ME -Update 4 Karina from Denmark

[Guest guest]

From Hansen:

4e Update about Karina from

Denmark by Hansen

Karina is still alive and still at home.

The familys lawyer is advising them and will guard

Karinas rights. This lawyer has had many cases with ME

patients and he understands the disease.

Thanks to Greg Crowhurst - www.stonebird.co.uk - and

perhaps others - the Danish Embassy in London

became aware of the case and contacted the Danish

Board of Health.

The Embassy is taking this case very seriously. There is

pressure on the Danish government from many sides

now to treat this case correctly.

The power of facebook!

Yesterday the Board of Health contacted a

neuropsychologist about Karinas case. He was asked to

contact Dr. Isager and to have the two of them look into

the case.

We see it as a positive step that the Board of Health is

asking for Dr. Isagers opinion in this case.

Dr. Isager has devoted years to helping ME patients,

making home visits and helping them when no one else

would.

He has endless heartbreaking stories about the cases he

has seen in his years of helping these abandoned

patients.

I have the highest respect for Dr. Isager. He wrote a

book in Danish last year called Blinde Pletter: Blind

Spots - on the Medical and Health Sectors Amputated

Reality: http://bit.ly/ILbAZH

It is about the blind spots the medical profession has for

diseases like ME and a criticism of the way the Danish

Health system treats them.

It is our hope that the Board of Health and the

neuropsychologist will listen to Dr. Isagers advice about

how to treat Karina.

What we want right now is to get Karina the medical

assistance she needs to keep her alive.

As for the neuropsychologist - I will not give out the

name because I dont want this person bombarded by

mails.

We sent information about ME to this person and have

offered to be of assistance in any way we can. We are

working to keep the tone professional and friendly.

We, the ME Association, hope that this case can start a

constructive dialog with the Danish Board of Health

about what ME is and how these patients can be helped.

I am sorry that I cant share more right now, but please

know that if anything happens with Karina I will post

immediately.