Re: Wondering about Sjogren's :(

[Guest guest]

Hi, Chloe,

Sjogrens often remits and relapses - gets better, then gets worse, over and

over. In some people, it does go away. Unfortunately, with an autoimmune

disease, it's hard to predict.

As with any chronic disease, you will need to figure out what makes it better

and what makes it worse. That will take time. Lots and lots of time. But, one

important thing is to not take anything that affects the immune system directly

without discussing it with your doctor - a specialist in immunology would be

best.

 

Jerry

[Guest guest]

Chloe/Steve,

Sjogren's is a multi-faceted condition with various presentations and each

individual needs to be treated according to his/her particular case.

Some of the symptoms of Sjogren's, such as painful joints, may respond to

steroid therapy. However, the underlying symptoms such as dry eyes, little or

no saliva, GERD from lack of saliva to wash the esophagus, and abnormal oral

deterioration will most likely not respond to steroids. These symptoms are

treated with eye drops and oral moisteners with enzymes such as the Biotene

product line.

Other components that may not respond to steroids include muscle pain, fatigue

and brain fog. The symptoms associated with Sjogren's may worsen over time, or

may reach a steady level. My personal experience with Sjogren's and experiences

of friends with the disease are that the dryness, fatigue, and cognitive issues

do not improve. I hope you can prove us wrong.

>

> Wondering... is there any hope at all that my Sjogren's will get better?

> Most days, like today... I feel like it's only getting worse.

> Chloe

>

[Guest guest]

From my extensive research into CFS and living with it for many years and

more importantly recovering so as to be able to run my own business, I am

totally and utterly convinced that CFS/ME is caused by heavy metal toxicity

mainly mercury. Sjogrens is one of the symptoms of mercury toxicity!!

Barbie