Re: Just sharing

[Guest guest]

Hello Everyone, and Hi ,

Thanks for the post about your epidurals. I’ve had epidural pain injections in

the past and they were helpful especially after the 3rd one spread out over 3

months. I’m glad to hear some positive about the affect it had on you .

Anyone considering it should do their homework and be prepared to not have

immediate relief. For some reason it is one of those things that takes it’s

time. Try to keep an attitude of hopefulness during the process, although hard.

Yes we all share the hours in bed, and it’s not always that we are depressed,

but our bodies are just depleted. It seems that my depression is hard to treat

and my depression is always so close to the surface that something can trigger

me into an attack of the whinny, crybaby, want to give ups.

I sure hope you are all doing the best you can for today. We have to take this

one day at a time. And one thing I have found is that I must give up ALL

expectations. Never expect anything. Just hope for it but never count on it. It

only leads to let down. Those inevitable days come when you least expect them,

and are inconvenient. I’m a little sleepy today. Not sure why. I’m not

depressed, but I could go there so easily. I am just trying to direct my

thoughts to what can make any difference today even if it is so minor that I

brush my teeth or brush my hair. Oops forgot to give myself my Forteo injection

AGAIN. Ok now I could beat myself up, but instead I think I will go take it now

and do the best I can. This is for Osteoporosis and must be daily for 2 years.

I’ve forgotten so many times that I’m behind 5 months. I was supposed to be

finished. Oh well.

I have another support group that I am part of. I won’t mention a name. But

the moderator is picking on me. I think she has a problem with me and that

people respond positive to me and could be jealous. It has hurt my feelings and

I didn’t sleep well last night. I need to adjust my thinking and not take it

on personally even though I feel it is personal with her. I cannot let it hurt

me, but when you have a safe place (you think), to share thoughts and feelings,

and you feel betrayed by what feels closest to you, then I start asking myself

if it is me and beat myself up. It’s not my fault, but I react out of hurt and

get defensive. If I’m assertive I can be eaten alive by other people who have

the ability to put me down. Unfortunately there are mostly good people in these

groups. This is the best group by far! However, the group I have a problem with,

I am letting get the better of me and once in awhile there is a bad seed any

where you go. It seems a moderator there is using their position as a power

trip, and has some control issues. I’ve caught them giving medical advise and

of course if any one says anything, they have the power over you and use it for

your demise. I thank you for letting me vent this out because now I know why

I’m so tired. I did not realize that I took it on internally and of course do

not expect an admission of wrong or an apology. In fact this would have never

happened had this person not come down on me the first time for nothing if they

didn’t already have an issue with me so I doubt it would get better. Hope for

the best and no expectations.

Sending you all words of beautiful song, and song birds singing along on a

bright and sunny day! Love gina

From:

Sent: Friday, January 06, 2012 12:16 PM

To: stillsdisease

Subject: Just sharing

Hi all,

I wanted to share that since the epadural on my lower back and neck I have

had much relief from pain. It took some weeks to happen but this past week I

have had little to no pain and I am so grateful. My fear was for nothing and

I know that when the time comes I will do it again.

I want others to know with the postings of the past few days that my heart

goes out to many that are suffering the conflict of life's activities when

all you feel like doing physically and emotionally is lying in bed and

giving up. In my experience when I spent over a year sleeping literally 18

plus hours a day sleeping, I finally had to tell a doctor what was happening

and really get them to listen so that I could get medical help. If the

anti-depressants you are taking aren't working then another or combinations

or another doctor is needed. Just like with Still's our mental health HAS to

be addressed because we can lose physical abilities with mental depression

and things can spiral out of control from there. If the depression is

caused from our physical health and it cannot be better at this time even

though all options are tried then too we must address what it does to us

with depression, anger and acceptance. There is help, even if it's treated

as the necessity of an appointment far away for Still's and other illnesses.

Often mental medication management goes in 2 to 3 month appointments so has

to be looked at as just as necessary if not more so as our other

appointments. Reach out to others that are/have been there to understand as

well as treatment. You have friends here that will respond to e-mails and

phone calls I know. You are NOT a burden to those that wish to help just as

you do for them.

This is just my advise to my friends and family here. Not to be taken as

medical advise please.

I hope many find light at the end of desperation and help when you seek it.

Love and smiles,