Re: Re: Gluten and sensitivity

[Guest guest]

Hi a (and group),

This was very intriguing. This could be a big breakthrough. Even if it offers some degree of relief.

I love to bake and I love grains. But I would give it up if it would help.

I found the blog below on the internet. So interesting. I will look for more. The sympoms are so similar to what we all seem to experience.

Wouldn't it be funny if all this time it is just a gluten allergy that causes this!

Oriental diet is low in gluten. Wonder if they suffer with this.

I saw a show on the food channel where oriental people actually encourage loud slurping of soups and the like. Yikes! And belching too. Must not bother them.

I'm going to do more research.

Thanks for the insight.

Mike

http://www.celiac.com/gluten-free/topic/79089-extreme-sensitivity-to-sounds/

To: Soundsensitivity Sent: Thursday, December 29, 2011 8:38 AMSubject: Re: Gluten and sensitivity

I have avoided gluten for the past 5 years. Removing it from my diet helped with my sound sensitivity a lot. However, I found that when I went on a grain-free diet my 4S was almost gone. I am really interested to see if any others have had similar experiences with diet changes and sound sensitivity.:)a>> > Hi there, I am new to the group and grateful to have discovered it!> > I have suffered for years with a laundry of unexplained "issues", many> of them neurologically based but also including misophonia (the name I> just discovered last night to exactly describe what I have suffered for> years). Two years ago I went off gluten and found that my>

misophonia/SSSS was somewhat under control...NOT gone...but manageable. > I found that being off the gluten took the edge off the sensitivity. > Warning though, it took about 2 months to notice the reduction in> symptoms. I went back on gluten for 3 months this fall to have the> celiac biopsy done and the rage associated with the eating sounds,> breathing sounds etc. came back in FULL. Regardless of what the test> show I am off gluten for my life as it has been the only thing that has> helped so far.> > Curious though, has anyone else had any experiences/thoughts about> gluten and this horrible disorder?> > So glad to find others in this big world feeling like I do. Deborah>

[Guest guest]

Hi a (and group),

This was very intriguing. This could be a big breakthrough. Even if it offers some degree of relief.

I love to bake and I love grains. But I would give it up if it would help.

I found the blog below on the internet. So interesting. I will look for more. The sympoms are so similar to what we all seem to experience.

Wouldn't it be funny if all this time it is just a gluten allergy that causes this!

Oriental diet is low in gluten. Wonder if they suffer with this.

I saw a show on the food channel where oriental people actually encourage loud slurping of soups and the like. Yikes! And belching too. Must not bother them.

I'm going to do more research.

Thanks for the insight.

Mike

http://www.celiac.com/gluten-free/topic/79089-extreme-sensitivity-to-sounds/

To: Soundsensitivity Sent: Thursday, December 29, 2011 8:38 AMSubject: Re: Gluten and sensitivity

I have avoided gluten for the past 5 years. Removing it from my diet helped with my sound sensitivity a lot. However, I found that when I went on a grain-free diet my 4S was almost gone. I am really interested to see if any others have had similar experiences with diet changes and sound sensitivity.:)a>> > Hi there, I am new to the group and grateful to have discovered it!> > I have suffered for years with a laundry of unexplained "issues", many> of them neurologically based but also including misophonia (the name I> just discovered last night to exactly describe what I have suffered for> years). Two years ago I went off gluten and found that my>

misophonia/SSSS was somewhat under control...NOT gone...but manageable. > I found that being off the gluten took the edge off the sensitivity. > Warning though, it took about 2 months to notice the reduction in> symptoms. I went back on gluten for 3 months this fall to have the> celiac biopsy done and the rage associated with the eating sounds,> breathing sounds etc. came back in FULL. Regardless of what the test> show I am off gluten for my life as it has been the only thing that has> helped so far.> > Curious though, has anyone else had any experiences/thoughts about> gluten and this horrible disorder?> > So glad to find others in this big world feeling like I do. Deborah>

[Guest guest]

Hi a (and group),

This was very intriguing. This could be a big breakthrough. Even if it offers some degree of relief.

I love to bake and I love grains. But I would give it up if it would help.

I found the blog below on the internet. So interesting. I will look for more. The sympoms are so similar to what we all seem to experience.

Wouldn't it be funny if all this time it is just a gluten allergy that causes this!

Oriental diet is low in gluten. Wonder if they suffer with this.

I saw a show on the food channel where oriental people actually encourage loud slurping of soups and the like. Yikes! And belching too. Must not bother them.

I'm going to do more research.

Thanks for the insight.

