Guest guest Posted April 4, 2012 Report Share Posted April 4, 2012 If your Stills is THAT active, you will HAVE to find a biologic that properly supresses your immune system. Kineret is one such medication. There are others. Kineret is just the onethat usually has the most success with Stills. That is why it is usually tried first. Others are Humera and things like that. I can't think of the list of them all right now. They work by supressing the immune system's ability to produce a certain protien. This protien causes the bodies immune response, hence Stills. That is a very over simplified version, but they are all pretty much the same. I combine Kineret and MTX injections. I was not symptom free with Kineret alone, and I am not symptom free now. No one I have heard is completely synptom free. You cannot get rid of Stills, but you can, at some point, hope to get it to a level you can DEAL with it. I will tell you...you WILL have to learn to live with handfulls of pills. There is no magical pill, or joint for that matter, that will make it all better. Even when you get the dragon under control, you will still have days you feel like you will never make it through. YOU ARE NOT ALONE! Hopefully the specialist will have better news for you. Good luck! April Sent from my Verizon Wireless Phone kineret april,thank you im guessing the prednisone helped with the chest pains now that i think about it, because ive been on pred for over 2 weeks now. everything is soo frustrating, swelling hasn't gone down yet, im gaining weight like crazy, i feel like im constantly eating. i can finally sleep at night tho thanks to zanaflex but after 6.5 hrs exactly i wake up from all the pain. i also take vicodin during the day when i cant stand the pain anymore but it doesn't completely get rid of it. i hate taking all of those pills, but it looks like this is to only way to deal with it now. ive been on kineret for about a month, and i don't think its fully working yet. i have fevers, rashes n pain every day. is anyone symptom free and taking kineret? maybe instead of wasting my time with kineret i should move on and try something else? i finally got in to c a u of m specialist in ann arbor, mi, maybe they will find a way to help me in some other way to get rid of this thing. ;-/ since all of these meds are so expensive does anyone know anybody who uses medical marijuana ? isnt that cheaper, or better or is it a sham ? i found a lot of informations about antiinflammatory properties when it comes to medical cannabis but, i dont really believe it. does anyone smoke it and could swear that its real? -ewelina > > Oh, honey...you have every right to be upset. Yes, there's a lot of truth in > your feeling, and you are not alone. When I first started taking Kineret, I > was told it could take up to 6 weeks to start helping. I was in horrible > shape and thought i'd never last if I had to wait 6 weeks. Fortunately for > me, it started to help in about 2 1/2 weeks, but it did take longer to feel > the full effects. I have heard from others that it didn't really do a lot > for, though. There are other medications that can be tried if Kineret > doesn't work. It's just the one that usually works best, so that's the one > we usuallh start with when we have to go on a biologic medication. And yes, > people taking biologics are atgreater risk for cancers, including rare > cancers, but that doesn't mean that we usually get them. The disease is hard > on our bodies, and the meds we take to control the disease are hard on our > bodies. I am sorry you are going through everything right now. As far as > your stabbing sharp pain and your difficulty breathing, call your doctor. > Could be inflammation of the lungs, could be pericarditis. Either way, you > may need some more antivinflammatories andor sterroids or a dosage change. > > Good luck, > April > > Sent from my Verizon Wireless Phone > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2012 Report Share Posted July 11, 2012 Have you tried injecting in different locations? For instance, I am more likely to have swelling at the injection site if I inject on my leg but almost never if I inject on my abdomen. April Sent from my Verizon Wireless Phone kineret Hi I have some questions about kineret that I hope maybe you can help me with. I have tried Kineret for 3 wks and it was like a miracle drug. However, the injection sites were so swollen and itchy I stopped taking the injections for 2 wks. All my symptoms came back so I tried it again for 3 wks. same thing happened so I stopped again. Now my doctors are telling me to try it again in combination with methotrexate. I am also on medrole too. Do you have any suggestions to stop itching or swelling. I have tried icing before the injection, taking the meds out an hr before. I know it is not a histamine reaction, so none of theantihistamine drugs or creams work. I only wish I could tolerate the itching. Any help would be greatly apppreciated. a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2012 Report Share Posted July 11, 2012 Have you tried injecting in different locations? For instance, I am more likely to have swelling at the injection site if I inject on my leg but almost never if I inject on my abdomen. April Sent from my Verizon Wireless Phone kineret Hi I have some questions about kineret that I hope maybe you can help me with. I have tried Kineret for 3 wks and it was like a miracle drug. However, the injection sites were so swollen and itchy I stopped taking the injections for 2 wks. All my symptoms came back so I tried it again for 3 wks. same thing happened so I stopped again. Now my doctors are telling me to try it again in combination with methotrexate. I am also on medrole too. Do you have any suggestions to stop itching or swelling. I have tried icing before the injection, taking the meds out an hr before. I know it is not a histamine reaction, so none of theantihistamine drugs or creams work. I only wish I could tolerate the itching. Any help would be greatly apppreciated. a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2012 Report Share Posted July 11, 2012 Thanks April for responding. Yes, I rotate from my leg, arm, and abdomen, and I still get the same reaction. The reaction lasts