is also a determining factor.

I know what its like to think your winning and then lose .......all those

" if only " feelings

It's difficult at best

Talk with you later

Lynn

Re: Ledoux/transplant

> he was on the list for 2 monthes according to the paper her in Oklahoma.

Now

> tell me that there isn't some kind of favoritism if you have the money.

> Sorry to sound bitter but why is it he gets one in two monthes and others

> have to wait 2 years. Seems strange to me, especially since he had a new

> video out about 1-2 monthes ago.

>

> Spring

>

>

>

>

[Guest guest]

You have no idea when that video was made.......it's only just been

released. I also understand the position your coming from............but in

defense of this individual we have know idea just how long he's had this

disease and the degree of damage that has been done to his liver or ducts.

We only see one side of the story.

You need a very supportive doctor who works to get you on that list......and

the location in which he lives also plays an important factor.........as for

supply/demand and the states view on UNOS that is also a determining factor.

I know what its like to think your winning and then lose .......all those

" if only " feelings

It's difficult at best

Talk with you later

Lynn

Re: Ledoux/transplant

> he was on the list for 2 monthes according to the paper her in Oklahoma.

Now

> tell me that there isn't some kind of favoritism if you have the money.

> Sorry to sound bitter but why is it he gets one in two monthes and others

> have to wait 2 years. Seems strange to me, especially since he had a new

> video out about 1-2 monthes ago.

>

> Spring

>

>

>

>

[Guest guest]

springreed@... wrote:

>

> he was on the list for 2 monthes according to the paper her in Oklahoma. Now

> tell me that there isn't some kind of favoritism if you have the money.

Where was he listed? He may have been listed somewhere where there is a

short waiting list. I know that some of our people in this group have

relocated temporarily to places where the waiting list is shorter, and

another of our members was just recently trying to decide whether to be

listed or not, because if she was she'd probably be transplanted with in

two or three months. If you have money then it's easier to relocate, so

that may be part of the picture here.

If there's any hard evidence of favoritism, it should be cited, and we

should try to get something done about it. If not, I think that the

implication that the transplant system is unfair and somehow corrupt

just causes people to be less likely to participate (as in signing up as

donors), and that could hurt all of us.

athan

[Guest guest]

springreed@... wrote:

>

> he was on the list for 2 monthes according to the paper her in Oklahoma. Now

> tell me that there isn't some kind of favoritism if you have the money.

Where was he listed? He may have been listed somewhere where there is a

short waiting list. I know that some of our people in this group have

relocated temporarily to places where the waiting list is shorter, and

another of our members was just recently trying to decide whether to be

listed or not, because if she was she'd probably be transplanted with in

two or three months. If you have money then it's easier to relocate, so

that may be part of the picture here.

If there's any hard evidence of favoritism, it should be cited, and we

should try to get something done about it. If not, I think that the

implication that the transplant system is unfair and somehow corrupt

just causes people to be less likely to participate (as in signing up as

donors), and that could hurt all of us.

athan

[Guest guest]

springreed@... wrote:

>

> he was on the list for 2 monthes according to the paper her in Oklahoma. Now

> tell me that there isn't some kind of favoritism if you have the money.

Where was he listed? He may have been listed somewhere where there is a

short waiting list. I know that some of our people in this group have

relocated temporarily to places where the waiting list is shorter, and

another of our members was just recently trying to decide whether to be

listed or not, because if she was she'd probably be transplanted with in

two or three months. If you have money then it's easier to relocate, so

that may be part of the picture here.

If there's any hard evidence of favoritism, it should be cited, and we

should try to get something done about it. If not, I think that the

implication that the transplant system is unfair and somehow corrupt

just causes people to be less likely to participate (as in signing up as

donors), and that could hurt all of us.

athan

[Guest guest]

>he was on the list for 2 monthes according to the paper her in Oklahoma. Now

>tell me that there isn't some kind of favoritism if you have the money.