Mike

http://www.celiac.com/gluten-free/topic/79089-extreme-sensitivity-to-sounds/

To: Soundsensitivity Sent: Thursday, December 29, 2011 8:38 AMSubject: Re: Gluten and sensitivity

I have avoided gluten for the past 5 years. Removing it from my diet helped with my sound sensitivity a lot. However, I found that when I went on a grain-free diet my 4S was almost gone. I am really interested to see if any others have had similar experiences with diet changes and sound sensitivity.:)a>> > Hi there, I am new to the group and grateful to have discovered it!> > I have suffered for years with a laundry of unexplained "issues", many> of them neurologically based but also including misophonia (the name I> just discovered last night to exactly describe what I have suffered for> years). Two years ago I went off gluten and found that my>

misophonia/SSSS was somewhat under control...NOT gone...but manageable. > I found that being off the gluten took the edge off the sensitivity. > Warning though, it took about 2 months to notice the reduction in> symptoms. I went back on gluten for 3 months this fall to have the> celiac biopsy done and the rage associated with the eating sounds,> breathing sounds etc. came back in FULL. Regardless of what the test> show I am off gluten for my life as it has been the only thing that has> helped so far.> > Curious though, has anyone else had any experiences/thoughts about> gluten and this horrible disorder?> > So glad to find others in this big world feeling like I do. Deborah>

[Guest guest]

There was a man here from Thailand for awhile. I sure hope he's okay. He suffered terribly. There have been other folks from Asia as well. Sent from my iPhone

Hi a (and group),

This was very intriguing. This could be a big breakthrough. Even if it offers some degree of relief.

I love to bake and I love grains. But I would give it up if it would help.

I found the blog below on the internet. So interesting. I will look for more. The sympoms are so similar to what we all seem to experience.

Wouldn't it be funny if all this time it is just a gluten allergy that causes this!

Oriental diet is low in gluten. Wonder if they suffer with this.

I saw a show on the food channel where oriental people actually encourage loud slurping of soups and the like. Yikes! And belching too. Must not bother them.

I'm going to do more research.

Thanks for the insight.

Mike

http://www.celiac.com/gluten-free/topic/79089-extreme-sensitivity-to-sounds/

To: Soundsensitivity Sent: Thursday, December 29, 2011 8:38 AMSubject: Re: Gluten and sensitivity

I have avoided gluten for the past 5 years. Removing it from my diet helped with my sound sensitivity a lot. However, I found that when I went on a grain-free diet my 4S was almost gone. I am really interested to see if any others have had similar experiences with diet changes and sound sensitivity.:)a>> > Hi there, I am new to the group and grateful to have discovered it!> > I have suffered for years with a laundry of unexplained "issues", many> of them neurologically based but also including misophonia (the name I> just discovered last night to exactly describe what I have suffered for> years). Two years ago I went off gluten and found that my>

misophonia/SSSS was somewhat under control...NOT gone...but manageable. > I found that being off the gluten took the edge off the sensitivity. > Warning though, it took about 2 months to notice the reduction in> symptoms. I went back on gluten for 3 months this fall to have the> celiac biopsy done and the rage associated with the eating sounds,> breathing sounds etc. came back in FULL. Regardless of what the test> show I am off gluten for my life as it has been the only thing that has> helped so far.> > Curious though, has anyone else had any experiences/thoughts about> gluten and this horrible disorder?> > So glad to find others in this big world feeling like I do. Deborah>

[Guest guest]

There was a man here from Thailand for awhile. I sure hope he's okay. He suffered terribly. There have been other folks from Asia as well. Sent from my iPhone

Hi a (and group),

This was very intriguing. This could be a big breakthrough. Even if it offers some degree of relief.

I love to bake and I love grains. But I would give it up if it would help.

I found the blog below on the internet. So interesting. I will look for more. The sympoms are so similar to what we all seem to experience.

Wouldn't it be funny if all this time it is just a gluten allergy that causes this!

Oriental diet is low in gluten. Wonder if they suffer with this.

I saw a show on the food channel where oriental people actually encourage loud slurping of soups and the like. Yikes! And belching too. Must not bother them.

I'm going to do more research.

Thanks for the insight.

