Guest guest Posted July 7, 2012 Report Share Posted July 7, 2012 Hello Maureen & Holly, I very seldom write in the email group anymore because I usually only have enough energy to do very little on the internet and I usually choose to do facebook in order to reach all my friends. I just had to respond to this because it hits home with me. I too am trying to ween myself off of prednisone and am having a hard time doing it.I can usually reduce by half, but now that I am down to 5 mg a day it is so hard. My rheummy allows me to ween myself just as long as I call his office and let him know that I am doing it. I may have to take your advice and ween down by 1 mg at a time. On another note, I am with you Maureen about focusing on something happy every night before going to bed. Last year for Mother's Day my son gave me what looks like a Faberge Egg. It actually opens up and is a wind up music box. I play this every night before going to bed. It just soothes my soul and for those few minutes while it's playing, it's like the dragon doesn't exist. It reminds me of family and beautiful music and because of how pretty it is just plain ol beauty. I love it and have vowed to myself that for as long as it works I will play it every night before bed. So I feel better knowing that I am not the only one doing something special before bed to help " wind down " so to speak. Have a very blessed night and I pray that we all have pain free days in our future. Take Care, Sherry, Toledo, Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2012 Report Share Posted July 7, 2012 Hi Sherry 5 mg and below I would suggest the most you should reduce by is half a mg (and below 2 mg by 1/4) the 1mg tabs break easily. (I'm not a Dr, and don't want to offend anyone by this advice. It is just my experience, understanding and experimentation with Pred reduction that prompts me to suggest this) Take care and look after your musical egg! I am glad you have your special something to keep you going. Kind regards Maureen > Hello Maureen & Holly, > I very seldom write in the email group anymore because I usually only have enough energy to do very little on the internet and I usually choose to do facebook in order to reach all my friends. I just had to respond to this because it hits home with me. I too am trying to ween myself off of prednisone and am having a hard time doing it.I can usually reduce by half, but now that I am down to 5 mg a day it is so hard. My rheummy allows me to ween myself just as long as I call his office and let him know that I am doing it. I may have to take your advice and ween down by 1 mg at a time. > > On another note, I am with you Maureen about focusing on something happy every night before going to bed. Last year for Mother's Day my son gave me what looks like a Faberge Egg. It actually opens up and is a wind up music box. I play this every night before going to bed. It just soothes my soul and for those few minutes while it's playing, it's like the dragon doesn't exist. It reminds me of family and beautiful music and because of how pretty it is just plain ol beauty. I love it and have vowed to myself that for as long as it works I will play it every night before bed. So I feel better knowing that I am not the only one doing something special before bed to help " wind down " so to speak. > > Have a very blessed night and I pray that we all have pain free days in our future. > > Take Care, > Sherry, Toledo, Ohio > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2012 Report Share Posted July 7, 2012 Hi Sherry 5 mg and below I would suggest the most you should reduce by is half a mg (and below 2 mg by 1/4) the 1mg tabs break easily. (I'm not a Dr, and don't want to offend anyone by this advice. It is just my experience, understanding and experimentation with Pred reduction that prompts me to suggest this) Take care and look after your musical egg! I am glad you have your special something to keep you going. Kind regards Maureen > Hello Maureen & Holly, > I very seldom write in the email group anymore because I usually only have enough energy to do very little on the internet and I usually choose to do facebook in order to reach all my friends. I just had to respond to this because it hits home with me. I too am trying to ween myself off of prednisone and am having a hard time doing it.I can usually reduce by half, but now that I am down to 5 mg a day it is so hard. My rheummy allows me to ween myself just as long as I call his office and let him know that I am doing it. I may have to take your advice and ween down by 1 mg at a time. > > On another note, I am with you Maureen about focusing on something happy every night before going to bed. Last year for Mother's Day my son gave me what looks like a Faberge Egg. It actually opens up and is a wind up music box. I play this every night before going to bed. It just soothes my soul and for those few minutes while it's playing, it's like the dragon doesn't exist. It reminds me of family and beautiful music and because of how pretty it is just plain ol beauty. I love it and have vowed to myself that for as long as it works I will play it every night before bed. So I feel better knowing that I am not the only one doing something special before bed to help " wind down " so to speak. > > Have a very blessed night and I pray that we all have pain free days in our future. > > Take Care, > Sherry, Toledo, Ohio > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2012 Report Share Posted July 8, 2012 Thank you, Sherry, for sharing that lovely image of your egg music box. What a lovely gift. I think you're both right, that the more we can focus on the beauty around us, and not worry about the future, we can find more happiness. Pema Chodron talks a lot about that in her wonderful books and CDs. She talks about allowing all the emotions to come and go, looking at each one.. and not latching on to it. I used to tell my clients that emotions are about 20 seconds long... imagine them running by like a varigated yarn.. and yellow goes by, and blue, and pink, but then comes red! or black! and boy, we grab on tight to those.. we know them.. anger and depression... and while we're hanging on so tightly to those more colored yarn emotions are floating by every 20 seconds... but we are already stuck holding tight to the hard colors we chose and don't have another hand to reach out for the softer, gentler emotions.. yellow, blue, green... look at what you hold onto most... and see if you really want it! Love and blessings to all, *Holly * *hollydorst@...* * * Quote Link to comment Share on other sites More sharing options...
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