Need suggestions for pain help / with mcs

[Guest guest]

Having MCS I have developed a sensitivity to all pain meds.

I have lived with chronic face and head pain for 12 years now.

At first I started off with over the counter pain relievers until

my body started to react. What happens is the pain increases and becomes

unbearable when I start becoming " allergic " or sensitive to

the drug. I have run out of over the counters except for tylenol which

doesnt do anything. Iam on multiple drugs for nerve pain which may help

a bit but I`am still with a lot of pain expecially late in the day. I have been

given mild narcotics for this part of the day and each narcotic has developed

into this " extreme pain " telling me no more.

I have tried so many and my doctor doesnt get MCS so she is getting a bit

intolerant of this reason why every drug she gives me I cant take after a month

or two. I now believe its ALL NARCOTICS. So where do I go from here for relief?

Help!! I cant take any over the counter meds either...Any suggestions welcomed.

nne

[Guest guest]

Have you tried fentanyl patches? Fentanyl is a bit easier than other

narcotics for some of us who are sensitive to many drugs.

Which opioids (preferred term for legally prescribed " narcotics " ) have you

tried?

Steve M in PA

Having MCS I have developed a sensitivity to all pain meds. I have lived

with chronic face and head pain for 12 years now.

At first I started off with over the counter pain relievers until my body

started to react. What happens is the pain increases and becomes unbearable

when I start becoming " allergic " or sensitive to the drug. I have run out

of over the counters except for tylenol which doesnt do anything. Iam on

multiple drugs for nerve pain which may help a bit but I`am still with a

lot of pain expecially late in the day. I have been given mild narcotics

for this part of the day and each narcotic has developed into this " extreme

pain " telling me no more.

I have tried so many and my doctor doesnt get MCS so she is getting a bit

intolerant of this reason why every drug she gives me I cant take after a

month or two. I now believe its ALL NARCOTICS. So where do I go from here

for relief? Help!! I cant take any over the counter meds either...Any

suggestions welcomed.

[Guest guest]

I am on the Fentanyl patches. While they don't help me with my joint pain, they

are useful with my back pain. They are addicitve, and I am careful to try to

bear the pain, while going without, as I am too afraid of getting hooked on

them. I guess we all get hooked, but we are just regulated by our M.D.'s. Ask,

they should help! Good luck!

________________________________

Subject: Re: Need suggestions for pain help / with mcs

Have you tried fentanyl patches? Fentanyl is a bit easier than other

narcotics for some of us who are sensitive to many drugs.

Which opioids (preferred term for legally prescribed " narcotics " ) have you

tried?

[Guest guest]

Thanks Steve for the suggestion but I dont see how I could use a patch on my

head or face. Its a nerve & muscle pain through out the head and face.

Does it come in tablet form?

nne~

________________________________

Subject: Re: Need suggestions for pain help / with mcs

Have you tried fentanyl patches? Fentanyl is a bit easier than other

narcotics for some of us who are sensitive to many drugs.

Which opioids (preferred term for legally prescribed " narcotics " ) have you

tried?

[Guest guest]

Fentanyl does not come in pill form because 66% of it is destroyed by first

pass metabolism.

Since fentanyl patches do not work locally, but systemically, you put them

on your arms (or chest or back) irregardless of the location of your pain.

Steve M in PA

Thanks Steve for the suggestion but I dont see how I could use a patch on

my head or face. Its a nerve & muscle pain through out the head and face.

Does it come in tablet form?

nne~

[Guest guest]

Hi--

Oh!!!!! Would LOVE to have a TENS unit!!!!! At the physical therapist I go to

-the busted shoulder via canine- THEY have, of course, a kind of super TENS

unit. They also use electro Acupuncture and other forms of massage which are

like heaven (everyone leaves with a smile). He will refer some to pain clinics

if he detects that the pain someone has is just too much. (For me this would

beup to the ortho or of course my CFS/ ME/ Fibro guy.

One thing which I shall never understand is .. WHY does Medicare etc not cover

Acupuncture?? So foolish. It could help so damn many things.

Jane, the one with the hound, NYC

>

> Thanks Steve for the suggestion but I dont see how I could use a patch on

> my head or face. Its a nerve & muscle pain through out the head and face.

> Does it come in tablet form?

>

[Guest guest]

I saw my doctor the other day and she would not go for the patches. She wants to

up my dose

of neurontin and see how that works out. Its been hell so far in the daytime

because I cant take anything to help with pain, but the increase of neurontin at

night has helped with sleep. All she kept saying is lets stay with a " safe "

drug.. Wth? All drugs are risks as far as Iam concderned. Shes not the one that

in freekin pain.. grr..Not a good day. 

________________________________

Subject: Re: Need suggestions for pain help / with mcs

I am on the lowest dose of fentynl patches and i agree they definately help

I also use lyrica and endep paracetomal and ibuprofen a TENS unit heat packs and

rest

[Guest guest]

Plenty of people take neurontin without any problems, but I have double vision

from taking it. It is permanent and a royal pain. I quit taking it back around

2004-5 and still have the double vision.

>

> I saw my doctor the other day and she would not go for the patches. She wants

to up my dose

> of neurontin and see how that works out. Its been hell so far in the daytime

because I cant take anything to help with pain, but the increase of neurontin at

night has helped with sleep. All she kept saying is lets stay with a " safe "

drug.. Wth? All drugs are risks as far as Iam concderned. Shes not the one that

in freekin pain.. grr..Not a good day. 

>

>

> ________________________________

>

> Subject: Re: Need suggestions for pain help / with mcs

>

>

> I am on the lowest dose of fentynl patches and i agree they definately help

> I also use lyrica and endep paracetomal and ibuprofen a TENS unit heat packs

and rest

>