Mike

http://www.celiac.com/gluten-free/topic/79089-extreme-sensitivity-to-sounds/

To: Soundsensitivity Sent: Thursday, December 29, 2011 8:38 AMSubject: Re: Gluten and sensitivity

I have avoided gluten for the past 5 years. Removing it from my diet helped with my sound sensitivity a lot. However, I found that when I went on a grain-free diet my 4S was almost gone. I am really interested to see if any others have had similar experiences with diet changes and sound sensitivity.:)a>> > Hi there, I am new to the group and grateful to have discovered it!> > I have suffered for years with a laundry of unexplained "issues", many> of them neurologically based but also including misophonia (the name I> just discovered last night to exactly describe what I have suffered for> years). Two years ago I went off gluten and found that my>

misophonia/SSSS was somewhat under control...NOT gone...but manageable. > I found that being off the gluten took the edge off the sensitivity. > Warning though, it took about 2 months to notice the reduction in> symptoms. I went back on gluten for 3 months this fall to have the> celiac biopsy done and the rage associated with the eating sounds,> breathing sounds etc. came back in FULL. Regardless of what the test> show I am off gluten for my life as it has been the only thing that has> helped so far.> > Curious though, has anyone else had any experiences/thoughts about> gluten and this horrible disorder?> > So glad to find others in this big world feeling like I do. Deborah>

[Guest guest]

This is blowing my mind. I plan to research this topic and try gluten free. I love to cook anyway. Even if it just reduces the symptoms it would be worth it.

I have always been willing to try anything to help this problem. I don't believe in using drugs or alcohol as a treatment, so this is up my alley.

I will post my results in time.

Happy New Year everyone!

Putting our heads together we may find a cure someday.. I have always been cautiously optimistic.

Mike

To: Soundsensitivity Sent: Sunday, January 1, 2012 7:51 AMSubject: Re: Gluten and sensitivity

Yes, being gluten/grain free almost eliminates my sensitivity within a week or so. I have a tendency to feel better then eat them when out with friends. Within 2 days the symptoms return. >> > Hi there, I am new to the group and grateful to have discovered it!> > I have suffered for years with a laundry of unexplained "issues", many> of them neurologically based but also including misophonia (the name I> just discovered last night to exactly describe what I have suffered for> years). Two years ago I went off gluten and found that my> misophonia/SSSS was somewhat under control...NOT gone...but manageable. > I found that being off the gluten took the edge off the

sensitivity. > Warning though, it took about 2 months to notice the reduction in> symptoms. I went back on gluten for 3 months this fall to have the> celiac biopsy done and the rage associated with the eating sounds,> breathing sounds etc. came back in FULL. Regardless of what the test> show I am off gluten for my life as it has been the only thing that has> helped so far.> > Curious though, has anyone else had any experiences/thoughts about> gluten and this horrible disorder?> > So glad to find others in this big world feeling like I do. Deborah>

[Guest guest]

This is blowing my mind. I plan to research this topic and try gluten free. I love to cook anyway. Even if it just reduces the symptoms it would be worth it.

I have always been willing to try anything to help this problem. I don't believe in using drugs or alcohol as a treatment, so this is up my alley.

I will post my results in time.

Happy New Year everyone!

Putting our heads together we may find a cure someday.. I have always been cautiously optimistic.

Mike

To: Soundsensitivity Sent: Sunday, January 1, 2012 7:51 AMSubject: Re: Gluten and sensitivity

Yes, being gluten/grain free almost eliminates my sensitivity within a week or so. I have a tendency to feel better then eat them when out with friends. Within 2 days the symptoms return. >> > Hi there, I am new to the group and grateful to have discovered it!> > I have suffered for years with a laundry of unexplained "issues", many> of them neurologically based but also including misophonia (the name I> just discovered last night to exactly describe what I have suffered for> years). Two years ago I went off gluten and found that my> misophonia/SSSS was somewhat under control...NOT gone...but manageable. > I found that being off the gluten took the edge off the

sensitivity. > Warning though, it took about 2 months to notice the reduction in> symptoms. I went back on gluten for 3 months this fall to have the> celiac biopsy done and the rage associated with the eating sounds,> breathing sounds etc. came back in FULL. Regardless of what the test> show I am off gluten for my life as it has been the only thing that has> helped so far.> > Curious though, has anyone else had any experiences/thoughts about> gluten and this horrible disorder?> > So glad to find others in this big world feeling like I do. Deborah>

[Guest guest]

This is blowing my mind. I plan to research this topic and try gluten free. I love to cook anyway. Even if it just reduces the symptoms it would be worth it.

I have always been willing to try anything to help this problem. I don't believe in using drugs or alcohol as a treatment, so this is up my alley.

I will post my results in time.

Happy New Year everyone!

Putting our heads together we may find a cure someday.. I have always been cautiously optimistic.

