Guest guest Posted January 12, 2012 Report Share Posted January 12, 2012 Hi all, Our chat is at our International Still's Disease home page. The link is www stillsdisease.org It's always available. The first page has the button on the left. Now when you are chatting if it stalls you may have to return to the home page and click chat again. It's a glitch in the system that happens to everyone now and then. Please feel free to use the page at any time. The International site also has a blog section, all the articles about research on Still's disease. Tests, symptoms, histories, memorials and so much more. Do visit sometime. We have just gotten control back and are weekly working on the site to update and improve it so check back often for conference information and new features. Have a good night all. I will be home tomorrow evening. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2012 Report Share Posted January 12, 2012 Hi, Does anyone in the group feel like chatting tonight. I’m logged in to chat and ready to talk to you. I found the directions from to be what worked. Anyway, my daughter just called me crying and screaming that her jaw hurts so bad and we are trying to decide if ER or wait for doctor tomorrow. She’s had symptoms for a couple months,then it feels better so she doesn’t do anything about it, then it starts to become this painful again, but never this bad. She just wanted to hear my voice, but the poor thing is suffering so. We think it could be TMJ or Still’s. Or a bad tooth. Need some help with home remedies until tomorrow too if anyone has something that works. I already told her to try hot compressess or warm tea. The weird thing is that I bought her a new pillow by Tony Little from HSn, and she said she woke up without jaw pain for the first time this morning. She had to have synvisc yesterday on her knees so she can’t walk around much today, so she has been laying around or she could go for a walk and that might help. Being a mom sucks when you have to watch your child be in pain and there is nothing you can do about it. Love to you all, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2012 Report Share Posted January 12, 2012 Hi, Does anyone in the group feel like chatting tonight. I’m logged in to chat and ready to talk to you. I found the directions from to be what worked. Anyway, my daughter just called me crying and screaming that her jaw hurts so bad and we are trying to decide if ER or wait for doctor tomorrow. She’s had symptoms for a couple months,then it feels better so she doesn’t do anything about it, then it starts to become this painful again, but never this bad. She just wanted to hear my voice, but the poor thing is suffering so. We think it could be TMJ or Still’s. Or a bad tooth. Need some help with home remedies until tomorrow too if anyone has something that works. I already told her to try hot compressess or warm tea. The weird thing is that I bought her a new pillow by Tony Little from HSn, and she said she woke up without jaw pain for the first time this morning. She had to have synvisc yesterday on her knees so she can’t walk around much today, so she has been laying around or she could go for a walk and that might help. Being a mom sucks when you have to watch your child be in pain and there is nothing you can do about it. Love to you all, Quote Link to comment Share on other sites More sharing options...
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