Re: Gluten and sensitivity

[Guest guest]

I have avoided gluten for the past 5 years. Removing it from my diet helped

with my sound sensitivity a lot. However, I found that when I went on a

grain-free diet my 4S was almost gone. I am really interested to see if any

others have had similar experiences with diet changes and sound sensitivity.

:)a

>

>

> Hi there, I am new to the group and grateful to have discovered it!

>

> I have suffered for years with a laundry of unexplained " issues " , many

> of them neurologically based but also including misophonia (the name I

> just discovered last night to exactly describe what I have suffered for

> years). Two years ago I went off gluten and found that my

> misophonia/SSSS was somewhat under control...NOT gone...but manageable.

> I found that being off the gluten took the edge off the sensitivity.

> Warning though, it took about 2 months to notice the reduction in

> symptoms. I went back on gluten for 3 months this fall to have the

> celiac biopsy done and the rage associated with the eating sounds,

> breathing sounds etc. came back in FULL. Regardless of what the test

> show I am off gluten for my life as it has been the only thing that has

> helped so far.

>

> Curious though, has anyone else had any experiences/thoughts about

> gluten and this horrible disorder?

>

> So glad to find others in this big world feeling like I do. Deborah

>

[Guest guest]

I have coeliac disease, diagnosed about 5 years ago.  But becoming GF has had no effect on my hyperacusis, because mine is caused by nerve damage from an accident.  However, gluten does cause problems with nervous system and nerve conduction, so it is possible that there is a link.  I am on list called uk-coeliac, it is on yahoo same as this group.  There are people there who have had a diverse range of symptoms from coeliac disease/gluten intolerance.  And it doesnt matter if you arent in UK, I am a moderator and so will just approve you. 

 

Liz  P

xx

Hi there, I am new to the group and grateful to have discovered it!I have suffered for years with a laundry of unexplained " issues " , many

of them neurologically based but also including misophonia (the name Ijust discovered last night to exactly describe what I have suffered foryears).  Two years ago I went off gluten and found that mymisophonia/SSSS was somewhat under control...NOT gone...but manageable.

I found that being off the gluten took the edge off the sensitivity.Warning though, it took about 2 months to notice the reduction insymptoms.  I went back on gluten for 3 months this fall to have theceliac biopsy done and the rage associated with the eating sounds,

breathing sounds etc. came back in FULL.  Regardless of what the testshow I am off gluten for my life as it has been the only thing that hashelped so far.Curious though, has anyone else had any experiences/thoughts about

gluten and this horrible disorder?So glad to find others in this big world feeling like I do.  Deborah------------------------------------PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE.

ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.Thank you.  MJ

[Guest guest]

I have coeliac disease, diagnosed about 5 years ago.  But becoming GF has had no effect on my hyperacusis, because mine is caused by nerve damage from an accident.  However, gluten does cause problems with nervous system and nerve conduction, so it is possible that there is a link.  I am on list called uk-coeliac, it is on yahoo same as this group.  There are people there who have had a diverse range of symptoms from coeliac disease/gluten intolerance.  And it doesnt matter if you arent in UK, I am a moderator and so will just approve you. 

 

Liz  P

xx

Hi there, I am new to the group and grateful to have discovered it!I have suffered for years with a laundry of unexplained " issues " , many

of them neurologically based but also including misophonia (the name Ijust discovered last night to exactly describe what I have suffered foryears).  Two years ago I went off gluten and found that mymisophonia/SSSS was somewhat under control...NOT gone...but manageable.

I found that being off the gluten took the edge off the sensitivity.Warning though, it took about 2 months to notice the reduction insymptoms.  I went back on gluten for 3 months this fall to have theceliac biopsy done and the rage associated with the eating sounds,

breathing sounds etc. came back in FULL.  Regardless of what the testshow I am off gluten for my life as it has been the only thing that hashelped so far.Curious though, has anyone else had any experiences/thoughts about

gluten and this horrible disorder?So glad to find others in this big world feeling like I do.  Deborah------------------------------------PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE.

ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.Thank you.  MJ

[Guest guest]

I have coeliac disease, diagnosed about 5 years ago.  But becoming GF has had no effect on my hyperacusis, because mine is caused by nerve damage from an accident.  However, gluten does cause problems with nervous system and nerve conduction, so it is possible that there is a link.  I am on list called uk-coeliac, it is on yahoo same as this group.  There are people there who have had a diverse range of symptoms from coeliac disease/gluten intolerance.  And it doesnt matter if you arent in UK, I am a moderator and so will just approve you. 

 

Liz  P

xx

Hi there, I am new to the group and grateful to have discovered it!I have suffered for years with a laundry of unexplained " issues " , many

of them neurologically based but also including misophonia (the name Ijust discovered last night to exactly describe what I have suffered foryears).  Two years ago I went off gluten and found that mymisophonia/SSSS was somewhat under control...NOT gone...but manageable.