Mike

To: Soundsensitivity Sent: Sunday, January 1, 2012 7:51 AMSubject: Re: Gluten and sensitivity

Yes, being gluten/grain free almost eliminates my sensitivity within a week or so. I have a tendency to feel better then eat them when out with friends. Within 2 days the symptoms return. >> > Hi there, I am new to the group and grateful to have discovered it!> > I have suffered for years with a laundry of unexplained "issues", many> of them neurologically based but also including misophonia (the name I> just discovered last night to exactly describe what I have suffered for> years). Two years ago I went off gluten and found that my> misophonia/SSSS was somewhat under control...NOT gone...but manageable. > I found that being off the gluten took the edge off the

sensitivity. > Warning though, it took about 2 months to notice the reduction in> symptoms. I went back on gluten for 3 months this fall to have the> celiac biopsy done and the rage associated with the eating sounds,> breathing sounds etc. came back in FULL. Regardless of what the test> show I am off gluten for my life as it has been the only thing that has> helped so far.> > Curious though, has anyone else had any experiences/thoughts about> gluten and this horrible disorder?> > So glad to find others in this big world feeling like I do. Deborah>

[Guest guest]

So if gluten sensitivity is causing some misophonic symptoms, do you think one would have to have GI symptoms as well?

My son has irratibility, focus problems and memory problems like you mentioned. But has never had any type of GI related symptoms.

Ginger

Re: Gluten and sensitivity

I was also tested for a laundry list of auto-immune disorders and they

ruled out all the nasty stuff but no one thought to test for celiac. It

almost doesn't matter what the test comes back saying as you could have

an intolerance that is enough to trigger a 4S/misophonia response. I

also have other responses to gluten (red eye lids, general irratiblity,

inability to focus, memory problems, neurological issues) all of which

were treated individually as opposed to being part of the same problem.

Still not sure if gluten is THE problem, but for now I am happy that I

did my own "test". My own gastrointestinal doctor told me that even if

my celiac biopsy came back negative he would still treat me as if I were

celiac as I had such an overall improvement, he doesn't even know about

the misoponia...I didn't make a connection until I discovered this

group.

Deborah

> > >

> > >

> > > Hi there, I am new to the group and grateful to have discovered

it!

> > >

> > > I have suffered for years with a laundry of unexplained "issues",

many

> > > of them neurologically based but also including misophonia (the

name I

> > > just discovered last night to exactly describe what I have

suffered for

> > > years). Two years ago I went off gluten and found that my

> > > misophonia/SSSS was somewhat under control...NOT gone...but

manageable.

> > > I found that being off the gluten took the edge off the

sensitivity.

> > > Warning though, it took about 2 months to notice the reduction in

> > > symptoms. I went back on gluten for 3 months this fall to have the

> > > celiac biopsy done and the rage associated with the eating sounds,

> > > breathing sounds etc. came back in FULL. Regardless of what the

test

> > > show I am off gluten for my life as it has been the only thing

that has

> > > helped so far.

> > >

> > > Curious though, has anyone else had any experiences/thoughts about

> > > gluten and this horrible disorder?

> > >

> > > So glad to find others in this big world feeling like I do.

Deborah

> > >

> >

>

[Guest guest]

So if gluten sensitivity is causing some misophonic symptoms, do you think one would have to have GI symptoms as well?

My son has irratibility, focus problems and memory problems like you mentioned. But has never had any type of GI related symptoms.

Ginger

Re: Gluten and sensitivity

I was also tested for a laundry list of auto-immune disorders and they

ruled out all the nasty stuff but no one thought to test for celiac. It

almost doesn't matter what the test comes back saying as you could have

an intolerance that is enough to trigger a 4S/misophonia response. I

also have other responses to gluten (red eye lids, general irratiblity,

inability to focus, memory problems, neurological issues) all of which

were treated individually as opposed to being part of the same problem.

Still not sure if gluten is THE problem, but for now I am happy that I

did my own "test". My own gastrointestinal doctor told me that even if

my celiac biopsy came back negative he would still treat me as if I were

celiac as I had such an overall improvement, he doesn't even know about

the misoponia...I didn't make a connection until I discovered this

group.

Deborah

> > >

> > >

> > > Hi there, I am new to the group and grateful to have discovered

it!

> > >

> > > I have suffered for years with a laundry of unexplained "issues",

many

> > > of them neurologically based but also including misophonia (the

name I

> > > just discovered last night to exactly describe what I have

suffered for

> > > years). Two years ago I went off gluten and found that my

> > > misophonia/SSSS was somewhat under control...NOT gone...but

manageable.

> > > I found that being off the gluten took the edge off the

sensitivity.

