Guest guest Posted March 3, 2012 Report Share Posted March 3, 2012 Ok,I promise eventually I will get your name correct if possible with my aging brain!You absolutely got the place right,vacation central is where I live,though in the winter is resembles the frozen tundra,more than a vacation spot!LOL All my family live somewhere in Michigan,my sisters live in Novi and Ferndale,Our daughter lives in Spring Lake on Lake Michigan next to Grand Haven,with our son-in-law and 3 oldest grandkids.Our oldest son lives in Huntington Woods with our daughter-in-law and two grandkids and our youngest son lives in White Lake with his wife and our youngest grandson who turned one yesterday and we are going down for his party today! I am 65,and have been very sick for a few months now,otherwise I'm 18!!!!LOL Maybe we could meet up some time in the Spring (if we get Spring) for coffee or lunch? I was actually sort of diagnosed at UofM,but back then they only called it Rheumatoid Arthritis becaus I had no other Stills symptoms at the time,they all surfaced at once later and I was diagnosed with Stills at Royal Oak Beaumont Hospital some four years later!My Rheumy practices in ston and Bingham Farms,so I have to come down for that,but I love my doc and he is very empathetic also.I have been married 43 years to my High School sweetheart.We are both from Troy Michigan.Well I guess that about covers the outline of my family,glad to fill in any blanks there might be.So sorry you have Stills,but at least you got it when more docs know about Stills and there are more meds to choose from.. love Elly p.s. good luck at UofM. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2012 Report Share Posted March 27, 2012 I am so sorry that you're going through so much right now. The thing that worries me is that you mention your painful breathing, and shortness of breath. It could be, as, has been mentioned by other members, Pericarditis, and you shouldn't ignore those symptoms. If it's bad, get to your doctor or ER. I hope that things get better for you. Keep your journal up to date, and write everything you're experiencing in it! Smiles and regards Cat ----- Forwarded Message ----- To: Stillsdisease Sent: Thursday, March 22, 2012 7:50:01 PM Subject: how long does it take for kineret to finally work? im getting frustrated with this disease already, kineret is not working! =-{ ive had about 18 injections now, and im not feeling any better. everything hurts, the knee swelling did not go down, its been months since my knees looked normal how long does it take for injections to finally kick in ? i feel like im getting a lil worse, i started having stabbing/sharp pain when im breathing in, and im out of breath a lot Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2012 Report Share Posted March 27, 2012 It could also be fluid in your lungs or in the lining around your lungs. Definitely get it checked out as soon as possible. Best wishes. Maureen > I am so sorry that you're going through so much right now. The thing that worries me is that you mention your painful breathing, and shortness of breath. It could be, as, has been mentioned by other members, Pericarditis, and you shouldn't ignore those symptoms. If it's bad, get to your doctor or ER. > > I hope that things get better for you. Keep your journal up to date, and write everything you're experiencing in it! > > Smiles and regards > Cat > > ----- Forwarded Message ----- > > To: Stillsdisease > Sent: Thursday, March 22, 2012 7:50:01 PM > Subject: how long does it take for kineret to finally work? > > > > im getting frustrated with this disease already, kineret is not working! > =-{ > ive had about 18 injections now, and im not feeling any better. > everything hurts, the knee swelling did not go down, its been months since my knees looked normal > how long does it take for injections to finally kick in ? > i feel like im getting a lil worse, i started having stabbing/sharp pain when im breathing in, and im out of breath a lot > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2012 Report Share Posted March 27, 2012 It could also be fluid in your lungs or in the lining around your lungs. Definitely get it checked out as soon as possible. Best wishes. Maureen > I am so sorry that you're going through so much right now. The thing that worries me is that you mention your painful breathing, and shortness of breath. It could be, as, has been mentioned by other members, Pericarditis, and you shouldn't ignore those symptoms. If it's bad, get to your doctor or ER. > > I hope that things get better for you. Keep your journal up to date, and write everything you're experiencing in it! > > Smiles and regards > Cat > > ----- Forwarded Message ----- > > To: Stillsdisease > Sent: Thursday, March 22, 2012 7:50:01 PM > Subject: how long does it take for kineret to finally work? > > > > im getting frustrated with this disease already, kineret is not working! > =-{ > ive had about 18 injections now, and im not feeling any better. > everything hurts, the knee swelling did not go down, its been months since my knees looked normal > how long does it take for injections to finally kick in ? > i feel like im getting a lil worse, i started having stabbing/sharp pain when im breathing in, and im out of breath a lot > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2012 Report Share Posted April 4, 2012 hi cat after a little scary moment in my water therapy class my ra finally sent me to a cardiologist. My blood pressure is acting up too, ive been having 150s/80s for the last few weeks. while i was in my water therapy class (after 10 mins of moving around) i started having chest pains and my blood pressure dropped below 100, the therapist said it wasn't safe to keep me in the pool, and called the ra doc to tell him of what happened, and basically i could not come back if they didn't write me a lil note saying that im okey. so he finally listened and send for an ekg, but it didn't show up anything. ive been having this unexplainable post nasal drip/ mucus in my throat for months, i thought it was from milk and eggs this whole time but it seems lately after anything i eat it gets worse. luckily my sharp chest pains went away, only the feeling of something heavy sitting on top of my chest is left, but im hoping thats going to go away soon too. -ewelina > > I am so sorry that you're going through so much right now. The thing that worries me is that you mention your painful breathing, and shortness of breath. It could be, as, has been mentioned by other members, Pericarditis, and you shouldn't ignore those symptoms. If it's bad, get to your doctor or ER. > > I hope that things get better for you. Keep your journal up to date, and write everything you're experiencing in it! > > Smiles and regards > Cat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2012 Report Share Posted April 4, 2012 hi cat after a little scary moment in my water therapy class my ra finally sent me to a cardiologist. My blood pressure is acting up too, ive been having 150s/80s for the last few weeks. while i was in my water therapy class (after 10 mins of moving around) i started having chest pains and my blood pressure dropped below 100, the therapist said it wasn't safe to keep me in the pool, and called the ra doc to tell him of what happened, and basically i could not come back if they didn't write me a lil note saying that im okey. so he finally listened and send for an ekg, but it didn't show up anything. ive been having this unexplainable post nasal drip/ mucus in my throat for months, i thought it was from milk and eggs this whole time but it seems lately after anything i eat it gets worse. luckily my sharp chest pains went away, only the feeling of something heavy sitting on top of my chest is left, but im hoping thats going to go away soon too. -ewelina > > I am so sorry that you're going through so much right now. The thing that worries me is that you mention your painful breathing, and shortness of breath. It could be, as, has been mentioned by other members, Pericarditis, and you shouldn't ignore those symptoms. If it's bad, get to your doctor or ER. > > I hope that things get better for you. Keep your journal up to date, and write everything you're experiencing in it! > > Smiles and regards > Cat Quote Link to comment Share on other sites More sharing options...
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