Re: Question about Auto Immune Disorder,

[Guest guest]

Thank you for sharing this and would you please give me the name of the

naturapath you are talking about. Though my son is doing DAN, I like to

have a naturapath with autism experience to complement his treatment if

his gut issues continue. I live in Modesto, about 82 miles from the Bay.

Thanks again, Haleh

son wrote:

> Haleh, we're the same age!

>

> I, too am having my amalgams taken out. I now have to make some decisions,

> though, as some of the teeth will need crowns if I take out the fillings.

> The walls are too thin. My dentist wants to start with the ones that are

> going to do the most good to remove, and there are two of those. So maybe

> next year the rest will come out. I have five teeth left that have

> amalgams

> in them.

>

> I don't take quite as many supps as you do, but it's a similar list.

> Magnesium helps me, as does zinc and the fish oil. More supps is more

> money,

> which is scarce at the moment.

>

> The Brazil nuts I keep meaning to take. Thanks for the reminder. I

> read some

> time ago that pretty much everyone is deficient in selenium, as it's

> depleted from all the farmed soil.

>

> Kristie, to begin with, I don't think a rheumatologist is going to do

> anything but prescribe you anti-inflammatory drugs, but perhaps things

> have

> changed, I don't know. These days, the type of doctor doesn't tell you

> much

> about what his/her philosophy is. Friend of mine just went to this doctor

> that she simply adores-he's cured her and her son who were both having

> serious gut issues. He's not a DAN doc, but a regular doctor who is also a

> naturopath. I can get his name for you, but he's all the way up in the Bay

> Area.

>

> If you want to stick closer to home, I'd look around for a naturopathic

> physician, or a regular doc who has studied naturopathy. they're

> trained in

> a wide array of modalities, one of which is likely to help you.

>

> Liz

>

>

> >

> > Reply-To: csb-autism-rx

> > Date: Sun, 29 Jan 2006 17:47:18 -0800

> > To: csb-autism-rx

> > Subject: Re: Question about Auto Immune Disorder

> (me) & Autism

> > (son) connection?

> >

> > Liz,

> > I had also a terrible postpartum depression and little by little

> > symptoms of chemical sensitivity, eczema, Allergies, irritable bowls,

> > body aches and the list goes on.

> > I have tested high for mercury and currently working with a holistic

> > dentist who is also a Naturapath. I take 800 mg combined of magnesium

> > oxide and magnesium glycinade per day which has been great for body

> > aches and depression. I am also on zinc, lecithin, tourine, Fish oil,

> > multi vitamins, calcium GFCF and digestive enzymes, probiotics and oral

> > MB12. I eat a few Brazil nuts per day for selenium and the improvements

> > has been great.

> >

> > I am however also committed to chelation after removal of the all my

> > dental amalgams. The world has become far too toxic and I believe

> > everyone will develop autoimmune disorders at some time in their lives.

> > Perhaps later rather than while young. I am 43.

> > Haleh

> > son wrote:

> >

> >> Okay, this is only from my personal perspective, not any medical

> >> knowledge.

> >>

> >> I think something changed in me when I was pregnant with my ASD son,

> >> too. I

> >> had a pretty bad case of postpartum depression, though I didn't really

> >> understand that depression doesn't necessarily mean you're

> >> incapacitated, so

> >> I never got treated.

> >>

> >> It was then that I started having symptoms, like back pain and

> various gut

> >> issues. The gfcf diet worked miracles on both of us, but I still

> struggle

> >> with yeast. My current theory is that I have to stick to the blood

> >> type diet

> >> very strictly, but it's uphill all the way.

> >>

> >> During brief periods when I have relief from the yeast (after a viral

> >> infection with a high fever), I remember what it felt like to have a

> >> normal

> >> energy level and I'm amazed. I don't bother trying to explain to most

> >> people

> >> that I just can't commit to the kind of workload I would if I

> didn't have

> >> gut/immune issues.

