Guest guest Posted February 24, 2012 Report Share Posted February 24, 2012 Hi Daddy Bob, I’m getting together my list of physicians that have even seen a Still’s disease patient, and decided to put some phone calls in for my area and do some research to help your cause. I have call backs from some that will not get back to me until Monday. A suggestion I have is to ask what Insurance they take regarding, Medi-Medi mostly which is Medicare/Medical in California. This is for low income. Also if they take insurance period! This I think would be beneficial to have to give out for information on your list. Nice chatting with you last night. Will be getting back to you soon. I encourage everyone who has the resources in their area to help Bob by sending the names, phone numbers and addresses of all doctors in your area that you know of who treat Still’s. Blessings, From: Himes Sent: Thursday, February 23, 2012 6:45 PM To: Stills Group Subject: Doctors Versed in Stills Disease. Hi Folks: Well, every once in a while I try this over again so I will try it once more? I know that each of you has a Doctor that you go to for your Stills Disease. Now that Doctor may be just a Rheumatologist or He/She may be learning Stills Disease or may have seen many Stills Patients. What we need for our Foundation Files is a list of these Doctors so that when someone calls me, like tonight, I am not all embarrassed because I cannot furnish that person the name of a Stills Doctor or a Doctor that knows what Stills is at least? So if each of you would be so kind as to at least send me the name, address and phone number of the Doctor that is treating you for Stills, it sure would help the Foundation a whole lot. When I asked for this information about a year ago someone told me that they would have to get their Doctors permission to do this? WHY? I can get the same information from the phone book if I live in your area or from the AMA list of Rheumatologist's. All we are trying to do is boil it down to someone with Stills knowledge. So would you please take a few minutes and jot down your Doctors information for me and I will add it to our book and later I can add it to our web page? It sure would be appreciated. It would also help if you would add your opinion of your Doctors experience with Stills. Thank You so very much and you will be saving me from a lot more embarrassment! Love Ya ll!  Bob (Dad) Secretary/Treasurer Panama City, FL 32404 Please visit the International Stills Disease Foundation Inc. Web Site at www.stillsdisease.org . Please make TAX DEDUCTIBLE Donations to the all volunteer, International Stills Disease Foundation (ISDF), 1123 S. Kimbrel Ave., Panama City, FL 32404. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2012 Report Share Posted February 24, 2012 Hi Daddy Bob, I’m getting together my list of physicians that have even seen a Still’s disease patient, and decided to put some phone calls in for my area and do some research to help your cause. I have call backs from some that will not get back to me until Monday. A suggestion I have is to ask what Insurance they take regarding, Medi-Medi mostly which is Medicare/Medical in California. This is for low income. Also if they take insurance period! This I think would be beneficial to have to give out for information on your list. Nice chatting with you last night. Will be getting back to you soon. I encourage everyone who has the resources in their area to help Bob by sending the names, phone numbers and addresses of all doctors in your area that you know of who treat Still’s. Blessings, From: Himes Sent: Thursday, February 23, 2012 6:45 PM To: Stills Group Subject: Doctors Versed in Stills Disease. Hi Folks: Well, every once in a while I try this over again so I will try it once more? I know that each of you has a Doctor that you go to for your Stills Disease. Now that Doctor may be just a Rheumatologist or He/She may be learning Stills Disease or may have seen many Stills Patients. What we need for our Foundation Files is a list of these Doctors so that when someone calls me, like tonight, I am not all embarrassed because I cannot furnish that person the name of a Stills Doctor or a Doctor that knows what Stills is at least? So if each of you would be so kind as to at least send me the name, address and phone number of the Doctor that is treating you for Stills, it sure would help the Foundation a whole lot. When I asked for this information about a year ago someone told me that they would have to get their Doctors permission to do this? WHY? I can get the same information from the phone book if I live in your area or from the AMA list of Rheumatologist's. All we are trying to do is boil it down to someone with Stills knowledge. So would you please take a few minutes and jot down your Doctors information for me and I will add it to our book and later I can add it to our web page? It sure would be appreciated. It would also help if you would add your opinion of your Doctors experience with Stills. Thank You so very much and you will be saving me from a lot more embarrassment! Love Ya ll!  