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Re: ANA Test

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,

Mine was so many years ago and I didn't even know what tests were done or

what they were called at that time. I was just lucky enough to have good

doctors. I am pretty sure mine was negative though because I was told it was

classic AOSD when diagnosed.

Hope this helps,

-- ANA Test

Hello Group,

I'm just doing an inquiry about your experience with the results to the

Anti-neuclear Antibody Test.. I'm just doing a survey on it. A lot of

literature says the ANA test is usually negative with Still's.

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Thanks ,

It was nice to hear from you. How are you doing? I guess I’m still post

holiday fatigue. I want to get up and bring my daughter a mouth guard. The pain

doctor referred her to Big 5 Sporting Goods for a mouth protector and I called

them. Sure enough they have a soft gel made for boys 11 and up. So should fit a

29 yo female just fine. She isn’t sure what the cause, if it’s grinding at

night, or something else, but the pain in her jaw is excruciating! It may be

connected to her neck pain too. We don’t know until we go to the DDS and

doctors, but for now trying to treat the symptoms as usual. I am helping her as

much as possible since she lives alone now. I can sure relate to that. There is

not another person to bounce things off of if you have a change in symptoms etc.

Any news about a possible Still’s convention this year? I was thinking it was

possibly going to be Labor Day weekend. Won’t that be too busy a time in

Vegas? They raise the plane fares too and rates for everything for holiday’s.

Hopefully there will be one either way, place or what ever. I will certainly

have more energy than last trip. I look back at pictures and I was really bad

off. My steroid puffiness was extreme and moon face. I could not walk barely

from the room down to the casino area without being extremely out of breath. I

have much improved if I look back. I should be grateful with the small amount of

progress. Some is much better than none. Today I will send you thoughts of

energy and endurance. I need the same. Hang in there girl. Love, Peace and Joy,

gina

From:

Sent: Saturday, January 07, 2012 2:30 PM

To: stillsdisease

Subject: Re: ANA Test

,

Mine was so many years ago and I didn't even know what tests were done or

what they were called at that time. I was just lucky enough to have good

doctors. I am pretty sure mine was negative though because I was told it was

classic AOSD when diagnosed.

Hope this helps,

-- ANA Test

Hello Group,

I'm just doing an inquiry about your experience with the results to the

Anti-neuclear Antibody Test.. I'm just doing a survey on it. A lot of

literature says the ANA test is usually negative with Still's.

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My ANA has always been negative. Also, most other indicators of " general

inflammation " like C-reactive protein (CRP) are always negative, and the

rheumatoid factor (RF)test is always negative.

For me, the only blood test that seems correlated with my flares is the test

for Ferritin levels.

Cannon JCannon@... Front Royal, VA, USA

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Hi , I wanted to respond to your post. You said your daughter Melani has

fibromyalgia. A positive ANA is one way to doctors verify fibromyalgia, but it

is not always the case. A positive ANA can also be other things. I have

fibromyalgia and have a positive ANA, I also have lupus and those antibody tests

were negative. My rheumy saw me for a year and watched symptoms to verify my

lupus. My last blood workup I was positive for S'Jogrens but 6 months before I

was negative. As far as the jaw fofor Melani, my doctor has TMJ. She grinds her

teeth and her jaw hurts and pops out when she opens her mouth wide. You just

never know these days with any tests cause so many people that should have

positive tests CAN have negative tests but still have the disease or disorder.

Hopefully they will figure it out. I wish you and her well and a very happy and

hopeful New Year. Deb

>

> Hello Group,

> I'm just doing an inquiry about your experience with the results to the

Anti-neuclear Antibody Test. I think that is the one called ANA. Please correct

me if I am wrong. Some people with Still's get a negative test, and some people

get mixed results. I'm just doing a survey on it. A lot of literature says the

ANA test is usually negative with Still's. Hope you are all feeling on the well

side of life and if not nurturing yourself and getting better. Best wishes of

healing and peace,

>

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I was checking it out on line the other day and for Stills it says our

ANA is negative. It kind of seems like this disease breaks a lot of the

rules. No wonder I have this. That is my life story ha ha

Val

________________________________

From: Stillsdisease

[mailto:Stillsdisease ] On Behalf Of Cannon

Sent: Sunday, January 08, 2012 8:33 AM

To: Stillsdisease

Subject: Re: ANA Test

My ANA has always been negative. Also, most other indicators of " general

Moderated

RH

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