> > > Warning though, it took about 2 months to notice the reduction in

> > > symptoms. I went back on gluten for 3 months this fall to have the

> > > celiac biopsy done and the rage associated with the eating sounds,

> > > breathing sounds etc. came back in FULL. Regardless of what the

test

> > > show I am off gluten for my life as it has been the only thing

that has

> > > helped so far.

> > >

> > > Curious though, has anyone else had any experiences/thoughts about

> > > gluten and this horrible disorder?

> > >

> > > So glad to find others in this big world feeling like I do.

Deborah

> > >

> >

>

[Guest guest]

So if gluten sensitivity is causing some misophonic symptoms, do you think one would have to have GI symptoms as well?

My son has irratibility, focus problems and memory problems like you mentioned. But has never had any type of GI related symptoms.

Ginger

Re: Gluten and sensitivity

I was also tested for a laundry list of auto-immune disorders and they

ruled out all the nasty stuff but no one thought to test for celiac. It

almost doesn't matter what the test comes back saying as you could have

an intolerance that is enough to trigger a 4S/misophonia response. I

also have other responses to gluten (red eye lids, general irratiblity,

inability to focus, memory problems, neurological issues) all of which

were treated individually as opposed to being part of the same problem.

Still not sure if gluten is THE problem, but for now I am happy that I

did my own "test". My own gastrointestinal doctor told me that even if

my celiac biopsy came back negative he would still treat me as if I were

celiac as I had such an overall improvement, he doesn't even know about

the misoponia...I didn't make a connection until I discovered this

group.

Deborah

> > >

> > >

> > > Hi there, I am new to the group and grateful to have discovered

it!

> > >

> > > I have suffered for years with a laundry of unexplained "issues",

many

> > > of them neurologically based but also including misophonia (the

name I

> > > just discovered last night to exactly describe what I have

suffered for

> > > years). Two years ago I went off gluten and found that my

> > > misophonia/SSSS was somewhat under control...NOT gone...but

manageable.

> > > I found that being off the gluten took the edge off the

sensitivity.

> > > Warning though, it took about 2 months to notice the reduction in

> > > symptoms. I went back on gluten for 3 months this fall to have the

> > > celiac biopsy done and the rage associated with the eating sounds,

> > > breathing sounds etc. came back in FULL. Regardless of what the

test

> > > show I am off gluten for my life as it has been the only thing

that has

> > > helped so far.

> > >

> > > Curious though, has anyone else had any experiences/thoughts about

> > > gluten and this horrible disorder?

> > >

> > > So glad to find others in this big world feeling like I do.

Deborah

> > >

> >

>

[Guest guest]

I am beginning to think that most people associate GI with the usual gastrointestional symptoms. There may be many others yet unknown. Misophonia and other body sensitivities as well. I sure hope so. I am in the process I going gluten free. A bit of a learning curve on the food preparation. I really enjoy good food, so I want to learn to bake gluten free breads first, and just wean myself off slowly off of it. I have some serious grocery shopping to do too.

I love the thought that we just might cure this problem by putting our heads together on this site. The power of groups, and the internet....

To: Soundsensitivity Sent: Sunday, January 1, 2012 9:55 PMSubject: Re: Gluten and sensitivity

I didn't have GI symptoms at all which is why I never thought to go see a GI specialist. My major physical symptom was never ending canker sores (8-10 at a time, all the time) in my mouth from about the age of 7 or 8. So I would say yes, no GI symptoms doesn't mean anything. I decided to try GF diet because I had nothing to lose anyways, having done so much other testing, there was no downside. Turns out it was the best thing I did for my body overall. My cankers disappeared within 2 months and mysteriously so did a lot of other symptoms I hadn't realized were related until they were absent. I describe it as my body being generally aggravated and then displaying it through what appear to be individual issues (cankers, red eyelids, general irritibility, misophonia, optic neuritis, skin rashes, etc). You go to the skin doctor for the rash, the eye doctor for the optic neuritis, the endocrinologist for mood swings but no one puts it all

together...except you.Can't hurt to try, but try it for a minimum of 2 months before assessing for results.Deborah > > > >> > > >> > > > Hi there, I am new to the group and grateful to have discovered> it!> > > >> > > > I have suffered for years with a laundry of unexplained "issues",> many> > > > of them neurologically based but also including misophonia (the> name I> > > > just discovered last night to exactly describe what I have> suffered for> > > > years). Two years ago I went off gluten and found that my> > > > misophonia/SSSS was somewhat under control...NOT gone...but> manageable.>

