Guest guest Posted January 7, 2012 Report Share Posted January 7, 2012 Hello all my new Still's buddies! Hope this finds you doing ok. I am very concerned about my 29 yo daughter, Melani. She has fibromyalgia, Chronic Fatigue Immune Disfunction, and Still's. Her jaw has been hurting very badly lately. With her jaw, also her neck, and ear. She also has a tooth hurting that keeps breaking off b/c she grinds in her sleep and this has happened before. I looked up these areas hurting all together at the same time and I guess the jaw is a joint. With Still's joint's are affected right? It also said something disturbing and that was that it could be from problems with the heart. Weird that those areas would be affected from a heart problem. She is on a beta blocker for arrythmias. I'm scared, and as a Mom there isn't a whole lot more I can do than I already am. She barely can speak it hurts so much. She is not well enough right now to be in a support group she says or anything like that except to barely make it to doc appts. currently. She just had a big move into a new condo when her Section 8 finally came through after being on the waiting list for 8 years. So she moved back to the San Diego area where I am close now, but still feel as helpless as if she lived 8 hours away still. Please keep her in yout thoughts for relief from this pain. Come Monday I told her we would agreesively seek medical attention for what ever we can, dentist, doc, rheumy??? Thanks for letting me sound off. Good night, everyone. xo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2012 Report Share Posted January 9, 2012 Hello, Not that I am a dr so you can take my advise or leave it. I think this may be her fibormyalgia. That affects her muscles and can cause TMJ Mine was so bad one time I had physical therapy for the muscles. It helped a lot. Just a thought. Val ________________________________ From: Stillsdisease [mailto:Stillsdisease ] On Behalf Of ginabomp Sent: Sunday, January 08, 2012 1:54 AM To: Stillsdisease Subject: Daughter needs Support Hello all my new Still's buddies! Hope this finds you doing ok. Moderated RH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2012 Report Share Posted January 9, 2012 Hi Val, You know she can be so stubborn about it being the fibro because she has the Still’s, but you hit the nail on the head. I think it could be also. She has a long awaited appt. with her Rhem tomorrow. I wish she would let me go with her. Perhaps she will. I have other questions about the Kineret she takes for Still’s and if it it truly helping since she feels so bad still, yet if she misses a dose she says she feels worse. They are our children no matter what age they get to be lol. Nice to hear from you. Hope all is well. Peace and Love, From: Schneider, Sent: Monday, January 09, 2012 9:54 AM To: Stillsdisease Subject: RE: Daughter needs Support Hello, Not that I am a dr so you can take my advise or leave it. I think this may be her fibormyalgia. That affects her muscles and can cause TMJ Mine was so bad one time I had physical therapy for the muscles. It helped a lot. Just a thought. Val ________________________________ From: mailto:Stillsdisease%40yahoogroups.com [mailto:mailto:Stillsdisease%40yahoogroups.com] On Behalf Of ginabomp Sent: Sunday, January 08, 2012 1:54 AM To: mailto:Stillsdisease%40yahoogroups.com Subject: Daughter needs Support Hello all my new Still's buddies! Hope this finds you doing ok. Moderated RH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2012 Report Share Posted January 9, 2012 Daughter needs Support Hello all my new Still's buddies! Hope this finds you doing ok. I am very concerned about my 29 yo daughter, Melani. She has fibromyalgia, Chronic Fatigue Immune Disfunction, and Still's. Her jaw has been hurting very badly lately. With her jaw, also her neck, and ear. She also has a tooth hurting that keeps breaking off b/c she grinds in her sleep and this has happened before. I looked up these areas hurting all together at the same time and I guess the jaw is a joint. With Still's joint's are affected right? It also said something disturbing and that was that it could be from problems with the heart. Weird that those areas would be affected from a heart problem. She is on a beta blocker for arrythmias. I'm scared, and as a Mom there isn't a whole lot more I can do than I already am. She barely can speak it hurts so much. She is not well enough right now to be in a support group she says or anything like that except to barely make it to doc appts. currently. She just had a big move into a new condo when her Section 8 finally came through after being on the waiting list for 8 years. So she moved back to the San Diego area where I am close now, but still feel as helpless as if she lived 8 hours away still. Please keep her in yout thoughts for relief from this pain. Come Monday I told her we would agreesively seek medical attention for what ever we can, dentist, doc, rheumy??? Thanks for letting me sound off. Good night, everyone. xo Quote Link to comment Share on other sites More sharing options...
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