how long does it take for kineret to finally work?

[Guest guest]

im getting frustrated with this disease already, kineret is not working!

=-{

ive had about 18 injections now, and im not feeling any better.

everything hurts, the knee swelling did not go down, its been months since my

knees looked normal

how long does it take for injections to finally kick in ?

i feel like im getting a lil worse, i started having stabbing/sharp pain when im

breathing in, and im out of breath a lot more often, and i started having high

blood pressure.

any miracle ways to get the swelling down? ive tried ice,coconut oil,flax seed

oil, vitamin e and fish oil too.(btw i took 10 pills of fish oil a day for a

while, but dont try it, i found my eyes to be very dry and i had to go down to 3

a day. how do i get rid of this crazy swelling? im taking prednisone again 10mg,

but thats probably not gonna do anything either.

injections are not that scary anymore,im getting used to them, it just drives me

crazy how some spots are more itchy than the other ones. (ive been poking my

stomach)

is it okey if i keep doing it in my abdomen?or do i honestly have to do legs and

other areas too? ive been switching sides from left to right. it looks like a

war zone, red dots everywhere and few bruises :-/ here and there. i actually

poked few blood vessels. turns out im not so smart after all. my hands are

getting more deformed, same with my toes. my husband calls em peanut toes.since

the weather is becoming warmer ive been avoiding everybody and staying inside

the house with the dog most of the time.im all swollen and that rash is soooo

embarrassing too, shows up whenever it feels like it, im starting to hate what

see in the mirror.

ive been trying to get in to u of m in ann arbor, so far no response. i keep

calling, keep faxing all the documents from docs office and still nothing. wuts

goin on? every time i call i get the same response " ur not in our system " im

going bananas here!

im still trying to get someone to cover the injections, i faxed my ppr work to

sobi patients assistance program and they told me my insurance will cover it for

less than 20$ a month, then the lady transfers me to acredo pharmacy, acredo

tells me i have to go thru medco and gives me phone number to specialty pharmacy

referral line which is actually wallgreens and wallgreens doesnt cover a dime.

once i finally found phone number for medco, i was told by a very rude guy to

have my doctor fax all the ppr work to them, they faxed it two days ago, and i

still no answer on the status of the prescription. am i really that unlucky? or

am i seriously doing everything wrong? i called the insurance company few times

too, all i get is im sorry im unable to help you n they transfer me.

this has been a pretty bad experience.

im honestly tired of everything, on top of that my mom noticed that theres

something wrong with me(shes 63 and ive been hiding stills from her]. now that

she knows, sometimes she thinks its her fault that im suffering and that usually

ends up with a crying session or she comes up with crazy ideas like: " you

probably got sick from your dog " and/or " its from smoking " . I know smoking is

bad, but honestly i feel like its helping me with the stress, im just hoping it

doesn't prevent kineret from working.

sorry for blah blah blahing but i dont feel i can deal with this on my own.

scary thing i read online about people using biologic meds or people with

autoimmune disease most likely to get leukemia? any truth in that?

-ewelina