> > > I found that being off the gluten took the edge off the> sensitivity.> > > > Warning though, it took about 2 months to notice the reduction in> > > > symptoms. I went back on gluten for 3 months this fall to have the> > > > celiac biopsy done and the rage associated with the eating sounds,> > > > breathing sounds etc. came back in FULL. Regardless of what the> test> > > > show I am off gluten for my life as it has been the only thing> that has> > > > helped so far.> > > >> > > > Curious though, has anyone else had any experiences/thoughts about> > > > gluten and this horrible disorder?> > > >> > > > So glad to find others in this big world feeling like I do.> Deborah> > > >> > >>

>>

[Guest guest]

I am beginning to think that most people associate GI with the usual gastrointestional symptoms. There may be many others yet unknown. Misophonia and other body sensitivities as well. I sure hope so. I am in the process I going gluten free. A bit of a learning curve on the food preparation. I really enjoy good food, so I want to learn to bake gluten free breads first, and just wean myself off slowly off of it. I have some serious grocery shopping to do too.

I love the thought that we just might cure this problem by putting our heads together on this site. The power of groups, and the internet....

To: Soundsensitivity Sent: Sunday, January 1, 2012 9:55 PMSubject: Re: Gluten and sensitivity

I didn't have GI symptoms at all which is why I never thought to go see a GI specialist. My major physical symptom was never ending canker sores (8-10 at a time, all the time) in my mouth from about the age of 7 or 8. So I would say yes, no GI symptoms doesn't mean anything. I decided to try GF diet because I had nothing to lose anyways, having done so much other testing, there was no downside. Turns out it was the best thing I did for my body overall. My cankers disappeared within 2 months and mysteriously so did a lot of other symptoms I hadn't realized were related until they were absent. I describe it as my body being generally aggravated and then displaying it through what appear to be individual issues (cankers, red eyelids, general irritibility, misophonia, optic neuritis, skin rashes, etc). You go to the skin doctor for the rash, the eye doctor for the optic neuritis, the endocrinologist for mood swings but no one puts it all

together...except you.Can't hurt to try, but try it for a minimum of 2 months before assessing for results.Deborah > > > >> > > >> > > > Hi there, I am new to the group and grateful to have discovered> it!> > > >> > > > I have suffered for years with a laundry of unexplained "issues",> many> > > > of them neurologically based but also including misophonia (the> name I> > > > just discovered last night to exactly describe what I have> suffered for> > > > years). Two years ago I went off gluten and found that my> > > > misophonia/SSSS was somewhat under control...NOT gone...but> manageable.>

> > > I found that being off the gluten took the edge off the> sensitivity.> > > > Warning though, it took about 2 months to notice the reduction in> > > > symptoms. I went back on gluten for 3 months this fall to have the> > > > celiac biopsy done and the rage associated with the eating sounds,> > > > breathing sounds etc. came back in FULL. Regardless of what the> test> > > > show I am off gluten for my life as it has been the only thing> that has> > > > helped so far.> > > >> > > > Curious though, has anyone else had any experiences/thoughts about> > > > gluten and this horrible disorder?> > > >> > > > So glad to find others in this big world feeling like I do.> Deborah> > > >> > >>

>>

[Guest guest]

Hi Lori, May I ask if you have high a cholestrol level? Reason I ask because mine has always been unusually low, which apparently is not a good thing either. There are some recent studies that found kids with autism often have low cholesterol and have been helped some with perscription supplements.. Low cholesteral levels anyone?? To: Soundsensitivity Sent: Monday, January 2, 2012 9:11 AM Subject: Re: Gluten and sensitivity

I totally agree with you, , that hopefully between all of us we can figure out the cause of Misophonia and how to cure it. Please keep us informed on how the gluten-free diet is working for you. I am starting a low cholesterol, low sugar diet starting today (for weight loss reasons) and will be curious to see if that makes any difference to my sound sensitivity. And as soon as the hypnosis CD arrives, I'll be starting that too. So keeping my fingers crossed...

Lori

> > > > >

> > > > >

> > > > > Hi there, I am new to the group and grateful to have discovered

> > it!

> > > > >

> > > > > I have suffered for years with a laundry of unexplained "issues",

> > many

> > > > > of them neurologically based but also including misophonia (the

> > name I

> > > > > just discovered last night to exactly describe what I have

> > suffered for

> > > > > years). Two years ago I went off gluten and found that my

> > > > > misophonia/SSSS was somewhat under control...NOT gone...but

> > manageable.

> > > > > I found that being off the gluten took the edge off the

> > sensitivity.

