Guest guest Posted February 18, 2012 Report Share Posted February 18, 2012 Hi Everyone, I noticed that many times people visit chat looking for someone available to talk to and no one is on at the same time. I would like to make a suggestion that a post be sent to invite someone to meet in the chat room and set up a time and date ahead of time so that you are assured a meeting when you go there. I said I was going to be there last Thursday to chat and I got a post back at the last minute about someone able to meet me. Unforunatly I had been down with a migraine the entire day Thursday so I made it to chat, but it was already an hour and half into it. I just missed out again. I would be willing to meet someone in chat if you'd ever like to talk, just send an e-mail to me or if you want a group, maybe send it out and see if we can get a group together. I am hoping this finds people doing well, althogh I know that is probably unrealistic, please just know that I care and so do so many others in this group. Thanks for being there for me and my support of my 29 yo darling daughter who suffers unbearably from this illness. Any Mom's feel free to contact me too. It' harder to watch our kids go through pain and sickness worse than to go through it ourselves! Thoughts of healing being sent your way, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2012 Report Share Posted February 19, 2012 >________________________________ >Dear , > > >I know where your coming from because I have it and it sure did hurt my mom a lot to see me in pain and sick all the time. > > >I am new here. The reason i joined is because I was first diagnosed with JRA at age two and that was in Boston Children, then came to CA and went to Children's in Hollywood who said it was JRA but when old enough to leave Children's my mom found an arthritis doctor in Reseda and I went to him. He is the one who said I have Stills. What is the difference? I have never heard that name before and he said I needed to have a heart doctor and so on with many other doctors. All I know is it must damage the inside as well as the bones. > > >ette > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2012 Report Share Posted February 19, 2012 Well Hi ette, Welcome here to Still’s Group! I am so glad you are here. Do you still have your Mom in your life? I am trying to learn as much as I can about Still’s disease for my daughter’s sake as well as my own illnesses that although have not been diagnosed with Still’s have other autoimmune disorders that affect me. The people here on this group are so wonderful and supportive. I love the kindness and outpouring of compassion. You will too. Thoughts of warm gentle hugs, Hope today finds you on a feeling good day, From: ginger Sunshine Sent: Sunday, February 19, 2012 12:32 PM To: Stillsdisease Subject: Re: Chat Group >________________________________ >Dear , > > >I know where your coming from because I have it and it sure did hurt my mom a lot to see me in pain and sick all the time. > > >I am new here. The reason i joined is because I was first diagnosed with JRA at age two and that was in Boston Children, then came to CA and went to Children's in Hollywood who said it was JRA but when old enough to leave Children's my mom found an arthritis doctor in Reseda and I went to him. He is the one who said I have Stills. What is the difference? I have never heard that name before and he said I needed to have a heart doctor and so on with many other doctors. All I know is it must damage the inside as well as the bones. > > >ette > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2012 Report Share Posted February 19, 2012 Well Hi ette, Welcome here to Still’s Group! I am so glad you are here. Do you still have your Mom in your life? I am trying to learn as much as I can about Still’s disease for my daughter’s sake as well as my own illnesses that although have not been diagnosed with Still’s have other autoimmune disorders that affect me. The people here on this group are so wonderful and supportive. I love the kindness and outpouring of compassion. You will too. Thoughts of warm gentle hugs, Hope today finds you on a feeling good day, From: ginger Sunshine Sent: Sunday, February 19, 2012 12:32 PM To: Stillsdisease Subject: Re: Chat Group >________________________________ >Dear , > > >I know where your coming from because I have it and it sure did hurt my mom a lot to see me in pain and sick all the time. > > >I am new here. The reason i joined is because I was first diagnosed with JRA at age two and that was in Boston Children, then came to CA and went to Children's in Hollywood who said it was JRA but when old enough to leave Children's my mom found an arthritis doctor in Reseda and I went to him. He is the one who said I have Stills. What is the difference? I have never heard that name before and he said I needed to have a heart doctor and so on with many other doctors. All I know is it must damage the inside as well as the bones. > > >ette > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2012 Report Share Posted February 19, 2012 >________________________________ >Hi , > > >Thank you so much for the welcome,words can't say how happy I am to be here. No I don't still have my mom. I sure do miss her. I too have a lot of other conditions with this and I am told that they are there because of the Stills. I don't know if that is true. > > >Thank you all for having me. >ette > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2012 Report Share Posted February 19, 2012 >________________________________ >Hi , > > >Thank you so much for the welcome,words can't say how happy I am to be here. No I don't still have my mom. I sure do miss her. I too have a lot of other conditions with this and I am told that they are there because of the Stills. I don't know if that is true. > > >Thank you all for having me. >ette > Quote Link to comment Share on other sites More sharing options...
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