I found that being off the gluten took the edge off the sensitivity.Warning though, it took about 2 months to notice the reduction insymptoms.  I went back on gluten for 3 months this fall to have theceliac biopsy done and the rage associated with the eating sounds,

breathing sounds etc. came back in FULL.  Regardless of what the testshow I am off gluten for my life as it has been the only thing that hashelped so far.Curious though, has anyone else had any experiences/thoughts about

gluten and this horrible disorder?So glad to find others in this big world feeling like I do.  Deborah------------------------------------PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE.

ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.Thank you.  MJ

[Guest guest]

My gluten sensitivity test came back negative. I have no gluten issues at all

and the doctor said I'm fine.

I had read so much about it I tested it myself. I stopped eating sugar, wheat,

gluten and anything from a box or a bag about a year ago. I ate only organic

whole foods (including any meats) and found that the Misophonic reaction was a

bit easier to take. Yes, it's still there - but it's slower coming on and softer

when it gets there. Milliseconds count along with having big rage vs gigantic

rage. I ate cake and junk food over the holiday and felt like a monster lunatic

bitch. My husband said I didn't act too much differently (I always suppress it

but I am honest with him) but I felt really much more stressed and reactive and

hypervigilant. I have been experimenting with some sugars lately and I can do

it in moderation but nothing artificial.

I have always been a label-reader and if I can't pronounce it I won't eat it: I

just took it one step further and it made a difference for me.

>

>

> Hi there, I am new to the group and grateful to have discovered it!

>

> I have suffered for years with a laundry of unexplained " issues " , many

> of them neurologically based but also including misophonia (the name I

> just discovered last night to exactly describe what I have suffered for

> years). Two years ago I went off gluten and found that my

> misophonia/SSSS was somewhat under control...NOT gone...but manageable.

> I found that being off the gluten took the edge off the sensitivity.

> Warning though, it took about 2 months to notice the reduction in

> symptoms. I went back on gluten for 3 months this fall to have the

> celiac biopsy done and the rage associated with the eating sounds,

> breathing sounds etc. came back in FULL. Regardless of what the test

> show I am off gluten for my life as it has been the only thing that has

> helped so far.

>

> Curious though, has anyone else had any experiences/thoughts about

> gluten and this horrible disorder?

>

> So glad to find others in this big world feeling like I do. Deborah

>

[Guest guest]

My gluten sensitivity test came back negative. I have no gluten issues at all

and the doctor said I'm fine.

I had read so much about it I tested it myself. I stopped eating sugar, wheat,

gluten and anything from a box or a bag about a year ago. I ate only organic

whole foods (including any meats) and found that the Misophonic reaction was a

bit easier to take. Yes, it's still there - but it's slower coming on and softer

when it gets there. Milliseconds count along with having big rage vs gigantic

rage. I ate cake and junk food over the holiday and felt like a monster lunatic

bitch. My husband said I didn't act too much differently (I always suppress it

but I am honest with him) but I felt really much more stressed and reactive and

hypervigilant. I have been experimenting with some sugars lately and I can do

it in moderation but nothing artificial.

I have always been a label-reader and if I can't pronounce it I won't eat it: I

just took it one step further and it made a difference for me.

>

>

> Hi there, I am new to the group and grateful to have discovered it!

>

> I have suffered for years with a laundry of unexplained " issues " , many

> of them neurologically based but also including misophonia (the name I

> just discovered last night to exactly describe what I have suffered for

> years). Two years ago I went off gluten and found that my

> misophonia/SSSS was somewhat under control...NOT gone...but manageable.

> I found that being off the gluten took the edge off the sensitivity.

> Warning though, it took about 2 months to notice the reduction in

> symptoms. I went back on gluten for 3 months this fall to have the

> celiac biopsy done and the rage associated with the eating sounds,

> breathing sounds etc. came back in FULL. Regardless of what the test

> show I am off gluten for my life as it has been the only thing that has

> helped so far.

>

> Curious though, has anyone else had any experiences/thoughts about

> gluten and this horrible disorder?

>

> So glad to find others in this big world feeling like I do. Deborah

>

[Guest guest]

My gluten sensitivity test came back negative. I have no gluten issues at all

and the doctor said I'm fine.

I had read so much about it I tested it myself. I stopped eating sugar, wheat,

gluten and anything from a box or a bag about a year ago. I ate only organic

whole foods (including any meats) and found that the Misophonic reaction was a

bit easier to take. Yes, it's still there - but it's slower coming on and softer

when it gets there. Milliseconds count along with having big rage vs gigantic

rage. I ate cake and junk food over the holiday and felt like a monster lunatic

bitch. My husband said I didn't act too much differently (I always suppress it

but I am honest with him) but I felt really much more stressed and reactive and

hypervigilant. I have been experimenting with some sugars lately and I can do

it in moderation but nothing artificial.

I have always been a label-reader and if I can't pronounce it I won't eat it: I

just took it one step further and it made a difference for me.

