Re: GINA - re: mom

[Guest guest]

Hey !

I'm Jo. I've been a member here since 2007 when I finally got diagnosed

after close to 10 years of not knowing which auto-immune disease I had.

Those were the hardest times to me!

I lost my mom when I was only 24. I had just had my first child, my

daughter, she's now 23! I am going crazy trying to help her. She complains to

much about fatigue and she gets temps quite a bit. The gang here might

remember we were treating her for lymes in 2010, (we live in NJ, the tick

capital of the NE!) But she never got any better. She can work full time, and

pushes to do a Saturday job as well because she lives with a roommate now

and they share expenses. But the Infectious Disease dr. says he thinks the

rheumy made a mistake and that she never had lymes. He also ruled out

Chronic Fatigue Syndrome saying that if she can work that much then her

fatigue must not be at the level for a diagnosis. I'm not sure I agree with

that.... however, if my mom were alive, we'd have a lot more information to go

on! I really have no family history from eithe rmy mom or my dad's side.

Dad died when I was 7 and we had no contact with his family, who lived in

Michigan. So did mom's family, for some reason they both had very strained

relationships with their families, something about my mom not being

Catholic or something, and not raising us kids Catholic, well, All I know is

they

both died of heart attacks. Not much else! But mom was always tired, and

napped every day. I always thought it was depression since dad had passed

and he was the love of her life.... but somehow I still wonder if there

would be any piece of info to give us a direction with my daughter. None of

the auto-immune stuff shows anything, all blood panels are negative so

far. So now she is going to have a sleep study! I pray it's that easy!!!

Best of luck to you !

hugs,

Jo

In a message dated 2/19/2012 4:18:58 P.M. Eastern Standard Time,

ginabomp@... writes:

I am trying to learn as much as I can about Still’s disease for my daughter

’s sake as well as my own illnesses that although have not been diagnosed

with Still’s have other autoimmune disorders that affect me