> > > > > Warning though, it took about 2 months to notice the reduction in

> > > > > symptoms. I went back on gluten for 3 months this fall to have the

> > > > > celiac biopsy done and the rage associated with the eating sounds,

> > > > > breathing sounds etc. came back in FULL. Regardless of what the

> > test

> > > > > show I am off gluten for my life as it has been the only thing

> > that has

> > > > > helped so far.

> > > > >

> > > > > Curious though, has anyone else had any experiences/thoughts about

> > > > > gluten and this horrible disorder?

> > > > >

> > > > > So glad to find others in this big world feeling like I do.

> > Deborah

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Hi Lori, May I ask if you have high a cholestrol level? Reason I ask because mine has always been unusually low, which apparently is not a good thing either. There are some recent studies that found kids with autism often have low cholesterol and have been helped some with perscription supplements.. Low cholesteral levels anyone?? To: Soundsensitivity Sent: Monday, January 2, 2012 9:11 AM Subject: Re: Gluten and sensitivity

I totally agree with you, , that hopefully between all of us we can figure out the cause of Misophonia and how to cure it. Please keep us informed on how the gluten-free diet is working for you. I am starting a low cholesterol, low sugar diet starting today (for weight loss reasons) and will be curious to see if that makes any difference to my sound sensitivity. And as soon as the hypnosis CD arrives, I'll be starting that too. So keeping my fingers crossed...

Lori

> > > > >

> > > > >

> > > > > Hi there, I am new to the group and grateful to have discovered

> > it!

> > > > >

> > > > > I have suffered for years with a laundry of unexplained "issues",

> > many

> > > > > of them neurologically based but also including misophonia (the

> > name I

> > > > > just discovered last night to exactly describe what I have

> > suffered for

> > > > > years). Two years ago I went off gluten and found that my

> > > > > misophonia/SSSS was somewhat under control...NOT gone...but

> > manageable.

> > > > > I found that being off the gluten took the edge off the

> > sensitivity.

> > > > > Warning though, it took about 2 months to notice the reduction in

> > > > > symptoms. I went back on gluten for 3 months this fall to have the

> > > > > celiac biopsy done and the rage associated with the eating sounds,

> > > > > breathing sounds etc. came back in FULL. Regardless of what the

> > test

> > > > > show I am off gluten for my life as it has been the only thing

> > that has

> > > > > helped so far.

> > > > >

> > > > > Curious though, has anyone else had any experiences/thoughts about

> > > > > gluten and this horrible disorder?

> > > > >

> > > > > So glad to find others in this big world feeling like I do.

> > Deborah

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Yes, I have very low cholesterol and very low BP, despite being significantly overweight.LizSent from my iPhone

Hi Lori, May I ask if you have high a cholestrol level? Reason I ask because mine has always been unusually low, which apparently is not a good thing either. There are some recent studies that found kids with autism often have low cholesterol and have been helped some with perscription supplements.. Low cholesteral levels anyone?? To: Soundsensitivity Sent: Monday, January 2, 2012 9:11 AM Subject: Re: Gluten and sensitivity

I totally agree with you, , that hopefully between all of us we can figure out the cause of Misophonia and how to cure it. Please keep us informed on how the gluten-free diet is working for you. I am starting a low cholesterol, low sugar diet starting today (for weight loss reasons) and will be curious to see if that makes any difference to my sound sensitivity. And as soon as the hypnosis CD arrives, I'll be starting that too. So keeping my fingers crossed...

Lori

> > > > >

> > > > >

> > > > > Hi there, I am new to the group and grateful to have discovered

> > it!

> > > > >

> > > > > I have suffered for years with a laundry of unexplained "issues",

> > many

> > > > > of them neurologically based but also including misophonia (the

> > name I

> > > > > just discovered last night to exactly describe what I have

> > suffered for

> > > > > years). Two years ago I went off gluten and found that my

> > > > > misophonia/SSSS was somewhat under control...NOT gone...but

> > manageable.

> > > > > I found that being off the gluten took the edge off the

> > sensitivity.

> > > > > Warning though, it took about 2 months to notice the reduction in

> > > > > symptoms. I went back on gluten for 3 months this fall to have the

> > > > > celiac biopsy done and the rage associated with the eating sounds,

> > > > > breathing sounds etc. came back in FULL. Regardless of what the

> > test

> > > > > show I am off gluten for my life as it has been the only thing

> > that has

> > > > > helped so far.

> > > > >

> > > > > Curious though, has anyone else had any experiences/thoughts about

> > > > > gluten and this horrible disorder?

