Guest guest Posted February 17, 2012 Report Share Posted February 17, 2012 I am new to the group and am glad I found it. I was diagnosed with CFS about 17 years ago, but was told there was nothing they could do for me and was sent on my way. They did try the B12 shots however, 2 x a week for 3 months but there was no change. I struggled through college and the university with it and it was so hard. Now I am getting progressively worse it seems and I am desperate to learn more and fix this! I have tried coffee and energy drinks and pills and they all seem to work the opposite on me ... I fall asleep instead of perk up. Do ya have any ideas for the newbie in the group? I am also going to spend some time this weekend going through the posts on here as well. Thank you, Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2012 Report Share Posted February 18, 2012 Welcome Jodi, My name is aka De(less typing...lol) I have full body RSD/CRPS which stands for reflex sympathetic dystrophy/complex regional pain syndrome. Basically it is caused by your sympathetic nervous system goes into over load and tells your brain you are in pain when you shouldn't be and once it starts there is no way to turn it off. Mine started over 15 years ago when I stress fractured a bone in the top of my right foot. By the time my employers w/c(workers comp) carrier was through dragging me from hearing to hearing to hearing to trail and then the appeal(all of which I won without a lawyer I might add...talk about great for a gals ego...lol) it was either 8 or 10 days short of a year from the date of my injury. By them taking that long it allowed the rsd to spread from a spot the size of a half dollar to my entire body. I've developed fibromyalgia, degenerative disc disease and osteoporosis on top of the RSD. I'm never pain free. I don't care what medication nor how much I always hurt. I've had what is called an intrathecal pump implanted or a morphine pump since July of 1999. I wouldn't be here without it. I look forward to getting to know you. If you have any questions let me know. Again welcome to the family! Blessed Be...De A MIND IS LIKE A PARACHUTE...IT ONLY WORKS WHEN IT'S OPEN. Enter the text to appear at the bottom of each email you send >________________________________ > >Subject: Hello my name is Jodi > > >I am new to the group and am glad I found it. I was diagnosed with CFS about 17 years ago, but was told there was nothing they could do for me and was sent on my way. They did try the B12 shots however, 2 x a week for 3 months but there was no change. >I struggled through college and the university with it and it was so hard. Now I am getting progressively worse it seems and I am desperate to learn more and fix this! >I have tried coffee and energy drinks and pills and they all seem to work the opposite on me ... I fall asleep instead of perk up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2012 Report Share Posted February 20, 2012 De wow I feel for you. Thank you for the input. Im glad I found some support groups for a long time I thought I was crazy and that it was all in my head. At least that was what many told me. I will continue to work on getting better. Jodi >________________________________ > >Subject: Re: Hello my name is Jodi >Welcome Jodi, >My name is aka De(less typing...lol) I have full body RSD/CRPS which stands for reflex sympathetic dystrophy/complex regional pain syndrome. Basically it is caused by your sympathetic nervous system goes into over load and tells your brain you are in pain when you shouldn't be and once it starts there is no way to turn it off. > Mine started over 15 years ago when I stress fractured a bone in the top of my right foot. By the time my employers w/c(workers comp) carrier was through dragging me from hearing to hearing to hearing to trail and then the appeal(all of which I won without a lawyer I might add...talk about great for a gals ego...lol) it was either 8 or 10 days short of a year from the date of my injury. By them taking that long it allowed the rsd to spread from a spot the size of a half dollar to my entire body. I've developed fibromyalgia, degenerative disc disease and osteoporosis on top of the RSD. > > I'm never pain free. I don't care what medication nor how much I always hurt. I've had what is called an intrathecal pump implanted or a morphine pump since July of 1999. I wouldn't be here without it. > > I look forward to getting to know you. If you have any questions let me know. Again welcome to the family! > > Blessed Be...De Quote Link to comment Share on other sites More sharing options...
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