Re: Time to Scream: Vestibular Migraines

[Guest guest]

Before any pain/fatigue symptoms of FM (which was 3 yrs. B4 DX), I awoke one

night knowing something wrong. The second trip up in less than 20 min. I

slammed into the wall. After ambulance and ER, CAT scan, drugs and 2 nights in

hosp., PT for brain, OT to learn how to keep eyes open and walk, climb stairs it

took 3 months for my balance to return. I never had any pain however. A few

months later – another struck, less severe, could take the car ride in holding

a bowl – this time MRI and drugs and sent to the vestibular unit. Weeks

passed, hearing tested for Minearâs, tested to induce it again (water in the

ears, spinning, tables turned upside down, etc.) they couldnt find a vestibular

issue. Then to the specialist - and he spotted it right away (light and sound

issues, imbalance, and retelling of info around each event....) Migraine with

Vertigo. I had never heard of it. FM has headaches and migraines in the

symptom list. It can also be triggered by hormonal changes for women each

month. I have gotten bits of it now and then but workable (just wouldnt

drive). I too had all the symptoms you mention EXCEPT the intense pain. Odd.

I now keep only one of the meds updated and on hand and thats for the nausea. I

wish every wish that can help you find the source and a way to regulate or

prevent it. I cant imagine the intensive pain you are feeling.