Re: Pray for my daughter please!

[Guest guest]

Oh my gosh – my heart is breaking for you and your daughter. As you know from my previous replies, I’ve been through similar experiences with hospitals and a suicide attempt with my son, so I’m really feeling for you. It sounds like you’re doing all you can to fight for the proper care for your daughter. Some of the doctors, particularly in the hospitals can be really pushy (they think they know it all and that the parents don’t know anything because they aren’t doctors) and even somewhat threatening at times (make sure everything is documented in writing), so you really have to be very firm and have lots of other people, including other doctors, to back you up and support your stand. Meanwhile, you certainly have my support, prayers and lots of hugs to you both! From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of wouldlovetofindacurefor4sSent: Thursday, January 05, 2012 6:34 PMTo: Soundsensitivity Subject: Pray for my daughter please! Hello Everyone,I need your help. I am requesting all of you to pray for my daughter, . I told my story about her last hospital stay and how they kept her on antidepressants without after care.(And how her therapist then dropped her as well) Well that is the last time she will be on antidepressants. She tried again to take her life. (Again just 3-4 weeks after starting another antidepressant) She was in the icu unit with a breathing tube. She could not breath on her own. Medically she has improved and will be ok, THANK GOD! Anyway she is in a new hospital and off the medicine. The past week has been hell and we have a long road ahead of us so please pray for her. Tonight she seemed to have a glimmer of hope. I explained that God has other plans for her and she is going to help find a cure for this terrible condition. She was so close to death but she is one strong girl. The good news is we have educated many new people; doctors, nurses, socials workers, etc. on Misophonia. We educated a lot of people and they were ALL very interested to hear about it. All who came in contact with my daughter also did their own research as well, before speaking to her. They all seemed very sad to hear about it too. It was the first time we didn't get the strange glare or confused looks when explaining Misophonia. We explained that we are willing to do anything to help research this terrible condition. I probably won't be able to respond because I have been spending every moment at the hospital so thank you again for always being there to listen.

[Guest guest]

Oh my gosh – my heart is breaking for you and your daughter. As you know from my previous replies, I’ve been through similar experiences with hospitals and a suicide attempt with my son, so I’m really feeling for you. It sounds like you’re doing all you can to fight for the proper care for your daughter. Some of the doctors, particularly in the hospitals can be really pushy (they think they know it all and that the parents don’t know anything because they aren’t doctors) and even somewhat threatening at times (make sure everything is documented in writing), so you really have to be very firm and have lots of other people, including other doctors, to back you up and support your stand. Meanwhile, you certainly have my support, prayers and lots of hugs to you both! From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of wouldlovetofindacurefor4sSent: Thursday, January 05, 2012 6:34 PMTo: Soundsensitivity Subject: Pray for my daughter please! Hello Everyone,I need your help. I am requesting all of you to pray for my daughter, . I told my story about her last hospital stay and how they kept her on antidepressants without after care.(And how her therapist then dropped her as well) Well that is the last time she will be on antidepressants. She tried again to take her life. (Again just 3-4 weeks after starting another antidepressant) She was in the icu unit with a breathing tube. She could not breath on her own. Medically she has improved and will be ok, THANK GOD! Anyway she is in a new hospital and off the medicine. The past week has been hell and we have a long road ahead of us so please pray for her. Tonight she seemed to have a glimmer of hope. I explained that God has other plans for her and she is going to help find a cure for this terrible condition. She was so close to death but she is one strong girl. The good news is we have educated many new people; doctors, nurses, socials workers, etc. on Misophonia. We educated a lot of people and they were ALL very interested to hear about it. All who came in contact with my daughter also did their own research as well, before speaking to her. They all seemed very sad to hear about it too. It was the first time we didn't get the strange glare or confused looks when explaining Misophonia. We explained that we are willing to do anything to help research this terrible condition. I probably won't be able to respond because I have been spending every moment at the hospital so thank you again for always being there to listen.

[Guest guest]

I'm so sorry about your daughter. Misophonia is difficult to deal with in the first place, add too many sounds that bother you, and being young and all that goes with that to it too and it can be intolerable. But you are right, she is here for a reason. And she could be the face and story for this condition if she can get to the point that she wants to share her story with the world. I know she has to try to find what works for her to limit the impact from the noises. After reading so many people's stories on here, I've learned that my condition (even though debilitating and interfering in my life, and helping to destroy my marriage) is not as bad as some on here who can't tolerate many normal sounds. So obviously degree is an issue too. It sounds like your daughter has an intollerable degree of too many sounds. After seeing a psychologist, I was told since

misophonia has no cure there was nothing she could do to help me. Unfortunately, that seems to be the general consensus among the professionals. Until we push and push to be recognized and treatments for this condition to be studied, we will always just be told " oh well nothing we can do " . Ripa, t.v. personality, might be a good one to get on board because she's the one that brought this condition to light by saying she thought she had it. I'd say she would definitely get involved after hearing that the condition she shares made a young girl try to kill herself and there is no one that can help. And that more and more people are coming forward as having the condition. She definitely has connections.... The one thing we have on this board is power in numbers. The more people that fight for something, the more likely to

be heard. To: " Soundsensitivity " <Soundsensitivity > Sent: Thursday, January 5, 2012 10:08 PM Subject: Re: Pray for my daughter please!