Bob (Dad) Secretary/Treasurer Panama City, FL 32404 Please visit the International Stills Disease Foundation Inc. Web Site at www.stillsdisease.org . Please make TAX DEDUCTIBLE Donations to the all volunteer, International Stills Disease Foundation (ISDF), 1123 S. Kimbrel Ave., Panama City, FL 32404. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2012 Report Share Posted February 24, 2012 Thank You . That will be a great big help!  Bob (Dad) Panama City, FL 32404 Please visit the International Stills Disease Foundation Inc. Web Site at www.stillsdisease.org . Please make TAX DEDUCTIBLE Donations to the all volunteer, International Stills Disease Foundation (ISDF), 1123 S. Kimbrel Ave., Panama City, FL 32404. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2012 Report Share Posted February 24, 2012 Thank You . That will be a great big help!  Bob (Dad) Panama City, FL 32404 Please visit the International Stills Disease Foundation Inc. Web Site at www.stillsdisease.org . Please make TAX DEDUCTIBLE Donations to the all volunteer, International Stills Disease Foundation (ISDF), 1123 S. Kimbrel Ave., Panama City, FL 32404. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2012 Report Share Posted February 24, 2012 Thank You . That will be a great big help!  Bob (Dad) Panama City, FL 32404 Please visit the International Stills Disease Foundation Inc. Web Site at www.stillsdisease.org . Please make TAX DEDUCTIBLE Donations to the all volunteer, International Stills Disease Foundation (ISDF), 1123 S. Kimbrel Ave., Panama City, FL 32404. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2012 Report Share Posted February 24, 2012 Great Rheumatologist in Corpus Christi, Texas is Dr. Pop-Moody, 613 St. , . Very popular, hence hard to see. From: Himes Sent: Friday, February 24, 2012 12:13 PM To: Stills Group Subject: Re: Doctors Versed in Stills Disease. Thank You . That will be a great big help!  Bob (Dad) Panama City, FL 32404 Please visit the International Stills Disease Foundation Inc. Web Site at www.stillsdisease.org . Please make TAX DEDUCTIBLE Donations to the all volunteer, International Stills Disease Foundation (ISDF), 1123 S. Kimbrel Ave., Panama City, FL 32404. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2012 Report Share Posted February 24, 2012 Stacey L. Fitch DO PMSI Division of Rheumatology PMSI Infusion Center 1569 Medical Drive Suite 202 Pottstown, PA 19464 Obviously she discovered my malady. She also told me once that she had worked with several AOSD patients during her Rheumatology fellowship at Jefferson University Medical Center in Philadelphia. That was a big win in figuring me out. Although, no guarantees that I have quite figured myself out yet. Fuzzy > > Hi Folks: > Well, every once in a while I try this over again so I will try > it once more? I know that each of you has a Doctor that you go to for your > Stills Disease. Now that Doctor may be just a Rheumatologist or He/She may > be learning Stills Disease or > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2012 Report Share Posted February 24, 2012 >________________________________ > Val, I have one just like her. I too am trying to find another one. I wish you good luck. > > >ginger > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2012 Report Share Posted February 24, 2012 >________________________________ > Val, I have one just like her. I too am trying to find another one. I wish you good luck. > > >ginger > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2012 Report Share Posted February 24, 2012 After being diagnosed I found Dr Busch, & he saved my life! He & his staff are very familiar w/ Still's. He's in Palm Beach County in FL. 1025 Military Trail #209, Jupiter, FL, 33458 > > Hi Folks: > Well, every once in a while I try this over again so I will try > it once more? I know that each of you has a Doctor that you go to for your > Stills Disease. Now that Doctor may be just a Rheumatologist or He/She may > be learning Stills Disease or may have seen many Stills Patients. What we > need for our Foundation Files is a list of these Doctors so that when > someone calls me, like tonight, I am not all embarrassed because I cannot > furnish that person the name of a Stills Doctor or a Doctor that knows what > Stills is at least? So if each of you would be so kind as to at least send > me the name, address and phone number of the Doctor that is treating you for > Stills, it sure would help the Foundation a whole lot. When I asked for this > information about a year ago someone