>

>

> Hi there, I am new to the group and grateful to have discovered it!

>

> I have suffered for years with a laundry of unexplained " issues " , many

> of them neurologically based but also including misophonia (the name I

> just discovered last night to exactly describe what I have suffered for

> years). Two years ago I went off gluten and found that my

> misophonia/SSSS was somewhat under control...NOT gone...but manageable.

> I found that being off the gluten took the edge off the sensitivity.

> Warning though, it took about 2 months to notice the reduction in

> symptoms. I went back on gluten for 3 months this fall to have the

> celiac biopsy done and the rage associated with the eating sounds,

> breathing sounds etc. came back in FULL. Regardless of what the test

> show I am off gluten for my life as it has been the only thing that has

> helped so far.

>

> Curious though, has anyone else had any experiences/thoughts about

> gluten and this horrible disorder?

>

> So glad to find others in this big world feeling like I do. Deborah

>

[Guest guest]

It was a huge breakthrough for me! It is definitely not a quick fix. I started

experimenting with diet and 4S about 5-6 years ago. I started with removing

gluten, and I felt so much better physically and emotionally. However, I was

still irritated by sounds. I then decided to remove all grains, sugars, and

starches from my diet after reading some information on an autistic website

about sound sensitivity. I also read a post from a fellow 4S member of this

group and she stated that she got relief from the GAPS diet. I believe it was

(smharde) who posted the first GAPS diet info to this group. Well, I

started following the SCD and GAPS diet, and I got even more relief from the 4S.

When I decided to follow a paleo diet I really improved.

I am 41 years old and have had issues with 4S since I was 9. I am in college

right now and for the first time in years I do not need to wear earplugs

constantly. I even sat next to a girl in my Physics class who would bring in

carrots and celery sticks and crunch them during every class. There was also a

girl behind me who would pop her gum. Normally I would have moved my seat

immediately or dropped the class if it got too bad, but I found that there was

no more maniacal rage when I heard the sound. It irritated me a little, but the

extreme emotions were no longer there.

It seems as if stress can still cause my 4S to intensify, but for the most part

I can still control it. That alone is a miracle for me. I even slept without

my fan on for a few nights, and I usually only wear my earplugs when I am

studying or going to sleep. This is HUGE for me since I have been wearing

earplugs for about 10 years straight.

I am by no means cured, but the ability to manage it is worth the many

aggravations of my dietary restrictions. I have gone off the diet and have

eaten grains a few times, and I tend to notice an increase in the sensitivity

along with the emotions that go along with it. I have decided to to eat like

this (Paleo/GAPS/SCD) forever.

a

PS I am applying to medical school in the summer of next year. I just know

that the answers are out there. I hope that as a doctor and a 4S sufferer I can

begin to put all of the pieces together and try to work toward a cure that will

stop the suffering.

>

> Hi a (and group),

> This was very intriguing. This could be a big breakthrough. Even if it offers

some degree of relief.

> I love to bake and I love grains. But I would give it up if it would help.

> I found the blog below on  the internet. So interesting. I will look for

more. The sympoms are so similar to what we all seem to experience.

> Wouldn't it be funny if all this time it is just a gluten allergy that causes

this!

> Oriental diet is low in gluten. Wonder if they suffer with this.

> I saw a show on the food channel where oriental people actually encourage

loud slurping of soups and the like. Yikes!  And belching too. Must not bother

them.

> I'm going to do more research.

> Thanks for the insight.

> Mike

>  

> http://www.celiac.com/gluten-free/topic/79089-extreme-sensitivity-to-sounds/

>  

>  

>  

>

>

[Guest guest]

Yes, being gluten/grain free almost eliminates my sensitivity within a week or

so. I have a tendency to feel better then eat them when out with friends. Within

2 days the symptoms return.

>

>

> Hi there, I am new to the group and grateful to have discovered it!

>

> I have suffered for years with a laundry of unexplained " issues " , many

> of them neurologically based but also including misophonia (the name I

> just discovered last night to exactly describe what I have suffered for

> years). Two years ago I went off gluten and found that my

> misophonia/SSSS was somewhat under control...NOT gone...but manageable.

> I found that being off the gluten took the edge off the sensitivity.

> Warning though, it took about 2 months to notice the reduction in

> symptoms. I went back on gluten for 3 months this fall to have the

> celiac biopsy done and the rage associated with the eating sounds,

> breathing sounds etc. came back in FULL. Regardless of what the test

> show I am off gluten for my life as it has been the only thing that has

> helped so far.

>

> Curious though, has anyone else had any experiences/thoughts about

> gluten and this horrible disorder?

>

> So glad to find others in this big world feeling like I do. Deborah

>

[Guest guest]

Yes, being gluten/grain free almost eliminates my sensitivity within a week or

so. I have a tendency to feel better then eat them when out with friends. Within

2 days the symptoms return.

>

>

> Hi there, I am new to the group and grateful to have discovered it!