I was just typing your message to the group, sorry I couldn't do it sooner, my friend. I am so sorry this all has happened. Your daughter is so wonderful and sweet and strong, I know she'll be ok. I hope she can get on the Internet soon as she seems to love that. I've sent her an email and a FB message telling her I'm thinking of her. And she has loads of positive energy going her way.Thank goodness she's finally at a hospital where they are willing to listen, not judge, and work with you. Finally! You're such a good Mom. I know you must be exhausted. Try to get some good rest tonight. Love you lots!!HeidiSent from my iPhoneOn Jan 5, 2012, at 6:33 PM, " wouldlovetofindacurefor4s " wrote:

Hello Everyone,I need your help. I am requesting all of you to pray for my daughter, . I told my story about her last hospital stay and how they kept her on antidepressants without after care.(And how her therapist then dropped her as well) Well that is the last time she will be on antidepressants. She tried again to take her life. (Again just 3-4 weeks after starting another antidepressant) She was in the icu unit with a breathing tube. She could not breath on her own. Medically she has improved and will be ok, THANK GOD! Anyway she is in a new hospital and off the medicine. The past week has been hell and we have a long road ahead of us so please pray for her. Tonight she seemed to have a glimmer of hope. I explained that God has other plans for her and she is going to help find a cure for this terrible condition. She was

so close to death but she is one strong girl. The good news is we have educated many new people; doctors, nurses, socials workers, etc. on Misophonia. We educated a lot of people and they were ALL very interested to hear about it. All who came in contact with my daughter also did their own research as well, before speaking to her. They all seemed very sad to hear about it too. It was the first time we didn't get the strange glare or confused looks when explaining Misophonia. We explained that we are willing to do anything to help research this terrible condition. I probably won't be able to respond because I have been spending every moment at the hospital so thank you again for always being there to listen.

[Guest guest]

I'm so sorry about your daughter. Misophonia is difficult to deal with in the first place, add too many sounds that bother you, and being young and all that goes with that to it too and it can be intolerable. But you are right, she is here for a reason. And she could be the face and story for this condition if she can get to the point that she wants to share her story with the world. I know she has to try to find what works for her to limit the impact from the noises. After reading so many people's stories on here, I've learned that my condition (even though debilitating and interfering in my life, and helping to destroy my marriage) is not as bad as some on here who can't tolerate many normal sounds. So obviously degree is an issue too. It sounds like your daughter has an intollerable degree of too many sounds. After seeing a psychologist, I was told since

misophonia has no cure there was nothing she could do to help me. Unfortunately, that seems to be the general consensus among the professionals. Until we push and push to be recognized and treatments for this condition to be studied, we will always just be told " oh well nothing we can do " . Ripa, t.v. personality, might be a good one to get on board because she's the one that brought this condition to light by saying she thought she had it. I'd say she would definitely get involved after hearing that the condition she shares made a young girl try to kill herself and there is no one that can help. And that more and more people are coming forward as having the condition. She definitely has connections.... The one thing we have on this board is power in numbers. The more people that fight for something, the more likely to

be heard. To: " Soundsensitivity " <Soundsensitivity > Sent: Thursday, January 5, 2012 10:08 PM Subject: Re: Pray for my daughter please!

I was just typing your message to the group, sorry I couldn't do it sooner, my friend. I am so sorry this all has happened. Your daughter is so wonderful and sweet and strong, I know she'll be ok. I hope she can get on the Internet soon as she seems to love that. I've sent her an email and a FB message telling her I'm thinking of her. And she has loads of positive energy going her way.Thank goodness she's finally at a hospital where they are willing to listen, not judge, and work with you. Finally! You're such a good Mom. I know you must be exhausted. Try to get some good rest tonight. Love you lots!!HeidiSent from my iPhoneOn Jan 5, 2012, at 6:33 PM, " wouldlovetofindacurefor4s " wrote:

Hello Everyone,I need your help. I am requesting all of you to pray for my daughter, . I told my story about her last hospital stay and how they kept her on antidepressants without after care.(And how her therapist then dropped her as well) Well that is the last time she will be on antidepressants. She tried again to take her life. (Again just 3-4 weeks after starting another antidepressant) She was in the icu unit with a breathing tube. She could not breath on her own. Medically she has improved and will be ok, THANK GOD! Anyway she is in a new hospital and off the medicine. The past week has been hell and we have a long road ahead of us so please pray for her. Tonight she seemed to have a glimmer of hope. I explained that God has other plans for her and she is going to help find a cure for this terrible condition. She was

so close to death but she is one strong girl. The good news is we have educated many new people; doctors, nurses, socials workers, etc. on Misophonia. We educated a lot of people and they were ALL very interested to hear about it. All who came in contact with my daughter also did their own research as well, before speaking to her. They all seemed very sad to hear about it too. It was the first time we didn't get the strange glare or confused looks when explaining Misophonia. We explained that we are willing to do anything to help research this terrible condition. I probably won't be able to respond because I have been spending every moment at the hospital so thank you again for always being there to listen.