> >>

> >> Suspecting that the high dose Vitamin A therapy might work, I tried

> that

> >> with both me and my son in December. Neither of us gets sick very

> >> often, and

> >> rarely gets an actual fever. I suspected we both have some sort of

> >> low-grade

> >> viral problem and/or immune problem. My system always feels great

> >> after I do

> >> get sick, so I don't avoid people who are sick-uh, unless they're

> >> vomiting.

> >> Ugh.

> >>

> >> Both of us got a cold right after doing the Vit. A. My son hadn't had

> >> a cold

> >> in -I don't know-years? A long time. And he did get much better

> >> behaviorally

> >> right afterwards-much sunnier disposition, too. Unfortunately, he's

> >> had lots

> >> of infractions lately, so those gains were lost. He's 14 and has

> access to

> >> any food he wants at school. we're working on the issue, but he's

> had the

> >> first signs of a yeast issue lately, so I know his diet has been

> >> horrendous.

> >>

> >> So, yes, I think there's a connection. But what it is is a mystery.

> I know

> >> something changed fundamentally when I got pregnant with him. Perhaps

> >> pregnancy moves metals around, perhaps hormones trigger some immune

> >> response. I am not a doctor yet, but you can bet these are things I

> >> will be

> >> looking into someday!

> >>

> >> IF I were you, and hadn't done so already, I'd get wheat out of my diet

> >> ASAP. It isn't very good for anybody, as far as I've seen. I've just

> >> had two

> >> friends in an unrelated online group go on the blood type diet, and

> >> eliminating wheat has really made both of them feel better. One of

> >> them has

> >> had dramatic improvements in her arthritic thumb, and the other is

> losing

> >> weight rapidly, having lost her craving for wheaty, sugary carbs.

> so I've

> >> seen that often enough to say with confidence: your diet affects your

> >> autoimmune system in a *very* direct way.

> >>

> >> I'm pretty sure I was pre-diabetic before going gfcf, too, another

> >> auto-immune problem. And my back pain vanished as well, though that

> was in

> >> part due to the 70 lb. weight loss.

> >>

> >> I'd love to hear anyone else's stories about pregnancy and auto-immune

> >> changes. This is yet another unexplored gold mine of information.

> >>

> >> Liz

> >>

> >>>

> >>> Reply-To: csb-autism-rx

> >>> Date: Mon, 30 Jan 2006 00:07:52 -0000

> >>> To: csb-autism-rx

> >>> Subject: Question about Auto Immune Disorder (me) &

> >> Autism

> >>> (son) connection?

> >>>

> >>> Hi there. I haven't been to a doctor since oh the end of 2003

> >>> (several weeks after my son was born for the check up--he's now 2.7--

> >>> yes bad bad girl!). Well I went a few weeks ago for a physical and

> >>> the doctor ran some blood tests. I let her know I had intermittant

> >>> pain in my thumb to index finger region and she apparently ran this

> >>> test called " antinuclear antibodies test. " It tests to see if you

> >>> possibly have an auto immune disorder. Well she gave me a call and

> >>> let me know I tested at 2.1 and they look at something seriously if

> >>> it scores over 1. So she is referring me to a rheumatologist and

> >>> gave me lots of info on systemic lupus which I guess she believes is

> >>> what I COULD have (which may very well be the case because I am 25%

> >>> Indian and all of my great grandma's sisters--all Indian--have had

> >>> lupus and daughters have had lupus and one died apparently--just

> >>> discovered this part). So I will give a call on Monday to a

> >>> rheumatologist (any recommendations on one anyone?) Anyway, from my

> >>> researching this auto immune thing it seems many young women who get

> >>> this usually it results (they theorize) out of a hormonal change

> >>> during pregnancy. It makes me wonder all the more if possibly my

> >>> system began to change during pregnancy which made my son's immune

> >>> system sensitive as well. This is obviously all new territory and I

> >>> am wondering if ANYONE has a theory or has been through something

> >>> like this before? Any direction would be appreciated.

> >>>

> >>> Kristie

> >>> mommy to Aidan 2.7

> >>>

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> >>> Many frequently asked questions and answers can be found at

> >>> <http://forums.autism-rxguidebook.com/default.aspx>

> >>>

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