>

> I have suffered for years with a laundry of unexplained " issues " , many

> of them neurologically based but also including misophonia (the name I

> just discovered last night to exactly describe what I have suffered for

> years). Two years ago I went off gluten and found that my

> misophonia/SSSS was somewhat under control...NOT gone...but manageable.

> I found that being off the gluten took the edge off the sensitivity.

> Warning though, it took about 2 months to notice the reduction in

> symptoms. I went back on gluten for 3 months this fall to have the

> celiac biopsy done and the rage associated with the eating sounds,

> breathing sounds etc. came back in FULL. Regardless of what the test

> show I am off gluten for my life as it has been the only thing that has

> helped so far.

>

> Curious though, has anyone else had any experiences/thoughts about

> gluten and this horrible disorder?

>

> So glad to find others in this big world feeling like I do. Deborah

>

[Guest guest]

Irony of ironies!

I haven't posted here yet, just read, but I'm on here and also a Celiac.

Anyone who is having issues with gluten should consider being tested. In the USA

it is a frequently ignored condition. I even had a very good doctor working with

me once who said, " I really think you have an auto-immune problem related to

your gut " but Celiac's never crossed his mind (rolling my eyes now).

Just beware that it cannot be found with an allergy test. You can only be tested

if you are currently eating gluten. If he blood test doesn't show it, you must

have a biopsy.

Going off gluten has changed my life. Not an exaggeration.

> >

> >

> > Hi there, I am new to the group and grateful to have discovered it!

> >

> > I have suffered for years with a laundry of unexplained " issues " , many

> > of them neurologically based but also including misophonia (the name I

> > just discovered last night to exactly describe what I have suffered for

> > years). Two years ago I went off gluten and found that my

> > misophonia/SSSS was somewhat under control...NOT gone...but manageable.

> > I found that being off the gluten took the edge off the sensitivity.

> > Warning though, it took about 2 months to notice the reduction in

> > symptoms. I went back on gluten for 3 months this fall to have the

> > celiac biopsy done and the rage associated with the eating sounds,

> > breathing sounds etc. came back in FULL. Regardless of what the test

> > show I am off gluten for my life as it has been the only thing that has

> > helped so far.

> >

> > Curious though, has anyone else had any experiences/thoughts about

> > gluten and this horrible disorder?

> >

> > So glad to find others in this big world feeling like I do. Deborah

> >

>

[Guest guest]

Irony of ironies!

I haven't posted here yet, just read, but I'm on here and also a Celiac.

Anyone who is having issues with gluten should consider being tested. In the USA

it is a frequently ignored condition. I even had a very good doctor working with

me once who said, " I really think you have an auto-immune problem related to

your gut " but Celiac's never crossed his mind (rolling my eyes now).

Just beware that it cannot be found with an allergy test. You can only be tested

if you are currently eating gluten. If he blood test doesn't show it, you must

have a biopsy.

Going off gluten has changed my life. Not an exaggeration.

> >

> >

> > Hi there, I am new to the group and grateful to have discovered it!

> >

> > I have suffered for years with a laundry of unexplained " issues " , many

> > of them neurologically based but also including misophonia (the name I

> > just discovered last night to exactly describe what I have suffered for

> > years). Two years ago I went off gluten and found that my

> > misophonia/SSSS was somewhat under control...NOT gone...but manageable.

> > I found that being off the gluten took the edge off the sensitivity.

> > Warning though, it took about 2 months to notice the reduction in

> > symptoms. I went back on gluten for 3 months this fall to have the

> > celiac biopsy done and the rage associated with the eating sounds,

> > breathing sounds etc. came back in FULL. Regardless of what the test

> > show I am off gluten for my life as it has been the only thing that has

> > helped so far.

> >

> > Curious though, has anyone else had any experiences/thoughts about

> > gluten and this horrible disorder?

> >

> > So glad to find others in this big world feeling like I do. Deborah

> >

>

[Guest guest]

Irony of ironies!

I haven't posted here yet, just read, but I'm on here and also a Celiac.

Anyone who is having issues with gluten should consider being tested. In the USA

it is a frequently ignored condition. I even had a very good doctor working with

me once who said, " I really think you have an auto-immune problem related to

your gut " but Celiac's never crossed his mind (rolling my eyes now).

Just beware that it cannot be found with an allergy test. You can only be tested

if you are currently eating gluten. If he blood test doesn't show it, you must

have a biopsy.

Going off gluten has changed my life. Not an exaggeration.

> >

> >

> > Hi there, I am new to the group and grateful to have discovered it!

> >

> > I have suffered for years with a laundry of unexplained " issues " , many

> > of them neurologically based but also including misophonia (the name I

> > just discovered last night to exactly describe what I have suffered for

> > years). Two years ago I went off gluten and found that my

> > misophonia/SSSS was somewhat under control...NOT gone...but manageable.

> > I found that being off the gluten took the edge off the sensitivity.