about 4 days before the itching subsides and leaves a large red spot where the injection was. I have never tried kineret while on Methotraxate. Do you have any information if the combination of the two along with prednisone make any difference? a ________________________________ To: Stillsdisease Sent: Wednesday, July 11, 2012 8:38 PM Subject: Re: kineret  Have you tried injecting in different locations? For instance, I am more likely to have swelling at the injection site if I inject on my leg but almost never if I inject on my abdomen. April Sent from my Verizon Wireless Phone kineret Hi I have some questions about kineret that I hope maybe you can help me with. I have tried Kineret for 3 wks and it was like a miracle drug. However, the injection sites were so swollen and itchy I stopped taking the injections for 2 wks. All my symptoms came back so I tried it again for 3 wks. same thing happened so I stopped again. Now my doctors are telling me to try it again in combination with methotrexate. I am also on medrole too. Do you have any suggestions to stop itching or swelling. I have tried icing before the injection, taking the meds out an hr before. I know it is not a histamine reaction, so none of theantihistamine drugs or creams work. I only wish I could tolerate the itching. Any help would be greatly apppreciated. a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2012 Report Share Posted July 11, 2012 Thanks April for responding. Yes, I rotate from my leg, arm, and abdomen, and I still get the same reaction. The reaction lasts about 4 days before the itching subsides and leaves a large red spot where the injection was. I have never tried kineret while on Methotraxate. Do you have any information if the combination of the two along with prednisone make any difference? a ________________________________ To: Stillsdisease Sent: Wednesday, July 11, 2012 8:38 PM Subject: Re: kineret  Have you tried injecting in different locations? For instance, I am more likely to have swelling at the injection site if I inject on my leg but almost never if I inject on my abdomen. April Sent from my Verizon Wireless Phone kineret Hi I have some questions about kineret that I hope maybe you can help me with. I have tried Kineret for 3 wks and it was like a miracle drug. However, the injection sites were so swollen and itchy I stopped taking the injections for 2 wks. All my symptoms came back so I tried it again for 3 wks. same thing happened so I stopped again. Now my doctors are telling me to try it again in combination with methotrexate. I am also on medrole too. Do you have any suggestions to stop itching or swelling. I have tried icing before the injection, taking the meds out an hr before. I know it is not a histamine reaction, so none of theantihistamine drugs or creams work. I only wish I could tolerate the itching. Any help would be greatly apppreciated. a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2012 Report Share Posted July 11, 2012 Hi a, I had the same problem and my doc had me rub cortisone cream on the area 30 minutes prior to injecting. He also recommended having me see the allergist so that he can give me small doses and get me used to the injection to avoid reactions. Good Luck to you. Angie Sent from my iPhone > Hi I have some questions about kineret that I hope maybe you can help me with. I have tried Kineret for 3 wks and it was like a miracle drug. However, the injection sites were so swollen and itchy I stopped taking the injections for 2 wks. All my symptoms came back so I tried it again for 3 wks. same thing happened so I stopped again. Now my doctors are telling me to try it again in combination with methotrexate. I am also on medrole too. Do you have any suggestions to stop itching or swelling. I have tried icing before the injection, taking the meds out an hr before. I know it is not a histamine reaction, so none of theantihistamine drugs or creams work. I only wish I could tolerate the itching. Any help would be greatly apppreciated. > a > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2012 Report Share Posted July 11, 2012 Hi a, I had the same problem and my doc had me rub cortisone cream on the area 30 minutes prior to injecting. He also recommended having me see the allergist so that he can give me small doses and get me used to the injection to avoid reactions. Good Luck to you. Angie Sent from my iPhone > Hi I have some questions about kineret that I hope maybe you can help me with. I have tried Kineret for 3 wks and it was like a miracle drug. However, the injection sites were so swollen and itchy I stopped taking the injections for 2 wks. All my symptoms came back so I tried it again for 3 wks. same thing happened so I stopped again. Now my doctors are telling me to try it again in combination with methotrexate. I am also on medrole too. Do you have any suggestions to stop itching or swelling. I have tried icing before the injection, taking the meds out an hr before. I know it is not a histamine reaction, so none of theantihistamine drugs or creams work. I only wish I could tolerate the itching. Any help would be greatly apppreciated. > a > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2012 Report Share Posted July 12, 2012 been on kineret for 2 yrs never had a reaction like that u r using i use my stomach hope things get better for u ________________________________ To: Stillsdisease Sent: Wednesday, July 11, 2012 8:32 PM Subject: kineret  Hi I have some questions about kineret that I hope maybe you can help me with. I have tried Kineret for 3 wks and it was like a miracle drug. However, the injection sites were so swollen and itchy I stopped taking the injections for 2 wks. All my symptoms came back so I tried it again for 3 wks. same thing happened so I stopped again. Now my doctors are telling me to try it again in combination with methotrexate. I am also on medrole too. Do you have any suggestions to stop itching or swelling. I have tried icing before the injection, taking the meds out an hr before. I know it is not a histamine reaction, so none of theantihistamine drugs or creams work. I only wish I could tolerate the itching. Any help would be greatly apppreciated. a Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.