>Sorry to sound bitter but why is it he gets one in two monthes and others

>have to wait 2 years. Seems strange to me, especially since he had a new

>video out about 1-2 monthes ago.

actually, do we know when the video was taped?

or, is the newpaper's report of 2 months correct, or just what the singer's PR

told them?

and, well...what might have been his medical condition--compared to all the

others on the list in his region..

we don't really know do we?

maybe he was on the list for 2 years, and wanted to perform as a

'singer' not as some guy waiting for a liver, and the PR guy lied to the

newspaper, and was near death when he got the gift..

don't be bitter..

[Guest guest]

>he was on the list for 2 monthes according to the paper her in Oklahoma. Now

>tell me that there isn't some kind of favoritism if you have the money.

>Sorry to sound bitter but why is it he gets one in two monthes and others

>have to wait 2 years. Seems strange to me, especially since he had a new

>video out about 1-2 monthes ago.

actually, do we know when the video was taped?

or, is the newpaper's report of 2 months correct, or just what the singer's PR

told them?

and, well...what might have been his medical condition--compared to all the

others on the list in his region..

we don't really know do we?

maybe he was on the list for 2 years, and wanted to perform as a

'singer' not as some guy waiting for a liver, and the PR guy lied to the

newspaper, and was near death when he got the gift..

don't be bitter..

[Guest guest]

Now tell me that there isn't some kind of favoritism if you have the money.

Spring

---------------------------------------------------------------------

Ok, I'll tell you. Look at our group for example.

Phil ( Pegs hubby ) has been on the list for quite awhile. Barby could of

been on the list, but decided to wait awhile. athan turned down a liver

because he didn't feel ready. All have been sick for quite some time. But

for now -- doing ok. Look at some of our new members - who just found out

they have PSC. Suppose one of them went into complete liver failure, was

rushed to hospital and put into ICU, doctors decide they only have one week

to live.

Do you think Phil, athan, or Barby should get a liver before the person

with total liver failure ? I think your answer would be no - give it to the

person who is the sickest. This is why UNOS has decided to give less

importance to time waiting.

Time on list doesn't tell you who is sickest.

The whole goal for PSC'ers is to never need a new liver. So if someone gets

one it is 100% because he/she is sick enough or lucky enough to have a

living donor. $$$ has nothing to do with it. Still don't believe me ??

Call your doctor and tell him you'll pay any amount for a new liver and see

what he says. Barb

[Guest guest]

Now tell me that there isn't some kind of favoritism if you have the money.

Spring

---------------------------------------------------------------------

Ok, I'll tell you. Look at our group for example.

Phil ( Pegs hubby ) has been on the list for quite awhile. Barby could of

been on the list, but decided to wait awhile. athan turned down a liver

because he didn't feel ready. All have been sick for quite some time. But

for now -- doing ok. Look at some of our new members - who just found out

they have PSC. Suppose one of them went into complete liver failure, was

rushed to hospital and put into ICU, doctors decide they only have one week

to live.

Do you think Phil, athan, or Barby should get a liver before the person

with total liver failure ? I think your answer would be no - give it to the

person who is the sickest. This is why UNOS has decided to give less

importance to time waiting.

Time on list doesn't tell you who is sickest.

The whole goal for PSC'ers is to never need a new liver. So if someone gets

one it is 100% because he/she is sick enough or lucky enough to have a

living donor. $$$ has nothing to do with it. Still don't believe me ??

Call your doctor and tell him you'll pay any amount for a new liver and see

what he says. Barb

[Guest guest]

Now tell me that there isn't some kind of favoritism if you have the money.

Spring

---------------------------------------------------------------------

Ok, I'll tell you. Look at our group for example.

Phil ( Pegs hubby ) has been on the list for quite awhile. Barby could of

been on the list, but decided to wait awhile. athan turned down a liver

because he didn't feel ready. All have been sick for quite some time. But

for now -- doing ok. Look at some of our new members - who just found out

they have PSC. Suppose one of them went into complete liver failure, was

rushed to hospital and put into ICU, doctors decide they only have one week

to live.

Do you think Phil, athan, or Barby should get a liver before the person

with total liver failure ? I think your answer would be no - give it to the

person who is the sickest. This is why UNOS has decided to give less

importance to time waiting.

Time on list doesn't tell you who is sickest.