> > > > >

> > > > > So glad to find others in this big world feeling like I do.

> > Deborah

> > > > >

> > > >

> > >

> >

>

[Guest guest]

One time my cholestrol was 147. Not sure if that's too low. It's in the 150's now. Maybe higher.

To: "Soundsensitivity " <Soundsensitivity >Sent: Mon, January 2, 2012 10:15:18 AMSubject: Re: Re: Gluten and sensitivity

Hi Lori,

May I ask if you have high a cholestrol level? Reason I ask because mine has always been unusually low, which apparently is not a good thing either. There are some recent studies that found kids with autism often have low cholesterol and have been helped some with perscription supplements..

Low cholesteral levels anyone??

To: Soundsensitivity Sent: Monday, January 2, 2012 9:11 AMSubject: Re: Gluten and sensitivity

I totally agree with you, , that hopefully between all of us we can figure out the cause of Misophonia and how to cure it. Please keep us informed on how the gluten-free diet is working for you. I am starting a low cholesterol, low sugar diet starting today (for weight loss reasons) and will be curious to see if that makes any difference to my sound sensitivity. And as soon as the hypnosis CD arrives, I'll be starting that too. So keeping my fingers crossed...Lori> > > > >> > > > >> > > > > Hi there, I am new to the group and grateful to have discovered> > it!> > > > >> > > > > I have suffered for years with a laundry of unexplained "issues",> > many> > > > > of them neurologically based but also including misophonia (the> > name I> >

> > > just discovered last night to exactly describe what I have> > suffered for> > > > > years). Two years ago I went off gluten and found that my> > > > > misophonia/SSSS was somewhat under control...NOT gone...but> > manageable.> > > > > I found that being off the gluten took the edge off the> > sensitivity.> > > > > Warning though, it took about 2 months to notice the reduction in> > > > > symptoms. I went back on gluten for 3 months this fall to have the> > > > > celiac biopsy done and the rage associated with the eating sounds,> > > > > breathing sounds etc. came back in FULL. Regardless of what the> > test> > > > > show I am off gluten for my life as it has been the only thing> > that has> > > > > helped so far.>

> > > >> > > > > Curious though, has anyone else had any experiences/thoughts about> > > > > gluten and this horrible disorder?> > > > >> > > > > So glad to find others in this big world feeling like I do.> > Deborah> > > > >> > > >> > >> >>

[Guest guest]

One time my cholestrol was 147. Not sure if that's too low. It's in the 150's now. Maybe higher.

To: "Soundsensitivity " <Soundsensitivity >Sent: Mon, January 2, 2012 10:15:18 AMSubject: Re: Re: Gluten and sensitivity

Hi Lori,

May I ask if you have high a cholestrol level? Reason I ask because mine has always been unusually low, which apparently is not a good thing either. There are some recent studies that found kids with autism often have low cholesterol and have been helped some with perscription supplements..

Low cholesteral levels anyone??

To: Soundsensitivity Sent: Monday, January 2, 2012 9:11 AMSubject: Re: Gluten and sensitivity

I totally agree with you, , that hopefully between all of us we can figure out the cause of Misophonia and how to cure it. Please keep us informed on how the gluten-free diet is working for you. I am starting a low cholesterol, low sugar diet starting today (for weight loss reasons) and will be curious to see if that makes any difference to my sound sensitivity. And as soon as the hypnosis CD arrives, I'll be starting that too. So keeping my fingers crossed...Lori> > > > >> > > > >> > > > > Hi there, I am new to the group and grateful to have discovered> > it!> > > > >> > > > > I have suffered for years with a laundry of unexplained "issues",> > many> > > > > of them neurologically based but also including misophonia (the> > name I> >

> > > just discovered last night to exactly describe what I have> > suffered for> > > > > years). Two years ago I went off gluten and found that my> > > > > misophonia/SSSS was somewhat under control...NOT gone...but> > manageable.> > > > > I found that being off the gluten took the edge off the> > sensitivity.> > > > > Warning though, it took about 2 months to notice the reduction in> > > > > symptoms. I went back on gluten for 3 months this fall to have the> > > > > celiac biopsy done and the rage associated with the eating sounds,> > > > > breathing sounds etc. came back in FULL. Regardless of what the> > test> > > > > show I am off gluten for my life as it has been the only thing> > that has> > > > > helped so far.>

> > > >> > > > > Curious though, has anyone else had any experiences/thoughts about> > > > > gluten and this horrible disorder?> > > > >> > > > > So glad to find others in this big world feeling like I do.> > Deborah> > > > >> > > >> > >> >>