Guest guest Posted September 27, 2000 Report Share Posted September 27, 2000 I hate to break the news to you but there is a 10% chance of getting choliocarcinoma - cancer in the liver or bile ducts. This is why Walter Payton was removed from the transplant list and later died. What is really sad is we have had one of our group succumb to death from cancer. Mike Visas, Lynn's husband. Laurie who was just recently transplanted had cancer in her liver that was removed along with some lymph nodes. They didn't know it until after pathology did their report. Unless the cancer is found in a very early stage (which is hard to detect) they usually won't transplant a person with cancer because the anti-rejection drugs cause the cancer to grow faster. If the person has colitis they are more prone to colon cancer if they have PSC. No this isn't common but they are a slight possibility and probably the biggest fear to us all. Each of us try not to dwell on this, though and work toward keeping ourselves or our love ones healthy for as long as possible and living the our lives to the fullest. Phil also has UC and has had it for over 30 years. The Asulfadine he takes keeps it under control and he has a colonoscopy once a year. Overall right now, except for the fatigue he's doing well and we're happy for that. He went on disability when he first got sick and was having all those infections (he had lost his job just before he got sick and with his age 57 and doctor appointments and hospital trips we decided it would be best for him to go on disability) but he stays active in volunteer stuff where he can control his time and energy. Peg, wife of Phil (57), UC 30 years, dx PSC 12/98, listed-status 3-UCLA-2/2000, living Los Angeles suburbs, CA Quote Link to comment Share on other sites More sharing options...
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