> > Warning though, it took about 2 months to notice the reduction in

> > symptoms. I went back on gluten for 3 months this fall to have the

> > celiac biopsy done and the rage associated with the eating sounds,

> > breathing sounds etc. came back in FULL. Regardless of what the test

> > show I am off gluten for my life as it has been the only thing that has

> > helped so far.

> >

> > Curious though, has anyone else had any experiences/thoughts about

> > gluten and this horrible disorder?

> >

> > So glad to find others in this big world feeling like I do. Deborah

> >

>

[Guest guest]

Wow! Thanks for all this info. I will do the research on the grain

free diets. I have had good luck with a complete GF diet but there is

always room for improvement. Best of luck with med school, let us know

how it is going and when you will start taking patients!

Deborah

> >

> > Hi a (and group),

> > This was very intriguing. This could be a big breakthrough. Even if

it offers some degree of relief.

> > I love to bake and I love grains. But I would give it up if it would

help.

> > I found the blog below on  the internet. So interesting.

I will look for more. The sympoms are so similar to what we all seem to

experience.

> > Wouldn't it be funny if all this time it is just a gluten allergy

that causes this!

> > Oriental diet is low in gluten. Wonder if they suffer with this.

> > I saw a show on the food channel where oriental peopleÂ

actually encourage loud slurping of soups and the like. Yikes! And

belching too. Must not bother them.

> > I'm going to do more research.

> > Thanks for the insight.

> > Mike

> > Â

> >

http://www.celiac.com/gluten-free/topic/79089-extreme-sensitivity-to-sou\

nds/

> > Â

> > Â

> > Â

> >

> >

>

[Guest guest]

Wow! Thanks for all this info. I will do the research on the grain

free diets. I have had good luck with a complete GF diet but there is

always room for improvement. Best of luck with med school, let us know

how it is going and when you will start taking patients!

Deborah

> >

> > Hi a (and group),

> > This was very intriguing. This could be a big breakthrough. Even if

it offers some degree of relief.

> > I love to bake and I love grains. But I would give it up if it would

help.

> > I found the blog below on  the internet. So interesting.

I will look for more. The sympoms are so similar to what we all seem to

experience.

> > Wouldn't it be funny if all this time it is just a gluten allergy

that causes this!

> > Oriental diet is low in gluten. Wonder if they suffer with this.

> > I saw a show on the food channel where oriental peopleÂ

actually encourage loud slurping of soups and the like. Yikes! And

belching too. Must not bother them.

> > I'm going to do more research.

> > Thanks for the insight.

> > Mike

> > Â

> >

http://www.celiac.com/gluten-free/topic/79089-extreme-sensitivity-to-sou\

nds/

> > Â

> > Â

> > Â

> >

> >

>

[Guest guest]

Thanks for your thoughts. I haven't tried grain free yet but willing to

give it all a whirl for improvement. I also find that symptoms return

very quickly when I put gluten back in my diet. It is a hard world to

live in and avoid gluten, the world seems to revolve around it.

Deborah

> >

> >

> > Hi there, I am new to the group and grateful to have discovered it!

> >

> > I have suffered for years with a laundry of unexplained " issues " ,

many

> > of them neurologically based but also including misophonia (the name

I

> > just discovered last night to exactly describe what I have suffered

for

> > years). Two years ago I went off gluten and found that my

> > misophonia/SSSS was somewhat under control...NOT gone...but

manageable.

> > I found that being off the gluten took the edge off the sensitivity.

> > Warning though, it took about 2 months to notice the reduction in

> > symptoms. I went back on gluten for 3 months this fall to have the

> > celiac biopsy done and the rage associated with the eating sounds,

> > breathing sounds etc. came back in FULL. Regardless of what the test

> > show I am off gluten for my life as it has been the only thing that

has

> > helped so far.

> >

> > Curious though, has anyone else had any experiences/thoughts about

> > gluten and this horrible disorder?

> >

> > So glad to find others in this big world feeling like I do. Deborah

> >

>

[Guest guest]

Thanks for your thoughts. I haven't tried grain free yet but willing to

give it all a whirl for improvement. I also find that symptoms return

very quickly when I put gluten back in my diet. It is a hard world to

live in and avoid gluten, the world seems to revolve around it.

Deborah

> >

> >

> > Hi there, I am new to the group and grateful to have discovered it!

> >

> > I have suffered for years with a laundry of unexplained " issues " ,

many

> > of them neurologically based but also including misophonia (the name

I

> > just discovered last night to exactly describe what I have suffered

for

> > years). Two years ago I went off gluten and found that my

> > misophonia/SSSS was somewhat under control...NOT gone...but

manageable.

> > I found that being off the gluten took the edge off the sensitivity.

> > Warning though, it took about 2 months to notice the reduction in

> > symptoms. I went back on gluten for 3 months this fall to have the

> > celiac biopsy done and the rage associated with the eating sounds,

> > breathing sounds etc. came back in FULL. Regardless of what the test

> > show I am off gluten for my life as it has been the only thing that

has

> > helped so far.

