Guest guest Posted October 6, 2000 Report Share Posted October 6, 2000 >shut up don't you dare.. shut up, that is.. about two days after Mette came home from the hospital (where I thought she would never leave) I was sitting at the computer, reading the group and crying.. crying because it was so damn scary.. I couldn't believe the pain, suffering, heartache I was reading about.. it was killing me.. just that.. and, if I thought is was going to happen to my wife I became non-functional with grief.. know what Mette said: " Maybe it would be better if you didn't read all that stuff.. " she may still be right.. but I'm hard headed.. I do NOT know the " best " way to go with the group.. yes, some of it is DAMN scary.. I try to use the the fear it puts into me to spur action.. and, I've got a lot of things going on right now that I hope, in some small way, will help the group, and all PSC'ers.. some day.. I'm afraid its gonna be impossible to take the fear out of this disease, or the group, or the groups messages.. we can expect---well, at least hope---that there might be a new member joining at any time, any day---heck, maybe every day--- so, when might one ask the " simple " question that *has* to have the scary synptoms attached OR the potential answer can't possibly be near correct.. see what I mean? and do NOT take this as any kind of personal attack on YOUR opinion.. I think you have bravely voiced a valid concern: How do we take care of the current members and not scare off the hurting person that JUST joined us? its a REAL good question, and I do not have the answer.. maybe said it best: " I'm just asking everyone to be considerate. " what more can we ask of ourselves? I'm damn scared for the future of this disease in my life and I not so much a man that I can't admit to that.. I realize that I have not always been as considerate of others as I should have been...and for that I'm very sorry...I'll try to do better.. NOW, if you shut up I WILL quit! so, keep at it! DenverD: husband of Mette (44), UC '73, dx PSC 6/2000 alive in Denmark <www.Texan.dk> Email: OrdSmed@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2000 Report Share Posted October 6, 2000 The OrdSmed wrote: > > I do NOT know the " best " way to go with the group.. > yes, some of it is DAMN scary.. > I try to use the the fear it puts into me to spur action.. > and, I've got a lot of things going on right now that I hope, in some small > way, will help the group, and all PSC'ers.. > some day.. > > I'm afraid its gonna be impossible to take the fear out of this disease, or > the group, or the groups messages.. Very good comments. I'd also like to add that, although many of the things on this group can be scary, to me it's a lot more scary not knowing what might happen. It's especially scary when things start happening to you and you have no idea what's going on or what it all means. When I first read about a variceal bleed on this group, I said to myself " I sure hope that doesn't happen to me... it sounds awful! " Well, it did happen to me this January, and I was *very* glad I had read about it on the group first! Because of that, I knew what was happening, and what I needed to do about it. We can brood on fear and let it rule our lives, but we can also use it constructively (as Denver is doing) to help us. athan > we can expect---well, at least hope---that there might be a new member joining > at any time, any day---heck, maybe every day--- > so, when might one ask the " simple " question that *has* to have the scary > synptoms attached OR the potential answer can't possibly be near correct.. > > see what I mean? > and do NOT take this as any kind of personal attack on YOUR opinion.. > I think you have bravely voiced a valid concern: > > How do we take care of the current members and not scare off the hurting > person that JUST joined us? > > its a REAL good question, and I do not have the answer.. > maybe said it best: " I'm just asking everyone to be considerate. " > > what more can we ask of ourselves? > I'm damn scared for the future of this disease in my life and I not so much a > man that I can't admit to that.. > > I realize that I have not always been as considerate of others as I should > have been...and for that I'm very sorry...I'll try to do better.. > > NOW, if you shut up I WILL quit! > so, keep at it! > > DenverD: husband of Mette (44), UC '73, dx PSC 6/2000 > alive in Denmark <www.Texan.dk> Email: OrdSmed@... > Quote Link to comment Share on other sites More sharing options...
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