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april,thank you

im guessing the prednisone helped with the chest pains now that i think about

it, because ive been on pred for over 2 weeks now.

everything is soo frustrating, swelling hasn't gone down yet, im gaining weight

like crazy, i feel like im constantly eating.

i can finally sleep at night tho thanks to zanaflex but after 6.5 hrs exactly i

wake up from all the pain. i also take vicodin during the day when i cant stand

the pain anymore but it doesn't completely get rid of it. i hate taking all of

those pills, but it looks like this is to only way to deal with it now.

ive been on kineret for about a month, and i don't think its fully working yet.

i have fevers, rashes n pain every day.

is anyone symptom free and taking kineret? maybe instead of wasting my time with

kineret i should move on and try something else?

i finally got in to c a u of m specialist in ann arbor, mi, maybe they will find

a way to help me in some other way to get rid of this thing. ;-/

since all of these meds are so expensive does anyone know anybody who uses

medical marijuana ? isnt that cheaper, or better or is it a sham ? i found a lot

of informations about antiinflammatory properties when it comes to medical

cannabis but, i dont really believe it. does anyone smoke it and could swear

that its real?

-ewelina

>

> Oh, honey...you have every right to be upset. Yes, there's a lot of truth in

> your feeling, and you are not alone. When I first started taking Kineret, I

> was told it could take up to 6 weeks to start helping. I was in horrible

> shape and thought i'd never last if I had to wait 6 weeks. Fortunately for

> me, it started to help in about 2 1/2 weeks, but it did take longer to feel

> the full effects. I have heard from others that it didn't really do a lot

> for, though. There are other medications that can be tried if Kineret

> doesn't work. It's just the one that usually works best, so that's the one

> we usuallh start with when we have to go on a biologic medication. And yes,

> people taking biologics are atgreater risk for cancers, including rare

> cancers, but that doesn't mean that we usually get them. The disease is hard

> on our bodies, and the meds we take to control the disease are hard on our

> bodies. I am sorry you are going through everything right now. As far as

> your stabbing sharp pain and your difficulty breathing, call your doctor.

> Could be inflammation of the lungs, could be pericarditis. Either way, you

> may need some more antivinflammatories andor sterroids or a dosage change.

>

> Good luck,

> April

>

> Sent from my Verizon Wireless Phone

>

>

>

>

>

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