> >

> > Curious though, has anyone else had any experiences/thoughts about

> > gluten and this horrible disorder?

> >

> > So glad to find others in this big world feeling like I do. Deborah

> >

>

[Guest guest]

Thanks for your thoughts. I haven't tried grain free yet but willing to

give it all a whirl for improvement. I also find that symptoms return

very quickly when I put gluten back in my diet. It is a hard world to

live in and avoid gluten, the world seems to revolve around it.

Deborah

> >

> >

> > Hi there, I am new to the group and grateful to have discovered it!

> >

> > I have suffered for years with a laundry of unexplained " issues " ,

many

> > of them neurologically based but also including misophonia (the name

I

> > just discovered last night to exactly describe what I have suffered

for

> > years). Two years ago I went off gluten and found that my

> > misophonia/SSSS was somewhat under control...NOT gone...but

manageable.

> > I found that being off the gluten took the edge off the sensitivity.

> > Warning though, it took about 2 months to notice the reduction in

> > symptoms. I went back on gluten for 3 months this fall to have the

> > celiac biopsy done and the rage associated with the eating sounds,

> > breathing sounds etc. came back in FULL. Regardless of what the test

> > show I am off gluten for my life as it has been the only thing that

has

> > helped so far.

> >

> > Curious though, has anyone else had any experiences/thoughts about

> > gluten and this horrible disorder?

> >

> > So glad to find others in this big world feeling like I do. Deborah

> >

>

[Guest guest]

I was also tested for a laundry list of auto-immune disorders and they

ruled out all the nasty stuff but no one thought to test for celiac. It

almost doesn't matter what the test comes back saying as you could have

an intolerance that is enough to trigger a 4S/misophonia response. I

also have other responses to gluten (red eye lids, general irratiblity,

inability to focus, memory problems, neurological issues) all of which

were treated individually as opposed to being part of the same problem.

Still not sure if gluten is THE problem, but for now I am happy that I

did my own " test " . My own gastrointestinal doctor told me that even if

my celiac biopsy came back negative he would still treat me as if I were

celiac as I had such an overall improvement, he doesn't even know about

the misoponia...I didn't make a connection until I discovered this

group.

Deborah

> > >

> > >

> > > Hi there, I am new to the group and grateful to have discovered

it!

> > >

> > > I have suffered for years with a laundry of unexplained " issues " ,

many

> > > of them neurologically based but also including misophonia (the

name I

> > > just discovered last night to exactly describe what I have

suffered for

> > > years). Two years ago I went off gluten and found that my

> > > misophonia/SSSS was somewhat under control...NOT gone...but

manageable.

> > > I found that being off the gluten took the edge off the

sensitivity.

> > > Warning though, it took about 2 months to notice the reduction in

> > > symptoms. I went back on gluten for 3 months this fall to have the

> > > celiac biopsy done and the rage associated with the eating sounds,

> > > breathing sounds etc. came back in FULL. Regardless of what the

test

> > > show I am off gluten for my life as it has been the only thing

that has

> > > helped so far.

> > >

> > > Curious though, has anyone else had any experiences/thoughts about

> > > gluten and this horrible disorder?

> > >

> > > So glad to find others in this big world feeling like I do.

Deborah

> > >

> >

>

[Guest guest]

I was also tested for a laundry list of auto-immune disorders and they

ruled out all the nasty stuff but no one thought to test for celiac. It

almost doesn't matter what the test comes back saying as you could have

an intolerance that is enough to trigger a 4S/misophonia response. I

also have other responses to gluten (red eye lids, general irratiblity,

inability to focus, memory problems, neurological issues) all of which

were treated individually as opposed to being part of the same problem.

Still not sure if gluten is THE problem, but for now I am happy that I

did my own " test " . My own gastrointestinal doctor told me that even if

my celiac biopsy came back negative he would still treat me as if I were

celiac as I had such an overall improvement, he doesn't even know about

the misoponia...I didn't make a connection until I discovered this

group.

Deborah

> > >

> > >

> > > Hi there, I am new to the group and grateful to have discovered

it!

> > >

> > > I have suffered for years with a laundry of unexplained " issues " ,

many

> > > of them neurologically based but also including misophonia (the

name I

> > > just discovered last night to exactly describe what I have

suffered for

> > > years). Two years ago I went off gluten and found that my

> > > misophonia/SSSS was somewhat under control...NOT gone...but

manageable.

> > > I found that being off the gluten took the edge off the

sensitivity.

> > > Warning though, it took about 2 months to notice the reduction in

> > > symptoms. I went back on gluten for 3 months this fall to have the

> > > celiac biopsy done and the rage associated with the eating sounds,

> > > breathing sounds etc. came back in FULL. Regardless of what the

test

> > > show I am off gluten for my life as it has been the only thing

that has

> > > helped so far.

> > >

> > > Curious though, has anyone else had any experiences/thoughts about

> > > gluten and this horrible disorder?