told me that they would have to get > their Doctors permission to do this? WHY? I can get the same information > from the phone book if I live in your area or from the AMA list of > Rheumatologist's. All we are trying to do is boil it down to someone with > Stills knowledge. So would you please take a few minutes and jot down your > Doctors information for me and I will add it to our book and later I can add > it to our web page? It sure would be appreciated. It would also help if you > would add your opinion of your Doctors experience with Stills. Thank You so > very much and you will be saving me from a lot more embarrassment! Love Ya > ll! > > > >  > Bob (Dad) > Secretary/Treasurer > Panama City, FL 32404 > Please visit the International Stills Disease Foundation Inc. Web Site at www.stillsdisease.org . Please make TAX DEDUCTIBLE Donations to the all volunteer, International Stills Disease Foundation (ISDF), 1123 S. Kimbrel Ave., Panama City, FL 32404. Thanks! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2012 Report Share Posted February 24, 2012 After being diagnosed I found Dr Busch, & he saved my life! He & his staff are very familiar w/ Still's. He's in Palm Beach County in FL. 1025 Military Trail #209, Jupiter, FL, 33458 > > Hi Folks: > Well, every once in a while I try this over again so I will try > it once more? I know that each of you has a Doctor that you go to for your > Stills Disease. Now that Doctor may be just a Rheumatologist or He/She may > be learning Stills Disease or may have seen many Stills Patients. What we > need for our Foundation Files is a list of these Doctors so that when > someone calls me, like tonight, I am not all embarrassed because I cannot > furnish that person the name of a Stills Doctor or a Doctor that knows what > Stills is at least? So if each of you would be so kind as to at least send > me the name, address and phone number of the Doctor that is treating you for > Stills, it sure would help the Foundation a whole lot. When I asked for this > information about a year ago someone told me that they would have to get > their Doctors permission to do this? WHY? I can get the same information > from the phone book if I live in your area or from the AMA list of > Rheumatologist's. All we are trying to do is boil it down to someone with > Stills knowledge. So would you please take a few minutes and jot down your > Doctors information for me and I will add it to our book and later I can add > it to our web page? It sure would be appreciated. It would also help if you > would add your opinion of your Doctors experience with Stills. Thank You so > very much and you will be saving me from a lot more embarrassment! Love Ya > ll! > > > >  > Bob (Dad) > Secretary/Treasurer > Panama City, FL 32404 > Please visit the International Stills Disease Foundation Inc. Web Site at www.stillsdisease.org . Please make TAX DEDUCTIBLE Donations to the all volunteer, International Stills Disease Foundation (ISDF), 1123 S. Kimbrel Ave., Panama City, FL 32404. Thanks! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2012 Report Share Posted February 24, 2012 After being diagnosed I found Dr Busch, & he saved my life! He & his staff are very familiar w/ Still's. He's in Palm Beach County in FL. 1025 Military Trail #209, Jupiter, FL, 33458 > > Hi Folks: > Well, every once in a while I try this over again so I will try > it once more? I know that each of you has a Doctor that you go to for your > Stills Disease. Now that Doctor may be just a Rheumatologist or He/She may > be learning Stills Disease or may have seen many Stills Patients. What we > need for our Foundation Files is a list of these Doctors so that when > someone calls me, like tonight, I am not all embarrassed because I cannot > furnish that person the name of a Stills Doctor or a Doctor that knows what > Stills is at least? So if each of you would be so kind as to at least send > me the name, address and phone number of the Doctor that is treating you for > Stills, it sure would help the Foundation a whole lot. When I asked for this > information about a year ago someone told me that they would have to get > their Doctors permission to do this? WHY? I can get the same information > from the phone book if I live in your area or from the AMA list of > Rheumatologist's. All we are trying to do is boil it down to someone with > Stills knowledge. So would you please take a few minutes and jot down your > Doctors information for me and I will add it to our book and later I can add > it to our web page? It sure would be appreciated. It would also help if you > would add your opinion of your Doctors experience with Stills. Thank You so > very much and you will be saving me from a lot more embarrassment! Love Ya > ll! > > > >  > Bob (Dad) > Secretary/Treasurer > Panama City, FL 32404 > Please visit the International Stills Disease Foundation Inc. Web Site at www.stillsdisease.org . Please make TAX DEDUCTIBLE Donations to the all volunteer, International Stills Disease Foundation (ISDF), 1123 S. Kimbrel Ave., Panama City, FL 32404. Thanks! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2012 Report Share Posted March 11, 2012 Hi Dad, Well after much research, I am sad to say that for the San Diego the choices are unbelievably limited. The only doctor who we know for sure is treating Still’s is my daughter’s doctor, Corrie Broady and that is because she is the one who diagnosed the illness, but we think my daughter may be her first and only case. All the other doctors are available to treat Still’s disease if it should come up, however when I called each one, I could not get an answer as to if and how many patients each one treats. I think for anyone stuck in San Diego area, that at least there is a handful of prospective doctors, however ALL the others on the list are North of San Diego in neighboring cities that would be quite a drive from San Diego (30-45 minutes). There is a large population in North San Diego, so at least there will be some for your list in that area, but my first choice would be to see if they are willing to drive to San Diego from the North and see Corrie Broudy in the Hillcrest area of San Diego. Thanks for doing this Bob, it will really be useful. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~\ ~~~~~~~~~~~~~~~~~~~~ Dr. J. Nolan, MD Arthritis Consultants N County 2023 West Vista Way Suite H Vista, CA 92083 (San Diego County) 40 minutes from S.D. Phone: ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~\ ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Dr. Carol L. Young, MD-office closed on 4th thurs Arthritis Medical Clinic/N County 637 East Grand Avenue Escondido, CA 92025 (San Diego County) 30 minutes from San Diego Phone: ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~\ ~~~~~~~~~~~~~~~~~~ Dr. Hyman Arthur Silverman, MD-Yes treats Auto-Immune Office Address 10666 North Torrey Pines Road (San Diego County) 15 minutes from S.D. La Jolla, CA 92037 Phone: Scripps Clinic Mission Valley 7565 Mission Valley Road Suite 200 San Diego, CA 92108 Phone: ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~\ ~~~~~~~~~~~~~~~~~~~~ UCSD Arthritis & Allergy Dr. Bluestein Dr. Kavanaugh Dr. Kalunian Dr. Lee Dr. Bartok Campus Point Office Address 9350 Campus Point Drive Suite 2B La Jolla, CA 92037 (San Diego County) 14 minutes from S.D. Phone: Hillcrest Office Address 4168 Front Street San Diego, CA (San Diego, Hillcrest area) Phone Fax: Phone: ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~\ ~~~~~~~~~~~~~~~~~~~~~~ Sharp Rees-Stealy Medical Grp =Yes sees Still’s disease patients, was the one to diagnose my daughter. However she is just beginning to learn about the illness. Dr. Corrie Broudy 2001 4th Avenue, 3rd floor San Diego, CA 92101 (In San Diego, Hillcrest area) Phone: San Diego, CA ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~\ ~~~~~~~~~~~~~~ F rom: Himes Sent: Thursday, February 23, 2012 6:45 PM To: Stills Group Subject: Doctors Versed in Stills Disease. Hi Folks: Well, every once in a while I try this over again so I will try it once more? I know that each of you has a Doctor that you go to for your Stills Disease. Now that Doctor may be just a Rheumatologist or He/She may be learning Stills Disease or may have seen many Stills Patients. What we need for our Foundation Files is a list of these Doctors so that when someone calls me, like tonight, I am not all embarrassed because I cannot furnish that person the name of a Stills Doctor or a Doctor that knows what Stills is at least? So if each of you would be so kind as to at least send me the name, address and phone number of the Doctor that is treating you for Stills, it sure would help the Foundation a whole lot. When I asked for this information about a year ago someone told me that they would have to get their Doctors permission to do this? WHY? I can get the same information from the phone book if I live in your area or from the AMA list of Rheumatologist's. All we are trying to do is boil it down to someone with Stills knowledge. So would you please take a few minutes and jot down your Doctors information for me and I will add it to our book and later I can add it to our web page? It sure would be appreciated. It would also help if you would add your opinion of your Doctors experience with Stills. Thank You so very much and you will be saving me from a lot more embarrassment! Love Ya ll!  Bob (Dad) Secretary/Treasurer Panama City, FL 32404 Please visit the International Stills Disease Foundation Inc. Web Site at www.stillsdisease.org . Please make TAX DEDUCTIBLE Donations to the all volunteer, International Stills Disease Foundation (ISDF), 1123 S. Kimbrel Ave., Panama City, FL 32404. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2012 Report Share Posted March 11, 2012 Hi Dad, Well after much research, I am sad to say that for the San Diego the choices are unbelievably limited. The only doctor who we know for sure is treating Still’s is my daughter’s doctor, Corrie Broady and that is because she is the one who diagnosed the illness, but we think my daughter may be her first and only case. All the other doctors are available to treat Still’s disease if it should come up, however when I called each one, I could not get an answer as to if and how many patients each one treats. I think for anyone stuck in San Diego area, that at least there is a handful of prospective doctors, however ALL the others on the list are North of San Diego in neighboring cities that would be quite a drive from San Diego (30-45 minutes). There is a large population in North San Diego, so at least there will be some for your list in that area, but my first choice would be to see if they are willing to drive to San Diego from the North and see Corrie Broudy in the Hillcrest area of San Diego. Thanks for doing this Bob, it will really be useful. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~\ ~~~~~~~~~~~~~~~~~~~~ Dr. J. Nolan, MD Arthritis Consultants N County 2023 West Vista Way Suite H Vista, CA 92083 (San Diego County) 40 minutes from S.D. Phone: ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~\ ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Dr. Carol L. Young, MD-office closed on 4th thurs Arthritis Medical Clinic/N County 637 East Grand Avenue Escondido, CA 92025 (San Diego County) 30 minutes from San Diego Phone: ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~\ ~~~~~~~~~~~~~~~~~~ Dr. Hyman Arthur Silverman, MD-Yes treats Auto-Immune Office Address 10666 North Torrey Pines Road (San Diego County) 15 minutes from S.D. La Jolla, CA 92037 Phone: Scripps Clinic Mission Valley 7565 Mission Valley Road Suite 200 San Diego, CA 92108 Phone: ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~\ ~~~~~~~~~~~~~~~~~~~~ UCSD Arthritis & Allergy Dr. Bluestein Dr. Kavanaugh Dr. Kalunian Dr. Lee Dr. Bartok Campus Point Office Address 9350 Campus Point Drive Suite 2B La Jolla, CA 92037 (San Diego County) 14 minutes from S.D. Phone: Hillcrest Office Address 4168 Front Street San Diego, CA (San Diego, Hillcrest area) Phone Fax: Phone: ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~\ ~~~~~~~~~~~~~~~~~~~~~~ Sharp Rees-Stealy Medical Grp =Yes sees Still’s disease patients, was the one to diagnose my daughter. However she is just beginning to learn about the illness. Dr. Corrie Broudy 2001 4th Avenue, 3rd floor San Diego, CA 92101 (In San Diego, Hillcrest area) Phone: San Diego, CA ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~\ ~~~~~~~~~~~~~~ F rom: Himes Sent: Thursday, February 23, 2012 6:45 PM To: Stills Group Subject: Doctors Versed in Stills Disease. Hi Folks: Well, every once in a while I try this over again so I will try it once more? I know that each of you has a Doctor that you go to for your Stills Disease. Now that Doctor may be just a Rheumatologist or He/She may be learning Stills Disease or may have seen many Stills Patients. What we need for our Foundation Files is a list of these Doctors so that when someone calls me, like tonight, I am not all embarrassed because I cannot furnish that person the name of a Stills Doctor or a Doctor that knows what Stills is at least? So if each of you would be so kind as to at least send me the name, address and phone number of the Doctor that is treating you for Stills, it sure would help the Foundation a whole lot. When I asked for this information about a year ago someone told me that they would have to get their Doctors permission to do this? WHY? I can get the same information from the phone book if I live in your area or from the AMA list of Rheumatologist's. All we are trying to do is boil it down to someone with Stills knowledge. So would you please take a few minutes and jot down your Doctors information for me and I will add it to our book and later I can add it to our web page? It sure would be appreciated. It would also help if you would add your opinion of your Doctors experience with Stills. Thank You so very much and you will be saving me from a lot more embarrassment! Love Ya ll!  Bob (Dad) Secretary/Treasurer Panama City, FL 32404 Please visit the International Stills Disease Foundation Inc. Web Site at www.stillsdisease.org . Please make TAX DEDUCTIBLE Donations to the all volunteer, International Stills Disease Foundation (ISDF), 1123 S. Kimbrel Ave., Panama City, FL 32404. Thanks! Quote Link to comment Share on other sites More sharing options...
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