Guest guest Posted July 6, 2012 Report Share Posted July 6, 2012 Hello to all! I have not been able to go to the chat sessions for various reasons, so I hope talking here will be OK. I'm having one of 'those' days. Was vomiting all last night which seems to be one of my least favorite flare issues. It comes on that way sometimes and then I'm wiped out for several days after that. I'm between a rock and a hard place with my OxyContin and prednisone. My rheumatologist wants me to ramp down from the 10mg of prednisone to 7.5, to 5 to none... And at the same time my pain doc is trying to ramp down my pain mess, so maybe that's what brought on this flare. Still's is such a brittle disease, it doesn't give any room for change, does it? Fran, I'm afraid I didn't follow all you were saying about the skeleton of a plan, but if you meant that having a plan that can accept change along the way, then, yes, I'd agree with that. I've discovered that I have to 'protect' my mind when I'm in a flare. I'm suseptible to going down a tunnel of negativity and scary thoughts when a flare is on me. I can tell my mind isn't right, and I can tell that my thoughts are different, and I know that is a very important time to talk to people about anything. If I don't, I spin into a weird head space where things are frightening. Does anyone else have that, or am I the only lucky one? Blessings and peace to all, the Laramie fires are 55% contained, so maybe we won't be breathing smoke much longer. Love to all Holly -- *Holly * *hollydorst@...* * * Quote Link to comment Share on other sites More sharing options...
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