> > >

> > > So glad to find others in this big world feeling like I do.

Deborah

> > >

> >

>

[Guest guest]

I didn't have GI symptoms at all which is why I never thought to go see a GI

specialist. My major physical symptom was never ending canker sores (8-10 at a

time, all the time) in my mouth from about the age of 7 or 8. So I would say

yes, no GI symptoms doesn't mean anything. I decided to try GF diet because I

had nothing to lose anyways, having done so much other testing, there was no

downside. Turns out it was the best thing I did for my body overall. My

cankers disappeared within 2 months and mysteriously so did a lot of other

symptoms I hadn't realized were related until they were absent. I describe it

as my body being generally aggravated and then displaying it through what appear

to be individual issues (cankers, red eyelids, general irritibility, misophonia,

optic neuritis, skin rashes, etc). You go to the skin doctor for the rash, the

eye doctor for the optic neuritis, the endocrinologist for mood swings but no

one puts it all together...except you.

Can't hurt to try, but try it for a minimum of 2 months before assessing for

results.

Deborah

> > > >

> > > >

> > > > Hi there, I am new to the group and grateful to have discovered

> it!

> > > >

> > > > I have suffered for years with a laundry of unexplained " issues " ,

> many

> > > > of them neurologically based but also including misophonia (the

> name I

> > > > just discovered last night to exactly describe what I have

> suffered for

> > > > years). Two years ago I went off gluten and found that my

> > > > misophonia/SSSS was somewhat under control...NOT gone...but

> manageable.

> > > > I found that being off the gluten took the edge off the

> sensitivity.

> > > > Warning though, it took about 2 months to notice the reduction in

> > > > symptoms. I went back on gluten for 3 months this fall to have the

> > > > celiac biopsy done and the rage associated with the eating sounds,

> > > > breathing sounds etc. came back in FULL. Regardless of what the

> test

> > > > show I am off gluten for my life as it has been the only thing

> that has

> > > > helped so far.

> > > >

> > > > Curious though, has anyone else had any experiences/thoughts about

> > > > gluten and this horrible disorder?

> > > >

> > > > So glad to find others in this big world feeling like I do.

> Deborah

> > > >

> > >

> >

>

[Guest guest]

I totally agree with you, , that hopefully between all of us we can

figure out the cause of Misophonia and how to cure it. Please keep us informed

on how the gluten-free diet is working for you. I am starting a low cholesterol,

low sugar diet starting today (for weight loss reasons) and will be curious to

see if that makes any difference to my sound sensitivity. And as soon as the

hypnosis CD arrives, I'll be starting that too. So keeping my fingers crossed...

Lori

> > > > >

> > > > >

> > > > > Hi there, I am new to the group and grateful to have discovered

> > it!

> > > > >

> > > > > I have suffered for years with a laundry of unexplained " issues " ,

> > many

> > > > > of them neurologically based but also including misophonia (the

> > name I

> > > > > just discovered last night to exactly describe what I have

> > suffered for

> > > > > years). Two years ago I went off gluten and found that my

> > > > > misophonia/SSSS was somewhat under control...NOT gone...but

> > manageable.

> > > > > I found that being off the gluten took the edge off the

> > sensitivity.

> > > > > Warning though, it took about 2 months to notice the reduction in

> > > > > symptoms. I went back on gluten for 3 months this fall to have the

> > > > > celiac biopsy done and the rage associated with the eating sounds,

> > > > > breathing sounds etc. came back in FULL. Regardless of what the

> > test

> > > > > show I am off gluten for my life as it has been the only thing

> > that has

> > > > > helped so far.

> > > > >

> > > > > Curious though, has anyone else had any experiences/thoughts about

> > > > > gluten and this horrible disorder?

> > > > >

> > > > > So glad to find others in this big world feeling like I do.

> > Deborah

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Just FYI, many people with celiac or gluten sensitivity can also

experience problems with other gluten-free grains, as well as other

foods in general -- until the gut is healed. For instance, my body

currently cannot digest nuts.

So if someone has had celiac for a long time without realizing it, and

continued ingesting gluten containing foods for a long time, they may

have to deal with healing the gut for up to a year before they can start

eating " normal " again (minus the gluten) without symptoms. I suggest

cutting out ALL foods that could cause potential upset during the

healing phase to give your gut the quickest path to recovery. And only

then add non-gluten foods back in. Many suggest cutting out all

pasteurized dairy as well during this time. I personally am fine with

raw milk.

One way to know if you're sensitive to a food is to check your pulse

before and after eating that food. So if you suspect you may be

sensitive to a particular food, wait until you have a completely empty

stomache and check your pulse. Then eat a couple bites of that food and

check your pulse again in about 5-10 minutes. If your pulse has raised

more than 5-10 beats per minute, you may be temporarily sensitive or

mildly allergic to that food. Later, you may find that after healing

your gut, these foods no longer present a problem.