The whole goal for PSC'ers is to never need a new liver. So if someone gets

one it is 100% because he/she is sick enough or lucky enough to have a

living donor. $$$ has nothing to do with it. Still don't believe me ??

Call your doctor and tell him you'll pay any amount for a new liver and see

what he says. Barb

[Guest guest]

Remember at that center, where Laurie had her tx, they don't list until the

tx is really needed. Laurie, in my opinion should have been listed way

earlier and she would have waited on the list. By time she was listed she

needed a liver real bad and she got one realatively quick, maybe a little

longer than Chris. Being on the list doesn't guarantee getting a liver

soon. Those who have rare blood types get them sooner too. Phil has been

on the list since Feb of this year but I know he won't be getting one for a

long time, maybe years. It goes by how sick you are, how many points you

have - not how long you are on the list. He may have had this for a long

time before even knowing about it (They think Phil has had it for over 10

years) and we didn't have a clue until he got sick. There are a lot of

things to be taken into consideration. Also that is an area where livers

seem to be attained quicker. That's probably why UNOS wants to change the

rules. Let's not assume the worst without knowing all the facts. Just my

opinion.

Peg

[Guest guest]

Remember at that center, where Laurie had her tx, they don't list until the

tx is really needed. Laurie, in my opinion should have been listed way

earlier and she would have waited on the list. By time she was listed she

needed a liver real bad and she got one realatively quick, maybe a little

longer than Chris. Being on the list doesn't guarantee getting a liver

soon. Those who have rare blood types get them sooner too. Phil has been

on the list since Feb of this year but I know he won't be getting one for a

long time, maybe years. It goes by how sick you are, how many points you

have - not how long you are on the list. He may have had this for a long

time before even knowing about it (They think Phil has had it for over 10

years) and we didn't have a clue until he got sick. There are a lot of

things to be taken into consideration. Also that is an area where livers

seem to be attained quicker. That's probably why UNOS wants to change the

rules. Let's not assume the worst without knowing all the facts. Just my

opinion.

Peg

[Guest guest]

Remember at that center, where Laurie had her tx, they don't list until the

tx is really needed. Laurie, in my opinion should have been listed way

earlier and she would have waited on the list. By time she was listed she

needed a liver real bad and she got one realatively quick, maybe a little

longer than Chris. Being on the list doesn't guarantee getting a liver

soon. Those who have rare blood types get them sooner too. Phil has been

on the list since Feb of this year but I know he won't be getting one for a

long time, maybe years. It goes by how sick you are, how many points you

have - not how long you are on the list. He may have had this for a long

time before even knowing about it (They think Phil has had it for over 10

years) and we didn't have a clue until he got sick. There are a lot of

things to be taken into consideration. Also that is an area where livers

seem to be attained quicker. That's probably why UNOS wants to change the

rules. Let's not assume the worst without knowing all the facts. Just my

opinion.

Peg

[Guest guest]

Casting doubt on the integrity of the transplant system doesn't

help to reform it. It is true that because of the geographical

restrictions on priorities (sickest to less sick within a

region, before going national) some regions have much longer

waiting times than others. The new distribution proposal will

reduce that - at the expense of increasing the wait in regions

that now have short times.

Within our group, Laurie was listed at Omaha Feb 2 and received

her transplant May 5 - a 3 month wait. Her doctors knew her

condition and monitored it (though we might not agree with their

timing) put Laurie on the list before they felt she was

critical.

Ledoux was put on the list about the same time as his

diagnosis, most likely because his condition was near critical,

probably because he ignored his symptoms, toughing it out until

that didn't work any more.

Tim - having played deaf to enough symptoms in my time.

> Re: Ledoux/transplant

>

> > tell me that there isn't some kind of favoritism if you have

> the money.

> > Sorry to sound bitter but why is it he gets one in two

> monthes and others

> > have to wait 2 years.

__________________________________________________

[Guest guest]

Casting doubt on the integrity of the transplant system doesn't

help to reform it. It is true that because of the geographical

restrictions on priorities (sickest to less sick within a

region, before going national) some regions have much longer

waiting times than others. The new distribution proposal will

reduce that - at the expense of increasing the wait in regions

that now have short times.

