Guest guest Posted September 30, 1999 Report Share Posted September 30, 1999 Hi Doris, Nice to know a fellow Illinoian, I was born and raised in the suburbs of Chicago. I am a transplant though - I've lived in Southern CA since 1985. I couldn't take the cold, snow, humidity, buggs. My family, children and 5 grandchildren are still in Iowa, Illinois & Wisconsin. Where is Bellville? Pam lives in Chicago. She has a son with PSC. I sent a tape to a couple of people in the group that you might be interested in. Larry and Marsha were making copies and maybe someone that has listened to it might want to forward it to you. It pertains to rhumatoid arthristis and a leaky gut (UC, IBS etc). It has some interesting treatment, mostly dietary. Let us know if you would like a copy. Also if you would take a look at my poll and give me the answers to the questions I'll add you to the list. Peg, wife of Phil, 56, UC 30 yrs, dx PSC 12/98 working toward listing , Santa Clarita, CA FirnkesD@... wrote: > Hi! > > My name is Doris. I have Rheumatoid Arthritis, Ulcerative Colitus & PSC. I > was diagnosed with PSC Sept. '98. I just joined this group this week. > > If anyone in this group is from around Belleville, IL, please contact me. I > would like to know who your doctors are and the stage of your disease. > > Take care, > Doris > > ------------------------------------------------------------------------ > > eGroups.com home: /group/ > - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 1999 Report Share Posted October 1, 1999 Hi Doris.. Welcome to our group...I am not from Il...although my daughter does live in Chicago...I live in NJ...I'm here for my son who will be 17 on Oct 12th...He has Crohns, RH, PSC and AIH...If you would like to chat you can always e-mail me on group or personally... Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 1999 Report Share Posted October 1, 1999 Hi Doris.. Welcome to our group...I am not from Il...although my daughter does live in Chicago...I live in NJ...I'm here for my son who will be 17 on Oct 12th...He has Crohns, RH, PSC and AIH...If you would like to chat you can always e-mail me on group or personally... Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 1999 Report Share Posted October 1, 1999 Welcome Doris! I am not from IL (I'm from RI) but want to extend my greetings from the east coast! You will find a lot of information here as well as some new friends. Feel free to ask anything, Gracie wife of Ed, (PSC/UC, listed'98) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 1999 Report Share Posted October 1, 1999 Welcome Doris! You have definitely hit upon the perfect PSC site - IMO!! Everyone here is so supportive, are so knowledgeable about this disease, and lift your spirits each and every day! I, for one, am glad you gave this group a chance -- you will never regret it! Hugs, Biddy PSC >Hi! > >My name is Doris. I have Rheumatoid Arthritis, Ulcerative Colitus & PSC. I >was diagnosed with PSC Sept. '98. I just joined this group this week. > >If anyone in this group is from around Belleville, IL, please contact me. I >would like to know who your doctors are and the stage of your disease. > >Take care, >Doris > >------------------------------------------------------------------------ > >eGroups.com home: /group/ > - Simplifying group communications > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 1999 Report Share Posted October 3, 1999 HI DORIS I HAVE A LEAKY GUT TAPE ALREADY MADE. IF YOU WANT ME TO SEND IT TO YOU. HAVE A NICE DAY MARSHA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 1999 Report Share Posted November 11, 1999 Hi Dwight, I don't know why your doc is using 3.0 as a criteria, the standard CTP scoring system used by UNOS has 3 ranges for albumin - >3.5, 2.8-3.5 and <2.8. Probably wants to be sure it won't rise back to " normal " with the next blood test. Usually you need other things out of range to be listed - perhaps bilirubin, PT or ascites. Listing is scary. But so is liver failure. If your doctor is doing things right, by the time you are near the top of the list you'll be eager to get a call saying a liver is available. Peg and Dan have crreated a table of member info accessable at /wdb?method=reportRows & listname= & tbl=1 It started with name, sex, age, state/city and illness stage but has expanded to add a few more bits of info. Tim ltx 4/4/98 --- Dwight Lauinger wrote: > ... the albumin levels have been fluctuating > from 3.8 to a low of 3.2. My Dr. says I will go on the > transplant list at 3.0 so it's a little scary. > My blood type is A-. I saw that you were > keeping track of that on one of the Emails I got today. ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 1999 Report Share Posted November 11, 1999 Hi Dwight, I don't know why your doc is using 3.0 as a criteria, the standard CTP scoring system used by UNOS has 3 ranges for albumin - >3.5, 2.8-3.5 and <2.8. Probably wants to be sure it won't rise back to " normal " with the next blood test. Usually you need other things out of range to be listed - perhaps bilirubin, PT or ascites. Listing is scary. But so is liver failure. If your doctor is doing things right, by the time you are near the top of the list you'll be eager to get a call saying a liver is available. Peg and Dan have crreated a table of member info accessable at /wdb?method=reportRows & listname= & tbl=1 It started with name, sex, age, state/city and illness stage but has expanded to add a few more bits of info. Tim ltx 4/4/98 --- Dwight Lauinger wrote: > ... the albumin levels have been fluctuating > from 3.8 to a low of 3.2. My Dr. says I will go on the > transplant list at 3.0 so it's a little scary. > My blood type is A-. I saw that you were > keeping track of that on one of the Emails I got today. ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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