> > > > >

> > > > >

> > > > > Hi there, I am new to the group and grateful to have

discovered

> > it!

> > > > >

> > > > > I have suffered for years with a laundry of unexplained

" issues " ,

> > many

> > > > > of them neurologically based but also including misophonia

(the

> > name I

> > > > > just discovered last night to exactly describe what I have

> > suffered for

> > > > > years). Two years ago I went off gluten and found that my

> > > > > misophonia/SSSS was somewhat under control...NOT gone...but

> > manageable.

> > > > > I found that being off the gluten took the edge off the

> > sensitivity.

> > > > > Warning though, it took about 2 months to notice the reduction

in

> > > > > symptoms. I went back on gluten for 3 months this fall to have

the

> > > > > celiac biopsy done and the rage associated with the eating

sounds,

> > > > > breathing sounds etc. came back in FULL. Regardless of what

the

> > test

> > > > > show I am off gluten for my life as it has been the only thing

> > that has

> > > > > helped so far.

> > > > >

> > > > > Curious though, has anyone else had any experiences/thoughts

about

> > > > > gluten and this horrible disorder?

> > > > >

> > > > > So glad to find others in this big world feeling like I do.

> > Deborah

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Just FYI, many people with celiac or gluten sensitivity can also

experience problems with other gluten-free grains, as well as other

foods in general -- until the gut is healed. For instance, my body

currently cannot digest nuts.

So if someone has had celiac for a long time without realizing it, and

continued ingesting gluten containing foods for a long time, they may

have to deal with healing the gut for up to a year before they can start

eating " normal " again (minus the gluten) without symptoms. I suggest

cutting out ALL foods that could cause potential upset during the

healing phase to give your gut the quickest path to recovery. And only

then add non-gluten foods back in. Many suggest cutting out all

pasteurized dairy as well during this time. I personally am fine with

raw milk.

One way to know if you're sensitive to a food is to check your pulse

before and after eating that food. So if you suspect you may be

sensitive to a particular food, wait until you have a completely empty

stomache and check your pulse. Then eat a couple bites of that food and

check your pulse again in about 5-10 minutes. If your pulse has raised

more than 5-10 beats per minute, you may be temporarily sensitive or

mildly allergic to that food. Later, you may find that after healing

your gut, these foods no longer present a problem.

> > > > >

> > > > >

> > > > > Hi there, I am new to the group and grateful to have

discovered

> > it!

> > > > >

> > > > > I have suffered for years with a laundry of unexplained

" issues " ,

> > many

> > > > > of them neurologically based but also including misophonia

(the

> > name I

> > > > > just discovered last night to exactly describe what I have

> > suffered for

> > > > > years). Two years ago I went off gluten and found that my

> > > > > misophonia/SSSS was somewhat under control...NOT gone...but

> > manageable.

> > > > > I found that being off the gluten took the edge off the

> > sensitivity.

> > > > > Warning though, it took about 2 months to notice the reduction

in

> > > > > symptoms. I went back on gluten for 3 months this fall to have

the

> > > > > celiac biopsy done and the rage associated with the eating

sounds,

> > > > > breathing sounds etc. came back in FULL. Regardless of what

the

> > test

> > > > > show I am off gluten for my life as it has been the only thing

> > that has

> > > > > helped so far.

> > > > >

> > > > > Curious though, has anyone else had any experiences/thoughts

about

> > > > > gluten and this horrible disorder?

> > > > >

> > > > > So glad to find others in this big world feeling like I do.

> > Deborah

> > > > >

> > > >

> > >

> >

>

[Guest guest]

My bad cholesterol is too high, so rather than start on meds I wanted to try

correcting through diet.

Lori

> > > > > >

> > > > > >

> > > > > > Hi there, I am new to the group and grateful to have discovered

> > > it!

> > > > > >

> > > > > > I have suffered for years with a laundry of unexplained " issues " ,

> > > many

> > > > > > of them neurologically based but also including misophonia (the

> > > name I

> > > > > > just discovered last night to exactly describe what I have

> > > suffered for

> > > > > > years). Two years ago I went off gluten and found that my

> > > > > > misophonia/SSSS was somewhat under control...NOT gone...but

> > > manageable.

> > > > > > I found that being off the gluten took the edge off the

> > > sensitivity.

> > > > > > Warning though, it took about 2 months to notice the reduction in

> > > > > > symptoms. I went back on gluten for 3 months this fall to have the

> > > > > > celiac biopsy done and the rage associated with the eating sounds,

> > > > > > breathing sounds etc. came back in FULL. Regardless of what the

> > > test

> > > > > > show I am off gluten for my life as it has been the only thing

> > > that has

> > > > > > helped so far.

> > > > > >

> > > > > > Curious though, has anyone else had any experiences/thoughts about

> > > > > > gluten and this horrible disorder?

> > > > > >

> > > > > > So glad to find others in this big world feeling like I do.

> > > Deborah

> > > > > >

> > > > >

> > > >

> > >

> >

>