Within our group, Laurie was listed at Omaha Feb 2 and received

her transplant May 5 - a 3 month wait. Her doctors knew her

condition and monitored it (though we might not agree with their

timing) put Laurie on the list before they felt she was

critical.

Ledoux was put on the list about the same time as his

diagnosis, most likely because his condition was near critical,

probably because he ignored his symptoms, toughing it out until

that didn't work any more.

Tim - having played deaf to enough symptoms in my time.

> Re: Ledoux/transplant

>

> > tell me that there isn't some kind of favoritism if you have

> the money.

> > Sorry to sound bitter but why is it he gets one in two

> monthes and others

> > have to wait 2 years.

__________________________________________________

[Guest guest]

Casting doubt on the integrity of the transplant system doesn't

help to reform it. It is true that because of the geographical

restrictions on priorities (sickest to less sick within a

region, before going national) some regions have much longer

waiting times than others. The new distribution proposal will

reduce that - at the expense of increasing the wait in regions

that now have short times.

Within our group, Laurie was listed at Omaha Feb 2 and received

her transplant May 5 - a 3 month wait. Her doctors knew her

condition and monitored it (though we might not agree with their

timing) put Laurie on the list before they felt she was

critical.

Ledoux was put on the list about the same time as his

diagnosis, most likely because his condition was near critical,

probably because he ignored his symptoms, toughing it out until

that didn't work any more.

Tim - having played deaf to enough symptoms in my time.

> Re: Ledoux/transplant

>

> > tell me that there isn't some kind of favoritism if you have

> the money.

> > Sorry to sound bitter but why is it he gets one in two

> monthes and others

> > have to wait 2 years.

__________________________________________________

[Guest guest]

Keep in mind, also, that one of my drs said I could have been listed in

June, '99 as a status 3 but he wanted to wait until I was a status 2 rather

than listing me at a status 3. Also remember that the transplant was too

late-- cholangiocarcinoma was found throughout my entire liver & outside in

the lymph nodes.

Laurie

Re: Ledoux/transplant

> >

> > > tell me that there isn't some kind of favoritism if you have

> > the money.

> > > Sorry to sound bitter but why is it he gets one in two

> > monthes and others

> > > have to wait 2 years.

>

> __________________________________________________

>

[Guest guest]

Keep in mind, also, that one of my drs said I could have been listed in

June, '99 as a status 3 but he wanted to wait until I was a status 2 rather

than listing me at a status 3. Also remember that the transplant was too

late-- cholangiocarcinoma was found throughout my entire liver & outside in

the lymph nodes.

Laurie

Re: Ledoux/transplant

> >

> > > tell me that there isn't some kind of favoritism if you have

> > the money.

> > > Sorry to sound bitter but why is it he gets one in two

> > monthes and others

> > > have to wait 2 years.

>

> __________________________________________________

>

[Guest guest]

I don't know how the rules work in the U.S. as opposed to Canada...if I

remember correctly didn't Walter Payton say that he didn't want special

treatment because of his celebrity status?

I find it disturbing that there are people that have been waiting for years

with deteriorating conditions unable to function in simple daily living,

while 'some' people are snowboarding etc mere days before

transplant....don't get me wrong, I'm happy these people got their livers

but it just seems like something isn't right....off subject, but why can

folks like Rosie Odonnell adopt three babies in a span of a couple of years

while other 'normal' folk go childless and wait years and years.....is it

the money? the celebrity status?......in all areas of life sometimes it

boils down to who you are and who you know, it doesn't really affect me that

these people got their livers, but for those who are really ill and waiting,

I would be suspicious.

Patti

>From: springreed@...

>Reply-To: egroups

>To: egroups

>Subject: Re: Ledoux/transplant

>Date: Thu, 12 Oct 2000 05:55:20 EDT

>

>he was on the list for 2 monthes according to the paper her in Oklahoma.

>Now

>tell me that there isn't some kind of favoritism if you have the money.

>Sorry to sound bitter but why is it he gets one in two monthes and others

>have to wait 2 years. Seems strange to me, especially since he had a new

>video out about 1-2 monthes ago.

>

>Spring

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